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Deb Smith

@debsmith14.bsky.social
2.2K followers 203 following 423 posts

Art, birds, books, dark chocolate, and the beach give me joy and sanity. Living with EGFR/T790 stage 4 lung cancer since 2011!

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Reposted by Deb Smith
Making Lemonade and Memories @kwadrans.ca · 25/09/2026
Donate here: schools.terryfox.ca/page/kwadkids
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Abigail Johnston @amjohnston.bsky.social · 24/09/2026
Well Tolerated?
nohalfmeasures.blog
Well Tolerated?
The most dangerous person to ask about tolerability is often the person who doesn’t have to take the drug. Not because they’re unintelligent or without access to data. Not because they’re uncaring, but because they get to go home afterward without the ramifications of the treatment. The patient does not. The patient takes all the side effects of the drug home. The patient takes it to the dinner table. To the bathroom. To bed. To their child’s soccer game. To the grocery store. To the middle of the night when the rest of the house is sleeping and their body is negotiating with a treatment that is both helping and hurting them.
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Duncan Edmonstone @edmonstone.net · 22/09/2026
An excellent summary of the latest CROWN study results. 7 years in, Lorlatinib still hasn't reached median PFS (the point at which 50% of patients in the Lorlatinib arm of the trial have progressed). alknowledge.org/latest-news/...
alknowledge.org
Latest News - ALK
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Dana-Farber Cancer Institute @danafarber.bsky.social · 22/09/2026
New research conducted by investigators at Dana-Farber and 23andMe Research Institute shows a rare inherited mutation in the Epidermal Growth Factor Receptor (EGFR) gene is associated with a 25-fold increased risk of lung cancer.
bit.ly
Rare inherited EGFR mutation linked to dramatically increased lung cancer risk | Dana-Farber Cancer Institute
A rare inherited mutation in the Epidermal Growth Factor Receptor (EGFR) gene is associated with a 25-fold increased risk of lung cancer, according to a study by investigators at Dana-Farber Cancer Institute and 23andMe Research Institute. The findings included de-identified, aggregated genetic data from more than 3.3 million 23andMe research-consented participants.
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D. Ross Camidge @drcamidge.bsky.social · 19/09/2026
It is hard to imagine that my story gets any more interesting through repetition but our hospital system released their updated version of it this week. Enjoy www.uchealth.org/today/renown...
uchealth.org
World-renowned lung cancer expert faces the disease he has spent decades treating
After diagnosing and treating lung cancer for decades, he now faces advanced non-smoking lung cancer, deepening his empathy for patients.
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Dr. Jack Brown @drjackbrown.bsky.social · 02/09/2026
If you live in a congressional district represented by a Republican, or if either of your US Senators is a Republican – call their office and/or email them (or both) today and say: "I demand that you protect my right to vote – including my right to vote by mail." Do it now.
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Chevron @lachevron.bsky.social · 30/08/2026
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Dr. Jack Brown @drjackbrown.bsky.social · 26/08/2026
Help to ensure every voter feels safe.
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Tess Gerritsen @tessgerritsen.bsky.social · 25/08/2026
My new Martini Club novel, THE SHADOW FRIENDS, is out today! www.newscentermaine.com/article/news...
newscentermaine.com
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Making Lemonade and Memories @kwadrans.ca · 24/08/2026
My friend nominated me for a free roof giveaway, and I'm one of 5 finalists! Winning is based on votes, so please vote for me before Aug 26, 11:59pm, and share with others too! 😊 ardentroofsystems.com/about-us/fre...
ardentroofsystems.com
Free Roof Giveaway | Calgary - Ardent Roof Systems
The first annual Ardent Roof Systems Free Roof Giveaway in CALGARY happens this summer!
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Mommy Has Cancer @mommyhascancer.ca · 24/08/2026
My friend nominated me for a free roof giveaway, and I'm one of 5 finalists! Winning is based on votes, so please vote for me before Aug 26, 11:59pm, and share with others too! 😊 ardentroofsystems.com/about-us/fre...
ardentroofsystems.com
Free Roof Giveaway | Calgary - Ardent Roof Systems
The first annual Ardent Roof Systems Free Roof Giveaway in CALGARY happens this summer!
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Pete Buttigieg @petebuttigieg.bsky.social · 24/08/2026
Nearly two weeks after severe storms, thousands are still without power in Gary, Indiana - and they need relief. Please consider making a contribution to the Greater Gary Fund to support the ongoing disaster response: legacyfdn.fcsuite.com/erp/donate/create/fund?funit_id=5554
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Share My Lesson @sharemylesson.bsky.social · 19/08/2026
🌎 Climate change is already affecting student health. Join @rweingarten.bsky.social, @vinguptamd.bsky.social, & @leahstokes.bsky.social to learn about heat, wildfire smoke, asthma, mental health and more. 🏫❤️ REGISTER now 👉 sharemylesson.com/webinars/vital-le…
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Dan Baldassarre @evornithology.bsky.social · 22/08/2026
🔥 The Rice Creek Bird Observatory store is officially live! Check it out, tell your friends, and scoop up some sweet swag to support RCBO! 🔥 www.stickermule.com/rcbo
stickermule.com
Rice Creek Bird Observatory's Store | Sticker Mule
Shop for shirts, magnets, keychains by Rice Creek Bird Observatory
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Tess Gerritsen @tessgerritsen.bsky.social · 20/08/2026
thenerddaily.com/the-shadow-f...
thenerddaily.com
Read The First Chapter From 'The Shadow Friends' by Tess Gerritsen | The Nerd Daily
From New York Times bestselling author Tess Gerritsen comes a harrowing and emotional thriller where ghosts of the Cold War return with a vengeance—and cannot be outrun.
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Abigail Johnston @amjohnston.bsky.social · 17/08/2026
Here’s to the women who show up
nohalfmeasures.blog
Gratitude for the People Who Stay
There are people who change your life in dramatic ways and then there are the people who change your life quietly: the ones who never make headlines. The ones who don’t arrive with trumpets or grand speeches. The ones who simply show up, over and over again, until their presence becomes woven into the fabric of your story. Lately, I’ve been thinking about those people. Maybe it’s because cancer has a way of stripping life down to its essentials. Maybe it’s because when you’ve lived long enough in the land of uncertainty, you begin to see more clearly what actually matters.
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Mike Luckovich @mluckovich.bsky.social · 12/08/2026
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Rosemary Mosco @rosemarymosco.com · 11/08/2026
Arizona folks, I’m going to be driving from Phoenix to Tucson today. What’s a fun place to stop? I’m thinking the desert museum?
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Abigail Johnston @amjohnston.bsky.social · 10/08/2026
Denial and the danger of leading others There is a particular kind of comfort in denial and I understand why people reach for it when living with a terminal/incurable disease like Stage IV Metastatic Breast Cancer (MBC). When someone tells you that you have MBC, that the disease has escaped the…
nohalfmeasures.blog
Denial and the danger of leading others
There is a particular kind of comfort in denial and I understand why people reach for it when living with a terminal/incurable disease like Stage IV Metastatic Breast Cancer (MBC). When someone tells you that you have MBC, that the disease has escaped the boundaries where medicine can be confident, that it has settled into your bones or liver or lungs or brain and intends to stay, denial can feel less like a flaw and more like a life raft. The truth is heavy; the truth is frightening. The truth wakes you at three in the morning and sits beside your bed like an unwelcome guest, so I understand the temptation to look away.
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Ann Telnaes @anntelnaes.bsky.social · 09/08/2026
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Conor Browne @brownecfm.bsky.social · 09/08/2026
There is a reason why many people you know seem different now. Not quite who they were before. www.psypost.org/brain-scans-...
psypost.org
Brain scans reveal widespread structural and functional changes in patients following COVID-19 infection
A systematic review of 49 imaging studies highlights how COVID-19 affects the human brain. Researchers found widespread structural and functional changes in areas responsible for memory, emotion, and ...
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James Fallows @jfallows.bsky.social · 07/08/2026
Nearly every political bio of Bill Clinton or Pete Buttigieg; and most about Corey Booker, Wes Moore, Gina Raimondo, Jim Himes, etc; and back in the day Bill Bradley (or really far back JW Fulbright) mentions that they were Rhodes Scholars. Somehow not (yet) as prominent a theme in coverage of AES.
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Ann Telnaes @anntelnaes.bsky.social · 06/08/2026
anntelnaes.substack.com/p/trumps-par...
anntelnaes.substack.com
Trump's paramilitary
and his determination to suppress dissenters
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Abigail Johnston @amjohnston.bsky.social · 06/08/2026
Navigating Visibility and Virtue in Cancer Advocacy Disclaimer: These reflections are not about any one specific person or situation. They are simply personal musings on visibility, advocacy, volunteerism, and the varied motivations that can emerge within the world of cancer and illness. There is…
nohalfmeasures.blog
Navigating Visibility and Virtue in Cancer Advocacy
Disclaimer: These reflections are not about any one specific person or situation. They are simply personal musings on visibility, advocacy, volunteerism, and the varied motivations that can emerge within the world of cancer and illness. There is a peculiar gravity around terminal illness that draws people toward visibility. Cancer, especially, rearranges not only the body but the social landscape around a person. Some become louder. Some become quieter. Some feel compelled to document every infusion, every ribbon, every trembling revelation to keep everyone informed. Others disappear into the folds of ordinary life, carrying impossible burdens silently while still answering texts from frightened strangers at midnight.
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Rosemary Mosco @rosemarymosco.com · 31/07/2026
I'm working on the next edition of my newsletter. It's the best way to keep up with my work. buttondown.com/rosemarymosco
A drawing of a cute turkey vulture with a heart over its head, soaring through a blue sky carrying a paper letter. Text says "Join my mailing list Flight Club, buttondown.com/rosemarymosco. Short, monthly, contains a weird bird of the month."
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Dr. Jack Brown @drjackbrown.bsky.social · 29/07/2026
"A straight line is a lie we tell ourselves; the crooked path is the truth the river knows, for it is only by wandering that we find our way home." Virginia Woolf
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Dan Baldassarre @evornithology.bsky.social · 29/07/2026
Great piece here by @brendonstuff.bsky.social on the need for widespread use of bird-safe glass to prevent window collisions theconversation.com/bird-safe-gl...
theconversation.com
Bird-safe glass must become the norm to prevent collisions with buildings
In Canada, tens of millions of birds are killed annually by crashing into glass on buildings.
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Dana-Farber News @danafarbernews.bsky.social · 27/07/2026
Today is World #HeadAndNeckCancer Day which raises global awareness about cancers affecting the throat, larynx, nose, sinuses and mouth and the importance of early detection. Learn about symptoms, risk factors, prevention and treatment options at bit.ly/4lrJlDg. @danafarber.bsky.social
bit.ly
Head and Neck Cancer: What You Should Know
Head and neck cancers represent a group of cancers that affect the throat, larynx, nose, sinuses, and mouth. These diseases are relatively rare, but they affect vital functions, including swallowing and speaking. Here are five things to know about head and neck cancer, including: - What are the risk factors for head and neck cancer?
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Pete Buttigieg @petebuttigieg.bsky.social · 26/07/2026
You have much more power than the people in charge of Washington want you to believe. 100 days from today comes the best chance we’ve had in a long time to use it. Let’s get to work.
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Chris Gloninger @climatechris.bsky.social · 25/07/2026
The vision of my climate friend, Adam McKay. Please sign & share!
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Dana-Farber Cancer Institute @danafarber.bsky.social · 22/07/2026
Join leaders in radiation oncology, medical physics, healthcare operations, and cancer center administration for a multidisciplinary discussion on the emerging role of upright proton therapy. Learn more and register here: bit.ly/4b682BS
Proton Therapy Symposium hosted at Dana-Farber Cancer Institute
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Michael de Adder @deadder.bsky.social · 17/07/2026
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Rep. Chris Pappas @repchrispappas.bsky.social · 17/07/2026
A few spots left at my Pop-Up Passport Fair tomorrow!
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Ron Filipkowski @ronfilipkowski.bsky.social · 17/07/2026
or someone you know is in Cumberland County (southern ME) they are free to vote tomorrow online for me or any of the other candidates if they are a registered Dems. Link to do so is here. mainedems.org/senate-race/...
mainedems.org
Senate Delegate Process - Maine Democratic Party
Delegate Nomination Meetings Maine Democrats 2026 Maine Senate Nomination Delegate Process: Below is information for those who will be participating in a delegate nomination meeting and those wanting ...
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Declan Troy @troydeclan.bsky.social · 16/07/2026
Meanwhile, back in Alaska. I barely made it back when I found myself off on a trip to western Alaska. One of the birds visitors are always keen to see is the Bluethroat. They are locally common but can be secretive when they aren't singing. Nome #Alaska #BirdsSeenIn2026 🪶
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Dr. Vin Gupta @vinguptamd.bsky.social · 16/07/2026
When institutions fall short, people still deserve the facts. Here’s what every family should know about Cyclospora—and how to stay safe.
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Janet Freeman-Daily @jfreemandaily.bsky.social · 15/07/2026
A patient perspective on the impact of a proposed OMB rule The White House OMB proposed a rule empowering political appointees to control federal grant approvals for scientific projects. Janet Freeman-Daily, a cancer research advocate, opposes this rule. She states it jeopardizes research by…
grayconnections.net
A patient perspective on the impact of a proposed OMB rule
The White House OMB proposed a rule empowering political appointees to control federal grant approvals for scientific projects. Janet Freeman-Daily, a cancer research advocate, opposes this rule. She states it jeopardizes research by prioritizing political over scientific criteria. She emphasizes the need for funding systems that value expert insights to improve patient outcomes.
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Deb Smith @debsmith14.bsky.social · 14/07/2026
@maryjolles.bsky.social
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Chris Gloninger @climatechris.bsky.social · 13/07/2026
Yesterday Salt Lake City hit 109. Hottest in 152 years. Same week, Barcelona hit its hottest in 112. Two continents, one week. Not El Niño. The baseline we built by burning fossil fuels. New video. #ClimateChange #ExtremeHeat #bigoil
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Rosemary Mosco @rosemarymosco.com · 13/07/2026
What to do if you find a baby bunny. Thanks @portmanteauface.bsky.social for the suggestion!
A six-panel comic titled "what to do if you find a wild baby bunny in North America." There's a drawing of a cute baby bunny on a patch of grass with some daisies, and it's saying "You found me. Hello."

A drawing of rabbit nests. The text says "Most North American rabbits don't burrow. The mom rabbit makes a nest on the ground." There's an image of a circle of dried grass against a green lawn, labeled "It's well-hidden under dry grass or leaves." Then there's an image of baby rabbits curled up in fur, labeled "Underneath, the young are in a fur-lined bowl". "Check your lawn before you mow!"

An image of a mom rabbit nursing her tiny young who are crawling out of the nest against green grass and daisies. Text says "If you find a nest and don't see the mom, don't worry. She only visits for a few minutes every day to nurse." The mom says "Dinner is served." Text at the bottom says "Leave the nest alone and be sure to keep dogs and cats away."

An image of the top of the nest against green grass with a tic tac toe pattern of dried grass on it. Text says "If you think the babies have been orphaned, do this test: Use sticks or long grass to make a Tic Tac Toe pattern on the nest. Come back after at least 18 hours. If the pattern hasn't been disturbed, contact a wildlife rehabilitator."

An image of a small baby bunny sitting on some green grass. Text says "A baby bun leaves the nest in 3-4 weeks. If you find a bun on its own that looks like this, ears stick up, open eyes, 4-5 inch (10-13 cm) long, hops well, furred, uninjured, then it's just fine. Don't kidnap it!"

A cute bunny is jumping over green grass, and another is sitting up and saying "Thank you for bunderstanding." Text says "If not, or if a bun was touched by a cat, contact a wildlife rehabilitator. These are just the bun basics. For more detailed advice, consult your local wildlife rescue!"
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The Birdist @thebirdist.bsky.social · 10/07/2026
There are several good candidates for Senate in Maine, but Shenna Bellows is the only one confirmed to have bird safe windows
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SerendipME @serendipme.bsky.social · 10/07/2026
inspiringcity.com/2018/02/10/t...
inspiringcity.com
30 Secrets of Carrie Reichardt's Mosaic House in Chiswick • Inspiring City
30 Hidden Secrets of Carrie Reichardt's famous mosaic house. The house can be found on Fairlawn Grove in Chiswick and took over 20 years to create
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NH Sea Grant @nhseagrant.bsky.social · 09/07/2026
Do you have a participatory science project idea you want to develop? The University of New Hampshire will offer an online course focused on designing citizen and community science projects from initial planning to project launch. Register today: training.unh.edu/citizen-comm...
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Rosemary Mosco @rosemarymosco.com · 06/07/2026
Last day of Metal Heron shirt preorders! topatoco.com/collections/...
topatoco.com
Heron Shirt PRE-ORDER
Heron Shirt - merch by Rosemary Mosco and Bird and Moon at TopatoCo!
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Ann Telnaes @anntelnaes.bsky.social · 02/07/2026
Spirit of 2026 anntelnaes.substack.com/p/spirit-of-...
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Rosemary Mosco @rosemarymosco.com · 01/07/2026
My short, fun monthly newsletter is the best way to keep up with my work. Sign up here: buttondown.com/rosemarymosco
A drawing of a turkey vulture carrying a letter, with text that says "Join my mailing list, Flight Club, at buttondown.com/rosemarymosco. It's short, monthly, and contains a weird-bird-of-the-month."
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Andrew Weissmann @weissmann.substack.com · 24/06/2026
substack.com/@petercoyote...
substack.com
Peter Coyote (@petercoyote1)
If His Mouth is Moving, He is lying. I need to call people’s attention to the new book by Andrew Weissman, often seen as a legal expert on MS-Now. Andrew Weissmann was one of the most senior and...
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MassDCR @massdcr.bsky.social · 22/06/2026
Don’t forget! Clean up after your pets! During storms, bacteria & other parasites found in pet waste can be washed into local rivers, ponds & drinking water supplies. Do your part to stop this pollution by cleaning up. Check the link in our bio for details. bit.ly/450uE2X
A blue graphics showing a defecting dog silhouette with the “no” symbol over it along with the words “Dog Waste Harms Water Quality. Please clean up after your pet and throw it away in the proper receptacle. Link in  bio.” Accompanying it is the DCR symbol.
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Abigail Johnston @amjohnston.bsky.social · 22/06/2026
Nine Year Metaversary Nine (9) years is a strange country to inhabit when you were once told you might only have months. Time changes shape when it is measured not in vacations or promotions or retirement plans, but in scan dates, infusion schedules, pathology reports, and the quiet calculations…
nohalfmeasures.blog
Nine Year Metaversary
Nine (9) years is a strange country to inhabit when you were once told you might only have months. Time changes shape when it is measured not in vacations or promotions or retirement plans, but in scan dates, infusion schedules, pathology reports, and the quiet calculations you do before every holiday, every birthday, every milestone, every ordinary day. Nine (9) years of living with terminal cancer means I can no longer divide my life neatly into before and after. Cancer has threaded itself into everything long ago. It moved into the house with us.
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Chris Gloninger @climatechris.bsky.social · 21/06/2026
Update on El Niño! (Always free, but paid support keeps me going!) open.substack.com/pub/chrisglo...
open.substack.com
El Niño Is Strengthening Faster Than the Last Two Super Events
It is strengthening faster than 1997 or 2015, the last two super events, on an ocean already overheated by fossil fuels. The floods and drought we just watched collide are the preview.
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