iiinova — where your digital self keeps evolving

Reposted by Char Goodwin

Autistic Experiences of Breast Cancer research project @aebcstudy.bsky.social · 20/08/2026

This paper explores the lived experience of ten autistic people who have had a diagnosis of breast cancer and treatment in the UK. Findings identified autism-specific barriers to cancer care. These insights provide HCPs with an understanding of the barriers that exist within cancer care.

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Reposted by Char Goodwin

Autistic Experiences of Breast Cancer research project @aebcstudy.bsky.social · 20/04/2026

Recruitment for our survey is now closed. Thank you to everyone who participated, shared or reposted about the survey. The more people are aware and understand autistic experiences of cancer diagnosis and treatment, the better.

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Reposted by Char Goodwin

Autistic Experiences of Breast Cancer research project @aebcstudy.bsky.social · 02/04/2026

Call for participants! We are currently recruiting for participants to take part in a survey exploring autistic people and non-autistic peoples’ experiences of breast cancer diagnosis and treatment in the UK to see if there are any differences or similarities in their experiences.

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Char Goodwin @drchargoodwin.bsky.social · 01/04/2026

The Autistic Experiences of Breast Cancer research project is now on Bluesky, please follow to hear about the research we are doing to explore autistic people's experiences of breast cancer. Thanks

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Char Goodwin @drchargoodwin.bsky.social · 12/02/2025

Had my last Zoladex injection today. Mixed emotions. Glad to have reached 5 years past diagnosis and that my endocrine treatment will finish soon. Feel apprehensive over what will happen now. My routine is changing and I don’t know how my body will react. #AutisticHealthcare #cansky

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Char Goodwin @drchargoodwin.bsky.social · 15/11/2024

Please take a look at this blog post by @kmunday.bsky.social and I discussing healthcare barriers in cancer care for autistic people. Based on our fireside talk at OUTpatients LGBTIQ+ Cancer Conference #oncsky #cansky #medsky

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Char Goodwin @drchargoodwin.bsky.social · 24/09/2024

Autism Research Study! Participants needed for an interview study exploring the experience of breast cancer diagnosis & treatment as an autistic person (in UK) Interview questions have been co-designed with our Lived Experience Advisory Group. To find out more please go to: www.aebcstudy.co.uk

A participant recruitment advert looking for people who are aged 18 years or over, autistic (diagnosed or self-identify), been diagnosed with breast cancer (including DCIS and secondary/metastatic breast cancer), diagnosis and treatment of breast cancer in the UK, Finished active hospital treatment for initial breast cancer diagnosis (we would also like to hear from individuals on long-term treatment).

We will be interviewing 8-12 autistic people who have had a breast cancer diagnosis and treatment in the UK and we are keen to explore a range of experiences. We would particularly like to hear from autistic people who are from diverse ethnic backgrounds; are trans or non-binary; people with a learning disability; of different ages who, who have had a diagnosis of various types of breast cancer.

To find out more about more go to aebcstudy.co.uk, or email aebcstudy@exeter.ac.uk

Lead-Researcher: Dr Char Goodwin
University of Exeter, FHLS Psychology Ethics Committee: ref: 6892841

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Reposted by Char Goodwin

Thinking Person's Guide to Autism @thinkingautism.com · 04/05/2024

Menopause is an oft-overlooked autism research topic. The Bridging the Silos: Autistic Menopause project asks "how autistic people experience menopause and how they can better access information, services, and supports that might help them." autisticmenopause.com

autisticmenopause.com

AutisticMenopause.com

Bridging the Silos Publishes Research in Autism Journal Bridging the Silos has published a peer reviewed journal article on findings from their first phase of research. The article is free and Open Ac...

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Reposted by Char Goodwin

Dr. Amy, PsyD 🎃 @dramypsyd.rmh-therapy.com · 15/12/2023

I was autistic when I was a kid and everyone called me “quirky” I was autistic when I was an “awkward” teen I was autistic when a psychiatrist misdiagnosed me and said I wasn’t autistic I was autistic when I got a second opinion that confirmed I’m autistic Self diagnosis is valid 💜

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Reposted by Char Goodwin

Autistic Adam @autisticadam.bsky.social · 02/11/2023

Anyone can be inquisitive, but many Autistic people are extra thirsty for knowledge and I love it. Unknown things that intrigue others for a few minutes become our hyper fixations, special interests and areas of expertise. It’s like others *want* to know things, but we *need* to know things.

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Reposted by Char Goodwin

Twisteddoodles @twisteddoodles.bsky.social · 25/10/2023

Costumes to scare scientists.

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Reposted by Char Goodwin

Thinking Person's Guide to Autism @thinkingautism.com · 21/10/2023

If you are an autism researcher And you reject autistic participation or feedback You might want to rethink being an autism researcher (We said what we said) Inspired by the fantastic CARES Conference.

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Char Goodwin @drchargoodwin.bsky.social · 19/10/2023

@autisticdoctor.bsky.social and I were at the Breast Cancer Now event in Westminster yesterday to talk to politicians about our Autistic Experiences of Breast Cancer research project and barriers to healthcare for autistic people. sites.exeter.ac.uk/aebcstudy/

sites.exeter.ac.uk

Home

Who? We are a team of researchers from the Psychology Department and the Social and Political Sciences, Philosophy and Anthropology Department at the University of Exeter. What? A research project tha...

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Reposted by Char Goodwin

Seb Shaw @autisticdoc.bsky.social · 17/10/2023

🗞️NEW PAPER🗞️ Barriers to healthcare & a ‘triple empathy problem’ may lead to adverse outcomes for autistic adults “It was life threatening and nearly killed me because I was too ill & too disabled to access doctors” Read free: journals.sagepub.com/doi/10.1177/... @autisticdoctor.bsky.social

Screenshot showing the title, authors, journal information, and abstract

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Char Goodwin @drchargoodwin.bsky.social · 15/10/2023

The pharmacy gave me a different brand of Tamoxifen yesterday, a brand that had given me horrible side effects, and I didn’t realise until just now. I really hope there isn’t a shortage of my usual brand. #autistic #cansky

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Reposted by Char Goodwin

Ann Memmott @annmemmott.bsky.social · 05/10/2023

captapnetwork.wordpress.com/2023/09/19/h... Hurrah. Our lovely guide to using kind and respectful language about autistic people is out. Feel free to share.

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Char Goodwin @drchargoodwin.bsky.social · 03/10/2023

I am re-reading my journal extracts from when I had just finished active treatment for breast cancer, as part of the autoethnography I am writing. It’s reminds me how lost I felt at the time trying to process it all. #AutRes

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Reposted by Char Goodwin

Rose Matthews (they/them) 🏳️‍🌈 @rosematthews.bsky.social · 27/09/2023

I’m a passionate advocate for co-produced Autism research (and Autistic-led studies) not just because this is ethical and empowering, but because it results in better research with more applicable findings. One study I’m working on atm explores Autistic experiences of menopause autisticmenopause.com

autisticmenopause.com

AutisticMenopause.com

About Bridging the Silos Bridging the Silos: Autistics and Menopause is a research partnership between autistic advocates and academics studying experiences of menopause by autistic people in Canada, ...

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Reposted by Char Goodwin

Sue Fletcher-Watson @suereviews.bsky.social · 25/09/2023

Looky here! I made a feed for autism research: bsky.app/profile/did:... Post by including #AutRes or just use the words “autism research” Please follow and 🩵 Thanks @markrubin.bsky.social for the guidance. Please add this to your list!

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Char Goodwin @drchargoodwin.bsky.social · 25/09/2023

Any tips for working out how to use blue sky? Finding people I used to follow on the bird app.

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Char Goodwin @drchargoodwin.bsky.social · 24/09/2023

#HiSciSky #introduction Hello! I’m a Research Fellow at Uni of Exeter, UK exploring autistic experiences of breast cancer (funded project with Breast Cancer Now)

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