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Clare Fuller

@clarefuller.bsky.social
517 followers 320 following 257 posts

#AdvanceCarePlanning Advocate, Educator & Coach. LPA Consultant. Podcaster. #PEoLC Educator. Gym instructor. Yoga practitioner. www.speakforme.co.uk

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Reposted by Clare Fuller
Christina Martin @christinamartin.bsky.social · 07/09/2026
If you enjoyed this, or missed it and want something similar, there is another event with the excellent advance care planner @clarefuller.bsky.social www.eventbrite.co.uk/e/planning-a...
eventbrite.co.uk
Planning Ahead: challenges and choices for people who are without children
An overview of the specific challenges in relation to Advance Care Planning that are faced by people who are with out children.
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Clare Fuller @clarefuller.bsky.social · 07/09/2026
speakforme.co.uk/podcast-epis...
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Clare Fuller @clarefuller.bsky.social · 03/09/2026
Planning ahead when you're ageing without children For tickets go to: www.eventbrite.co.uk/e/planning-a...
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Clare Fuller @clarefuller.bsky.social · 31/08/2026
Exploring fears around dying in relation to Terror Management Theory ➡️ Terror Management Theory & our deep‑rooted fear of death ➡️ Why people avoid planning, even when they know they are dying ➡️ Communication as a clinical tool @drkathrynmannix.bsky.social #AdvanceCarePlanning #Communication
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Clare Fuller @clarefuller.bsky.social · 24/08/2026
🎧 speakforme.co.uk/podcast-epis... What does truly gender‑affirming, person‑centred funeral care look like for people who are LGBTQ+? In this episode of Conversations About Advance Care Planning, I speak with Poppy Mardall about fears many #LGBTQ+ & trans people carry into #EoLC & #funeral care
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Sue Bates @susiejb.bsky.social · 16/08/2026
We need to show rightwing newspapers that actions have consequences. Add your name: goodlawproject.org/s/abb8a1
goodlawproject.org
Jason Arday: Demand a public inquiry now | Good Law Project
Commission an immediate public inquiry into how to ensure a responsible press given its contribution to Dr Arday’s tragic death.
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Clare Fuller @clarefuller.bsky.social · 18/08/2026
In this episode, I speak with Jason Ghous from @funeralexperts.com about practical bereavement navigation, why signposting isn’t enough, & how we can join up the journey from #AdvanceCarePlanning to bereavement. 🎧 speakforme.co.uk/podcast-epis... @drkathrynmannix.bsky.social #Bereavement
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Clare Fuller @clarefuller.bsky.social · 10/08/2026
📣New episode with @lucycarpenter.bsky.social Listen in to hear practical, compassionate ideas you can take back to your organisation & put into practice. 🎧https://speakforme.co.uk/podcast-episode-171 @drkathrynmannix.bsky.social #AdvanceCarePlanning @hospiceuk.bsky.social
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Clare Fuller @clarefuller.bsky.social · 05/08/2026
📣New episode with Imogen Benson ▶️Moving from tech start‑ups to #EoLC ▶️Direct cremation can honour individuality ▶️The gap between felt & real preparedness 🎧https://speakforme.co.uk/podcast-episode-170 #AdvanceCarePlanning #EndOfLife #DigitalLegacy #AdvanceCarePlanning @drkathrynmannix.bsky.social
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Clare Fuller @clarefuller.bsky.social · 28/07/2026
With current political plans awaited, this feels a timely episode 🎧https://speakforme.co.uk/podcast-episode-169 ➡️ Money, housing & carers’ rights ➡️ Routes to Rights ➡️ Health literacy @drkathrynmannix.bsky.social @martinlewis.moneysavingexpert.com @andyburnham.bsky.social #AdvanceCarePlanning
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Martin Lewis @martinlewis.moneysavingexpert.com · 28/07/2026
Money and mental health problems are a marriage made in hell! Those with Mental Health issues are 3x more likely to be in debt crisis; and financial issues can slow depression treatment. I set up @moneyandmentalhealth.org charity 10yrs ago to help.
youtu.be
Martin Lewis: Money and mental health problems are a marriage made in hell!
YouTube video by Martin Lewis
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Clare Fuller @clarefuller.bsky.social · 20/07/2026
Listen as we explore experiences that have shaped Rosalie's work & find out how Rosalie brings ritual and meaning to funerals. 🎧https://speakforme.co.uk/podcast-episode-168 #AdvanceCarePlanning #FuneralPlanning @drkathrynmannix.bsky.social
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Clare Fuller @clarefuller.bsky.social · 13/07/2026
Talking about death, dying & money can feel hard, but the cost of avoiding can be huge Caro & I expolre - Steps to get your ducks in a row - Why you need an LPA - Workshops & toolkits 🎧https://speakforme.co.uk/podcast-episode-167 #AdvanceCarePlanning @drkathrynmannix.bsky.social
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Christina Martin @christinamartin.bsky.social · 12/07/2026
London. This is next Thursday and it's free www.eventbrite.co.uk/e/get-ahead-...
Eventbrite page for an evening with Evie King at Poetic Endings London. Thursday 16 July 7-9pm.
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Clare Fuller @clarefuller.bsky.social · 06/07/2026
An honour to open the new season in discussion with Professor Julian Abel. We explore a population-based, equity-focused approach to death, dying & loss & what this looks like in practice. A great conversation: speakforme.co.uk/podcast-epis... @drkathrynmannix.bsky.social #AdvanceCarePlanning
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Clare Fuller @clarefuller.bsky.social · 30/06/2026
The stage is set! #ACPDay2026 is tomorrow. Great speakers, exhibitors & even an immersive theatre experience. Wonderful to have BSL interpreters too, helping make the day more inclusive @mywishes.bsky.social @drkathrynmannix.bsky.social
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Reposted by Clare Fuller
Christina Martin @christinamartin.bsky.social · 23/06/2026
I know it's an ask when you're this hot, but I've had a fair few lovely messages saying how much people loved Get Ahead of Being Dead, so if you have read and enjoyed, would you mind leaving a review? On goodreads/storygraph or if you bought it on amazon/waterstones on their sites. It helps so much.
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Dr Emma Clare @dremmaclare.bsky.social · 14/06/2026
Very much looking forward to speaking at this year's #AdvanceCarePlanning day in Norwich on the topic of making ACP accessible for neurodivergent people (and even better, neuroaffirming) #ACPDay2026
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Christina Martin @christinamartin.bsky.social · 12/06/2026
I'm back on @clarefuller.bsky.social 's podcast, Conversations About Advance Care Planning, to talk book two. If you didn't hear my first appearance about Ashes to Admin, it was episode 94... speakforme.co.uk/podcast-2
Screenshot of Spotify. Episode 165. Get Ahead of Being Dead with Evie King. Get Ahead of Being Dead is Evie King’s new book. In this discussion Evie shares why the book has been written and takes us on a journey through the chapters in classic Evie King style. Listen learn and laugh too. Selfie of me and Clare together.
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Reposted by Clare Fuller
Christina Martin @christinamartin.bsky.social · 03/06/2026
Essex deathlings. One month today I will be back at Colchester Crematorium. In conjunction with the Truly Macabre book club, there willl be a talk and a death prep activity. Join in www.eventbrite.com/e/before-we-...
eventbrite.com
Before We Go - Book Talk and Workshop with Evie King
Join us for an evening with council funeral arranger, comedian, and author Evie King as she discusses her new book, Get Ahead of Being Dead.
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Clare Fuller @clarefuller.bsky.social · 03/06/2026
Advance Care Plan Day 2026 materials & info is now available on the website. Get involved with the UK's national #AdvanceCarePlanning day ➡️attend in person ➡️host a watch party ➡️make a pledge 📅 1st June (across the UK). The National Conference (Norfolk). advancecareplanday.org 😍 #ACPDay2026 #NHS
advancecareplanday.org
National Advance Care Planning Day
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Dr Kathryn Mannix @drkathrynmannix.bsky.social · 02/06/2026
Tyneside folk: #CompassionateGateshead is asking for your experience of workplace support (or lack of), while caring for someone terminally ill or after their death. Responses before 12th June please. This questionnaire takes ~5mins. Please pass it on. forms.gle/aYf6DiD6TU5q...
forms.gle
Supporting Employees through Bereavement and Caring Responsibilities
Compassionate Gateshead is exploring how employers in Gateshead can be better supported to help employees returning to work after bereavement or during periods of (caring for someone with) a terminal ...
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Advance Care Plan Day 2026 @advancecareplan.bsky.social · 01/06/2026
"THANK YOU" to all those who have already reserved a ticket for the National Advance Care Planning Conference ...The seats are quickly filling up 😍 advancecareplanday.org/conference-2... #ACPDay2026 #AdvanceCarePlanning #Hospice
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Clare Fuller @clarefuller.bsky.social · 25/05/2026
📣New podcast released Beyond Survival: Rethinking Decisions in Advanced Kidney Disease with Dr Barny Hole We discuss the biomedical versus person-centred paradigms of nephrology practice 🎧 speakforme.co.uk/podcast-epis... #AdvanceCarePlanning @drkathrynmannix.bsky.social #SupportiveKidneyCare
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Reposted by Clare Fuller
Christina Martin @christinamartin.bsky.social · 18/05/2026
Quote poster joking about what an inappropriate gift this would be. Nah mate. Eminently giftable. The gift of peace and leaving no chaos behind you 💀🤌
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Clare Fuller @clarefuller.bsky.social · 18/05/2026
Released in line with Equality, Diversity and Human Rights Week, a super discussion focusing on identity, inclusivity & #AdvanceCarePlanning 🎧https://speakforme.co.uk/podcast-episode-162 @drkathrynmannix.bsky.social #EDI #EqualityAndDiversity #InclusionMatters #EDI #HumanRights #DEI
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Open Justice Court of Protection Project @openjusticecop.bsky.social · 23/03/2026
*Upcoming Court of Appeal - Weds 25th March 2026** Does open justice apply in the Court of Protection? That's what the Court of Appeal will be considering. openjusticecourtofprotection.org/2026/03/22/c...
openjusticecourtofprotection.org
Court of Appeal to decide whether open justice applies to the Court of Protection: Briefing for CA-2025-001953 Re Gardner
In this ‘advance briefing’, I will set out the relevant background and a short summary of the arguments of the appellant and the intervenors. I hope this will assist observers to follow the hearing…
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Celia Kitzinger @kitzingercelia.bsky.social · 17/05/2026
This was tough - 8 peaks over 20 miles in 10 hours with a hail storm on Bleabury! At least I didn't need my Advance Decision to Refuse Treatment - my only health issue is sore feeet. Thank you Keswick Mountain Festival for a great day out.
Celia crossing the finishing line  at Keswick Mountain Festival (in the rain)
Image of race bib  - with race number on front and on the back the questions about medical issues and Celia's Advance Decision to Refuse Cardio-Pulmonary Rusucitation "under all circumstances even if this refusal shortens my life" - signed and witnessed which makes it a valid ADRT
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Dr Kathryn Mannix @drkathrynmannix.bsky.social · 13/05/2026
INVITATION: The Art of Living & Dying Well Centre at St Marys University is seeking insights about awareness of practice of care at the end of life in diverse Faith Communities. All welcome. Sessions are online: May 15 May 21 June 1 Scan QR code or email: marianne.rozario@stmarys.ac.uk
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Clare Fuller @clarefuller.bsky.social · 13/05/2026
This image captivated me & I wanted to learn more. I love the representation of planning ahead through a societal rather than medical lens. To find out more, I interviewed the author @sonyabushell.bsky.social Hear in full at: speakforme.co.uk/podcast-epis... #AdvanceCarePlanning #PlanningAhead
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Sonya Bushell @sonyabushell.bsky.social · 11/05/2026
Wonderful to share my research about earlier advance care planning in this podcast - speakforme.co.uk/podcast-epis... Thanks for the conversation @clarefuller.bsky.social
speakforme.co.uk
Podcast Episode 161 — Speak For Me LPA
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Clare Fuller @clarefuller.bsky.social · 11/05/2026
Could we start planning ahead earlier? This question is asked by @sonyabushell.bsky.social Listen to ✔️learn about Sonya’s research ✔️shift from a medical to a societal model ✔️identify opportunities 🎧 speakforme.co.uk/podcast-epis... @drkathrynmannix.bsky.social #AdvanceCarePlanning
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Prof Katherine Sleeman @katherinesleeman.bsky.social · 05/05/2026
It’s Dying Matters Awareness Week. Here are five recent papers that you should be aware of… #DyingMattersAwarenessWeek 🧵
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Digital Legacy Association @digitallegacyco.bsky.social · 05/05/2026
🔔 Reminder: If you are a hospice or end of life care professional, speak with those you serve about their digital assets and #DigitalLegacy during #DyingMattersAwarenessWeek 🆓 Resources: digitallegacyassociation.org/resources-2/ 🗣️ Conversations framework digitallegacyassociation.org/framework/
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Dr Kathryn Mannix @drkathrynmannix.bsky.social · 03/05/2026
Geriatricians & physios: can you recommend videos to teach 1. Getting up from a fall 2. Practice exercises to build/maintain strength to get up after a fall. The faller has a sensory peripheral neuropathy affecting joint position sense but not fine touch or pain. Thanks! #falls
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Clare Fuller @clarefuller.bsky.social · 04/05/2026
Hooves of Hope at Meopham May Fayre Looking forward to learning more about this super new project.
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Clare Fuller @clarefuller.bsky.social · 04/05/2026
From Missed Opportunities to Meaningful Conversations Communication underpins #AdvanceCarePlanning But what is effective communication? Hear Sharan Harris-Christensen share challenges, opportunities & the power of being vulnerable 🎧 speakforme.co.uk/podcast-epis... @drkathrynmannix.bsky.social
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Dr Emma Clare @dremmaclare.bsky.social · 27/04/2026
Very pleased to join @clarefuller.bsky.social 's brilliant podcast again, this time to talk about barriers to advance care planning faced by neurodivergent people #AdvancePlanning #NeuroAffirmingCare #EndOfLifeCare #EndOfLifeDoula
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Clare Fuller @clarefuller.bsky.social · 27/04/2026
Hear @dremmaclare.bsky.social explain why standard ACP often fails neurodivergent people – and how to build neuro‑affirming approaches instead. 🎧 speakforme.co.uk/podcast-epis... #AdvanceCarePlanning #Neurodiversity #EndOfLifeCare #EndOfLifeCare #DeathDoulas @drkathrynmannix.bsky.social
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Clare Fuller @clarefuller.bsky.social · 23/04/2026
🎯New podcast released for Power of Attorney Day I’m joined by Alison Harvie, campaign lead for the first ever UK Power of Attorney Day We discuss ✔️Myths ✔️Resource ✔️The brilliant national PoA campaign 🎧 speakforme.co.uk/podcast-epis... #PowerofAttorneyDay #AdvanceCarePlanning @carers-uk.bsky.social
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Clare Fuller @clarefuller.bsky.social · 13/04/2026
🎯New podcast alert! I talk with Dr Jude Partridge about #SharedDecisionMaking & #RealisticChoice ✔️Why this approach is better for patients ✔️What the evidence tells us ✔️The difference it makes to patients 🎧 speakforme.co.uk/podcast-epis... #AdvanceCarePlanning @drkathrynmannix.bsky.social
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Dr Kathryn Mannix @drkathrynmannix.bsky.social · 02/04/2026
Are we getting a skewed understanding of dying from the stories that gain media attention? I was delighted and honoured to be invited to close the day at End Well 2025. Here's my take. bit.ly/EndWellStory...
bit.ly
What We’ve Forgotten About “Ordinary Dying” | Dr. Kathryn Mannix | End Well 2025
For most of human history, dying was something people witnessed, understood, and supported at home. Today, many of us reach the end of life without ever having seen it. In this talk from End Well 2025, Dr. Kathryn Mannix explores how advances in medicine - while lifesaving - have also shaped a widespread misunderstanding of dying. When the only stories we hear are the hardest ones, it distorts what we expect. Through vivid examples and reflections from her decades in palliative care, she makes a case for something simple and urgent: we need to reclaim the stories of ordinary dying. Because storytelling is how we make sense of what we live through, and how we help others do the same. Subscribe to our channel: https://www.youtube.com/channel/UCfm6c70gpUVNvG_1AOE2d1Q?sub_confirmation=1 Share End Well videos on Facebook: https://www.facebook.com/endwellproject/ View End Well videos on Instagram: http://www.instagram.com/endwellproject Tweet End Well videos on Twitter: http://www.twitter.com/endwellproject Follow End Well on Linkedin: https://www.linkedin.com/company/18095550
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Dr Kathryn Mannix @drkathrynmannix.bsky.social · 07/04/2026
Read Mark's remarkable story, interspersed with clinical commentary by his palliative physician, at share.google/jACRqNhnzOOzAR… Humans are astonishing. We can't know anyone else's mind. We need their view. Start those conversations, everyone.
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Dr Kathryn Mannix @drkathrynmannix.bsky.social · 07/04/2026
Mark's #ACP records use the Northern Cancer Alliance #DecidingRight suite of documents. I haven't seen any better than these. Deciding right Regional Forms - Northern Cancer Alliance Northern Cancer Alliance share.google/ghuShNbuJtLxeG… This is a statement by his palliative physician. ⬇️
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Dr Kathryn Mannix @drkathrynmannix.bsky.social · 07/04/2026
As guest editor of an EoL & palliative care special edition of @futurehealthj.bsky.social from @rcphysicians.bsky.social, it was important to me that a patient voice was given space. Mark has #MND (ALS). He wrote his entire article using eye-gaze technology. Read on ⬇️
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Clare Fuller @clarefuller.bsky.social · 06/04/2026
I'm delighted to open the new season with Professor Jugdeep Dhesi. We explore the ▶️changing demographics of dying ▶️dementia trajectory & ▶️vital role geriatricians play joining the dots in #AdvanceCarePlanning speakforme.co.uk/podcast-epis... @drkathrynmannix.bsky.social
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Clare Fuller @clarefuller.bsky.social · 01/04/2026
Thank you to Jeremy Sassoon ...what an incredible CD. A super closing session at #PCC2026
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Dr Kathryn Mannix @drkathrynmannix.bsky.social · 28/03/2026
Buckle up, folks, I have big news. I was invited to guest edit this month's @futurehealthj.bsky.social from @rcphysicians.bsky.social * Yes, a dedicated #PallCall & #EoLCare issue! It's open access, so here's the full contents with links. This may require more than a single pot of tea. 1/
media.tenor.com
a man in a white shirt and tie is driving a car with the word max on the bottom
ALT: a man in a white shirt and tie is driving a car with the word max on the bottom
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Advance Care Plan Day 2026 @advancecareplan.bsky.social · 17/09/2025
BIG NEWS: The UK's National Advance Care Planning day will return in 2026... 📅 1st July (save the date) 🤔 Think about how you & your organisation will be involved 💡 Let us know how ACPDay can be improved in 2026 advancecareplanday.org #AdvanceCarePlanning #WhatMattersMost #ACPDay2026
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