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Dr Emma Clare

@dremmaclare.bsky.social
935 followers 648 following 167 posts

Chartered Psychologist & End of Life Doula | Death Wired Differently (neuro-affirming end-of-life support) | PhD/MSc death competency & death anxiety | EoL Doula Intnl Research Group | Global EoL Doula Associations Network Chair |Taphophile | Bird geek

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Dr Emma Clare @dremmaclare.bsky.social · 26/08/2026
Pleased to speak to Netmums last week and hope this is useful for parents of primary and secondary aged children who will have grief included as part of the curriculum from next month: www.netmums.com/child/this-i...
netmums.com
This is the new 'controversial' topic children will be taught at school from September and how to support them at home - Netmums
From September, primary schools in England will introduce lessons on grief and bereavement as part of the updated Relationships, Sex and Health Education curriculum. This initiative aims to help child...
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Dr Emma Clare @dremmaclare.bsky.social · 18/07/2026
Pleased to speak to @thefemalelead.bsky.social about my end of life doula work and what I wish people knew when their relative/friend is dying community.thefemalelead.com/p/working-as... #EndOfLifeDoula #DeathDoula @eoldoulauk.bsky.social
community.thefemalelead.com
“Working as a death doula taught me how to live”
End of life doula Emma Clare talks to The Female Lead about the biggest regrets dying people have - and what it teaches us about life.
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Cal Horton (they/them) @fiercemum.bsky.social · 16/07/2026
Just had meeting with kiddo's school. She has been fully supported, treated with full equality & dignity for years. All of that changes from September. Full segregation & humiliation across the board. The school staff cried in the meeting. This will absolutely lead to children's deaths 1/2
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Dr. Hilary Agro, PhD 🍄 @hilaryagro.com · 15/07/2026
People are always talking about the things we have today that our ancestors didn't, but nobody wants to look at the things our ancestors had that we've lost. Like community, and free time, and environmental sustainability, and a collective that cares whether we live or die
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Dr Emma Clare @dremmaclare.bsky.social · 16/07/2026
Looking forward to returning to #UniversityofDerby today for this! #NCx2026
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Dr Emma Clare @dremmaclare.bsky.social · 09/07/2026
I was delighted to be invited to speak about making advance care planning accessible for neurodivergent people at this year's Advance Care Planning Day, and overwhelmed by the positive feedback. Huge thanks to @clarefuller.bsky.social James Norris and Dani Ayre for the invite. #ACPDay2026
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Advance Care Plan Day 2026 @advancecareplan.bsky.social · 28/06/2026
Advance Planning and Neurodivergence: Towards Accessible Approaches 😍 - Dr Emma Clare (@dremmaclare.bsky.social ) Free ACP Day 2026 conference tickets advancecareplanday.org/conference-2... 🆓 #ACPDay2026 #Neurodivergence #AdvanceCarePlanning
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Dr. Sandra Steingraber 🏳️‍🌈 @ssteingraber1.bsky.social · 14/06/2026
Your reminder that fairy tales are full of stepmothers because women once routinely died in childbirth, from postpartum sepsis, or from other infectious diseases and left behind housefuls of motherless children. Stable nuclear families are made possible by vaccines, antibiotics, and safe abortions.
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Dr Emma Clare @dremmaclare.bsky.social · 14/06/2026
Very much looking forward to speaking at this year's #AdvanceCarePlanning day in Norwich on the topic of making ACP accessible for neurodivergent people (and even better, neuroaffirming) #ACPDay2026
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Dr Emma Clare @dremmaclare.bsky.social · 07/06/2026
A great piece in Scotland today featuring Jayne Wilson 👏 www.thecourier.co.uk/fp/lifestyle... #EndOfLifeDoula #DeathDoula
thecourier.co.uk
Terrified of dying, traumatised by labour - why these two Angus pals became death and birth doulas
Auchmithie woman Jayne Wilson is an end-of-life doula; SariMay Rychtarova, from Arbroath, is a birth doula. They told The Courier why they're taking an alternative approach to life's "two biggest tran...
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Dr Emma Clare @dremmaclare.bsky.social · 25/05/2026
Thank you to Daisy Sanderson for a lovely interview and great Q&A with an end of life doula write up for Dead Curious Magazine #EndOfLifeDoula #DeathDoula deadcuriousmag.co.uk/2026/05/21/a...
deadcuriousmag.co.uk
Q&A with an end-of-life doula - Dead Curious
I spoke to end-of-life doula Dr Emma Clare about the conversations families avoid, the fears we misunderstand, and why one honest moment can transform the final chapter of someone’s life.
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Dr Emma Clare @dremmaclare.bsky.social · 27/04/2026
Very pleased to join @clarefuller.bsky.social 's brilliant podcast again, this time to talk about barriers to advance care planning faced by neurodivergent people #AdvancePlanning #NeuroAffirmingCare #EndOfLifeCare #EndOfLifeDoula
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End of Life Doula UK @eoldoulauk.bsky.social · 29/11/2025
We were pleased to share evidence with the Independent Expert Panel’s new review of palliative and end of life care. The report highlights gaps in commissioning, workforce pressures, and persistent inequalities. We’ll continue championing the voices of those we support. #EOLDUK #PalliativeCare
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Dr Emma Clare @dremmaclare.bsky.social · 16/10/2025
Very pleased with this! 😊
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Dr Emma Clare @dremmaclare.bsky.social · 07/10/2025
I’ve been writing about neurodivergence in end-of-life care and advance planning and hearing from people who want to do better but don’t know where to start. This work means a lot to me. I’ve gathered it all in one place - my new site is live: www.deathwireddifferently.co.uk #DeathWiredDifferently
deathwireddifferently.co.uk
Death Wired Differently | Death Doula & Inclusive End-of-Life Support
Compassionate, inclusive end-of-life care and death doula services across the UK. Dr. Emma Clare provides neurodivergent-friendly guidance, training, and resources to support individuals, families, an...
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Dr Emma Clare @dremmaclare.bsky.social · 22/09/2025
A black square with orange underline which reads: Your autistic friends are watching your reaction to the 'autism cure' talk in the news

Not only to see whether you believe the lies, but to see whether you believe autism is something to be 'removed' rather than who we are

To know whether you prop up the language of eugenics which targets us

Now is the time to be a loud ally
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David Ho @davidho.bsky.social · 31/08/2025
RFK Jr. is not a vaccine skeptic. He's a vaccine denier whose anti-science extremist views and actions are destroying one of humanity's greatest scientific achievements. He's going to kill a lot of people, and those deaths are on the 52 Republican senators who confirmed him and those enabling him.
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Dr Emma Clare @dremmaclare.bsky.social · 30/08/2025
Good to see VSS being covered, this is very similar to my own experience www.theguardian.com/lifeandstyle... #VisualSnowSyndrome #Neuroaffirming
theguardian.com
Experience: I see the world through a layer of snow
My condition has a name – visual snow syndrome – and it could be with me for the rest of my life
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Dr Emma Clare @dremmaclare.bsky.social · 25/08/2025
Special interest grief is a disenfranchised grief. When a special interest becomes inaccessible it can feel like losing part of yourself. For many neurodivergent ppl these aren’t hobbies they’re ways of making sense of the world,regulating overwhelm,finding joy,expressing identity.It's valid & real.
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Emily Hahn, MD @ehahnmd.bsky.social · 14/08/2025
I’ve been screaming from the rooftops that life under authoritarianism feels mostly normal most of the time for most people. Rights get stripped away and minorities get targeted and most people keep going to work and dealing with the minutia of life. It’s hard to know how to fight or when to flee.
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Big Green Books @biggreenbooks.bsky.social · 10/08/2025
I've got another #buyastrangerabook day offer to tell you about! @raytom81.bsky.social will buy someone the book of their choice, up to £20. That's any book at all. So, if you have something in mind, let us know what it is. UK only
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Big Green Books @biggreenbooks.bsky.social · 10/08/2025
More #buyastrangerabook (Sunday Special) magic! @sarahalba.bsky.social is offering to buy one lucky person the book of their choice, up to £15! So, if there's a particular book you're after, get in touch. UK only.
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Dr Emma Clare @dremmaclare.bsky.social · 10/08/2025
If anyone is interested in 50 minutes of me talking about end of life doulas, death, dying, and grief (as usual) you can watch/listen to the latest DACI podcast episode below. Pleased to include two @drkathrynmannix.bsky.social mentions youtu.be/jUhy2J5qZKA?... #EndofLifeDoula #DeathDoula
youtu.be
The Truth About Life & Death From a Death Doula (Dr Emma Clare)
YouTube video by DACI
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Dr Emma Clare @dremmaclare.bsky.social · 07/07/2025
My brilliant EoL doula colleague Rachel Hawthorn is hosting an online screening of The Luddenden Shroud – a 30-min film about a hand-felted shroud, nature, grief, and place. Followed by a Q&A. All welcome. Book here: www.eventbrite.com/e/the-ludden...
eventbrite.com
The Luddenden Shroud Film Screening
An online screening of The Luddenden Shroud film followed by a Q&A with the producer
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My Future Care @myfuturecare.bsky.social · 27/06/2025
Leeds became the first city in the UK to commission end-of-life doula support through the NHS in May 2022. Explore the learnings to date from this pilot project ⤵️ #EndOfLife #PersonCentredCare
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Dr Emma Clare @dremmaclare.bsky.social · 26/06/2025
Interested in how #EndofLifeDoulas can collaborate with and complement NHS services? Our evaluation report for our Leeds EoL Doula Pilot Project is now available to read/download here 😊 eol-doula.uk/leeds-nhs-co...
eol-doula.uk
Leeds NHS Commissioned Project - End of Life Doula UK
Our Leeds NHS pilot project concluded in September 2024. You can download and read our full service evaluation report here. In a pioneering step for end of life care, Leeds became the first city in th...
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Dr Rachel Clarke @drrachelclarke.com · 19/06/2025
Sharing this on the eve of tomorrow's vote. I am a palliative care doctor who is not opposed to AD. But enshrining in law a state-funded right to die, while not enshrine a similar right to the palliative care that might make life worth living, is so very wrong. www.theguardian.com/commentisfre...
theguardian.com
MPs have personal beliefs, but also solemn duties: that’s why they must reject the assisted dying bill this week | Gordon Brown
Our obligations to each other are ill served if laws focus unduly on those who want assisted dying. The priority should be the best palliative care, says former prime minister Gordon Brown
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Prof Sheena Cruickshank @sheencr.bsky.social · 19/06/2025
So important to see RCP make this statement about the preventable deaths and diseases poor air quality causes. We know it worsens infections , allergy,asthma and COPD severity too 🧪
theguardian.com
UK air pollution killing more than 500 people a week, doctors say
Royal College of Physicians also says poor air quality costs country more than £500m a week
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the algorithms + miscarriage project @paul-ord.bsky.social · 18/06/2025
Good morning! A friendly wee reminder that The Algorithms + Miscarriage Project is now seeking participants for interview. See poster for details... @tommyscharity.bsky.social @cendeathsociety.bsky.social @asdsdeath.bsky.social @bsatheory.bsky.social #miscarriage #algorithms #onlinesafety
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Dr Emma Clare @dremmaclare.bsky.social · 17/06/2025
Very pleased to be announcing this! A huge amount of work and real team effort. Excited to see what is next! 😊🥳 #EndofLifeDoula
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Elizabeth Jacobs, PhD @elizabethjacobs.bsky.social · 09/06/2025
RFK Jr. has just removed every member of the Advisory Committee on Immunization Practices (ACIP). These members review vaccine data and make approval recommendations. This is completely horrifying and will likely delay vaccine approvals. RFK Jr. must be removed from office IMMEDIATELY.
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End of Life Doula International Research Group @eold-irg.bsky.social · 04/06/2025
Save the date! The fourth annual End of Life Doula International Research Group symposium is September 5-6 with the theme Research is a verb: Sharing knowledge as collaboration. Online Sept 5-6, tickets and full programme live soon. #EOLDIRG #research #event #EOLD #DeathLiteracy
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End of Life Doula International Research Group @eold-irg.bsky.social · 05/06/2025
Opportunities for self-awareness, reflection and honest evaluation are always important - this goes for end of life doulas, too. How we work with opportunities and realities in the workplace, in tandem with our highest goals for work are shown in this graphic. #EOLDIRG #research #resources
A faceless figure of a person surrounded by ribbons of different colours and white text showing aspects of work, and with like coloured sections forming two semi-circles around the person showing goals for work. Top title banner reads " Key intersecting tensions for end of life doulas " Bottom centre circle reads " EOLDs "
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End of Life Doula International Research Group @eold-irg.bsky.social · 03/06/2025
Hello world of #research - we are new here! The End-of-Life Doula International Research Group (EOLD-IRG) is a collective of diverse individuals interested in developing a collaborative approach to research relevant to end-of-life doulas across national and international boundaries. #EOLDIRG
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Dr Emma Clare @dremmaclare.bsky.social · 30/05/2025
A quote from the brilliant Alexandra Derwen, shared during our end of life doula panel at last year’s Lifting the Lid Festival. Now on my wall as a daily reminder of why I’m here and how I want to show up. #EndofLifeDoula #DeathDoula
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Dr Emma Clare @dremmaclare.bsky.social · 30/05/2025
As a neurodivergent CEO leading a small soon-to-be charity this report was sad reading. I’m lucky to have strong compassionate support from our board & chair. 85% of small org leaders say work is harming their mental health Read Fair Collective’s full report: www.faircollective.co.uk/breaking-poi...
faircollective.co.uk
Breaking Point Report | Fair Collective
Research on the mental health of leaders in small organisations in England.
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Dr Emma Clare @dremmaclare.bsky.social · 25/05/2025
It was amazing to see our annual gathering come to life this week. So very grateful to call bringing this wonderful community of doulas together my job. We included a memorial for a dear friend and colleague, making it a 3 day event with many of us staying together on site. Truly something special 💚
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Dr Emma Clare @dremmaclare.bsky.social · 09/05/2025
Very excited for this!
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Steve Griffin @profstevegriffin.bsky.social · 07/05/2025
If we can't learn from a pandemic that the current pharma-dependent model of drug/vaccine development needs to change, and that Governments need to invest for the long term public good, I'm at a loss as to what might make this planet see sense... www.researchprofessionalnews.com/rr-news-uk-u...
researchprofessionalnews.com
Four in five British universities considering research cuts - Research Professional News
Universities UK warns of “worsening trend” as institutions slash spending
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Dr Emma Clare @dremmaclare.bsky.social · 06/05/2025
Pleased to be featured in this article today talking about end of life doulas, our NHS projects, and @eoldoulauk.bsky.social #EndofLifeDoula www.dailymail.co.uk/health/artic...
dailymail.co.uk
I hired a 'death doula' to help my mother in her final days
Doulas have become an increasingly normal part of childbirth. These hired assistants help expectant mothers, providing support in the lead-up to, during and after childbirth.
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Dr Ben Bowers @drbenbowers.bsky.social · 28/04/2025
Help us identify Uk-based community nurses’ contributions to end-of-life care. Taking part in the study involves completing the 10-minute anonymous survey @theqicn.bsky.social Please share with community nurse colleagues Take part here: cambridge.eu.qualtrics.com/jfe/form/SV_...
cambridge.eu.qualtrics.com
NOTICE Survey
NOTICE Survey
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Dr Emma Clare @dremmaclare.bsky.social · 28/04/2025
It was such a joy to be invited onto @ashgatehospice.bsky.social The Life & Death podcast to talk about end of life doulas. Even more special to visit and tour the hospice in my hometown on the edge of the Peak District where my roots run deep 💚 #thelifeanddeathpodcast #AshgateHospice
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Dr Emma Clare @dremmaclare.bsky.social · 27/04/2025
Louis Theroux doing a brilliant job as usual. #TheSettlers is a must watch www.theguardian.com/tv-and-radio...
theguardian.com
The Settlers review – this vital film forces Louis Theroux to do something he’s never done before
The documentarian manages to stay calm and polite as guns are repeatedly pointed at him in the West Bank. Then someone shoves him …
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Scott A Murray @samurray3.bsky.social · 27/03/2025
#assisteddying Illness trajectories explain why a prognosis of 6 months is flawed. Most people need terminal care 2 to 5 years. They cannot be “reasonably expected to die within 6 months”. They are likely to be alive 18 months later. Evidence ignored bmj.com/content/388/...
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Dr Emma Clare @dremmaclare.bsky.social · 19/04/2025
I found this drawing I did when I was little, "The Mistree (🥹) of Deth". I'm lucky to have grown up in a family where death was something approached with curiosity. It rooted me in a deeper appreciation for being here now. No surprise that this thread has followed me into the work I do today 😊
A drawing done by a child of a book entitled 'The Mistree (spelt miss-tree) of deth (spelt d-e-t-h'
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Marian Krawczyk @drkrawz.bsky.social · 27/03/2025
We're looking for recommended end-of-life doula researcher/practitioners outside of global North interested in discussing their research/practice at our 4th Annual EOLD International Research Symposium. Virtual with modest honorarium. Pls repost. DM me! @gdepau.bsky.social @dremmaclare.bsky.social
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Dr Emma Clare @dremmaclare.bsky.social · 17/04/2025
New @yorkuniversity.bsky.social research confirms what many of us feel: spending time in nature reduces anxiety and depression symptoms. Personally and professionally I know noticing natures life-decay-regeneration cycle and getting your hands in the earth are powerful ways of reducing #DeathAnxiety
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Dr Emma Clare @dremmaclare.bsky.social · 14/04/2025
On my recent trip to Dublin I visited a dear friend and fellow doula's resting place. I definitely think that sometimes what helps the most in grief is having somewhere to go. Having a physical spot makes the love and loss feel held and anchored in the world. Grateful for this sunny mindful spot 🌳
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John Drury @profjohndrury.bsky.social · 05/04/2025
'I will no longer be providing peer reviews for Royal Society journals, and I urge every other scientist also to withhold voluntary professional labour.'
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Ian Jackson 🗿😷🇪🇺 🏴󠁧󠁢󠁳󠁣󠁴󠁿 🩺🚲 @drianjackson.eurosky.social · 06/04/2025
Excellent short article that really clarifies the debate.. 'What may get lost in debates about the appropriate boundaries of diagnostic categories is what really matters: people are suffering, and they visit their GPs to ask for help. Our focus should be on how we can best respond with care.'
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