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Bridget

@brid41.bsky.social
211 followers 568 following 73 posts

Chair, #MEAction Maryland @meactmaryland.bsky.social linktr.ee/meactmd adolescent onset #MECFS, #LongCovid, #POTS, #dysautonomia, #MCAS, CPT2, #migraines, #PostHerpeticNeuralgia, #TrigeminalNeuralgia, recurrent #shingles

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Bridget @brid41.bsky.social · 01/07/2026
Congrats! Was a lovely day!!
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MEActMaryland @meactmaryland.bsky.social · 29/06/2026
~Q & A Capstone Episode~ Interview with Dr. Peter Rowe ~ premieres today ~ Monday, 6/29/2026 @1pmET tinyurl.com/RoweMECFSped... 6th and final episode of Evidence-Based Pediatric ME/CFS, an updated video guide for #pediatric #MECFS #RoweMECFSWebinars
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MEActMaryland @meactmaryland.bsky.social · 25/06/2026
Q & A Quote 6/24 “[Pediatric ME/CFS] was a tremendous unmet need. There were patients who were often not getting to school; the older ones couldn’t get to college; the young adults were unable to work. I thought this would be a completely worthwhile way to spend my time in medicine” -Dr Peter Rowe
Text: “[Pediatric ME/CFS] was a tremendous unmet need. There were patients who were often not getting to school; the older ones couldn’t get to college; the young adults were unable to work. I thought this would be a completely worthwhile way to spend my time in medicine.” 

-- Dr. Peter Rowe 
Q & A Capstone Episode
Evidence-Based Pediatric ME/CFS Webinar Series
youtube.com/@MEActMaryland 

Background blue & yellow geometric designs. 
#MEAction Maryland logo 

#MyalgicEncephalomyelitis #pwME #pediatric
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MEActMaryland @meactmaryland.bsky.social · 25/06/2026
All Resources Now for Episode 2 - Pediatric Orthostatic ME/CFS: a Focus on Management ~Slides~ tinyurl.com/RoweSlidesME... Final webinar, a Q & A capsule interview with Dr. Peter Rowe drops: Monday, June 29th #MyalgicEncephalomyelitis #NEISVoid
ALT-TEXT
all slides contain white/yellow/blue geometric background shapes.
The photo on most pages (not page 1) is Dr Rowe, a white man with glasses.
Includes #MEAction Maryland logo

Page 1:  QR code to the Slides; shows an image of the first slide
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MEActMaryland @meactmaryland.bsky.social · 24/06/2026
~Coming Monday 6/29/2026~ "If you understand ME/CFS, you'll have an incredible knowledge base for all of medicine" --Dr. Peter Rowe Q & A Capstone Episode Evidence-Based Pediatric ME/CFS Webinar Series Sharing a quote a day ahead of the episode premiere!
"If you understand ME/CFS, you'll have an incredible knowledge base for all of medicine"

--Dr. Peter Rowe
Q & A Capstone Episode
Evidence-Based Pediatric ME/CFS Webinar Series


Quote is on Blue & yellow background logos include #TeachMETreatME logo  and #MEAction Maryland
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MEActMaryland @meactmaryland.bsky.social · 20/06/2026
Slides - Transcripts - Sources Now available!! Joint Hypermobility / EDS in Pediatric ME/CFS with Dr. Peter Rowe (episode 3) * * * * 📢Coming Soon 📢 Capstone Q & A with Dr Rowe ~ an hourlong interview with pioneer of pediatric ME/CFS
Blue, yellow & white background with an image of Dr Rowe, a white man wearing glasses.

Text tells the objectives of the medical education webinar series:
~Background on EDS & Joint hypermobility
~Association between JH/ and Pediatric ME/CFS
~Reasons to assess for JH/EDS in the clinic care & research studies of Pediatric ME/CFS

#EhlersDanlosSyndrome #EDS #hypermobile #MECFS #myalgicencephalomyelitis
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Bridget @brid41.bsky.social · 22/05/2026
I have cats (with help at home) and they do *literally* rule here - in addition to being super awesome! I actually just told a friend today that animals brought "joy and solace" My plethora of cats are: Griff, Terra, Pat, & Zeena.
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Bridget @brid41.bsky.social · 22/05/2026
He is a marvel! I can feel the waves of cuteness radiating out from the screen. "stranded on Sick Person Island" is a fascinatingly descriptive phrase. My brain keeps thinking of how many varied & unwritten books in different genres for which it could be the back-cover synopsis...
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Bridget @brid41.bsky.social · 14/05/2026
Recent Advances in Biomedical M.E. Research, and Why This Field Needs More www.linkedin.com/events/recen... Thurs, May 14th 1:30 EDT (assuming I did the math correctly)
linkedin.com
LinkedIn Login, Sign in | LinkedIn
Login to LinkedIn to keep in touch with people you know, share ideas, and build your career.
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MEActMaryland @meactmaryland.bsky.social · 13/05/2026
Closing out Maryland's second day on the Hill, we were at the office of @alsobrooks.senate.gov meeting with staff And talking up the NIH ME/CFS Research Roadmap
Gwynn & Bridget stand outside of the office of Senator Alsobrooks (MD) after a long day of meetings and #MillionsMissing in front of the main HHS building.
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MEActMaryland @meactmaryland.bsky.social · 13/05/2026
Some #MillionsMissing photos. Overdid it and have one more day to go. So will be sustainably adding alt text Thurs or Friday - with sincere apologies as to capacity to not get it all up at once.
Red blankets on cots, pillow cases made by pwME and pwLC, and extra apologies that better descriptive text will take a couple days. Maxed out beyond capacity.There is a poster. And on Thurs or Friday all the words written on it will appear here like magic. Or underneath if Bsky doesn't let me edit.Poster #2. Same story
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#MEAction Network @meactnet.bsky.social · 14/05/2026
MEAction had an excellent meeting with Senator Graham’s office yesterday about funding the ME/CFS Research Roadmap. Thank you to MacKenzie Hand (in video) & all advocates who joined us in DC - we met with 8 Congressional Offices in partnership with #NotJustFatigue! #MillionsMissing
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#MEAction Network @meactnet.bsky.social · 02/04/2026
This #MillionsMissing, we are #FrailAndFurious! Injustices are happening worldwide because ME is not taken with the seriousness we deserve. Let's come together to show the world how devastating this disease is. Join the fight: millionsmissing.org #pwME #LongCovid #MECFS
 New Frail and Furious logo plus the MEAction logo on red slightly swirled background. "Frail and Furious" is shown on a swath of white paint. Underneath is the text "#MillionsMissing" but the second I is the outline of a person.   MEAction logo is a circle with the text #MEAction in the circle.
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Elly Brosius, MS @ellybrosius.bsky.social · 25/03/2026
@repwalkinshaw.bsky.social FY27 appropriation bills 3 asks: ~$15.4M for the CDC ME/CFS Program ~$50M for the NIH Research Roadmap & ~ME/CFS in the PRMRP. Please support all 3 in the FY27 appropriations bills. Your VA constituents are counting on you. #MEAwareness #MECFS #VA11
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anneromatowski.bsky.social @anneromatowski.bsky.social · 25/03/2026
ME/CFS affects ~9 million Americans. There are no FDA-approved treatments. We need medical research funding to change that. Today advocates are asking Congress to change that - join us! It takes 5 minutes: solvecfs.quorum.us/campaign/157943/ #MECFS #MEAwarenessHour
solvecfs.quorum.us
Tell Congress to Fund ME/CFS Research in FY27
9 million Americans live with ME/CFS — a serious, disabling disease with no FDA-approved treatments. I just contacted my representatives to urge them to increase CDC funding, keep ME/CFS as an eligibl...
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#MEAction Network @meactnet.bsky.social · 25/03/2026
ME/CFS affects ~9 million Americans. There are no FDA-approved treatments. We need medical research funding to change that. Today advocates are asking Congress to change that - join us! It takes 5 minutes: ow.ly/2hKo50YySls #MECFS #MEAwarenessHour Solve M.E. #MEAction Network
Text-based graphic: "Me/CFS Advocacy Week 2025 Federal Advocacy Day ME/CFS has no FDA-approved treatments. Ask your  Senators and Representatives to sign onto Dear Colleague letters in support of our community appropriations requests- we need medical research funding."
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melinda_is_done @melindaiscomplex.bsky.social · 25/03/2026
@repjohnnyo.bsky.social ME/CFS research at the DoD has been a lifeline for patients and veterans. Please keep ME/CFS eligible in the Peer Reviewed Medical Research Program in FY27. #MEAwareness
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melinda_is_done @melindaiscomplex.bsky.social · 25/03/2026
@vanhollen.senate.gov @alsobrooks.senate.gov ME/CFS research at the DoD has been a lifeline for patients and veterans. Please keep ME/CFS eligible in the Peer Reviewed Medical Research Program in FY27. #MEAwareness
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Brian Shuell @bshuell.bsky.social · 25/03/2026
@slotkin.senate.gov Please support our 3 asks for FY27 Appropriations: • $15.4M for the CDC ME/CFS Program • $50M for the NIH ME/CFS Research Roadmap • ME/CFS in the PRMRP #MEAwareness #MECFS
Graphic stating ME/CFS has no FDA-approved treatments, urging support for medical research funding through advocacy letters.
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Brian Shuell @bshuell.bsky.social · 25/03/2026
@peters.senate.gov Please support our 3 asks for FY27 Appropriations: • $15.4M for the CDC ME/CFS Program • $50M for the NIH ME/CFS Research Roadmap • ME/CFS in the PRMRP #MEAwareness #MECFS
Graphic stating ME/CFS has no FDA-approved treatments, urging support for medical research funding through advocacy letters.
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Liz L @elefebvre11.bsky.social · 25/03/2026
@duckworth.senate.gov 9M Americans, myself included, have ME/CFS and there are still no FDA-approved treatments. Please support $15.4M for the CDC ME/CFS Program in FY27. Funding levels have not increased since 1996, despite COVID causing a rapid rise in cases. #MECFS #AdvocacyWeek2026 #MEAwareness
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Liz L @elefebvre11.bsky.social · 25/03/2026
@duckworth.senate.gov Congress directed NIH to develop an ME/CFS Research Roadmap. Please fund it with $50M in FY27 so we can finally move from plan to action on diagnostics and treatments. #MEAwareness
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Liz L @elefebvre11.bsky.social · 25/03/2026
@duckworth.senate.gov ME/CFS research at the DoD has been a lifeline for patients and veterans. Please keep ME/CFS eligible in the Peer Reviewed Medical Research Program in FY27. #MEAwareness
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Liz L @elefebvre11.bsky.social · 25/03/2026
@durbin.senate.gov Congress directed NIH to develop an ME/CFS Research Roadmap. Please fund it with $50M in FY27 so we can finally move from plan to action on diagnostics and treatments. #MEAwareness
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Liz L @elefebvre11.bsky.social · 25/03/2026
@durbin.senate.gov ME/CFS research at the DoD has been a lifeline for patients and veterans. Please keep ME/CFS eligible in the Peer Reviewed Medical Research Program in FY27. #MEAwareness
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Liz L @elefebvre11.bsky.social · 25/03/2026
@quigley.house.gov 9M Americans including myself have ME/CFS. There are still no FDA-approved treatments. Please support $15.4M for the CDC ME/CFS Program in FY27. Funding has remained the same since 1996, despite COVID increasing the number of ME/CFS diagnoses #MECFS #AdvocacyWeek2026 #MEAwareness
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Liz L @elefebvre11.bsky.social · 25/03/2026
@quigley.house.gov Congress directed NIH to develop an ME/CFS Research Roadmap. Please fund it with $50M in FY27 so we can finally move from plan to action on diagnostics and treatments. #MEAwareness
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Liz L @elefebvre11.bsky.social · 25/03/2026
@quigley.house.gov ME/CFS research at the DoD has been a lifeline for patients and veterans. Please keep ME/CFS eligible in the Peer Reviewed Medical Research Program in FY27. #MEAwareness
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C.H. Romatowski @chromatowski.bsky.social · 25/03/2026
@beyer.house.gov As a constituent with ME/CFS, I’m asking you to support 3 asks for FY27 Appropriations: • $15.4M for the CDC ME/CFS Program • $50M for the NIH ME/CFS Research Roadmap • ME/CFS in the PRMRP Please support all 3—my whole family in VA-08 is counting on you! #MEAwareness #MECFS
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C.H. Romatowski @chromatowski.bsky.social · 25/03/2026
@markwarner.bsky.social As a constituent with ME/CFS, I’m asking you to support 3 asks for FY27 Appropriations: • $15.4M for the CDC ME/CFS Program • $50M for the NIH ME/CFS Research Roadmap • ME/CFS in the PRMRP Please support all 3—my whole family in VA is counting on you! #MEAwareness #MECFS
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C.H. Romatowski @chromatowski.bsky.social · 25/03/2026
@kaine.senate.gov As a constituent with ME/CFS, I’m asking you to support 3 asks for FY27 Appropriations: • $15.4M for the CDC ME/CFS Program • $50M for the NIH ME/CFS Research Roadmap • ME/CFS in the PRMRP Please support all 3—my whole family in VA is counting on you! #MEAwareness #MECFS
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Solve M.E. @solveme.bsky.social · 12/03/2026
Congressional action could make all the difference for people with ME/CFS. Reach out to your Members of Congress today → solvecfs.quorum.us/campaign/157... #pwME #MEAwareness
Graphic urging Congress to transform ME/CFS research, outlining Solve M.E.'s 3 appropriations asks for FY27.
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Liz L @elefebvre11.bsky.social · 25/03/2026
@durbin.senate.gov 9M Americans including myself have ME/CFS and there are still no FDA-approved treatments. Please support $15.4M for the CDC ME/CFS Program in FY27. Funding has remained the same since 1996, despite COVID increasing ME/CFS diagnoses! #MECFS #AdvocacyWeek2026 #MEAwareness
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MEActMaryland @meactmaryland.bsky.social · 25/03/2026
@alsobrooks.senate.gov FY27 appropriation bills 3 asks: ~$15.4M for the CDC ME/CFS Program ~$50M for the NIH Research Roadmap & ~ME/CFS in the PRMRP. Please support all 3 in the FY27 appropriations bills. Your MD constituents are counting on you. #MEAwareness #MECFS
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MEActMaryland @meactmaryland.bsky.social · 25/03/2026
@repkweisimfume.bsky.social FY27 appropriation bills 3 asks: ~$15.4M for the CDC ME/CFS Program ~$50M for the NIH Research Roadmap & ~ME/CFS in the PRMRP. Please support all 3 in the FY27 appropriations bills. Your MD constituents are counting on you. #MEAwareness #MECFS
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MEActMaryland @meactmaryland.bsky.social · 25/03/2026
@vanhollen.senate.gov FY27 appropriation bills 3 asks: ~$15.4M for the CDC ME/CFS Program ~$50M for the NIH Research Roadmap & ~ME/CFS in the PRMRP. Please support all 3 in the FY27 appropriations bills. Your MD constituents are counting on you. #MEAwareness #MECFS
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Bridget @brid41.bsky.social · 25/03/2026
As a constituent I ask @raskin.house.gov to consider these FY27 appropriation asks for #MyalgicEncephalomyelitis. ~For 30 years the CDC budget has not changed ~PRMRP does non-duplicative research in the CDMRP ~AT LEAST $50 MILLION for the NIH research roadmap (which is a well-thought out plan)
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MEActMaryland @meactmaryland.bsky.social · 25/03/2026
@eleanornorton.bsky.social FY27 appropriation bills 3 asks: ~$15.4M for the CDC ME/CFS Program ~$50M for the NIH Research Roadmap & ~ME/CFS in the PRMRP. Please support all 3 in the FY27 appropriations bills. Your DC constituents are counting on you. #MEAwareness #MECFS
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MEActMaryland @meactmaryland.bsky.social · 25/03/2026
@repjohnnyo.bsky.social FY27 appropriation bills 3 asks: ~$15.4M for the CDC ME/CFS Program ~$50M for the NIH Research Roadmap & ~ME/CFS in the PRMRP. Please support all 3 in the FY27 appropriations bills. Your MD constituents are counting on you. #MEAwareness #MECFS
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MEActMaryland @meactmaryland.bsky.social · 25/03/2026
@elfreth.house.gov FY27 appropriation bills 3 asks: ~$15.4M for the CDC ME/CFS Program ~$50M for the NIH Research Roadmap & ~ME/CFS in the PRMRP. Please support all 3 in the FY27 appropriations bills. Your MD constituents are counting on you. #MEAwareness #MECFS
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MEActMaryland @meactmaryland.bsky.social · 25/03/2026
@repaprildelaney.bsky.social FY27 appropriation bills 3 asks: ~$15.4M for the CDC ME/CFS Program ~$50M for the NIH Research Roadmap & ~ME/CFS in the PRMRP. Please support all 3 in the FY27 appropriations bills. Your MD constituents are counting on you. #MEAwareness #MECFS
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MEActMaryland @meactmaryland.bsky.social · 25/03/2026
@hoyer.house.gov FY27 appropriation bills 3 asks: ~$15.4M for the CDC ME/CFS Program ~$50M for the NIH Research Roadmap & ~ME/CFS in the PRMRP. Please support all 3 in the FY27 appropriations bills. Your MD constituents are counting on you. #MEAwareness #MECFS
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MEActMaryland @meactmaryland.bsky.social · 25/03/2026
@repkweisimfume.bsky.social FY27 appropriation bills 3 asks: ~$15.4M for the CDC ME/CFS Program ~$50M for the NIH Research Roadmap & ~ME/CFS in the PRMRP. Please support all 3 in the FY27 appropriations bills. Your MD constituents are counting on you. #MEAwareness #MECFS
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Bridget @brid41.bsky.social · 13/03/2026
Tuesday March 17th is the last day to get HB27 & SB392 out of their committees. #Maryland - if you have the capacity- please contact your legislators!
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Bridget @brid41.bsky.social · 19/02/2026
Have you ever tried the Colgate Wisps? shop.colgate.com/products/col... Helpful for the bed-times.
shop.colgate.com
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MEActMaryland @meactmaryland.bsky.social · 10/02/2026
Submit Written Testimony Alert! Tuesday, Feb 10th ONLY! 8am-6pm ET SB 0392 Long Covid Innovation Grant & Loan Program Submissions are required to have a my MGA account NOT required to be a Maryland resident Please see linked 🧵 for details #LongCovid
Submit Written Testimony Alert!
Tuesday, Feb 10th ONLY!
8am-6pm ET

SB 0392 (Maryland) Long Covid Innovation Grant & Loan Program

Blue background with the Maryland state colored in Maryland State flag colors.

Reminder that all links are in our https://linktr.ee/meactmd
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MEActMaryland @meactmaryland.bsky.social · 10/02/2026
This exact link www.youtube.com/watch?v=8Yyp...
youtube.com
HLT Committee Session, 2/10/2026
YouTube video by MGA - HLT
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MEActMaryland @meactmaryland.bsky.social · 14/01/2026
Continuing to highlight each episode (and make sure their slides get shared on the early episodes) Episode 4: Biomechanical Manifestations in Pediatric ME/CFS YT: tinyurl.com/RoweMECFSped... #thoracicOutletSyndrome #MyalgicEncephalomyelitis
Episode 4: Biomechanical Considerations in Pediatric ME/CFS

Blue, white, & yellow background including a photo of Dr. Rowe, a white man with glasses. The @meactmaryland.bsky.social logo is in the bottom right corner

A list of objectives for the #meded webinar are included.
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MEActMaryland @meactmaryland.bsky.social · 09/12/2025
Neuroanatomical Considerations in Pediatric ME/CFS Monday, December 15th at 1pm Dr Peter Rowe's 5th #Evidencebased #Pediatric #MECFS webinar series #MedEd #MedSky Provider-oriented & patient accessible #livedexperience panel Available online at: Youtube.com/@MEActMaryland #Neuroanatomy
Alt ID: Graphic in blue/ yellow/ and white sharing info about the upcoming event: Neuroanatomic Considerations in Pediatric ME/CFS with Dr. Peter Rowe on Dec 15th, 2025 at 1 pm ET.


It includes a photo of Dr. Rowe


The graphic also lists things you will learn and shares that it will be facilitated by @meactmaryland.bsky.social.  Those are also listed in this post.  #TeachMETreatME logo is in the bottom corner. This series will be available online at Youtube.com/@MEActMaryland 

#neuroanatomic #neuroanatomy #neuro #neurology #Neurosky #Neuronerds 
#tinnitus 
#medsky#meded #medstudent
#livedexperience #evidencebased 
#mecfs  #myalgicencephalomyelitis #cfsme  #cfs  #chronicfatiguesyndrome  
#pediatric #pediatrics
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Bridget @brid41.bsky.social · 19/11/2025
Community is caregiving. Sending you all a virtual hug today. I appreciate you all 💜
Pink background
Text says:
Sending you extra love today!
Sending you a virtual hug
I appreciate you always

Image of a big heart with the "computer mouse" arrow clicking on the heart

@meactnet.bsky.social logo bottom right hand corner
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