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Si Craner

@cranervirus.bsky.social
36 followers 67 following 79 posts

Full time carer of child with severe Long Covid ME/CFS. Former school leader and financial analyst for national campaigning non profit

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Si Craner @cranervirus.bsky.social · 09/03/2026
Politicians claim to want to get kids back to school and adults back to work but fail to grasp the health impacts of the pandemic. Chronic illness is devastating families and costing the UK billions. Germany invests half a billion but the UK closes all the long covid services and ignores the crisis
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Long Covid Kids @longcovidkids.bsky.social · 28/02/2026
Can you spare one minute to support children with Long Covid today? Use our template to write to your MP. longcovidkids.eaction.org.uk/awarenessday #LongCovidAwareness #ChildrensRights @lcawarenessint.bsky.social @longcovidsupport.bsky.social @longcovidphysio.bsky.social @longcovidsos.bsky.social
longcovidkids.eaction.org.uk
Email your MP about Long Covid Awareness Day
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Binita Kane @binitakane.bsky.social · 19/11/2025
A massive thank you to @tessamunt.bsky.social for tabling this debate on #ME - for listening to patients & advocates and representing the community so well. Also to @joplatt.bsky.social and every other MP who showed up and talked so compassionately about their constituents. youtu.be/wZFEUnjWgOA?...
youtu.be
Westminster Hall Debate on Support for People with ME/CFS - November 2025
YouTube video by Broken Battery
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Adam @abrokenbattery.bsky.social · 20/11/2025
Tessa Munt MP highlights how Germany is taking post-infectious diseases seriously, committing €500m over 10 years to research #MECFS & #LongCOVID. She asks if the UK Government will make a comparable commitment, or wait a decade for the Germans’ conclusions before taking action?
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Si Craner @cranervirus.bsky.social · 20/10/2025
Voices of children with Long Covid.. "I can't climb the stairs" "I've been sleeping in my kitchen" "I haven't seen anyone my own age in person for 5 years" "after school, I watch teenagers my own age pass by my window, talking and walking. I envy them" youtu.be/Jwk8TS5S0TA?...
youtu.be
Lives Interrupted: The Voices of Young People with Long Covid
YouTube video by Combination Dance
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Si Craner @cranervirus.bsky.social · 07/05/2025
A govt response after almost 15,000 signed our petition/letter. Albeit a predictable one. Well done to all those that signed & spread the message. Hopefully today's Long Covid & M.E. Joint APPG meeting will pick this up & fight for services & treatments @joplatt.bsky.social @binitakane.bsky.social
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Long Covid Kids @longcovidkids.bsky.social · 26/03/2025
As part of Long Covid Awareness Month, and to mark the fifth anniversary of the first UK lockdown, we have sent an open letter and petition to @wesstreeting.bsky.social & @ashleydaltonmp.bsky.social #LCandME #FundOurFuture #FundThePlan www.longcovidkids.org/post/open-le...
Image of letter. Please follow the link for accessible version - https://www.longcovidkids.org/post/open-letter-to-the-rt-hon-wes-streeting-and-ashley-dalton-mp-march-2025
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Si Craner @cranervirus.bsky.social · 22/03/2025
5 years this weekend since lockdown. My son is amongst the 100,000 kids that is still locked down by Long Covid. Bedbound in a darkened room by M.E. Millions of all ages affected. The new government must not brush them under the carpet like the previous one did. Invest in medical treatments & care
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Long Covid UK @longcoviduk.bsky.social · 19/03/2025
📺 1/2 Thanks to @drdavidgk.bsky.social & BBC Midlands Today for covering our #LongCovid clinics report & our Trustee @margaretohara.bsky.social for speaking: “These people could work but they need medical help, they don’t need a life coach” Report link⬇️ #ClosingClinics @longcovidkids.bsky.social
Grey background with teal writing. 'Disabled, discharged and disappearing from view. A snapshot review of Long Covid services across the UK' Long Covid Support and Long Covid Kids logo. There are photos of people on the left of the image.
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Si Craner @cranervirus.bsky.social · 19/03/2025
"Thank you for making us kids seen" you.38degrees.org.uk/p/LCME
you.38degrees.org.uk
Invest in Long Covid & M.E. Research: Thousands of Children DISABLED, DISCHARGED, & HIDDEN FROM VIEW
• Five years after the start of the Covid pandemic, thousands remain severely ill - Many housebound or often bedbound, unable to attend school, work, or take part in daily life.  Disabled, discha...
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Long Covid Kids @longcovidkids.bsky.social · 18/03/2025
This is incredible - let's keep it going? Keep sharing with your networks, we can do this! you.38degrees.org.uk/petitions/in... @ashleydaltonmp.bsky.social Wes Streeting please hear us! #LCandME #FundOurFuture #FundThePlan
The text reads '6000' in gold letters, 'people have already signed the call for #LCandME #FundOurFuture #FundThePlan'
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Sammie McFarland @sammiemc.bsky.social · 18/03/2025
Dear Department of Education, in response to your blog on school attendance, which reports Since COVID-19, absence rates have surged: 2018/19: 4.7% 2021/22: 7.6% 2022/23: 7.4% I've made a slide to help The absence of #LongCovid in discussions is LOUD. Both #LongCovid & infection
A collection of images evidencing the impact of Long Covid on children including stats on increased disability and care needs, a body map of symptoms and artwork by youth advocate Rosie.
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Sammie McFarland @sammiemc.bsky.social · 18/03/2025
Kindly sign and share with your networks to help us. Thank you. you.38degrees.org.uk/petitions/in... #LCandME #FundOurFuture #FundThePlan
you.38degrees.org.uk
Invest in Long Covid & M.E. Research: Thousands of Children DISABLED, DISCHARGED, & HIDDEN FROM VIEW
• Five years after the start of the Covid pandemic, thousands remain severely ill - Many housebound or often bedbound, unable to attend school, work, or take part in daily life.  Disabled, discha...
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Si Craner @cranervirus.bsky.social · 18/03/2025
The BBC covered this as LOCAL news again 🙄 When will the press & government join the dots and acknowledge the cause of the rise in physical disability? Thousands now signing the petition calling for funding for biomedical treatment research and care for Long Covid & M.E. you.38degrees.org.uk/p/LCME
you.38degrees.org.uk
Invest in Long Covid & M.E. Research: Thousands of Children DISABLED, DISCHARGED, & HIDDEN FROM VIEW
• Five years after the start of the Covid pandemic, thousands remain severely ill - Many housebound or often bedbound, unable to attend school, work, or take part in daily life.  Disabled, discha...
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Si Craner @cranervirus.bsky.social · 17/03/2025
You won't get us working if you don't get us well (we desperately want both). The government needs to fund treatment research and stop closing clinics. Sign and share the petition: you.38degrees.org.uk/petitions/in...
you.38degrees.org.uk
Invest in Long Covid & M.E. Research: Thousands of Children DISABLED, DISCHARGED, & HIDDEN FROM VIEW
• Five years after the start of the Covid pandemic, thousands remain severely ill - Many housebound or often bedbound, unable to attend school, work, or take part in daily life.  Disabled, discha...
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Frances Ryan @francesryan.bsky.social · 17/03/2025
“In 2025, long Covid is the public health crisis no one wants to talk about, taking a wrecking ball to people’s lives, the economy and NHS while those with power pretend there’s nothing to see.” 5 years on, I wrote about long Covid and national denial. www.theguardian.com/commentisfre...
theguardian.com
Long Covid is the pandemic’s dark shadow. Why does no one in power in Britain want to talk about it? | Frances Ryan
Five years after the first lockdown, millions of lives are still being ruined by this debilitating disease. You wouldn’t know it, says Guardian columnist Frances Ryan
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Si Craner @cranervirus.bsky.social · 16/03/2025
@georgemonbiot.bsky.social Please help further amplify our call for M.E. and Long Covid treatment research and care. The legacy of post-pandemic PHYSICAL disability is missing from the conversation on welfare cuts and disability support. Millions being brushed under carpet bsky.app/profile/long...
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Binita Kane @binitakane.bsky.social · 15/03/2025
Please sign and share to help our future generation, so many need help and support. #longcovidkids ⬇️
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Si Craner @cranervirus.bsky.social · 15/03/2025
5 years of Covid has left millions chronically PHYSICALLY ill, disabled and in perpetual "lockdown". The government needs to acknowledge and address this crisis with research into treatment and improved care. Closing clinics and cutting benefits is shortsighted and cruel you.38degrees.org.uk/p/LCME
you.38degrees.org.uk
Invest in Long Covid & M.E. Research: Thousands of Children DISABLED, DISCHARGED, & HIDDEN FROM VIEW
• Five years after the start of the Covid pandemic, thousands remain severely ill - Many housebound or often bedbound, unable to attend school, work, or take part in daily life.  Disabled, discha...
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Si Craner @cranervirus.bsky.social · 10/12/2024
www.context.news/socioeconomi...
context.news
UK doctors and nurses with long COVID to sue for compensation | Context
Health workers who fell ill on COVID pandemic frontline sue employers as they battle life-changing disabilities
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Sammie McFarland @sammiemc.bsky.social · 04/12/2024
2 years is a long time in the life of a child. While the study reassures us that most participants in this study recovered within this period, the 30% of children and young people still affected highlights that #LongCovid remains a significant childhood illness. www.independent.co.uk/news/health/...
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Si Craner @cranervirus.bsky.social · 27/11/2024
Journalist @emmabatha.bsky.social is writing an article about the financial impact of long covid on individuals and families. As part of her research, Emma would like to interview a parent who has had to give up work/cut back on work to care for a child with long covid. @longcovidkids.bsky.social
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