iiinova — where your digital self keeps evolving

Dr. Brittany N Hand @bn-hand.bsky.social · 30/03/2025

Unfortunately I think that one is CDC funded and is moving forward as far as I’m aware

Dr. Brittany N Hand @bn-hand.bsky.social · 28/03/2025

I’m devastated for current and future generations of autistic Americans who are being robbed of scientific advancements that could improve their health and wellbeing.

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Dr. Brittany N Hand @bn-hand.bsky.social · 28/03/2025

CDMRP cuts entire autism research program for FY2025. This is a major blow for #AutismResearch in the U.S. cdmrp.health.mil/pubs/press/2...

cdmrp.health.mil

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Reposted by Dr. Brittany N Hand

Science Magazine @science.org · 19/02/2025

Scientists are now organizing events, called Stand Up for Science, on 7 March in Washington, D.C., and state capitals. So far, they have attracted more than 100 volunteers from some 30 states who are hoping to rally support for research as a public good. scim.ag/4328LAD

scim.ag

‘I really wanted something to happen.’ The students behind the Stand Up for Science protests

New group hopes to turn out researchers for 7 March demonstrations against Trump administration policies

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Reposted by Dr. Brittany N Hand

Stand Up for Science! @standupforscience.net · 12/02/2025

Welcome to the Bluesky account for Stand Up for Science 2025! Keep an eye on this space for updates, event information, and ways to get involved. We can't wait to see everyone #standupforscience2025 on March 7th, both in DC and locations nationwide! #scienceforall #sciencenotsilence

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Magdalena Skipper @magdalenaskipper.bsky.social · 21/02/2025

NIH research grants still frozen despite lawsuits challenging Trump order The administration is exploiting a loophole to keep a funding freeze in place, leaving researchers in limbo 🧪 #AcademicSky @nature.com @natureportfolio.nature.com www.nature.com/articles/d41...

nature.com

Revealed: NIH research grants still frozen despite lawsuits challenging Trump order

The Trump administration is exploiting a loophole to keep a funding freeze in place, leaving researchers in limbo.

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Michelle Dawson @autismcrisis.bsky.social · 18/02/2025

Findings from a high-profile study on autistic mortality are widely misrepresented by citing authors jamanetwork.com/journals/jam... with "potential repercussions for autistic people, including psychological distress, altered retirement planning, insurance denials, & exacerbated health disparities"

jamanetwork.com

Citation Context Analysis of Autism Mortality and Suicide Findings

This systematic review evaluates the accuracy of citations to a landmark study on premature mortality among autistic people.

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Dr. Brittany N Hand @bn-hand.bsky.social · 17/02/2025

>70% of citing authors misrepresent findings on mortality in autistic people, often falsely claiming “people with autism die 16 years earlier” or have a “54-year life expectancy.” New OA paper with @drlaurenbishop.bsky.social jamanetwork.com/journals/jam...

jamanetwork.com

Citation Context Analysis of Autism Mortality and Suicide Findings

This systematic review evaluates the accuracy of citations to a landmark study on premature mortality among autistic people.

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Reposted by Dr. Brittany N Hand

Aram Sinnreich @aramsinn.bsky.social · 05/02/2025

My university library is assembling a list of resources for disappeared US government #data. Check it out: subjectguides.library.american.edu/data_rescue

subjectguides.library.american.edu

Subject Guides: Government Information Data Rescue: Home

Links to trusted repositories that have rescued U.S. government data

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Reposted by Dr. Brittany N Hand

Amy Feldman @amyfeldman7.bsky.social · 22/01/2025

If you’ve been directly impacted by a pause or cancellation of an NIH study session, we @forbes.com would like to talk to you

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Dr. Brittany N Hand @bn-hand.bsky.social · 06/12/2024

Added- Feel free to share and let me know if there are others I’ve missed!

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Dr. Brittany N Hand @bn-hand.bsky.social · 06/12/2024

Added- Feel free to share and let me know if there are others I’ve missed!

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aslynn is just a ghoul 👻 @aslynnromano.com · 03/12/2024

“Stimming had a SIGNIFICANT POSITIVE impact on autistic adults’ self-rated self-efficacy” “Results CONTRADICT the negative view often expressed suggesting that stimming should be eradicated” “Stimming has a POSITIVE effect and SUPPORTS autistic individuals’ ability to COPE with difficulties” 🫠

link.springer.com

Repetitive Behaviours in Autistic and Non-Autistic Adults: Associations with Sensory Sensitivity and Impact on Self-Efficacy - Journal of Autism and Developmental Disorders

Purpose: Restricted and repetitive behaviours are a core feature of autism diagnoses but have not been widely studied in adulthood. This study examined the rates of and associations between repetitive...

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Reposted by Dr. Brittany N Hand

Dr. Holly E.A. Sutherland @heasutherland.com · 21/11/2024

There's half a dozen of them at this point I think! Autism health research - bsky.app/starter-pack... Autism research - bsky.app/starter-pack... & bsky.app/starter-pack... Autistic professionals (includes some researchers) - bsky.app/starter-pack... Autistic psych people - bsky.app/starter-pack...

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Michelle Dawson @autismcrisis.bsky.social · 03/12/2024

On the confusing definitions of ID & DD: "Not everyone with a DD has ID, but do all people with ID, by definition, have a DD? Can someone have ID but not DD? How are populations of people with ID, DD, and IDD characterized in different datasets?" pubmed.ncbi.nlm.nih.gov/39585684/ autism-relevant

pubmed.ncbi.nlm.nih.gov

About Whom Are We Talking When We Use Intellectual and Developmental Disabilities? - PubMed

Authors of scholarly works, clinical publications, policies, and position papers are encouraged to provide a clear operational definition as well as the choice of initialisms used (eg, ID/DD, IDD, I/D...

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Dr. Brittany N Hand @bn-hand.bsky.social · 01/12/2024

Would love to be added to this list if there is still room. Thanks!

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Dr. Brittany N Hand @bn-hand.bsky.social · 21/11/2024

Added! Thanks for the recs and definitely send more my way if you think of any :)

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Reposted by Dr. Brittany N Hand

Mary Doherty @autisticdoctor.bsky.social · 20/11/2024

Lovely to be able to post our first “new” paper since I started hanging out here rather than the other place 😎 Wonderful to work with such a fabulous team on such a great project, bringing knowledge of neurodivergence to medical education. More to come, watch this space!

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Dr. Brittany N Hand @bn-hand.bsky.social · 20/11/2024

Added! Feel free to share and let me know if there are others I missed

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Dr. Brittany N Hand @bn-hand.bsky.social · 20/11/2024

Added! Feel free to share and let me know if there are others I missed

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Dr. Brittany N Hand @bn-hand.bsky.social · 20/11/2024

Yes, I just added you! Please feel free to share and let me know if there’s anyone else I missed

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Dr. Brittany N Hand @bn-hand.bsky.social · 19/11/2024

I’ve created a starter pack of accounts focusing on research to improve health, health outcomes, and healthcare for autistic people. Will continue adding to this over the next few weeks also! #Autism #AutismResearch #AutRes go.bsky.app/Kpo99jS

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Laura Crane @lauramaycrane.bsky.social · 16/09/2024

Gave this Starter Pack thing a try... #AutRes #AutismResearch #Autism go.bsky.app/B9XV8UA

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Dr. Brittany N Hand @bn-hand.bsky.social · 17/11/2024

This is super helpful- thanks for compiling! I’d be happy to be included also if possible!

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