iiinova — where your digital self keeps evolving

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MEActMaryland @meactmaryland.bsky.social · 29/06/2026

~Q & A Capstone Episode~ Interview with Dr. Peter Rowe ~ premieres today ~ Monday, 6/29/2026 @1pmET tinyurl.com/RoweMECFSped... 6th and final episode of Evidence-Based Pediatric ME/CFS, an updated video guide for #pediatric #MECFS #RoweMECFSWebinars

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MEActMaryland @meactmaryland.bsky.social · 25/06/2026

Q & A Quote 6/24 “[Pediatric ME/CFS] was a tremendous unmet need. There were patients who were often not getting to school; the older ones couldn’t get to college; the young adults were unable to work. I thought this would be a completely worthwhile way to spend my time in medicine” -Dr Peter Rowe

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MEActMaryland @meactmaryland.bsky.social · 25/06/2026

All Resources Now for Episode 2 - Pediatric Orthostatic ME/CFS: a Focus on Management ~Slides~ tinyurl.com/RoweSlidesME... Final webinar, a Q & A capsule interview with Dr. Peter Rowe drops: Monday, June 29th #MyalgicEncephalomyelitis #NEISVoid

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MEActMaryland @meactmaryland.bsky.social · 24/06/2026

~Coming Monday 6/29/2026~ "If you understand ME/CFS, you'll have an incredible knowledge base for all of medicine" --Dr. Peter Rowe Q & A Capstone Episode Evidence-Based Pediatric ME/CFS Webinar Series Sharing a quote a day ahead of the episode premiere!

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MEActMaryland @meactmaryland.bsky.social · 20/06/2026

Slides - Transcripts - Sources Now available!! Joint Hypermobility / EDS in Pediatric ME/CFS with Dr. Peter Rowe (episode 3) * * * * 📢Coming Soon 📢 Capstone Q & A with Dr Rowe ~ an hourlong interview with pioneer of pediatric ME/CFS

Blue, yellow & white background with an image of Dr Rowe, a white man wearing glasses.

Text tells the objectives of the medical education webinar series:
~Background on EDS & Joint hypermobility
~Association between JH/ and Pediatric ME/CFS
~Reasons to assess for JH/EDS in the clinic care & research studies of Pediatric ME/CFS

#EhlersDanlosSyndrome #EDS #hypermobile #MECFS #myalgicencephalomyelitis

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Bridget @brid41.bsky.social · 14/05/2026

Recent Advances in Biomedical M.E. Research, and Why This Field Needs More www.linkedin.com/events/recen... Thurs, May 14th 1:30 EDT (assuming I did the math correctly)

linkedin.com

LinkedIn Login, Sign in | LinkedIn

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MEActMaryland @meactmaryland.bsky.social · 13/05/2026

Closing out Maryland's second day on the Hill, we were at the office of @alsobrooks.senate.gov meeting with staff And talking up the NIH ME/CFS Research Roadmap

Gwynn & Bridget stand outside of the office of Senator Alsobrooks (MD) after a long day of meetings and #MillionsMissing in front of the main HHS building.

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MEActMaryland @meactmaryland.bsky.social · 13/05/2026

Some #MillionsMissing photos. Overdid it and have one more day to go. So will be sustainably adding alt text Thurs or Friday - with sincere apologies as to capacity to not get it all up at once.

Red blankets on cots, pillow cases made by pwME and pwLC, and extra apologies that better descriptive text will take a couple days. Maxed out beyond capacity.

There is a poster. And on Thurs or Friday all the words written on it will appear here like magic. Or underneath if Bsky doesn't let me edit.

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#MEAction Network @meactnet.bsky.social · 14/05/2026

MEAction had an excellent meeting with Senator Graham’s office yesterday about funding the ME/CFS Research Roadmap. Thank you to MacKenzie Hand (in video) & all advocates who joined us in DC - we met with 8 Congressional Offices in partnership with #NotJustFatigue! #MillionsMissing

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#MEAction Network @meactnet.bsky.social · 02/04/2026

This #MillionsMissing, we are #FrailAndFurious! Injustices are happening worldwide because ME is not taken with the seriousness we deserve. Let's come together to show the world how devastating this disease is. Join the fight: millionsmissing.org #pwME #LongCovid #MECFS

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Elly Brosius, MS @ellybrosius.bsky.social · 25/03/2026

@repwalkinshaw.bsky.social FY27 appropriation bills 3 asks: ~$15.4M for the CDC ME/CFS Program ~$50M for the NIH Research Roadmap & ~ME/CFS in the PRMRP. Please support all 3 in the FY27 appropriations bills. Your VA constituents are counting on you. #MEAwareness #MECFS #VA11

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anneromatowski.bsky.social @anneromatowski.bsky.social · 25/03/2026

ME/CFS affects ~9 million Americans. There are no FDA-approved treatments. We need medical research funding to change that. Today advocates are asking Congress to change that - join us! It takes 5 minutes: solvecfs.quorum.us/campaign/157943/ #MECFS #MEAwarenessHour

solvecfs.quorum.us

Tell Congress to Fund ME/CFS Research in FY27

9 million Americans live with ME/CFS — a serious, disabling disease with no FDA-approved treatments. I just contacted my representatives to urge them to increase CDC funding, keep ME/CFS as an eligibl...

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#MEAction Network @meactnet.bsky.social · 25/03/2026

ME/CFS affects ~9 million Americans. There are no FDA-approved treatments. We need medical research funding to change that. Today advocates are asking Congress to change that - join us! It takes 5 minutes: ow.ly/2hKo50YySls #MECFS #MEAwarenessHour Solve M.E. #MEAction Network

Text-based graphic: "Me/CFS Advocacy Week 2025 Federal Advocacy Day ME/CFS has no FDA-approved treatments. Ask your Senators and Representatives to sign onto Dear Colleague letters in support of our community appropriations requests- we need medical research funding."

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melinda_is_done @melindaiscomplex.bsky.social · 25/03/2026

@repjohnnyo.bsky.social ME/CFS research at the DoD has been a lifeline for patients and veterans. Please keep ME/CFS eligible in the Peer Reviewed Medical Research Program in FY27. #MEAwareness

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melinda_is_done @melindaiscomplex.bsky.social · 25/03/2026

@vanhollen.senate.gov @alsobrooks.senate.gov ME/CFS research at the DoD has been a lifeline for patients and veterans. Please keep ME/CFS eligible in the Peer Reviewed Medical Research Program in FY27. #MEAwareness

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Brian Shuell @bshuell.bsky.social · 25/03/2026

@slotkin.senate.gov Please support our 3 asks for FY27 Appropriations: • $15.4M for the CDC ME/CFS Program • $50M for the NIH ME/CFS Research Roadmap • ME/CFS in the PRMRP #MEAwareness #MECFS

Graphic stating ME/CFS has no FDA-approved treatments, urging support for medical research funding through advocacy letters.

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Brian Shuell @bshuell.bsky.social · 25/03/2026

@peters.senate.gov Please support our 3 asks for FY27 Appropriations: • $15.4M for the CDC ME/CFS Program • $50M for the NIH ME/CFS Research Roadmap • ME/CFS in the PRMRP #MEAwareness #MECFS

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Liz L @elefebvre11.bsky.social · 25/03/2026

@duckworth.senate.gov 9M Americans, myself included, have ME/CFS and there are still no FDA-approved treatments. Please support $15.4M for the CDC ME/CFS Program in FY27. Funding levels have not increased since 1996, despite COVID causing a rapid rise in cases. #MECFS #AdvocacyWeek2026 #MEAwareness

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Liz L @elefebvre11.bsky.social · 25/03/2026

@duckworth.senate.gov Congress directed NIH to develop an ME/CFS Research Roadmap. Please fund it with $50M in FY27 so we can finally move from plan to action on diagnostics and treatments. #MEAwareness

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Liz L @elefebvre11.bsky.social · 25/03/2026

@duckworth.senate.gov ME/CFS research at the DoD has been a lifeline for patients and veterans. Please keep ME/CFS eligible in the Peer Reviewed Medical Research Program in FY27. #MEAwareness

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Liz L @elefebvre11.bsky.social · 25/03/2026

@durbin.senate.gov Congress directed NIH to develop an ME/CFS Research Roadmap. Please fund it with $50M in FY27 so we can finally move from plan to action on diagnostics and treatments. #MEAwareness

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Liz L @elefebvre11.bsky.social · 25/03/2026

@durbin.senate.gov ME/CFS research at the DoD has been a lifeline for patients and veterans. Please keep ME/CFS eligible in the Peer Reviewed Medical Research Program in FY27. #MEAwareness

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Liz L @elefebvre11.bsky.social · 25/03/2026

@quigley.house.gov 9M Americans including myself have ME/CFS. There are still no FDA-approved treatments. Please support $15.4M for the CDC ME/CFS Program in FY27. Funding has remained the same since 1996, despite COVID increasing the number of ME/CFS diagnoses #MECFS #AdvocacyWeek2026 #MEAwareness

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Liz L @elefebvre11.bsky.social · 25/03/2026

@quigley.house.gov Congress directed NIH to develop an ME/CFS Research Roadmap. Please fund it with $50M in FY27 so we can finally move from plan to action on diagnostics and treatments. #MEAwareness

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Liz L @elefebvre11.bsky.social · 25/03/2026

@quigley.house.gov ME/CFS research at the DoD has been a lifeline for patients and veterans. Please keep ME/CFS eligible in the Peer Reviewed Medical Research Program in FY27. #MEAwareness

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C.H. Romatowski @chromatowski.bsky.social · 25/03/2026

@beyer.house.gov As a constituent with ME/CFS, I’m asking you to support 3 asks for FY27 Appropriations: • $15.4M for the CDC ME/CFS Program • $50M for the NIH ME/CFS Research Roadmap • ME/CFS in the PRMRP Please support all 3—my whole family in VA-08 is counting on you! #MEAwareness #MECFS

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C.H. Romatowski @chromatowski.bsky.social · 25/03/2026

@markwarner.bsky.social As a constituent with ME/CFS, I’m asking you to support 3 asks for FY27 Appropriations: • $15.4M for the CDC ME/CFS Program • $50M for the NIH ME/CFS Research Roadmap • ME/CFS in the PRMRP Please support all 3—my whole family in VA is counting on you! #MEAwareness #MECFS

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C.H. Romatowski @chromatowski.bsky.social · 25/03/2026

@kaine.senate.gov As a constituent with ME/CFS, I’m asking you to support 3 asks for FY27 Appropriations: • $15.4M for the CDC ME/CFS Program • $50M for the NIH ME/CFS Research Roadmap • ME/CFS in the PRMRP Please support all 3—my whole family in VA is counting on you! #MEAwareness #MECFS

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Solve M.E. @solveme.bsky.social · 12/03/2026

Congressional action could make all the difference for people with ME/CFS. Reach out to your Members of Congress today → solvecfs.quorum.us/campaign/157... #pwME #MEAwareness

Graphic urging Congress to transform ME/CFS research, outlining Solve M.E.'s 3 appropriations asks for FY27.

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Liz L @elefebvre11.bsky.social · 25/03/2026

@durbin.senate.gov 9M Americans including myself have ME/CFS and there are still no FDA-approved treatments. Please support $15.4M for the CDC ME/CFS Program in FY27. Funding has remained the same since 1996, despite COVID increasing ME/CFS diagnoses! #MECFS #AdvocacyWeek2026 #MEAwareness

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MEActMaryland @meactmaryland.bsky.social · 25/03/2026

@alsobrooks.senate.gov FY27 appropriation bills 3 asks: ~$15.4M for the CDC ME/CFS Program ~$50M for the NIH Research Roadmap & ~ME/CFS in the PRMRP. Please support all 3 in the FY27 appropriations bills. Your MD constituents are counting on you. #MEAwareness #MECFS

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MEActMaryland @meactmaryland.bsky.social · 25/03/2026

@repkweisimfume.bsky.social FY27 appropriation bills 3 asks: ~$15.4M for the CDC ME/CFS Program ~$50M for the NIH Research Roadmap & ~ME/CFS in the PRMRP. Please support all 3 in the FY27 appropriations bills. Your MD constituents are counting on you. #MEAwareness #MECFS

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MEActMaryland @meactmaryland.bsky.social · 25/03/2026

@vanhollen.senate.gov FY27 appropriation bills 3 asks: ~$15.4M for the CDC ME/CFS Program ~$50M for the NIH Research Roadmap & ~ME/CFS in the PRMRP. Please support all 3 in the FY27 appropriations bills. Your MD constituents are counting on you. #MEAwareness #MECFS

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Bridget @brid41.bsky.social · 25/03/2026

As a constituent I ask @raskin.house.gov to consider these FY27 appropriation asks for #MyalgicEncephalomyelitis. ~For 30 years the CDC budget has not changed ~PRMRP does non-duplicative research in the CDMRP ~AT LEAST $50 MILLION for the NIH research roadmap (which is a well-thought out plan)

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MEActMaryland @meactmaryland.bsky.social · 25/03/2026

@eleanornorton.bsky.social FY27 appropriation bills 3 asks: ~$15.4M for the CDC ME/CFS Program ~$50M for the NIH Research Roadmap & ~ME/CFS in the PRMRP. Please support all 3 in the FY27 appropriations bills. Your DC constituents are counting on you. #MEAwareness #MECFS

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MEActMaryland @meactmaryland.bsky.social · 25/03/2026

@repjohnnyo.bsky.social FY27 appropriation bills 3 asks: ~$15.4M for the CDC ME/CFS Program ~$50M for the NIH Research Roadmap & ~ME/CFS in the PRMRP. Please support all 3 in the FY27 appropriations bills. Your MD constituents are counting on you. #MEAwareness #MECFS

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MEActMaryland @meactmaryland.bsky.social · 25/03/2026

@elfreth.house.gov FY27 appropriation bills 3 asks: ~$15.4M for the CDC ME/CFS Program ~$50M for the NIH Research Roadmap & ~ME/CFS in the PRMRP. Please support all 3 in the FY27 appropriations bills. Your MD constituents are counting on you. #MEAwareness #MECFS

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MEActMaryland @meactmaryland.bsky.social · 25/03/2026

@repaprildelaney.bsky.social FY27 appropriation bills 3 asks: ~$15.4M for the CDC ME/CFS Program ~$50M for the NIH Research Roadmap & ~ME/CFS in the PRMRP. Please support all 3 in the FY27 appropriations bills. Your MD constituents are counting on you. #MEAwareness #MECFS

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MEActMaryland @meactmaryland.bsky.social · 25/03/2026

@hoyer.house.gov FY27 appropriation bills 3 asks: ~$15.4M for the CDC ME/CFS Program ~$50M for the NIH Research Roadmap & ~ME/CFS in the PRMRP. Please support all 3 in the FY27 appropriations bills. Your MD constituents are counting on you. #MEAwareness #MECFS

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MEActMaryland @meactmaryland.bsky.social · 25/03/2026

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Bridget @brid41.bsky.social · 13/03/2026

Tuesday March 17th is the last day to get HB27 & SB392 out of their committees. #Maryland - if you have the capacity- please contact your legislators!

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MEActMaryland @meactmaryland.bsky.social · 10/02/2026

Submit Written Testimony Alert! Tuesday, Feb 10th ONLY! 8am-6pm ET SB 0392 Long Covid Innovation Grant & Loan Program Submissions are required to have a my MGA account NOT required to be a Maryland resident Please see linked 🧵 for details #LongCovid

Submit Written Testimony Alert!
Tuesday, Feb 10th ONLY!
8am-6pm ET

SB 0392 (Maryland) Long Covid Innovation Grant & Loan Program

Blue background with the Maryland state colored in Maryland State flag colors.

Reminder that all links are in our https://linktr.ee/meactmd

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MEActMaryland @meactmaryland.bsky.social · 14/01/2026

Continuing to highlight each episode (and make sure their slides get shared on the early episodes) Episode 4: Biomechanical Manifestations in Pediatric ME/CFS YT: tinyurl.com/RoweMECFSped... #thoracicOutletSyndrome #MyalgicEncephalomyelitis

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MEActMaryland @meactmaryland.bsky.social · 09/12/2025

Neuroanatomical Considerations in Pediatric ME/CFS Monday, December 15th at 1pm Dr Peter Rowe's 5th #Evidencebased #Pediatric #MECFS webinar series #MedEd #MedSky Provider-oriented & patient accessible #livedexperience panel Available online at: Youtube.com/@MEActMaryland #Neuroanatomy

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Bridget @brid41.bsky.social · 19/11/2025

Community is caregiving. Sending you all a virtual hug today. I appreciate you all 💜

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The Real McCoy @rippermd41.bsky.social · 27/10/2025

I think the best thing I’ve ever done when it comes to my doctors’ appts is creating a FUNCAP timeline. My husband and I sat down together and filled it out for different points in time. It paints a clear picture of #MECFS and the dangers of post-exertional malaise.

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MEActMaryland @meactmaryland.bsky.social · 31/10/2025

TeamBlueZoo's cutest member protests for Healthcare reform Things are so scary, that no dressing up was required Because the facts are the facts & they look dire Affordable health care (ACA) has expired #SaveMedicaid #ADA @meactnet.bsky.social

Deja Blue, a light brown service dog sits in the grass in front of a sign PAWS OFF OUR HEALTHCARE!
PAWS OFF OUR RIGHTS!
PAWS OFF OUR FREEDOM!
#NOKINGS
#meactmaryland @meactmaryland.bsky.social
#TEAMBLUEZOO

sign with pawprints reading:
PAWS OFF OUR HEALTHCARE!
PAWS OFF OUR RIGHTS!
PAWS OFF OUR FREEDOM!
#NOKINGS
#meactmaryland @meactmaryland.bsky.social
#TEAMBLUEZOO

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#MEAction Network @meactnet.bsky.social · 29/10/2025

Let’s be clear. If the federal government doesn't make changes to health care during this shutdown, then a lot of Americans WILL lose access to our healthcare as we know it. We are joining in coalition with other orgs aimed at protecting Medicaid in FLIPPING the Narrative. We need your help!

A character in a costume mask and black cloak is at top of graphic with black background. Text underneath: Don’t Let This Season BE A Horror Story. SAVE ACA! Save MEDICAID!

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MEActMaryland @meactmaryland.bsky.social · 02/11/2025

Today is the day after Halloween & this pumpkin is not scary ... Not like Medicaid cuts are scary for millions of Americans - they're life and death. #savemedicaid #aca @meactnet.bsky.social

ALT-TEXT:
smallish Halloween pumpkin sort of adorably decorated (with stick on decorations) black ears, black wings, big huge owl eyes, yellow beak, huge orange flippers

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