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Arlene Jackson

@arlenejackson.bsky.social
64 followers 65 following 47 posts

Writer, researcher, PhD student

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Arlene Jackson @arlenejackson.bsky.social · 10/09/2026
Please consider reading the details of Karen’s case and taking a few seconds to support her necessary action against an NHS that is hostile to the reality of #ME by signing the petition c.org/L4CL9PCpQr
c.org
Sign the Petition
Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings.
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Arlene Jackson @arlenejackson.bsky.social · 29/05/2026
I bring together my experience of the menopause with ME in this piece for @the-polyphony.bsky.social. Many thanks to @alyfixit.bsky.social for supporting this work. #pwME #menopause #cyanotype #writing thepolyphony.org/2026/05/29/c...
thepolyphony.org
‘Mrs Average of the UK’ Makes Something of Her Menopause
Arlene Jackson’s reflective cyanotype prints allow the sun’s rays to transform a body dehumanised by sexist medical disbelief into ‘something extraordinary’.
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Arlene Jackson @arlenejackson.bsky.social · 01/12/2025
A real honour to have contributed to @lsereviewofbooks.bsky.social on the important and prescient issue of the social care crisis via this review. #DisabilityHistoryMonth #disability #chronicillness #socialcare
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Arlene Jackson @arlenejackson.bsky.social · 14/11/2025
💕 Thank you @fullhouselitmag.bsky.social for supporting this piece.
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Arlene Jackson @arlenejackson.bsky.social · 26/06/2025
My second #Ekphrasis piece inspired by AshleyCook’s art and my lived experience of #chronicillness #ME is now live on the wonderful #DisabledTales. Involving the myth of the siren, Wolf Larsen and even a Beatles reference! 😌 www.disabledtales.co.uk/essays/the-l... #pwme #lyrics #greekmyths
A female figure within a seascape of pink, purple and blue colours with a ship at full sail behind.
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Arlene Jackson @arlenejackson.bsky.social · 23/05/2025
So honoured to have contributed to @the-polyphony.bsky.social In Practice series. Thank you so much @alyfixit.bsky.social for your support of this piece 😌 #writing #medicalhumanities #pwme #chronicillness #art #photography
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Esther @elhopkins.bsky.social · 26/04/2025
So sad to see this happening.
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Arlene Jackson @arlenejackson.bsky.social · 26/04/2025
@itslauracasey.bsky.social 🤩💕
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Tara Dublin, Rock Star Author📚❤️‍🔥🤘🏻 @taradublinrocks.com · 18/04/2025
True facts are true
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Cold War Steve @coldwarsteve.bsky.social · 15/04/2025
Photomontage of depression era America, with Jeff Bezos and the crew of his latest multi million dollar Blue Origin space-jizz
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Yann (ME/LC) @me-cfs.bsky.social · 14/04/2025
A german charity is planning on building a social housing project for people with severe ME. Tailored vis à vis noise/light reduction, 24hr assistance etc. Location: Neunkirchen-Seelscheid They need 5 people interested. So please share. (Requirement to be on German Welfare)
sozialhummel.de
Wohnprojekt für schwer ME/CFS-Betroffene in Neunkirchen-Seelscheid: Interessenten gesucht! - Sozialhummel gGmbH
In Neunkirchen-Seelscheid ist ein Wohnprojekt speziell für schwer ME/CFS-Betroffene mit 24-Stunden-Assistenz in Planung. Ein Bauträger möchte in Zusammenarbeit mit Sozialhummel in 53819 Neunkirchen-Se...
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Arlene Jackson @arlenejackson.bsky.social · 09/04/2025
So happy that my little musing on the effort of meditation has been chosen as prose of the day by the wonderful Ink, Sweat and Tears inksweatandtears.co.uk/arlene-jacks... #flashfiction #writing #meditation #inksweatandtears
inksweatandtears.co.uk
Arlene Jackson | Ink Sweat and Tears
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Tom Kindlon @tomkindlon.bsky.social · 03/04/2025
A huge amount of dissatisfaction and not much satisfaction regarding "NHS experience and specialist visits" from people with ME/CFS and to a slightly lesser extent people with long Covid in the UK From: bmjopen.bmj.com/content/15/4... #MEcfs #LongCovid
Figure 1
NHS experience and specialist visits. This figure presents responses regarding NHS experiences and access to specialist care for individuals with ME/CFS and long COVID. It categorises overall satisfaction with NHS services (very poor, poor, mixed, good, excellent) and illustrates the frequency of specialist visits, highlighting challenges in accessing specialised care. ME/CFS, myalgic encephalomyelitis/chronic fatigue syndrome; NHS, National Health Service.
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Tom King @tallgeekychap.bsky.social · 25/03/2025
It turns out that saying 'this is not austerity' while simultaneously making and defending spending cuts... does not work.
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Disability Rights UK @disrightsuk.bsky.social · 25/03/2025
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Frances Ryan @francesryan.bsky.social · 17/03/2025
“Long Covid is the pandemic’s dark shadow. Why does no one in power in Britain want to talk about it?” My col. for the people who are still in their own personal lockdown - and those in power who must finally help them. www.theguardian.com/commentisfre...
theguardian.com
Long Covid is the pandemic’s dark shadow. Why does no one in power in Britain want to talk about it? | Frances Ryan
Five years after the first lockdown, millions of lives are still being ruined by this debilitating disease. You wouldn’t know it, says Guardian columnist Frances Ryan
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Arlene Jackson @arlenejackson.bsky.social · 16/03/2025
Thank you to @sensecharity.bsky.social for providing an accessible campaign template, enabling me to write to my MP @gordonmckee.bsky.social re #disabiltycuts more swiftly than I would otherwise be able. The fact we have to do this at all is shameful.
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Sense @sensecharity.bsky.social · 13/03/2025
The government is planning to cut disability benefits. This could have a devastating impact on disabled people. We need as many MPs as possible to speak out against disability benefits cuts before they're announced as early as Monday. Ask your MP now: action.sense.org.uk/page/167765/...
action.sense.org.uk
Stop cuts to disability benefits | Sense
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Glasgow Women's Library @womenslibrary.bsky.social · 12/03/2025
There's still time to book your free ticket for tomorrow's Story Café. From awe-inspiring adventures to tales of love and longing, wonder and wanderlust, our Story Café is the perfect way to relax over lunchtime. Book here: womenslibrary.org.uk/event/story-...
womenslibrary.org.uk
Story Café | Glasgow Women's Library
Rediscover the joy of being read to, as we dip into stories and poems by some of the best women writers around.
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Long Covid Advocacy @longcovidadvoc.com · 11/03/2025
🗞️ Article in @theguardian.com -includes section on #LongCovid “People don’t want to be reminded of what happened, which I understand,” said Jade. “But we are not postpandemic, we’re post-precautions. Covid is still here.” Full article: tinyurl.com/2u6xe8jx
Two women in reflective vests stand in front of the National Covid Memorial Wall, which is adorned with numerous red hearts. The wall displays the title "THE NATIONAL COVID MEMORIAL WALL" above them. The image captures a moment of reflection as they appear to engage in conversation, highlighting the ongoing impact of COVID-19. The text overlay discusses the long-term effects of the pandemic on society, education, and finances, emphasizing the experiences of those who continue to mourn.
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Frances Ryan @francesryan.bsky.social · 11/03/2025
“Every time you see a headline on “the cost of the benefits bill”, what you are really reading is “the cost of disabled people”.  My col. on Labour’s reported benefit cuts and the toxic narrative of the “moral” virtue of work. www.theguardian.com/commentisfre...
theguardian.com
There is a shameful tradition of demonising disabled people. Why is Labour reigniting it? | Frances Ryan
Ministers run away from a wealth tax and then concoct a punitive benefits system. They have made that choice and it’s immoral, says Guardian columnist Frances Ryan
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Arlene Jackson @arlenejackson.bsky.social · 06/03/2025
Hopeful! Potentially not only to harvest new antibiotics (as in article) but to further understand immune related conditions (my optimism!) #research #health #chronicillness www.bbc.co.uk/news/article...
bbc.co.uk
Scientists discover new part of the immune system
New part of the immune system - hidden inside our bodies - could be used to make new antibiotics.
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Arlene Jackson @arlenejackson.bsky.social · 05/03/2025
The first page of an article reporting the outcomes of the Glasgow Disability Alliance campaign I was involved in says it all on a day when this current incarnation of the Labour Party abandon their founding ethos YET AGAIN #disabled #activism #austerity #disabilitycampaign
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Glasgow Women's Library @womenslibrary.bsky.social · 03/03/2025
RSVP for our closing event with photographer Rayna Carruthers on Saturday 22 March Hear Rayna speak about her photography, the process and some of the ways she considers ethics within her practice. All welcome. RSVP here: womenslibrary.org.uk/event/while-...
womenslibrary.org.uk
While We Wait: Closing Event with Rayna Carruthers | Glasgow Women's Library
An opportunity to see this beautiful exhibition a week before it closes and to hear Rayna Carruthers speak about her photography, the process and some of the ways she considers ethics within her…
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Arlene Jackson @arlenejackson.bsky.social · 28/02/2025
A blue and yellow background the colours of the Ukraine flag with a sunflower image in the middle supporting Ukraine
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Arlene Jackson @arlenejackson.bsky.social · 23/02/2025
😂
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Arlene Jackson @arlenejackson.bsky.social · 19/02/2025
Reading Intermezzo by S Rooney and dismayed by the overt ableism, esp re sexuality. Decided to repost my piece for The Polyphony as a riposte - a close reading of Samatha Renke’s memoir to discuss disabled sexuality through a lens of self-worth #disability #writing #medicalhumanities #booksky
thepolyphony.org
Reclaiming the Disabled Sexual Self
Arlene Jackson reflects on sexuality, empowerment and discrimination in Samantha Renke’s 2022 memoir ‘You are the Best Thing Since Sliced Bread’. Amongst the many themes in Samantha Renke’s memoir,…
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Brandy Schillace @bschillace.brandyschillace.com · 17/02/2025
PAYWALL FREE: A collection of protests from around the country on NOT MY PRESIDENT day: #resist #protest brandy-schillace.medium.com/not-my-presi...
brandy-schillace.medium.com
Not My President Day Protests
Coverage collected from socials for the 50501 “no kings” day
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Simon Marks @simonmarksfsn.bsky.social · 01/02/2025
America, 2025
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Arlene Jackson @arlenejackson.bsky.social · 25/01/2025
Happy Burn’s Night all. Here’s to the continued appreciation of an enduring, eloquent, meaningful, working class voice, who recognised inequalities of power and hoped for a better world. #burnsnight #rabbieburns #poetry #radicalism
A person wearing red tartan clothing carrying a large paperback of the works of Rabbie Burns with an image of Rabbie on the cover
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LaurenWalshArt @laurenwalshart.bsky.social · 23/01/2025
Creativity is like a houseplant, not an endless well. You need to seek out sunlight, water, and nutrients in art, shows, music, experiences, and more to tend to it. And just like plants it has its dormant and active periods and you may not seem improvement for some time.
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Arlene Jackson @arlenejackson.bsky.social · 11/01/2025
Living with #chronicillness can make building a snowman tough, but drawing one on a bin lid not only brought me just as much joy - it gave the bin men a smile too ⛄️😅💕 #snow #disability #adaptation #photography
An outline of a traditional snowman figure wearing a top hat, etched out on the snow across the lid of of a wheelie bin
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Lucy Burke @lucyburkemcr.bsky.social · 10/01/2025
Austerity kills people, destroys lives and life chances, health and communities - the prospect of a so-called Labour Government making further cuts to an already decimated public sector is utterly sickening.
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Arlene Jackson @arlenejackson.bsky.social · 01/01/2025
Looking out of my window at midnight towards the fireworks across the city and wishing all a happy, peaceful New Year typically it’s taken me almost 24 hrs to post, but the sentiment remains ☺️ #newyear #2025 #glasgow #photography 📸 @arlene.jackson.bsky.social
An open window looking across a city scape in the midnight darkness with a foreground of a lit candle on a window ledge and fireworks shooting in to the night sky in the distance.
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Arlene Jackson @arlenejackson.bsky.social · 21/12/2024
Happy Winter Solstice and Horray for the return of the light ⭐️ So pleased to have been able to have enjoyed the gift of nature earlier today. #wintersolstice #naturephotography 📸 @arlenejackson.bsky.social
A forefront of vivid green moss and ferns sprinkled with amber and copper fallen leaves with a background of bare but statuesque trees against a low winter sun.
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Arlene Jackson @arlenejackson.bsky.social · 07/12/2024
chng.it/9pH8LZn9zp #ME #patientadvocacy #stigma
chng.it
Sign the Petition
ME Association Chair Neil Riley must step down
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Arlene Jackson @arlenejackson.bsky.social · 25/11/2024
With the case of Lucy Letby in the news again, it feels apt to post my critical piece on the dangers of the cultural beatification of nurses, wherein I discuss the case. @bbcnews-uk-rss.bsky.social #lucyletby #nursing #medicalhumanities #writing medicalhealthhumanities.com/2024/02/19/b...
medicalhealthhumanities.com
Beware the Cultural Beatification of Nurses - S Y N A P S I S
A few months in to our first year of nurse training at separate hospitals, my friend and I met for lunch. “I’d always assumed that nurses were lovely people,” my friend lamented as we swapped stories ...
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