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Don Kelly

@dkindc.bsky.social
187 followers 121 following 74 posts

PD Dx 2016 (selective in following people due to time constraints) "..the symptom of gastroparesis in a Parkinson patient is delayed onset of a dose of levodopa." www.neurologylive.com/view/effects-…

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Don Kelly @dkindc.bsky.social · 07/06/2025
Trump is an "illegal?" www.appropriations.senate.gov/news/minorit...
appropriations.senate.gov
FACT SHEET: Trump’s Illegal and Unconstitutional Scheme to Withhold Funding Headed to Communities Across America | United States Senate Committee on Appropriations
United States Senate Committee on Appropriations
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CA Holt @singlecatlady29.bsky.social · 07/02/2025
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National Immigrant Justice Center @immigrantjustice.bsky.social · 31/01/2025
We're joining Amica Center for Immigrant Rights & 7 other nonprofits to challenge the Trump admin's recent stop-work order that cut off funding for legal information programs at immigration courts and ICE detention centers. Press release & complaint here: immigrantjustice.org/press-releas...
Photo of the inside of an immigration court room
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Don Kelly @dkindc.bsky.social · 02/02/2025
Is there a joke about the five lobes and 2 fissures of the lungs? Re: "Taking the five loaves and the two fish and looking up to heaven, he gave thanks..." I remember a friend shaking his head when someone told them they had triple pneumonia - He thought "you have only two lungs..."
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Soraya Nadia McDonald @soraya.press · 15/01/2025
"OptumRx, the group’s pharmacy benefit manager, along with its two main peers, Express Scripts and CVS Caremark Rx, have pocketed an extra $7.3 billion over cost thanks to price gouging, according to the findings of a report by the Federal Trade Commission." Lina Khan really is That Girl.
fortune.com
UnitedHealth, employer of slain exec Brian Thompson, found to have overcharged cancer patients for drugs by over 1,000%
The report is the latest indictment of America’s broken healthcare system.
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Don Kelly @dkindc.bsky.social · 16/01/2025
www.popsci.com/health/glyph...
popsci.com
This Roundup ingredient is riddled with controversy—here’s why
The weed-killer, also known as glyphosate, has been linked to various health issues. Still, the EPA hasn't pulled it from the market.
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The Science of Parkinson's @scienceofpd.bsky.social · 09/01/2025
Interesting: Using national health providers data in Israel, a retrospective case–control study finds tetanus–diphtheria vaccination significantly⬇️occurrence of #Parkinsons; Adjusted OR of 0.17 (95% CI [0.04, 0.70]) for PD Dx within 5 years post-vax www.mdpi.com/2227-9059/12...
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Michael Fox @foxmdphd.bsky.social · 08/01/2025
Do we need to stimulate different circuits to improve different dystonia symptoms with STN DBS? Work by Konstantin Butenko, @andreashorn.org @braincircuits.bsky.social out today in @PNAS says yes: Engaging dystonia networks with subthalamic stimulation | PNAS www.pnas.org/doi/10.1073/...
pnas.org
PNAS
Proceedings of the National Academy of Sciences (PNAS), a peer reviewed journal of the National Academy of Sciences (NAS) - an authoritative source of high-impact, original research that broadly spans...
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Don Kelly @dkindc.bsky.social · 15/12/2024
I thought my life was passing before my eyes. Then I realized I was editing family photos from "Christmases past"
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The Science of Parkinson's @scienceofpd.bsky.social · 14/12/2024
New study finds Myelin basic protein, but not TREM2, is elevated in the cerebrospinal fluid of multiple system atrophy & all atypical Parkinsonian conditions when compared to idiopathic #Parkinsons link.springer.com/article/10.1...
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Don Kelly @dkindc.bsky.social · 10/12/2024
Brain surgery may be safer than not for some folks - people who can't sleep otherwise. If DBS helps you sleep.
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Don Kelly @dkindc.bsky.social · 10/12/2024
@BillMaher is a sheep, or maybe a bad shepherd
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Kelly @broadwaybabyto.bsky.social · 10/12/2024
People have a clock when it comes to being around the chronically. They’re supportive at first - but if you don’t get better quickly - they grow resentful & abandon you. They never consider that it might be hard for US that we will never get better. They never consider our feelings at all.
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Don Kelly @dkindc.bsky.social · 09/12/2024
"Society conditions us to see rest as a failure. We value productivity at all costs. We give out attendance awards, we shame people who call in sick..." www.disabledginger.com/p/its-time-t...
disabledginger.com
It's Time to Throw Away the 'Coulda, Woulda, Shouldas' and Practice Radical Rest
When you're chronically ill you can't push your body the way non disabled people do. You have to learn to rest. There's few words more damaging to us than the 'coulda, woulda, shouldas'
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Kelly @broadwaybabyto.bsky.social · 09/12/2024
If you’re newly disabled - you may find one of the toughest battles you’ll have is with yourself. Unlearning internalized ableism, convincing yourself it’s “ok” to rest, ask for help & rely on others… these are not easy things to do. But they are critically important for survival.
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Cats World @catsloverclub.bsky.social · 07/12/2024
Cat love 🥰😍🥹
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Don Kelly @dkindc.bsky.social · 06/12/2024
"This analysis demonstrates that the rate of progression based on MDS‐UPDRS Part I is approximately 60% lower in carriers as compared to non‐carriers of LRRK2 gene mutations." www.researchgate.net/publication/... LRRK-2 carriers progress 60% slower?
researchgate.net
(PDF) A Disease Progression Model to Quantify the Nonmotor Symptoms of Parkinson’s Disease in Participants With Leucine‐Rich Repeat Kinase 2 Mutation
PDF | Leucine‐rich repeat kinase 2 (LRRK2) inhibitors are currently in clinical development as interventions to slow progression of Parkinson’s disease... | Find, read and cite all the research you ne...
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Don Kelly @dkindc.bsky.social · 30/11/2024
Exercise for Parkinson's can be bad at times. A joint that needs repair first. I just want to note, exercise isn't always good for PWP. Sends me into awful dystonic 3 hour "tempests." PT has been no help in this, and the siren call of PTs & MDs to exercise has more than once caused a lot of pain.
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Don Kelly @dkindc.bsky.social · 24/11/2024
Titles for the new book I pretend I will write someday: What part of "extrapyramidal movements" don't you understand?
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Don Kelly @dkindc.bsky.social · 22/11/2024
Art done about 10 years ago by my daughter who is now studying neuroscience / psychology and about to graduate.
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Sara Riggare, PhD @sarariggare.bsky.social · 08/08/2024
Why is patient involvement important when improving healthcare? I recently read a scientific article that made me see it in a new light www.riggare.se/2024/08/08/t...
riggare.se
This is why patient involvement is important for improving healthcare or “It seems inconvenient, but if you really want to, you can try”
(This blog post is also available in Swedish =>> here) Most people living with Parkinson’s disease take a lot of pills, multiple times a day. After having Parkinson’s for a while,…
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Becca Miller PhD @rebeccamil.bsky.social · 14/11/2024
Here's a #parkinsons starter pack with a #yopd focus - please drop suggestions in comments and I''ll add to the pack! go.bsky.app/R25na6o
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Seth Abramson @sethabramson.bsky.social · 17/11/2024
I learned some stuff about Bluesky I did not know by reading this. Maybe worth passing it on to others so we can all start getting the full benefit of the 🦋.
theverge.com
Here’s some cool stuff you can do with Bluesky
It’s not just an Alf pics repository.
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Don Kelly @dkindc.bsky.social · 18/11/2024
wow - really?
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Allie Signorelli @alliesiggy.bsky.social · 16/11/2024
My tremor has been less active since I stopped watching the news. Could this be the Parkinson’s cure we’ve all been waiting for? 😂
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Don Kelly @dkindc.bsky.social · 16/11/2024
Since neither the coffee nor levodopa have kicked in yet - here is a wild theory that needs to be shot down: The concept of "off" and "on" might be better discussed as switches. Take levodopa on time - switch #1 should go on in about 30 minutes to an hour.
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David Sangster @davidsangster.bsky.social · 14/11/2024
🤓🤓🤓🤓🤓🤓🤓🤓🤓🤓🤓🤓Join me and a growing number of people with Parkinson’s here on BlueSky bsky.app/profile/did:pl… or just search #parkinsons #yopd #pdcommunity
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Rex Chapman @rexchapman.bsky.social · 12/11/2024
My pal Sander is on Bluesky.
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Don Kelly @dkindc.bsky.social · 12/11/2024
I wish dopamine scrolling worked.
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Andreas Horn @andreashorn.org · 11/11/2024
Just posted my last leaving-thread on twitter: x.com/andreashorn_... If you are still over there, feel free to retweet to get more people over here.
x.com
x.com
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Don Kelly @dkindc.bsky.social · 08/11/2024
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SWA @swalexander.bsky.social · 10/08/2024
Video shows drug's 'life-changing' effect on man with Parkinson's What is the new Parkinson's drug? "Produodopa" www.bbc.com/news/article...
bbc.com
Video shows drug's 'life-changing' effect on man with Parkinson's
Damien Gath says the severe symptoms he has had for years have improved in a matter of days.
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Don Kelly @dkindc.bsky.social · 07/11/2024
Long‐term therapeutic efficacy of STN‐DBS..achieved even with relatively low stimulation..and medication dosage... Motor improvement and medication reduction were maintained through the 8‐year follow‐up, but improvement in quality of life lasted for only 3 years. ethicseido.com/Iode/Documen...
ethicseido.com
Scientific research : Eight‐year follow‐up outcome of subthalamic deep brain stimulation for Parkinson’s disease: Maintenance of therapeutic efficacy with a relatively low levodopa dosage and stimulat...
Scientific research : Eight‐year follow‐up outcome of subthalamic deep brain stimulation for Parkinson’s disease: Maintenance of therapeutic efficacy with a relatively low levodopa dosage and stimulat...
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Kate Elliott @kateelliottsff.bsky.social · 07/11/2024
Some legal organizations to support in the coming year: National Immigration Law Center: www.nilc.org Florence Immigrant and Refugee Rights Project : firrp.org Transgender Law Center: transgenderlawcenter.org Center for Reproductive Rights: reproductiverights.org ACLU www.aclu.org
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Don Kelly @dkindc.bsky.social · 07/11/2024
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