iiinova — where your digital self keeps evolving

Whitney is Wicked @itswhitneywitch.bsky.social · 18/06/2026

Astrology nerds... I was just getting into some chiron content in the chani app and was like, huh chiron is the planet of healing and it's been in my rising sign of Aries for 8 years? When did this happen bc my health collapsed 8 years ago. Feb 18, 2019... The next day I was diagnosed with ME/CFS 🤯

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Whitney is Wicked @itswhitneywitch.bsky.social · 29/04/2026

One thing about me is that I'm incredibly nice to human service representatives and very rude to AI agents

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Whitney is Wicked @itswhitneywitch.bsky.social · 08/04/2026

Express scripts is being extremely slow and difficult on filling my cromolyn prescription so I started rationing and lowering my dose and was up from 4-7am with diarrhea. May I transfer this GI distress upon all of their executives and shareholders 💫💩💫

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Whitney is Wicked @itswhitneywitch.bsky.social · 11/03/2026

I love that it's 2026 and I'm doing the same stuff I did in 1999. Playing Pokemon, fangirling, reading books. Becoming disabled in my 30s has allowed me to rediscover the whimsy and for that I'm grateful. The symptoms can suck it though

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Whitney is Wicked @itswhitneywitch.bsky.social · 14/02/2026

I've been watching old seasons of survivor getting ready for 50 and I just finished 42 and idk this might be a hot take but Maryanne is my favorite person ever to be on this show, what a joyous human

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Whitney is Wicked @itswhitneywitch.bsky.social · 29/01/2026

Today's brain fog description - the paddle boys who play soccer What was I trying to say? Foosball 😂

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Whitney is Wicked @itswhitneywitch.bsky.social · 23/12/2025

I'm getting a headache listening to tales from earthsea audiobook because the narrator is doing a voice that sounds a lot like rfk jr 🤢🤢 also she keeps pronouncing ate like ett and I hate it 😂

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Whitney is Wicked @itswhitneywitch.bsky.social · 20/10/2025

I'll never get over receiving a new diagnosis because a provider finally did more than just look with their eyes and tell me I'm normal. Today's new diagnosis - deviated septum. I'm 37yo and have had symptoms since age 11. Today is the first time a Dr ever scoped my nose. Being a woman is so fun /s

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Whitney is Wicked @itswhitneywitch.bsky.social · 20/10/2025

Any recommendations from the MCAS mind hive on breathe right strips type of product that can help with night time breathing? I've also tried those plastic things that go inside your nose but they hurt my tiny narrow airways

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Whitney is Wicked @itswhitneywitch.bsky.social · 25/09/2025

My infusion company will not send me green caps to cover the line for my port. I've been relying on the stash I had from the prior company and friends sending me caps. Now I'm out again. Any advice on how to get them to send me caps? Or where I can buy affordably? They're not cheap

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Whitney is Wicked @itswhitneywitch.bsky.social · 19/09/2025

Husband: what should we do this weekend Me: idk it's the equinox soon we could celebrate that Husband: so witchcraft this weekend? Me: hell yeah! 🍂🔮(Falling leaves emoji, crystal ball emoji)

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Whitney is Wicked @itswhitneywitch.bsky.social · 17/09/2025

Someone called me today just as I woke up, & ambushed me into meeting a healthcare provider. I usually fawn but I went into fight mode today. 1-I'm not your monkey who will do a little dance and sing all my diagnoses to you and your friends 2-I have a lot of medical trauma & this is traumatizing

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C.H. Romatowski @chromatowski.bsky.social · 13/09/2025

Friends with ME/CFS! The incomparable Lenny Jason is working to develop consensus on a research definition and severity scales to use in studying ME. He needs your opinion! Takes ~15 mins but you can save and come back if you need a break. If you could also share this, that would be a huge help!

redcap.is.depaul.edu

Can we reach consensus on an ME research case definition?

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Whitney is Wicked @itswhitneywitch.bsky.social · 07/09/2025

Looking for resources and/or advice about starting a 501c3 in the US and how to make it international. Any tips?

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Jessica Ellis @baddestmamajama.bsky.social · 31/08/2025

I’m going to say this louder this time: if you are lying about having a high-risk condition to get a Covid vaccine, all good, do what you want to do BUT show some actual goddamn respect for people who *actually* have that condition and start masking.

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Whitney is Wicked @itswhitneywitch.bsky.social · 29/08/2025

Me and my friends, trying to have our needs met in this economy like:

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emily fraser 🌿🐌✨ @emilyesfraser.bsky.social · 29/08/2025

Can anyone recommend an #MECFS & #POTS knowledgeable doctor in the DC area?

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Whitney is Wicked @itswhitneywitch.bsky.social · 29/08/2025

One of the funny things about living with a rare disease is sharing knowledge about that rare disease and friends saying "I thought everyone had that!" Today's case - sacral dimple in tethered cord. No babe, most people don't have that

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Whitney is Wicked @itswhitneywitch.bsky.social · 12/08/2025

I'm not surprised but I am constantly amazed by how much better care my cat receives from her vet than any human I know receives from the US medical system

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Whitney is Wicked @itswhitneywitch.bsky.social · 07/08/2025

I guess AI is doing autocorrect now because it keeps changing in to on and on to in automatically and it doesn't make any sense

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Whitney is Wicked @itswhitneywitch.bsky.social · 25/07/2025

Every time I see my PCP she tells me to write a book. Because she's getting more and more young people with the same disease cluster as me and they're telling her things like, "id rather die than live like this." People with ME, POTS, EDS, MCAS, etc deserve better.

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Whitney is Wicked @itswhitneywitch.bsky.social · 17/07/2025

I just wanna knit but my hands won't stop sweating and then it's sensory hell. Why can't you chill out dysautonomia symptoms 😭😭

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Whitney is Wicked @itswhitneywitch.bsky.social · 23/06/2025

#pwME we really need to talk about the sanism and ableism within our community and unlearn that shit. Yes, #MECFS is biological. And psych conditions can be comorbids. We are ostracizing and harming pwME and psych comorbids who don't have access to adequate physical or mental healthcare

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Dr. Lucky Tran @luckytran.com · 21/06/2025

PSA Neck gaiters are not masks. Neck gaiters are not effective at stopping the spread of airborne viruses. Masks, especially well-fitting ones are effective at preventing infection. Conflating the two is bad because it can encourage politicians to ban masks for the general public.

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Whitney is Wicked @itswhitneywitch.bsky.social · 04/06/2025

My outdoor walker is now home to a birds nest and eggs! Guess I'll be using my cane in the backyard for a bit, but I'm so happy discovering this! Any ideas what kind of bird it could be? We have lots of finches and sparrows around. It's not muddy like a swallow nest.

A birds nest inside the carrying case of a purple walker mobility aid

A closer photo of the birds nest with dried leaves, pine needles and moss. One small egg is visible through the hole in the side of the nest

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Dave Levitan @davelevitan.bsky.social · 31/05/2025

It’s been said before but the more “I didn’t vote for *this*” stories we get the more I’m convinced the pandemic acted as a Mass Forgetting Event. A Great Reset. An actual Memory Hole.

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Whitney is Wicked @itswhitneywitch.bsky.social · 19/05/2025

The survivors guilt of finally having improvements in #MECFS symptoms and moving towards moderate while most #pwME are progressing in severity 💙😭

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Whitney is Wicked @itswhitneywitch.bsky.social · 18/05/2025

Happy #BlueSunday #TeaPartyForME I had some homemade blueberry lemon scones with blue spirulina icing and a cappuccino. I gave to @openmedf.bsky.social today 💙 Please give to #MECFS awareness and research funding here: the-slow-lane.com/donation-pag...

A selfie of me, a white woman with short dark hair and dark eyes, in my kitchen holding a blue plate with a lemon blueberry scone covered in blue icing. I'm wearing a blue knitted tank top

A selfie of me, a white woman with short dark hair and dark eyes, holding a mug with a blue teapot and blue Sunday text. I'm wearing a blue knitted tank top

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Kelly @broadwaybabyto.bsky.social · 18/05/2025

Why does “learning to live with covid” mean accepting repeat infections as inevitable? Why does it mean throwing the vulnerable to the wayside, unsafe healthcare & mass disability? That’s not “living with it”. That’s giving up We need to adapt. Clean air, paid time off, masks in healthcare.

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Katharine Cheston @kacheston.bsky.social · 16/05/2025

The BMJ has now published my rapid response to Miller et al's Opinion piece. www.bmj.com/content/389/...

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Dr. Lucky Tran @luckytran.com · 14/05/2025

Please do not fall for these lies. RFK Jr has cut funding to Long COVID research, disbanded Long COVID committees, and spread misinformation about COVID vaccines and treatments. He can not be trusted to meaningfully advance Long COVID treatments, and will only exploit vulnerable communities.

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Whitney is Wicked @itswhitneywitch.bsky.social · 12/05/2025

Special thank yous to the people who post on #MECFS & #fibromyalgia awareness day. 6 years ago I was following Dr orders that diet & exercise would relieve my symptoms and I was rapidly declining into severe ME. You taught me to rest & pace. You helped me id comorbids and find effective treatments

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babs ✨ @itsbabs.bsky.social · 12/05/2025

couple the increase in amount of pollen with newly acquired immune dysfunction, like mcas, post acute covid infection and you’ve got a lot of folks having a bad day ps friendly reminder that masks can also reduce the impact of pollen on allergies! obv they don’t cover your eyes but it’s not nothin!

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Whitney is Wicked @itswhitneywitch.bsky.social · 04/05/2025

I don't know if any temporarily able bodied people would understand this, but I know people with #MECFS will. For the last week I've been able to do 1-2 things per day rather than 0-1 things per day without massive symptoms payback and this is such a mind bogglingly massive improvement for me

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Whitney is Wicked @itswhitneywitch.bsky.social · 30/04/2025

How am I supposed to run a double blind clinical trial in my living room ROBERT

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Whitney is Wicked @itswhitneywitch.bsky.social · 20/04/2025

My partner said "that's not a thing" when I suggested pasta and bread for dinner (I just baked two loaves). I think bread and pasta is most definitely a thing. Who's right? Me or him?

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Whitney is Wicked @itswhitneywitch.bsky.social · 19/04/2025

I saw the first hummingbird of the season today! Got some sugar water cooling to put the feeders back out and I can't wait to see my little friends every day

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Yann (ME/LC) @me-cfs.bsky.social · 07/04/2025

“Cure ME/CFS” banner at a German football league match. I love this kind of activism—it builds public awareness and sympathy in ways otherwise impossible. Guerrilla actions are so hard for pwME, who often don’t have the energy. But thankfully, some still manage to make it happen. @emptystands.me

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Whitney is Wicked @itswhitneywitch.bsky.social · 26/03/2025

Reading sunrise on the reaping and Haymitch's poison symptoms are pretty close to my #MECFS symptoms, not gonna lie 😭😭

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Whitney is Wicked @itswhitneywitch.bsky.social · 26/03/2025

What would you do if you pulled up to a healing practitioner's business and they're waving an RFK flag? My neighbor still has this flag up and I wonder how her business isn't suffering. I guess there are a lot of anti science weirdos 😭

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Whitney is Wicked @itswhitneywitch.bsky.social · 25/03/2025

Why are ppl into these weird AI videos of movie and TV characters as babies? I don't understand

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Whitney is Wicked @itswhitneywitch.bsky.social · 22/03/2025

If being in lockdown is the worst thing that happened to you as a result of covid, consider yourself extremely lucky. I'm so tired of these boring takes about lockdown being so bad when tens of millions of people are dead or disabled because covid is still rampant

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Whitney is Wicked @itswhitneywitch.bsky.social · 18/03/2025

The irony of the vascular surgeon telling me to "discuss with my other specialists" to determine the impact of a potential surgery on my comorbids and the fact that there is no ME specialist I can ask because they don't exist and that's my most disabling condition 😭 (ME=Myalgic Encephalomyelitis)

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Whitney is Wicked @itswhitneywitch.bsky.social · 17/03/2025

Looking to connect with people who have median Arcuate Ligament syndrome MALS who have had surgery. What's your pain benefit? Any relief from other symptoms like nausea? Any effects on your comorbids?

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Whitney is Wicked @itswhitneywitch.bsky.social · 14/03/2025

I'm an early adopter for visible and visible plus. They have a lot of data on me. I upgraded to the 2.0 armband and it's wildly inaccurate. For 2 weeks now, support keeps telling me not to return or exchange it, to wait for Polar's response and that it's affecting a "small number" of users....

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Whitney is Wicked @itswhitneywitch.bsky.social · 10/03/2025

Why does zofran taste so good to me now, like candy? I guess bc it takes away the nausea but I def remember absolutely loathing the taste when I first started taking it

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Tal🏳️‍⚧️ ⭐️he/they @artoftalya.bsky.social · 08/03/2025

if you’re black and trans you gotta live, the world needs you

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Courtney Milan @courtneymilan.com · 06/03/2025

I'm begging people who say shit like this to give three shits about racial solidarity, because we are in a race war. The purpose of the race war, as it always has been, is to disrupt class solidarity.

@blazeward.bsky.social says:

we're in a Class War, not a Race War

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Whitney is Wicked @itswhitneywitch.bsky.social · 06/03/2025

I'm so tired of my healthcare options being determined by how profitable I can be for private companies

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