iiinova — where your digital self keeps evolving

Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 08/07/2026

Disability Pride Month: The World Works Better With Us - July 2026 www.chronicpainpartners.com/disability-p... #EDS #hEDS #HSD #Hypermobility #EhlersDanlosSyndromes #Zebras #Disability #NEISVoid

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 08/07/2026

College Accommodations for Ehlers-Danlos Syndrome - Clare Tyler, Law Student, POTsie and Rare Disease patient June 2026 www.chronicpainpartners.com/college-acco... #EDS #hEDS #HSD #POTS #MCAS #Zebras #NEISvoid #education #Disability

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 30/06/2026

Where People Understand - short film by EDSer Karina Sturm in tribute to CPP founder and president John Ferman, d. Nov 11, 2025: youtu.be/vLar9uhx0NE?... #EDS #hEDS #HSD #EDSAwareness #CPP #Zebras #film

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 28/06/2026

My Ostomy Saved My Life - Tayler Goectau for EDS Awareness June 2026: www.chronicpainpartners.com/my-ostomy-sa... #EDS #hEDS #HSD #Hypermobility #Medicine #MedSky #MedTwitter #Zebras

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 05/06/2026

“It’s All in Your Head”: New Study Confirms What hEDS Patients Have Been Told for Decades buff.ly/L6W8GGv #EDS #Hypermobility #hEDS #EhlersDanlosSyndrome #HSD #Zebras #NEISvoid #Medicine #Doctors #MedEd #Nurses #Psychiatry #MedX

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 04/06/2026

New Study Reveals Immune Dysfunction in Hypermobile Ehlers–Danlos Syndrome - yet another solid finding by the Norris Lab at MUSC: buff.ly/nmHOnYc #hEDS #EDS #EhlersDanlosSyndrome #Hypermobility #HSD #Science #Medicine #Research #MedEd #Doctors #Immunology #MCAS #Zebras

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 03/06/2026

Update On Gene Linked to Hypermobile EDS - the Norris Lab published their final study results in 2025: buff.ly/y0TmObZ #EDS #hEDS #HSD #Hypermobility #Zebras #Research #Doctors #medicine #Genetics #NEISvoid #Science #MedSky

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 01/06/2026

Introducing Schroth Therapy: An Expert Q&A on Scoliosis Care in EDS with Dr. Campesi buff.ly/WKS62OG #EDS #HSD #zebras #Scoliosis #Physio #MedSky #MedEd

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 01/06/2026

May EDS myth-busting with Chronic Pain Partners - all may not be as it appears to the untrained eye: www.chronicpainpartners.com/beyond-the-m... #EDS #hEDS #HSD #Hypermobility #zebras #MedX #MedSky #NEISvoid

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 31/05/2026

Measuring the Unmeasured - What Two New Studies Say About the Head, Neck, and hEDS buff.ly/niK7jRw #EDS #hEDS #Zebras #CCI #Medicine #MedSky

A promotional graphic for EDS (Ehlers-Danlos Syndromes) awareness about head and neck research. The design has a teal background with white text and several images: an X-ray of a neck with orange measurement lines and arrows, a medical spine model being pointed at with a pen, and an illustration of a woman shrugging with palms up. Yellow question-mark icons appear on the left and right.

Text shown:
EDS
Awareness
Ehlers-Danlos Syndromes
Measuring the unmeasured...
What two new studies say about the head, neck and hEDS
Some results may be unexpected....
www.chronicpainpartners.com

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 30/05/2026

We remember our late visionary founder John Ferman while continuing to uphold his EDS Awareness legacy… www.chronicpainpartners.com/in-memory-of... #EDS #EhlersDanlosSyndrome #Hypermobility #hEDS #HSD #Zebras #Spoonies #Doctors

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 29/05/2026

We need your support to keep our media team going thank you! Can you help? www.chronicpainpartners.com/chronic-pain... #EDS #EDSAwareness #HSD #Zebras #Spoonies #NEISvoid #Support

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 21/05/2026

Please join us in giving a warm welcome to TWO new writers at Chronic Pain Partners: -Research specialist and health communicator Amy Weintraub and... -Clinical research coordinator and disability advocate Tayler Goectau! We look forward to their contributions! #EDS #hEDS #HSD #zebras

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 12/05/2026

You doctor said what??~! 😄 Our doctors have all said some doozies over the years as we struggle to get diagnosed. Share your favs in the comments. (No MD names!) #EDS #hEDS #HSD #Hypermobility #EhlersDanlosSyndrome #MCAS #POTS #Dysautonomia #zebras #NEISvoid

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 30/04/2026

THIS SATURDAY May 2nd at 2 PM US EST Join our online screening & meet the families from COMPLICATED after for just $3 USD! Available worldwide: www.eventbrite.com/e/join-our-s... #EDS #hEDS #HSD #EhlersDanlosSyndrome #FII #MedX #MedSky #MedicalKidnap #zebras

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 30/04/2026

Horizontal Parenting: 5 Strategies I Used After Surgery as a Disabled Single Mom www.chronicpainpartners.com/horizontal-p... #EDS #hEDS #HSD #EhlersDanlosSyndrome #zebras #Parenting #Disability #POTS #MCAS #CCI

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 25/04/2026

Better late than never, here's our fresh April EDS News and views you can use ahead of EDS Awareness month in May... chronic-pain-partners-eds-awareness.optin.com/newsletter/e... #EDS #hEDS #HSD #Hypermobility #Zebras #NEISvoid #MedX #MedSky

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 21/04/2026

A Thank You to Karina Sturm for Her Leadership at Chronic Pain Partners www.chronicpainpartners.com/a-thank-you-... #EDS #hEDS #HSD #EhlersDanlosSyndrome #Journalism #Film #advocacy #Disability #zebras

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 16/04/2026

EDS Unplugged podcast Episode 2: Medically Complex Children - interview with Donna Sullivan, producer of COMPLICATED www.chronicpainpartners.com/episode-2-me... #EDS #hEDS #HSD #Hypermobility #EhlersDanlosSyndrome #Zebras #NEISVoid #Disability #Medicine #FII #MedicalKidnap #Doctors #MedSky

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 15/04/2026

Catch a special EDS Awareness Month online screening of the film COMPLICATED including post-show discussion with families from the film Sat May 2nd 2-4pm EST just $3 USD: www.eventbrite.com/e/join-our-s... #EDS #hEDS #HSD #FII #MedicalKidnap #Doctors #MedX #MedSky #Zebras #NEISvoid #Film

Promo graphic for an “EDS Awareness Month” virtual watch party and post-film discussion, featuring a large movie poster in the center and three photos of people on the right.

Left side text:
EDS Awareness Presents
EDS AWARENESS MONTH
VIRTUAL WATCH PARTY
& POST FILM DISCUSSION
with families from the film
Saturday, May 2nd
2:00 - 4:00 pm US EST
Tickets Are
Limited
$3
Co-Sponsored by
CTC
Connective Tissue Coalition

Center movie poster text:
“A heartbreaking wake-up call”
“An amazing piece of storytelling”
WHEN HELP TURNS TO HARM
COMPLICATED
ComplicatedTheMovie.com

Right side photos:
Top: A light-skinned young person with glasses, seated and holding a small light-colored animal.
Middle: A dark-skinned woman facing forward.
Bottom: Two light-skinned people close together; one has a neck brace and bright reddish hair on top.

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 03/04/2026

Remembering Beloved EDS Specialist Dr. Rodney Grahame (1932-2026) www.chronicpainpartners.com/remembering-... #EDS #EhlersDanlosSyndrome #hEDS #HSD #Zebras #Medicine #Doctors #NEISvoid

A memorial-style poster on a teal background with white text, two white doves holding olive branches, a crying zebra illustration, and a photo of two people standing together at an indoor event.

Text on the poster says:
EDS Awareness
Ehlers-Danlos Syndromes
Remembering EDS champion: Dr. Grahame
1932 - 2026
chronicpainpartners.com

In the photo, Dr. Grahame, an older light-skinned man with short gray hair and glasses is wearing a light beige jacket over a blue striped shirt. Next to him is Jan Groh, a light-skinned woman with short dark hair and glasses wearing a patterned dress and a scarf, with visible forearm supports/braces and a blue-handled mobility aid. Two small candle illustrations appear near the bottom corners.

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 28/03/2026

We've got 22 Ways to Celebrate EDS Awareness Month in May! See if one or two suit you: buff.ly/bhtQQQ2 #EDSAwareness #EDS #hEDS #Hypermobility #HSD #MedEd #Zebras #NEISvoid #Doctors #MedX #Spoonies

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 27/03/2026

EDS Unplugged Podcast Episode 3: Neurodivergence with Jan Groh, author of the OhTWIST blog and co-author of the EDS Toolkit for Doctors buff.ly/9sZKVdD #EDS #hypermobility #hEDS #HSD #NEISvoid #Zebras #Spoonies #Autism #ADHD #AuDHD #POTS #MCAS #MedEd #MedSky

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 23/03/2026

Netflix’s Run Away Quietly Gets EDS Right: Ambulatory Wheelchair Use www.chronicpainpartners.com/netflixs-run... #EDS #hEDS #HSD #Zebras #Spoonies #Disability #DisCo #MedSky #MedX

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 15/03/2026

We need your support to keep our media team going thank you! Can you help? www.chronicpainpartners.com/chronic-pain... #EDS #EDSAwareness #HSD #Zebras #Spoonies #NEISvoid #Support

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 14/03/2026

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 13/03/2026

The Silence After Survival - Guest post by Debbie Hellenbrand on surviving anaphylaxis with caring help for once… buff.ly/o1idmfK #EDS #hEDS #HSD #MCAS #masto #zebras #Spoonies #MedX

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 10/03/2026

Cerebral Venous Outflow Disorders: What it is and Why EDS Patients Should Know About it www.chronicpainpartners.com/cerebral-ven... #EhlersDanlosSyndrome #EDS #hEDS #HSD #Hypermobility #IIH #CSFLeak #Chiari #AAI #CCI #Headache #Spoonies #Zebras #MedEd #MedSky #Doctors #neurology

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 03/03/2026

Measuring the Unmeasured - What Two New Studies Say About the Head, Neck, and hEDS buff.ly/niK7jRw #EDS #hEDS #Zebras #CCI #Medicine #MedSky

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 22/02/2026

Introducing Schroth Therapy: An Expert Q&A on Scoliosis Care in EDS with Dr. Campesi buff.ly/WKS62OG #EDS #HSD #zebras #Scoliosis #Physio #MedSky #MedEd

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 17/02/2026

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 16/02/2026

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 15/02/2026

Will you be our champion? We need your support to keep bringing you the latest and greatest EDS news, thanks! buff.ly/4cUot2T #EhlersDanlosSyndrome #EDS #hEDS #HSD #Hypermobility #Zebras #Spoonies #NEISvoid #MedEd #MedSky #MedTwitter #Medicine #Doctors

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 14/02/2026

New Study Reveals Immune Dysfunction in Hypermobile Ehlers–Danlos Syndrome - another solid result from the Norris Lab at MUSC: www.chronicpainpartners.com/new-study-re... #hEDS #EDS #EhlersDanlosSyndrome #Hypermobility #HSD #Science #Medicine #Research #MedEd #Doctors #Immunology #MCAS #MedSky

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 13/02/2026

Building a Supportive and Caring Medical Team No Matter Where You Live - guest post by Jon Rodis buff.ly/yZJQeDw #EDS #EhlersDanlosSyndrome #Hypermobility #HSD #hEDS #Spoonies #Zebras #Patients #ChronicIllness #NEISvoid #MedSky

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 11/02/2026

Hot off the press, our February edition of Chronic Pain Partners news for zebras: buff.ly/Yz8aFCG #EDS #hEDS #HSD #Hypermobility #Zebras #Spoonies #NEISvoid #MedEd #MedSky

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 08/02/2026

From Rare EDS Patient to Researcher: An Interview with Jeevan Mann www.chronicpainpartners.com/from-patient... #EDS #hEDS #Hypermobility #HSD #Genetics #Science #medicine #MedEd #Zebras #Advocacy #Research #MedSky #Doctors

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 02/02/2026

Hot off the press, our February edition of Chronic Pain Partners news for zebras: buff.ly/Yz8aFCG #EDS #hEDS #HSD #Hypermobility #Zebras #Spoonies #NEISvoid #MedEd #MedSky

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 31/01/2026

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 30/01/2026

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 29/01/2026

Research Round-up, Edition Six - in which we bring you a variety of research angles involving the Ehlers-Danlos Syndromes as we close out 2025: buff.ly/vsHqh5m #EDS #hEDS #HSD #Hypermobility #Zebras #Spoonies #MCAS #Dysautonomia #POTS #NEISvoid #Medicine #MedSky #Doctors #Genetics

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 27/01/2026

Book Review: The Chemistry Test by Georgina Frankie featuring a character with EDS and POTS: buff.ly/lobHVGP #EDS #EhlersDanlosSyndrome #Hypermobility #hEDS #HSD #POTS #Spoonies #Zebras #Fiction #Romance #Disability #Books

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Chronic Pain Partners - EDS Awareness @cppedsa.bsky.social · 19/01/2026

Donna Sullivan introduces some of the better-known EDS specialists who emerged over the last ten years in podcast Episode 2: Medically Complex Children: www.chronicpainpartners.com/episode-2-me... #EDS #hEDS #HSD #Hypermobility #MedEd #MedSky #FII #Zebras #RareDisease #Spoonies #Doctors

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