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melinda_is_done

@melindaiscomplex.bsky.social
2K followers 2.1K following 208 posts

My body has given up but I haven't... Bed-tethered disabled Advocate on hiatus (but RESISTing) due to severe ME & LC & comorbids. Co-founder #MEAction Maryland. Orioles/Ravens/Caps fan. She/her 🩷💜💙

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Reposted by melinda_is_done
George Monbiot @georgemonbiot.bsky.social · 24/09/2026
Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...
theguardian.com
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
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melinda_is_done @melindaiscomplex.bsky.social · 22/09/2026
Shew. Some #BB28 fandom really need to evaluate their perceived relationship with seeing people on a TV show 24/7. Parasocial obsession is a real thing.
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Reposted by melinda_is_done
Heather Cox Richardson (TDPR) @hcrichardson.bsky.social · 18/09/2026
I'm in love.
youtube.com
2026: Time for the Midterms
YouTube video by Hamilton
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melinda_is_done @melindaiscomplex.bsky.social · 15/09/2026
Yup... #BB28
Current COVID symptom listU.S. map of current COVID levels
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melinda_is_done @melindaiscomplex.bsky.social · 14/09/2026
THANK YOU CHIMA!!! PAIS - post-acute infection syndromes are common and the public health failure of covering them up and stigmatizing for decades needs to be on blast! #BB28 share.google/jWMyvl4APMAe...
share.google
Post-acute infection syndrome - Wikipedia
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melinda_is_done @melindaiscomplex.bsky.social · 13/09/2026
Holy $h!t Henry!! #RavensFlock
static.klipy.com
Derrick Henry Crowned King in Locker Room
Alt: Derrick Henry Crowned King in Locker Room
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melinda_is_done @melindaiscomplex.bsky.social · 13/09/2026
That woke up my partner and made him laugh 🤣 #BB28
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melinda_is_done @melindaiscomplex.bsky.social · 12/09/2026
All of you joking about Yash or whoever coughing on or sitting next to another person to get them sick are absolutely not funny. It is not a joke to purposely get another person sick. I would never wish illness on another to teach a lesson, but y'all seriously need to learn. #BB28
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melinda_is_done @melindaiscomplex.bsky.social · 11/09/2026
So it turns out a Haley rumor started it all... #NotSurprised #BB28
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melinda_is_done @melindaiscomplex.bsky.social · 11/09/2026
Thank you, Devens. Yes it is heavy. #NeverForget #BB28
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melinda_is_done @melindaiscomplex.bsky.social · 10/09/2026
Tinnitus sucks. And there are certain speaking tones you just can't hear. My partner has to repeat things to me all of the time, especially if I'm not actively paying attention to them. So I get it #BB28
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melinda_is_done @melindaiscomplex.bsky.social · 10/09/2026
As one whose life has been destroyed by a viral infection, I honestly can't even describe how sickening it is to see what is going on in #BB28 right now. PAIS or post-acute infection syndromes can affect ANYONE. I never recovered from H1N1 and was made severely disabled by covid. PLEASE....
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melinda_is_done @melindaiscomplex.bsky.social · 09/09/2026
That we're 6+ years into this and people are only talking about social distancing & washing hands speaks to the absolute public health failure. Clean air protocols are needed. An environ with no windows, recirculating air & several days at a time locked in = all airborne particles staying. #BB28
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melinda_is_done @melindaiscomplex.bsky.social · 09/09/2026
It sounds like bacterial pharyngitis/bronchitis... #BB28
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melinda_is_done @melindaiscomplex.bsky.social · 08/09/2026
A lot of y'all need to listen to the actual clip. Sheesh. #BB28
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melinda_is_done @melindaiscomplex.bsky.social · 30/08/2026
Everyone who's okay with and laughing at the toe walker comment - HYPOCRITES!!! #BB28
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melinda_is_done @melindaiscomplex.bsky.social · 27/08/2026
My HR brain always looks at this like a live-in seasonal workplace. Wks 4-5 is where the personalities start to clash. In a toxic environ it always gets worse. With good mgmt it can be improved. Some people simply are not able to live/work together and Drew/Lala CLEARLY issues from the start. #BB28
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melinda_is_done @melindaiscomplex.bsky.social · 23/08/2026
Once out of the environment I think many of them will/can be receptive in learning their biases and be educated. #BB28
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melinda_is_done @melindaiscomplex.bsky.social · 23/08/2026
As someone who spent 25 years doing employee relations and harassment training, none of them are currently in a place to actually receive and absorb the info/education. The house right now is overall a heightened pressure, everyone's focus on how this'll affect me in getting 750k. #BB28
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melinda_is_done @melindaiscomplex.bsky.social · 23/08/2026
Oh, the HYPOCRISY #BB28
static.klipy.com
Clue: Flames on the Side of My Face
Alt: Clue: Flames on the Side of My Face
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Reposted by melinda_is_done
heyojanna.bsky.social @heyojanna.bsky.social · 22/08/2026
so they’ve been throwing drew UTB the last 24 hrs to get him OTB and now they’re mad he just aired it out publicly. okay. #bb28
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Joy @joy2u.bsky.social · 21/08/2026
Stop underestimating these women! #BB28
Angela BB28Latrice BB28
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melinda_is_done @melindaiscomplex.bsky.social · 17/08/2026
One of the creative types needs to do a "it's FAP & the Vets" to Benny and the Jets 😂 #BB28
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Big Brother Gossip @bbgossip.bsky.social · 02/08/2026
Some of you all have never found lists or feeds have you? Here are some things you should consider Pinning to make your life easier here on Bluesky (a thread): First, my #BB28 Feed, it shows any NEW post with #BB28 or BB28, but not all replies & I filter out the spammers: bsky.app/profile/bbgo...
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Reposted by melinda_is_done
Your Girl Slothy @slothymcslothface.bsky.social · 27/07/2026
Dear BB, We dont need to see kamu anymore this week. Thx #BB28 #BBSky
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melinda_is_done @melindaiscomplex.bsky.social · 25/07/2026
Well Kamu... #BB28
static.klipy.com
Sorry To Ruin Your Plans Janelle Pierzina
Alt: Janelle Pierzina in the BB diary room saying Sorry To Ruin Your Plans
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melinda_is_done @melindaiscomplex.bsky.social · 23/07/2026
Big Brotherdle #15 — 2/8 👁 Well dang! ⬛⬛🟩🟧🟩🟧 🟩🟩🟩🟩🟩🟩 Bigbrotherdle.com/bb
bigbrotherdle.com
Big Brotherdle: Daily Big Brother Houseguest Guessing Game
Guess the Big Brother houseguest in 8 tries. New puzzle every day: match by season, comp wins, placement, age, and more!
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melinda_is_done @melindaiscomplex.bsky.social · 18/07/2026
Kamu & Chuk right now 😳🙄😤 #BB28
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melinda_is_done @melindaiscomplex.bsky.social · 17/07/2026
Oops 😂 #BB28
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melinda_is_done @melindaiscomplex.bsky.social · 09/07/2026
It's here! My summer life line has arrived #BB28 #BBsky
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#MEAction Network @meactnet.bsky.social · 05/05/2026
One week until May 12th - #MEAwarenessDay & #MillionsMissing. The week is May 9- 16. Your story matters! Resources & prompts in our toolkit: bit.ly/MM2026toolkit We will soon be sharing sample posts created by volunteers to help get us all started! #FrailAndFurious #pwME
Red and white graphic promoting the #MillionsMissing 2026 campaign with tips for sharing stories and engaging on social media using @meactnet and specific hashtags. Text: Be genuine! Tag us using @meactnet and use #MillionsMissing and #FrailAndFurious. If sharing your story in wriiting, add an image. Keep videos under 3 minutes. Give people an action to take. Link to our site or our fundraiser. US only: add to our Medicaid story bank and sign our HHS letter.
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brokenwingpoet @brokenwingpoet.bsky.social · 06/05/2026
This poem speaks to the immense losses and grief of ME and Long COVID, that all but snuff out last embers of dreams. And to dreams still faintly burning. #MECFS #LongCovid #pwME #poetry #disabledpoet #millionsmissing #bedbound
ID: Missing
 
I know most of me has gone
missing. I feel parts of me slip
beyond my grasp each day.
Brain fog cuts sentences
to confused silences.
 
But I am still here. Even if
some days just faintly
breathing behind a thin cage
of skin, waiting, dreaming,
dreaming of being me, again.]
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#MEAction Network @meactnet.bsky.social · 07/05/2026
Press Alert: #ME/CFS and #LongCOVID communities are gathering at HHS on May 12th to urge policymakers to exempt our communities from Medicaid work requirements. Read the press release: 4a6ff496-ce8b-4c52-93d2-15f9b79bd151.usrfiles.com/ugd/4a6ff4_5... #FreakinFrail #ProtectMedicaid #Medicaid
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Esther @elhopkins.bsky.social · 19/04/2026
www.cidrap.umn.edu/covid-19/stu...
cidrap.umn.edu
Study links long COVID in kids to worse grades, attention, and social life
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Reposted by melinda_is_done
DrSinBin @drsinbin.bsky.social · 19/04/2026
I'm not joking when I say mRNA technology is more important than "AI" and it's a tragedy we're throwing billions into one while our government is aggressively defunding the other.
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melinda_is_done @melindaiscomplex.bsky.social · 17/04/2026
21 million Americans with Long COVID are depending on YOU. Ask your Senator to sign the FY27 Dear Colleague letter by Friday and #FundLongCOVID research and care. 👉🏻👉🏽👉🏿 [Campaign URL] share.nwmd.social/s/NAZH6KG9
share.nwmd.social
Sign On, Senators: #FundLongCOVID in FY27
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Reposted by melinda_is_done
#MEAction Network @meactnet.bsky.social · 26/03/2026
Today for #MECFSAdvocacyWeek: add your name to letters to State Medical Boards & Chief Medical Officers. Community sign-on: tinyurl.com/StateMedicalBoardForm Clinicians: tinyurl.com/ClinicianSignOnForm Share our posts: tinyurl.com/MECFSThursdaySocials Optional Zoom at 3 pm ET. Solve M.E. #pwME
ME/CFS Advocacy Week 2026 Day 4: Sign letters to State Medical Boards and Chief Medical Officers, share widely, optional Zoom at 3 pm ET. Text-based graphic with cream background and red and blue writing. Text: Day 4 Sign your name to letters to State Medical Boards and Chief Medical officers.* Share with your networks! Optional Zoom call at 3 om ET. *Medical providers add your name to our  clinician letter!
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#MEAction Network @meactnet.bsky.social · 26/03/2026
#MECFS is not consistently recognized, diagnosed, or safely managed across healthcare settings. We're asking State Medical Boards to meet with our community & support our efforts to get ME/CFS questions on national licensing exams. Sign: ow.ly/vLAK50YzkCb Solve M.E. #MEAction Network
ow.ly
Community Letter Sign-on Form
Thank you for adding your voice to this effort. By signing on, you are joining patients, caregivers, clinicians, and allies across the country in asking State Medical Boards and State Health Leadership to recognize ME/CFS competency as a patient safety and standard-of-care issue — and to recommend that ME/CFS questions be included in national licensure exams. This form gives you the option to sign on to each of these letters: The State Medical Board Letter asks your State Medical Board to meet with clinicians and lived experience experts to discuss ME/CFS education gaps, and to recommend...
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MeidasTouch @meidastouch.com · 25/03/2026
NEWS: Bette Midler just released a remake of Woody Guthrie’s classic protest song “All You Fascists Bound to Lose,” updated to fit the current moment and urge action ahead of the midterms. You have to listen to this.
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melinda_is_done @melindaiscomplex.bsky.social · 25/03/2026
@vanhollen.senate.gov @alsobrooks.senate.gov ME/CFS research at the DoD has been a lifeline for patients and veterans. Please keep ME/CFS eligible in the Peer Reviewed Medical Research Program in FY27. #MEAwareness
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melinda_is_done @melindaiscomplex.bsky.social · 25/03/2026
@repjohnnyo.bsky.social ME/CFS research at the DoD has been a lifeline for patients and veterans. Please keep ME/CFS eligible in the Peer Reviewed Medical Research Program in FY27. #MEAwareness
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#MEAction Network @meactnet.bsky.social · 25/03/2026
ME/CFS affects ~9 million Americans. There are no FDA-approved treatments. We need medical research funding to change that. Today advocates are asking Congress to change that - join us! It takes 5 minutes: ow.ly/2hKo50YySls #MECFS #MEAwarenessHour Solve M.E. #MEAction Network
Text-based graphic: "Me/CFS Advocacy Week 2025 Federal Advocacy Day ME/CFS has no FDA-approved treatments. Ask your  Senators and Representatives to sign onto Dear Colleague letters in support of our community appropriations requests- we need medical research funding."
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anneromatowski.bsky.social @anneromatowski.bsky.social · 25/03/2026
ME/CFS affects ~9 million Americans. There are no FDA-approved treatments. We need medical research funding to change that. Today advocates are asking Congress to change that - join us! It takes 5 minutes: solvecfs.quorum.us/campaign/157943/ #MECFS #MEAwarenessHour
solvecfs.quorum.us
Tell Congress to Fund ME/CFS Research in FY27
9 million Americans live with ME/CFS — a serious, disabling disease with no FDA-approved treatments. I just contacted my representatives to urge them to increase CDC funding, keep ME/CFS as an eligibl...
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Solve M.E. @solveme.bsky.social · 25/03/2026
Today for #MECFSAdvocacyWeek: make your voice heard at the federal level. Contact your reps: solvecfs.quorum.us/campaign/157943 Share our posts: tinyurl.com/MECFSFederalAdvocacyDay #MECFS #pwME #MEAwarenessHour
Graphic stating ME/CFS has no FDA-approved treatments, urging support for medical research funding through advocacy letters.
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melinda_is_done @melindaiscomplex.bsky.social · 24/03/2026
NO KINGS 3 VIRTUAL RALLY organized by Stand Up for Science! Saturday, March 28th, from 12:30-2pm CT, it's an accessible and inclusive rally for everyone, everywhere. #NoKings3 #NoKings #Democracy #VirtualRally #ChronicIllness #MECFS www.standupforscience.net/sufs-nk3
standupforscience.net
SUFS NoKings3 Accessible Rally — STAND UP FOR SCIENCE
NO KINGS 3 ACCESSIBLE RALLY organized by Stand Up for Science - An online and inclusive rally for everyone, everywhere, on March 28th, 12:30 - 2PM CT followed by live stream of the national flagship ...
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melinda_is_done @melindaiscomplex.bsky.social · 22/03/2026
👋🏻 #severeME sux #MECFS #LongCovid #ChronicIllness
White text on a green-blue background. The text is describing Melinda's crash and loss of baseline after finishing the clinical med trial she was in.White text on a green-blue background. The text is describing Melinda's crash and loss of baseline after finishing the clinical med trial she was in.
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Physicians for a Healthy Democracy @physiciandemocracy.medsky.social · 02/02/2026
Reported from San Antonio area news -- There's a #Measles outbreak at the #Dilley detention center where #LiamRamos was being held. #LiamConejoRamos is back home but there are still 400 other children (1200 total detainees) still at the facility. #MedSky #IDSky www.sacurrent.com/news/san-ant...
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Restorative Justice & Reparations @c-anemone-d.bsky.social · 26/01/2026
Following the violent assault of a disabled woman by ICE last week, and the many reports of abuses of people with disabilities in their concentration camps, it’s worth rereading this primer on Disability Criminalisation from the Center for Racial and Disability Justice
law.georgetown.edu
Disability Criminalization: A Primer
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Laura Flanders @gritlaura.bsky.social · 25/01/2026
This entire thread is important. Exactly the movement analysis and reporting that our media will never do. Watch ICE, denounce fascism all you like - we’ll never build power if we don’t learn how. The Minnesotans aren’t simply “nice.” They are deeply organized.
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Chris Murphy @chrismurphyct.bsky.social · 26/01/2026
I know it's hard to track all the threats to democracy out there right now, but this is at the top of the list.
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