iiinova — where your digital self keeps evolving

Reposted by Anne Finucane

Alasdair MacLullich @amaclullich.bsky.social · 10/08/2025

New book on #delirium for families - coming out in August 2025. #newbook

053 0

Reposted by Anne Finucane

Ross McIntosh @rossmcintosh.bsky.social · 21/07/2025

Listen to our latest Mini Series with Dr Anne Finucane and Dr David Gillanders and you'll find out more about their brilliant resource - mygriefmyway.co.uk - listen here or wherever you get your pods. rossmcintosh.co.uk/links/

032 0

Anne Finucane @annefinucane.bsky.social · 21/07/2025

The Royal Society of Medicine have launched their medical student essay competition - palliative care section. 2000 words by 25th sept. Title: “Difficult patients" or a difficult system? Reimagining palliative care for people with serious mental illness. www5.shocklogic.com/scripts/jmev...

www5.shocklogic.com

Palliative Care Section: George Adams Prize

001 0

Anne Finucane @annefinucane.bsky.social · 30/05/2025

Thanks so much Mark! We are uploading additional new material soon. And we have a webinar on the resource and its development on 10th June: www.mainexchange.org.uk/webinars/upc...

Reposted by Anne Finucane

Donna Wakefield @donnawakefield.bsky.social · 30/05/2025

Sharing the results of this important study at #EAPC2025: Mapping the #PalliativeCare #Research workforce in the UK 🗺️ - thoughts? Led by @annefinucane.bsky.social -with wide collaboration including @simonnoahetkind.bsky.social & @flissmurtagh.bsky.social Funded by @mariecurieeolc.bsky.social

0205 0

Anne Finucane @annefinucane.bsky.social · 30/05/2025

Great to see over 100 posters on the management of psychological symptoms & needs at #eapc2025. Check out our poster on research required in this area. And feel free to join our network to exchange ideas on research and practice in this space: www.mainexchange.org.uk

186 0

Anne Finucane @annefinucane.bsky.social · 29/05/2025

My Grief My Way: delighted to present a poster on our bereavement support resource at #eapc2025. Our website content is free to use by all, with further material coming soon! mygriefmyway.co.uk Funded by @mariecurieuk.bsky.social

11410 0

Reposted by Anne Finucane

Alasdair MacLullich @amaclullich.bsky.social · 30/04/2025

Myth: Sedatives (like benzos) are mostly helpful in calming delirium. Fact: Sedatives often worsen delirium. Non-drug approaches (reorientation, hydration, mobility) are first-line treatments.

051 0

Anne Finucane @annefinucane.bsky.social · 07/04/2025

Grant writing workshop - Edinburgh 08.05.25. 👉 Networking & brainstorming ideas for future grant applications on mental wellbeing towards end-of-life. 👉Bursaries available for 2 early career researchers 👉Info: www.mainexchange.org.uk/news/grant-w... Funded by @mariecurieeolc.bsky.social

mainexchange.org.uk

Grant Writing Workshop 8th May 2025

MAIN

031 0

Reposted by Anne Finucane

Lucy Selman @lucyselman.bsky.social · 04/04/2025

New paper: Caregiving burden, receipt of palliative care, and the use of bereavement support: secondary analysis of population-based data bmcpalliatcare.biomedcentral.com/articles/10.... Congratulations Maja!

088 0

Anne Finucane @annefinucane.bsky.social · 04/04/2025

My Grief My Way: All welcome to our webinar on the development of an acceptance based bereavement support website to enhance coping and quality of life after bereavement. 10.06.25. With @davidgillanders.bsky.social Register: www.mainexchange.org.uk/webinars/ Funded by @mariecurieeolc.bsky.social

Reposted by Anne Finucane

Prof Erica Borgstrom @ericaborgstrom.bsky.social · 27/03/2025

Want to engage more with someone who has memory loss or dementia, but don't know where to start? With OU Connect, I've created a short guide to Reminiscence Therapy, using objects to unlock memories & connections. Interactive & free printout here - publuu.com/flip-book/46...

publuu.com

Reminiscence Therapy

Read all about Reminiscence Therapy and download and/or our print our easy-to-use guide on how to do it.

1429 0

Reposted by Anne Finucane

Prof Katherine Sleeman @katherinesleeman.bsky.social · 20/03/2025

🔔 RECRUITMENT ALERT 🔔 Very excited to be recruiting to THREE new posts (Lecturer, G6/7 and G4) in my team at King’s College London to set up and grow a new Impact Centre for Palliative and End of Life Care. See next tweets for details. Impact Centre: www.kcl.ac.uk/research/the... Pls share

kcl.ac.uk

1105 0

Anne Finucane @annefinucane.bsky.social · 10/03/2025

Invitation: Our next Mental health and wellbeing in Advanced Illness Network (MAIN) webinar is on 1 April @ 1pm. Topic: Identification of psychological distress in palliative care. With @lgrahamwisener.bsky.social & Dr Niall Galligan. Register here: events.teams.microsoft.com/event/a35af4...

events.teams.microsoft.com

Microsoft Virtual Events Powered by Teams

011 0

Reposted by Anne Finucane

Kasia Patynowska @kpatynowska.bsky.social · 07/03/2025

This paper is a helpful reminder of importance of consistent and scheduled #writing! I've recently started to write everyday but the paper offers tips how to make it more structured and effective🤩 Thanks @johnmacartney.bsky.social and Rachel Perry! #academicsky nilq.qub.ac.uk/index.php/ni...

nilq.qub.ac.uk

Northern Ireland Legal Quarterly

The Northern Ireland Legal Quarterly is a legal research journal published quarterly by the School of Law at Queen's University Belfast.

061 0

Reposted by Anne Finucane

MarieCurieEOLC @mariecurieeolc.bsky.social · 13/02/2025

We’re excited to announce the launch of new research priorities for palliative and end of life care! These have been created in a project with the JLA and other partner organisations, including co-funders the ESRC and @mndassoc.bsky.social, and guided by people affected by a life limiting illness.

The top 10 new priorities for palliative and end of life care research are:

How do people with dementia experience end of life? How can palliative and end of life care better meet their needs and those of their carers, friends and families?
How can NHS, social services and charities work more collaboratively to provide joined-up care that better meets the needs of people with a serious life-limiting illness and their carers, friends and families?
What kinds of palliative and end of life care and support need to be in place to enable people to die well at home? What skills do staff need? What helps or hinders the delivery of care at home?
What are the best ways to provide personalised palliative and end of life care that meets all the physical, mental, practical, social and spiritual needs of a person with a serious life-limiting illness?
How can palliative and end of life care better meet the complex needs of people with multiple health conditions?
How can communication and care co-ordination be improved across the teams of health and social care professionals caring for people with any serious life-limiting illness?
What skills, training and information do carers, friends and family members need to be able to care for someone who is dying at home (e.g. giving medicines safely by injection, managing incontinence, moving people)? What is the impact (pros and cons) of upskilling the people giving care?
How can the quality of palliative and end of life care in hospital be improved? What helps or hinders improvement?
What are the best ways to provide palliative and end of life care, support and advice at all hours (24/7 or out of hours)?
How can palliative and end of life care better meet the needs of people who live alone, or are socially isolated?

12113 0

Reposted by Anne Finucane

John MacArtney @johnmacartney.bsky.social · 12/02/2025

You can also now download and read our report, "'To Know Dying' Identifying research areas in palliative and end of life care for the social sciences and humanities" healthopenresearch.org/documents/7-1 @ericaborgstrom.bsky.social @brionyhudson.bsky.social @marigreenfield.bsky.social

Screenshot of report's title page giving title and authors (all included in main message).

1169 0

Anne Finucane @annefinucane.bsky.social · 01/02/2025

Hi Emma, we have a session on recognising & managing delirium at our upcoming Marie Curie conference. 13th feb @ 11am. Free to register. All welcome! (Thx @natashabradley.bsky.social for the connection). www.mariecurie.org.uk/globalassets...

mariecurie.org.uk

010 0

Anne Finucane @annefinucane.bsky.social · 17/01/2025

Looking forward to the next MAIN webinar, TODAY at 12:30 with @paedpallcare.bsky.social & @victoriaefisher.bsky.social On the health and wellbeing of parents and children with life-limiting conditions. Still time to register here!: www.mainexchange.org.uk/webinars/upc...

Reposted by Anne Finucane

John MacArtney @johnmacartney.bsky.social · 10/01/2025

REALLY IMPORTANT SURVEY for all those in the UK researching dying and palliative care. The results will help shape research funding - so have your say, *especially* if you are have a social science or humanities background!

167 0

Anne Finucane @annefinucane.bsky.social · 06/01/2025

Invitation - open until Sunday 12th: If you are a UK-based researcher, or clinician conducting palliative care research, please complete our brief survey to help funders understand what is needed to sustain and grow palliative care research in the UK. Now open until 12.1.25:

158 0

Anne Finucane @annefinucane.bsky.social · 19/12/2024

We share links to systematic review evidence on mental wellbeing & psychological support for people with advanced illness here: www.mainexchange.org.uk/research/. If you would like us to add any open access reviews you are aware of, please get in touch!

011 0

Anne Finucane @annefinucane.bsky.social · 19/12/2024

If you interested in research on mental health and wellbeing for people impacted by advanced illness, please check out our MAIN website and resources. Free to join. All welcome. Next webinar is 17.01.25. Funded by @mariecurieuk.bsky.social www.mainexchange.org.uk

mainexchange.org.uk

Mental Health and Wellbeing in Advanced Illness Network

MAIN

110 0

Anne Finucane @annefinucane.bsky.social · 16/12/2024

Invitation: If you are a UK-based researcher, or clinician conducting palliative care research, please complete our brief survey to help funders understand what is needed to sustain and grow palliative care research in the UK. Now open until 12.1.25: app.onlinesurveys.jisc.ac.uk/s/edinburgh/...

01118 0

Reposted by Anne Finucane

Ross G. White @rossgwhite.com · 10/12/2024

Wrap the Tree in a bow 🌲 🎁 🧑‍🎄 I wrote #TheTreeThatBends to help people excel & feel well. Highlights include: 🌟 Developing a Flexible Mind by being Anchored, Willing & Empowered 🌟 Navigating our ‘Get’, ‘Threat’ & ‘Reset’ modes to reduce the risk of burnout. Order: amzn.eu/d/1AWTjM8 #booksky

021 0

Anne Finucane @annefinucane.bsky.social · 09/12/2024

And here is a link to our shorter video for patients and families. With advice on how to care for a terminally ill person with delirium: m.youtube.com/watch?v=muyz...

m.youtube.com

Supporting people with delirium

YouTube video by Marie Curie

010 0

Anne Finucane @annefinucane.bsky.social · 09/12/2024

Sharing our delirium resources for healthcare professionals caring for people approaching end-of-life. Includes advice on using the 4AT to identify delirium. youtu.be/e6PXbWvWCTI?...

youtu.be

Caring for someone with delirium – for healthcare professionals

YouTube video by Marie Curie

165 0

Anne Finucane @annefinucane.bsky.social · 05/12/2024

Care for spiritual distress (existential crisis) has been added to the Scottish Palliative Care Guidelines. tinyurl.com/y4k67ja5

153 0

Reposted by Anne Finucane

Altmetric @altmetric.com · 03/12/2024

BLUESKY MEGA-THREAD Altmetric is thrilled and also LITERALLY RELIEVED to officially announce: We are now tracking research attention as it happens on Bluesky! We have been picking up posts on the site since late Oct. Our team is on Bluesky all day answering questions. Let's get into it!

Blueksy Mentions are now in Altmetric.

It's been 84 years meme

#AcademicSky #HigherEd #MedSky #HMSky #Altmetrics #Medlibs #Metascience

382323658 0

Reposted by Anne Finucane

Trish Greenhalgh @trishgreenhalgh.bsky.social · 01/12/2024

Loving this new paper on complexity in medicine, using pediatrics as the worked example. Too many medical authors (and the MRC) run fast and loose with the terms 'complexity' and 'complex interventions'. They should read this paper. #medsky #academicsky #philsci 🧪 www.nature.com/articles/s41...

nature.com

If things were simple, word would have gotten around. Can complexity science help us improve pediatric research? - Pediatric Research

Pediatric Research - If things were simple, word would have gotten around. Can complexity science help us improve pediatric research?

1316953 0

Reposted by Anne Finucane

Dr Rachel Clarke @drrachelclarke.com · 01/12/2024

Dear @rthonwesstreeting.bsky.social You said that part of the reason you couldn’t vote for the AD bill was the lack of adequate palliative care in the UK. You are the health secretary. Will you now pledge publicly & immediately to fix that? Or are dying people not enough of a priority?

23486166 0

Reposted by Anne Finucane

Dr Rachel Clarke @drrachelclarke.com · 30/11/2024

Thanks @lbc.co.uk for having me on to discuss AD. Both Keir Starmer & Wes Streeting know full well how grossly underfunded UK palliative care is - & they have the power to change that. But will they? Or will they turn their backs on dying people? www.lbc.co.uk/news/palliat...

1335293 0

Reposted by Anne Finucane

Mark Hazelwood @palliativescot.bsky.social · 29/11/2024

Scottish Partnership for Palliative Care's monthly ebulletin is out. Everything you need to know on policy, practice, news, events and some research. Sign up on our home page and this month's available here www.palliativecarescotland.org.uk/viewmail.php...

palliativecarescotland.org.uk

063 0

Reposted by Anne Finucane

Farrukh @implausibleblog.bsky.social · 29/11/2024

Palliative Care Doctor, Dr Rachel Clarke, "There are thousands of people suffering unnecessary pain" "We may be in a peculiar position where we have a state funded dying service but we don't have a state funded palliative care service"

14592198 0

Reposted by Anne Finucane

Sarah Bowers @spbowers.bsky.social · 26/11/2024

Really important super short survey to capture the UK palliative care research capacity. Please consider completing this if you work in UK #palliativecare or #endoflifecare.

073 0

Reposted by Anne Finucane

Dr Natasha Mary Bradley @natashabradley.bsky.social · 21/11/2024

Two in one 😀 Read about realist evaluation, how it differs from other research approaches, and why it is well-suited for palliative care: journals.sagepub.com/doi/epub/10.... And how we can get to high-quality realist research through strong reflexivity practice: journals.sagepub.com/doi/epub/10....

061 0

Reposted by Anne Finucane

Prof Katherine Sleeman @katherinesleeman.bsky.social · 21/11/2024

Delighted to have contributed to this investigation into hospice and end of life care, and the huge challenges faced by the sector. It couldn’t be more timely. Keeping Care Alive: Hospices in Crisis? will air on ITV, 8:30pm, Thursday 28th November

26422 0

Anne Finucane @annefinucane.bsky.social · 21/11/2024

All welcome to our next MAIN Event webinar. "Crisis Prevention not Crisis Management: the health and wellbeing of parents and children with life-limiting conditions" Fri 17th Jan (Online): 12:30 - 2pm With @paedpallcare.bsky.social & Dr Victoria Fisher. Register here for free: bit.ly/4hXf4L4

034 0