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Richard Edwards

@edwardsr0203.bsky.social
129 followers 125 following 145 posts

Disability policy and systems advocate. Dad. Husband. Musician. NC resident.

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Reposted by Richard Edwards
ANCOR @therealancor.bsky.social · 01/10/2026
In the latest from @disabilityscoop.bsky.social, ANCOR's Barbara Merrill & Tom Rice share why services for people with disabilities may appear to exist on paper, but will become impossible to access in practice if we don't combat the direct support workforce crisis now.
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Reposted by Richard Edwards
Disability Scoop @disabilityscoop.bsky.social · 28/09/2026
The federal government will do away with rules requiring that people with #disabilities be served in the community under a settlement with a handful of states that advocates say sidesteps decades of precedent. #Section504 #DisabilityRights
disabilityscoop.com
Trump Administration Gets OK To Scale Back Disability Protections
The government will do away with rules requiring that people with disabilities be served in the community under a settlement with a handful of states that advocates say sidesteps decades of precedent.
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Reposted by Richard Edwards
ANCOR @therealancor.bsky.social · 22/09/2026
StoryCorps, in partnership with @librarycongress.bsky.social, invited two DSPs from EPI, Kimberly Bumgardner Bergman and Danielle Knavel, to share their COVID-19 experiences as part of the COVID-19 American History Project.
archive.storycorps.org
Kimberly Bumgardner Bergman and Danielle Knavel
Kimberly Bumgardner Bergman (48) speaks with colleague Danielle Knavel (42) about their work as Direct Support Professionals (DSP). Kimberly recalls the period she decided to move in with a group to p...
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Reposted by Richard Edwards
Disability Scoop @disabilityscoop.bsky.social · 18/09/2026
New federal guidance is detailing how more stringent #Medicaid eligibility rules will be applied but doing little to assuage concerns about how the changes may impact those with developmental #disabilities.
disabilityscoop.com
As Medicaid Changes Near, Concerns Mount That People With Disabilities Will Lose Coverage
New federal guidance is detailing how more stringent Medicaid eligibility rules will be applied but doing little to assuage concerns about how the changes may impact those with developmental disabilit...
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Reposted by Richard Edwards
Marketplace @marketplace.org · 17/09/2026
The Medicaid cuts under the big Republican tax and spending law signed just over a year ago were the largest in the program's history. As a result, states have been slashing their Medicaid budgets, cutting services like home healthcare for the elderly.
marketplace.org
What Medicaid cuts mean for those who rely on home healthcare
People with disabilities or the eldelry may be forced to live at a nursing home or other institution as Medicaid cuts make access to home healthcare services harder to access.
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Richard Edwards @edwardsr0203.bsky.social · 16/09/2026
Here in DC with @therealancor.bsky.social advocating for people with disabilities and for the DSPs who provide their care! #anchoredinadvocacy
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Reposted by Richard Edwards
NC Newsline @ncnewsline.com · 09/09/2026
For this Mama Bear, home is a right worth fighting for ncnewsline.com/2026/09/09/f... (commentary) #ncpol
ncnewsline.com
For this Mama Bear, home is a right worth fighting for • NC Newsline
On June 18, 2026, the Department of Justice’s Office of Legal Counsel issued a formal opinion arguing that neither Section 504 of the Rehabilitation Act nor Title II of the ADA requires states to serv...
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Richard Edwards @edwardsr0203.bsky.social · 22/08/2026
Optimist: the cup is half full Pessimist: the cup is half empty Me: who left this cup here...and without a coaster?!
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Reposted by Richard Edwards
ProPublica @propublica.org · 21/08/2026
Teressa found herself raging at what she labeled the insurance company’s “weaponized incompetence.” Fax numbers were wrong. Key records were no longer available online. The insurer wouldn’t even give her access to her husband’s medical records. (Published Sept. 2025)
propublica.org
“Just Let Me Die”: After Insurance Repeatedly Denied a Couple’s Claims, One Psychiatrist Was Their Last Hope
After a North Carolina man attempted suicide twice, his wife tried to get him help at an inpatient clinic. But their insurance provider refused to cover the treatment, deeming it “not medically necess...
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Reposted by Richard Edwards
NPR @npr.org · 20/08/2026
Siblings Cody and Kaleigh Brendle have grown up with the right to community integration. Now, they worry those protections for people with disabilities like them are being eroded.
n.pr
They grew up with disability rights. Now, they're fighting to keep them
Siblings Cody and Kaleigh Brendle have grown up with the right to community integration. Now, they worry those protections for people with disabilities like them are being eroded.
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Reposted by Richard Edwards
ANCOR @therealancor.bsky.social · 20/08/2026
TIME published an op-ed from Barbara Merrill and the Honorable Tony Coelho addressing the current attacks on disability rights that threaten the promised right to inclusion for people with disabilities. Read here:
graphic with quote from article: 'The debate over how we invest in Medicaid cannot be separated from the debate over civil rights for people with disabilities.' -Barbara Merrill, ANCOR CEO & The Honorable Tony Coelho

quote is overlayed on a background of a person in a mobility device raising a fist
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Richard Edwards @edwardsr0203.bsky.social · 20/08/2026
At the Ohio Disability Policy Candidate forum organized by the Ohio Olmstead Task Force. Outstanding turnout and super well organized! #VoterRights #advocacy
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Reposted by Richard Edwards
PHI @phinational.bsky.social · 18/08/2026
More than 710,000 people were on HCBS waiting lists in 2024. McKnight's Senior Living looks at how the reintroduced HCBS Access Act would expand access and strengthen the direct care workforce. www.mcknightsseniorliving.com/news/how-the...
mcknightsseniorliving.com
How the HCBS Access Act would reshape assisted living demand and workforce
Legislation that would make home- and community-based services a mandatory Medicaid benefit has been reintroduced in the Senate, with potential benefits for assisted living providers and the older adu...
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Richard Edwards @edwardsr0203.bsky.social · 09/08/2026
We are witnessing a steady retrenchment of disability rights, some of which ties back to perceptions around contribution and productivity. However, if the net result is an increase in the use of the R-word, we should ask ourselves what we are producing. www.notus.org/perspectives...
notus.org
Why the R-Word Is the Defining Slur of the Trump Era
Last Thanksgiving, while the rest of us were trying not to start a fight at the dinner table, President Trump started one on the internet. He took to Truth Social to call Minnesota Gov. Tim Walz “seri...
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Reposted by Richard Edwards
ANCOR @therealancor.bsky.social · 06/08/2026
Today, the Senate Homeland Security & Governmental Affairs Committee voted the Recognizing the Role of DSPs Act unanimously out of committee. Help us keep up the momentum. Take action today & ask your members of Congress to support the direct support workforce!
ancor.org
Tell Congress to Support the Recognizing the Role of DSPs Act | ANCOR
The bipartisan Recognizing the Role of Direct Support Professionals Act urges the Office of Management and Budget to establish a Standard Occupational Classification (SOC) for direct support professio...
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Reposted by Richard Edwards
ANCOR @therealancor.bsky.social · 04/08/2026
In the latest from @washingtonpost.com, Lydia Dawson, ANCOR Vice President of Government Relations, shares why we're concerned about the administration's commitment to community integration. Read more ⬇️
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Reposted by Richard Edwards
ANCOR @therealancor.bsky.social · 03/08/2026
Next up for the Recognizing the Role of DSPs Act: a markup in the Senate Homeland Security & Governmental Affairs Committee on 8/5. We need your help to keep up the pressure to pass this bill. Take action & ask your members of Congress to support the direct support workforce!
ancor.org
Tell Congress to Support the Recognizing the Role of DSPs Act | ANCOR
The bipartisan Recognizing the Role of Direct Support Professionals Act urges the Office of Management and Budget to establish a Standard Occupational Classification (SOC) for direct support professio...
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Reposted by Richard Edwards
ANCOR @therealancor.bsky.social · 31/07/2026
In politico.com's West Wing Playbook newsletter, ANCOR CEO Barbara Merrill shares why ANCOR is fighting for community living for people with disabilities in light of the U.S. Department of Justice's new guidance. Learn more ⬇️
politico.com
Trump DOJ upends disability rights guidance
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Reposted by Richard Edwards
Disability Scoop @disabilityscoop.bsky.social · 24/07/2026
The Trump administration is withholding more #Medicaid payments, citing suspected fraud and compliance concerns involving programs serving people with developmental #disabilities and others.
disabilityscoop.com
Medicaid Withholds Over $1 Billion In Funds To States
The Trump administration is withholding more Medicaid payments, citing suspected fraud and compliance concerns involving programs serving people with developmental disabilities and others.
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Reposted by Richard Edwards
ANCOR @therealancor.bsky.social · 23/07/2026
Each July, Disability Pride Month invites us to celebrate the strength, diversity, and contributions of people with disabilities while recognizing the importance of creating communities where everyone has the opportunity to thrive. by Jordan Baker, Relias www.ancor.org/connections/... #connections
ancor.org
Disability Pride Month: Honoring Progress, Advancing Inclusion Every Day | ANCOR
While tremendous progress has been made over the past three decades, Disability Pride Month reminds us that inclusion is an ongoing commitment — one that requires all of us to continue removing barrie...
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Richard Edwards @edwardsr0203.bsky.social · 23/07/2026
Fraud, waste, and abuse.
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Richard Edwards @edwardsr0203.bsky.social · 17/07/2026
amivie.com/blog/lois-cu... In light of yesterday's entry into the federal registry by the US DOJ, I'm sharing this a little early.
amivie.com
Lois Curtis & the Olmstead Decision: Why It Still Matters | Amivie
More than 25 years after Olmstead, the right to community-based care is being challenged again. Amivie's VP of Government Relations reflects on what's at stake.
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Reposted by Richard Edwards
Disability Scoop @disabilityscoop.bsky.social · 13/07/2026
Federal education officials are offering up more specifics about their plans to offload many #SpecialEducation responsibilities, but their efforts to reassure stakeholders are doing little to ease concerns. #disabilities
disabilityscoop.com
Ed Department Details Plans To Outsource Special Education, Relocate Staff
Federal education officials are offering up more specifics about their plans to offload many special ed responsibilities, but their efforts to reassure stakeholders are doing little to ease concerns.
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Reposted by Richard Edwards
ANCOR @therealancor.bsky.social · 01/07/2026
ANCOR is proud to support the Supporting Our Direct Care Workforce and Family Caregivers Act reintroduced by @kaine.senate.gov. This bill will improve disability services by making much-needed investments to support the direct care workforce and family caregivers. Learn more ⬇️
kaine.senate.gov
Kaine Introduces Legislation to Support Direct Care Workforce, Family Caregivers | U.S. Senator Tim Kaine of Virginia
WASHINGTON, D.C. – Today, U.S. Senator Tim Kaine (D-VA), a member of the Senate Health, Education, Labor and Pensions (HELP) Committee, introduced the...
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Reposted by Richard Edwards
ANCOR @therealancor.bsky.social · 22/06/2026
On the anniversary of the Supreme Court's Olmstead decision, we must reaffirm our commitment to community inclusion. Read ANCOR CEO Barbara Merrill's response to DOJ's harmful memo that would undermine individuals’ access to community-based services.
ancor.org
ANCOR Issues Statement on Department of Justice Integration Mandate Memo | ANCOR
While such a memo does not have the force and effect of law, it represents the latest in a long line of actions subverting dignity, choice and community for people with disabilities—principles that ar...
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Reposted by Richard Edwards
Ohio Capital Journal @ohiocapitaljournal.com · 28/05/2026
Federal Medicaid chief Dr. Mehmet Oz is supporting Ohio Gov. Mike DeWine after other state leaders accused him of allowing rampant fraud. The allegations of a widespread issue are currently unproven. ohiocapitaljournal.com/2026/05/28/d...
ohiocapitaljournal.com
Dr. Oz trusts Gov. DeWine’s handling of Medicaid, as other Republicans express fraud concerns • Ohio Capital Journal
Federal Medicaid chief Dr. Mehmet Oz is supporting Ohio Gov. Mike DeWine after other state leaders accused him of allowing rampant fraud. The allegations of a widespread issue are currently unproven.
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Richard Edwards @edwardsr0203.bsky.social · 28/05/2026
I thought this was a fascinating conversation on the caregiving industry. Well worth a listen. mcknights-newsmakers-podcast.simplecast.com/episodes/new...
mcknights-newsmakers-podcast.simplecast.com
New CareWorks Project aims to reimagine long-term care for private sector, government | McKnight's Podcast
The challenges facing the long-term care system, which includes older adults, people with disabilities, direct care workers and family caregivers, are worsening, according to Robert Espinoza, founder ...
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Reposted by Richard Edwards
ANCOR @therealancor.bsky.social · 19/05/2026
Today in @thehill.com , ANCOR CEO Barbara Merrill, @easterseals.bsky.social President & CEO Kendra Davenport, and UCP Interim President & CEO Diane Wilush highlight the caregiver workforce crisis and why policymakers must invest in community-based services. Read our op-ed ⬇️
thehill.com
The caregivers you’ve never heard of are in crisis
This workforce and the home and community-based care system that supports them is in crisis.
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Reposted by Richard Edwards
NC Health News @nchealthnews.bsky.social · 18/05/2026
Family members and home care advocates worked the legislative hallways last week. They were seeking better pay for home health aides, nurses and advocating for continued service levels for disabled and medically fragile people. Full story: www.northcarolinahealthnews.org/2026/05/18/n...
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Reposted by Richard Edwards
ANCOR @therealancor.bsky.social · 30/04/2026
ANCOR is proud to support the HCBS Access Act reintroduced by @debbiedingell.house.gov & @schakowsky.house.gov. This bill will make much-needed investments into the Medicaid HCBS system and strengthen access to community-based services for people with disabilities. Learn more ⬇️
debbiedingell.house.gov
Press Releases | Congresswoman Debbie Dingell
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Reposted by Richard Edwards
NC Newsline @ncnewsline.com · 29/04/2026
More than 20,000 people were waiting for what’s called a Medicaid Innovations Waiver at the end of last year, according to the state Department of Health and Human Services. That’s up from about 18,500 in mid-2024. ncnewsline.com/2026/04/29/p... @lbonner.bsky.social #ncpol
ncnewsline.com
People with disabilities ask NC legislators for funding to support community living • NC Newsline
People with disabilities and their families told NC legislators more funding is needed for a program that allows them to live in communities.
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Richard Edwards @edwardsr0203.bsky.social · 24/04/2026
My father is currently in hospice. This story scares the hell out of me. kffhealthnews.org/health-indus...
kffhealthnews.org
A ‘Barbaric’ Problem in American Hospitals Is Only Getting Bigger - KFF Health News
Patients are getting stuck in the emergency department for days while waiting for a spot in an inpatient ward.
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Reposted by Richard Edwards
ANCOR @therealancor.bsky.social · 23/04/2026
“They didn’t just denigrate family caregivers, they denigrated the work of the professionals in our fields by suggesting that all HCBS could just be done by family caregivers, and it should all be done for free," said ANCOR CEO Barbara Merrill in @nbcnews.com @mikehixenbaugh.com article. Read more:
nbcnews.com
RFK Jr. draws backlash for ripping Medicaid programs that pay people to care for relatives
Advocates for disabled people and those who care for them said they were insulted by Health Secretary Robert F. Kennedy Jr.’s allegations that the programs are "rife with fraud."
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Reposted by Richard Edwards
ANCOR @therealancor.bsky.social · 17/04/2026
ANCOR CEO Barbara Merrill issued a statement in response to HHS Secretary Robert F. Kennedy, Jr.'s remarks in front of the House Ways and Means Committee yesterday. Read the full statement below.
ancor.org
ANCOR Issues Response to Robert F. Kennedy, Jr.’s Concerning Remarks About Home- and Community-Based Services | ANCOR
The undervaluing of HCBS demeans the very real, complex, and difficult work that caregivers—whether paid or unpaid—provide.
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Reposted by Richard Edwards
Joan Alker @joanalker1.bsky.social · 09/04/2026
Check out how Medicaid helps people in your state. #MedicaidAwarenessMonth bit.ly/4bZr8KO
ccf.georgetown.edu
Medicaid: 50-State Snapshots
Click on a state below to view its fact sheet. National Snapshot Alabama Alaska Arizona Arkansas California Colorado Connecticut Delaware District of Columbia Florida Georgia Hawaii Idaho Illinois Indiana Iowa Kansas Kentucky Louisiana Maine Maryland Ma...
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Richard Edwards @edwardsr0203.bsky.social · 07/04/2026
The President's budget, it should be noted, is a reflection of priorities.
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Richard Edwards @edwardsr0203.bsky.social · 31/03/2026
Another reason we pay more as a country for healthcare and get less back in overall health.
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Richard Edwards @edwardsr0203.bsky.social · 19/03/2026
Happy World Down Syndrome Day -- March 21st! #lotsofsocks
Two feet resting on a windowsill in colorful mismatched socks.
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Reposted by Richard Edwards
ANCOR @therealancor.bsky.social · 18/03/2026
ANCOR CEO Barbara Merrill shared the per person cost of HCBS vs large state institutions during today's House hearing on health care affordability. Thank you @repbarragan.bsky.social for highlighting that HCBS is the most impactful AND cost-effective solution for people with disabilities.
Representative Barragán holding up a sheet of paper reading $70,000 v. $395,000 during a House Subcommittee hearing
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Reposted by Richard Edwards
States Newsroom @statesnewsroom.com · 18/03/2026
The Idaho Legislature’s plans to cut nearly $22 million from Medicaid disability services hit a road block Monday. via @idahocapitalsun.com
newsfromthestates.com
How will the Idaho Legislature cut the Medicaid budget? Likely disability services, lawmakers say.
The Idaho Legislature’s plans to cut nearly $22 million from Medicaid disability services hit a road block Monday.Now, lawmakers are working behind the scenes to find a path forward on making…
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Reposted by Richard Edwards
ANCOR @therealancor.bsky.social · 18/03/2026
"Home and Community Based Services make it possible for people with I/DD to carry out daily activities of living, build skills, find and keep jobs. They also allow loved ones to remain in the workforce." -Barbara Merrill, ANCOR CEO at @housecommerce.bsky.social Health Subcommittee hearing
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Reposted by Richard Edwards
ANCOR @therealancor.bsky.social · 16/03/2026
On March 18, ANCOR CEO Barbara Merrill will testify in front of the House Energy & Commerce Health Subcommittee during a hearing on health care affordability. The event starts at 10:15am ET, and can be livestreamed here -> energycommerce.house.gov/events/healt... #disability
energycommerce.house.gov
Health Subcommittee: Lowering Health Care Costs for All Americans: An Examination of the U.S. Provider Landscape
The Committee on Energy and Commerce is the oldest standing legislative committee in the U.S. House of Representatives and is vested with the broadest jurisdiction of any congressional authorizing com...
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Richard Edwards @edwardsr0203.bsky.social · 13/03/2026
www.fresheyegallery.com If you're in Minnesota, visit Fresh Eye Gallery, and a cool art space devoted to helping artists, including disabled artists, share their work.
fresheyegallery.com
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Reposted by Richard Edwards
Ohio Capital Journal @ohiocapitaljournal.com · 06/03/2026
State Medicaid budgets will be reduced by a total of $665 billion over the next decade, after President Donald Trump’s One Big Beautiful Bill Act cuts federal investment in the health insurance program, according to a new analysis. ohiocapitaljournal.com/2026/03/06/r...
ohiocapitaljournal.com
State Medicaid budgets will decline by $665 billion under new federal law, report finds • Ohio Capital Journal
State Medicaid budgets will be reduced by a total of $665 billion over the next decade, after President Donald Trump’s One Big Beautiful Bill Act cuts federal investment in the health insurance…
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Reposted by Richard Edwards
Autistic Self Advocacy Network (ASAN) @autisticadvocacy.org · 14/02/2026
Most disability rights lawyers work for the Department of Justice or disability rights agencies. The administration wants to cut funding for these lawyers. We have the right to live in the community, but it's hard to protect our rights if we can't find lawyers. kffhealthnews.org/news/article...
kffhealthnews.org
Disability Rights Lawyers Threatened With Budget Cuts, Reassignments - KFF Health News
The Trump administration wants deep funding cuts for state-based legal services for disabled people, as rights advocates say the Justice Department pushed out many of its lawyers who worked on such…
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Reposted by Richard Edwards
Disability Scoop @disabilityscoop.bsky.social · 10/02/2026
States facing budget shortfalls have begun cutting #Medicaid reimbursements for services. In some cases, they're targeting therapies that many families of people with #autism say are essential. #disabilities
disabilityscoop.com
It's The 'Gold Standard' In Autism Care. Why Are States Reining It In?
States facing budget shortfalls have begun cutting Medicaid reimbursements for services. In some cases, they're targeting therapies that many families of people with autism say are essential.
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Reposted by Richard Edwards
ANCOR @therealancor.bsky.social · 06/02/2026
This week Congress passed a law to remove age limits on Medicaid Buy-In programs. This is a big win for people with disabilities age 65+ who can keep their jobs without losing Medicaid.
Dome of the U.S. Capitol on a blue sky background beside text: 'Advocacy Update: Age limits removed on Medicaid Buy-In Programs'
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Richard Edwards @edwardsr0203.bsky.social · 04/02/2026
Song for Minnesota open.spotify.com/track/0CwvDV...
open.spotify.com
Song for Minnesota
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Reposted by Richard Edwards
Minnesota Reformer @minnesotareformer.com · 02/02/2026
Lawmakers of both parties questioned the Walz administration’s rollout of a fraud audit program at recent committee hearings. Providers who give care to vulnerable Minnesotans have said the rollout, which abruptly delayed critical payments, has put their businesses and clients at risk.
minnesotareformer.com
Lawmakers question Walz administration over rollout of fraud audit program • Minnesota Reformer
Gov. Tim Walz’s administration, which is trying to rein in a fraud crisis in Minnesota safety net programs while also managing an incendiary conflict with the White House, is about to face new scrutin...
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