Living with a rare, chronic illness is profoundly isolating—not only physically, but emotionally. Even when surrounded by others, I often feel like a ghost, disconnected from the world around me. I…

This week arrived like a storm we already knew by heart,yet somehow… it carried a different kind of wind.

This week arrived like a storm we already knew by heart,yet somehow… it carried a different kind of wind.

This week arrived like a storm we already knew by heart,yet somehow… it carried a different kind of wind.

YouTube video by Karina Sturm

Living with a rare, chronic illness is profoundly isolating—not only physically, but emotionally. Even when surrounded by others, I often feel like a ghost, disconnected from the world around me. I…

This week arrived like a storm we already knew by heart,yet somehow… it carried a different kind of wind.

Dr. Hollick runs the Boston Marathon for two of his patients with Ehlers-Danlos Syndrome who have recently died.

Chronic Pain Partners’ Karina Sturm spoke with Jen Kain, the filmmaker behind “Exhausted Existence”. Kain’s documentary delves into the world of Ehlers-Danlos syndrome (EDS) and the lived experiences…