iiinova — where your digital self keeps evolving

Alyssa Erin @alyssaaerinn.bsky.social · 3h

Not that I won't try to do some of them. It's just far more complicated and time&energy consuming

Alyssa Erin @alyssaaerinn.bsky.social · 3h

My creative mind is on fire lately. Multiple writing ideas. A film idea. A little free bakery (to go with our little free library). Alas...*shakes fist at incredibly limiting chronic illnesses*

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Bo Thompson @gaudipern.bsky.social · 5h

I know not everyone understands principles of gentle parenting and some have internalized this weird media representation where it's "let them walk all over you" but good gentle parenting explains consequences beforehand and helps them understand how they have the choice to cause them or not.

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Colleen Steckel @colleensteckel.bsky.social · 5h

It was hard to live through the 90s with Myalgic Encephalomyelitis mislabeled & mischaracterized. Grateful for those taking the time to learn about the truth that brought us here. Those with #LongCovid would be wise to learn from our history, starting with danger of vague label and vague criteria.

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Alyssa Erin @alyssaaerinn.bsky.social · 23h

Apparently getting regular headaches isn't normal. And two headaches per week is still too frequent (down from daily), as per my doc. Who knew! [rhetorical] Now you can know, too

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Dr Noor Bari @njbbari3.bsky.social · 09/10/2026

It’s a well established fact. Highly transmissible airborne pathogens need layered mitigations… which is why we ditched most of it and left those at most risk with almost nothing. 🤡

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Alyssa Erin @alyssaaerinn.bsky.social · 09/10/2026

If you understand a person with lactose intolerance can "technically" drink a glass of milk but that doesn't mean they'll tolerate the lactose... then you understand a person w PEM not tolerating activity. Just because we "can", doesn't mean We Can #MEcfs #LongCovid

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Orlagh O’Kelly @orlaghokelly.bsky.social · 08/10/2026

Carney just appointed Danielle Smith's top justice official, who oversaw the 4x use of the notwithstanding and anti trans laws. The discrimination of kids with disabilities. The americanization of election laws etc etc etc. www.canada.ca/en/departmen...

canada.ca

Minister of Justice and Attorney General of Canada announces judicial appointments in the province of Alberta

The Honourable Sean Fraser, Minister of Justice and Attorney General of Canada and Minister responsible for the Atlantic Canada Opportunities Agency, today announced the following appointments under t...

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Alyssa Erin @alyssaaerinn.bsky.social · 08/10/2026

I don't have adequate words rn, but YES 💗

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Alyssa Erin @alyssaaerinn.bsky.social · 08/10/2026

Chronic illness almost always demands holding multiple truths at once

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Alyssa Erin @alyssaaerinn.bsky.social · 07/10/2026

Managing chronic illness is work, parenting is work, caring for self & home is work, etc... but those don't count to a capitalistic moral standard. Obviously.

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Alyssa Erin @alyssaaerinn.bsky.social · 07/10/2026

I know capitalism dictates our daily but I detest #MEcfs scales saying mild means "can usually work" when it's at the expense of most other aspects of living [As someone mild-mod, and unable to "work"]

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Alyssa Erin @alyssaaerinn.bsky.social · 07/10/2026

"We don’t need mass investment in better prisons. We need mass investment in our communities." - @mskellymhayes.bsky.social

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Alyssa Erin @alyssaaerinn.bsky.social · 07/10/2026

-don't do any "teachable" moments w ur child for a day. Not one. -get to know your neighbours -question norms & talk w a friend about it (Why do we expect people to sit still?) -let your hair be grey -replace your grass w native plants -read up on harm reduction 2/2

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Alyssa Erin @alyssaaerinn.bsky.social · 07/10/2026

Ideas for Disobeying today: -do the minimum at work -let a child lead playtime. Let them script, direct, tell you ur wrong. Give them autonomy. -wear a mask (KN95/N95 are best) -take a nap -read a book/watch a film by a disabled, Trans, racialized author/filmmaker 1/2

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Alyssa Erin @alyssaaerinn.bsky.social · 07/10/2026

Thank you, I am fortunate to have support needs met! Sending you wishes for better days and lower symptoms ahead

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Alyssa Erin @alyssaaerinn.bsky.social · 05/10/2026

What good is an improved cardiovascular system if the path to it leaves you bedbound? #GradedExercise #MECFS #LongCovid #POTS

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Alyssa Erin @alyssaaerinn.bsky.social · 05/10/2026

No one talks about it, but it is valid grief to be regularly managing sickness in your household/your kids, with little to no supports, and no end in sight to the constant infections. It shouldn't be this way. It doesn't have to be this way. #parenting #cleanair

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Prisonculture @prisonculture.bsky.social · 05/10/2026

"Grief is excessive; so is revolution. It is a defiant ‘yes’ when the rest of the world would say no. It is a refusal of the foreclosing of our time, an overflowing of humanity into the places that it is forbidden. We will not be machines anymore." - Sarah Jaffe -

radicalemprints.com

Letterpress prints of "From the Ashes" by Sarah Jaffe — radical emprints

About the words: These two letterpress prints are excerpts from Sarah Jaffe's beautiful & timely new book From the Ashes: Grief & Revolution in a World on Fire. This is one of the most ...

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Alyssa Erin @alyssaaerinn.bsky.social · 05/10/2026

"this mtg coulda been an email" 🤝 "this appt coulda been a phone call" #disability

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Uppity Black Woman @uppityblackwoman.bsky.social · 04/10/2026

A court battle that began when conservative-led states sued to block protections for transgender people has ended in a rollback of protections for people with disabilities — a result disability advocates have feared for months. At the end of August, the U.S. stateline.org/2026/10/02/a...

stateline.org

After states sue, Trump administration walks away from disability rights enforcement • Stateline

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Mark T. Sneed @marktsneed.bsky.social · 03/10/2026

In the history of all the things that never happened, this never happened the most. SMH. Politicians lie. These politicians lie so often it seems like breathing.

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Orlagh O’Kelly @orlaghokelly.bsky.social · 02/10/2026

“Direct democracy might sound democratic by definition. But a referendum can just as easily become a sleight of hand: not a way of giving people power but a way of using their votes to take it.” @thewalrus.ca thewalrus.ca/albertas-ref...

thewalrus.ca

Alberta’s Referendum Fails Every Democratic Test We Have | The Walrus

Danielle Smith’s ten-question ballot doesn’t just measure discontent with Canada. It helps manufacture it

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Alyssa Erin @alyssaaerinn.bsky.social · 03/10/2026

Exceptionally punctual October slide this year. I'm almost impressed

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maura quint @mauraquint.bsky.social · 01/10/2026

Yes every woman has been harassed, many assaulted. But every woman has also experienced invisible loss from moments she avoided harassment. She felt a space becoming unsafe, so she left, while men stayed on. And in leaving, she lost: opportunities, experiences, learning, promotions, even simply fun.

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Darren Parkinson @greendarrenshipley.bsky.social · 01/10/2026

I am no longer a registered nurse. Not through any choice, but because I got #LongCovid. 2 years ago I lost my nursing job because I'm too ill too work. Today my nursing registration expired. 20+ yrs given to the NHS. Ended by getting a disease without a cure.

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Walking Eagle News @theeagleist.bsky.social · 24/09/2026

BREAKING: Scores of white Canadians injured while smugly patting own backs

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Mark Ungrin @mark-ungrin.bsky.social · 25/09/2026

This is the clearest illustration I have ever seen of the way infection control and public health refuse to act responsibly on aerosol disease transmission. Doing the right thing today would mean admitting they could have yesterday, but chose not to. Repeat, forever. #medsky #polisky #scisky

A drawing of the "trolley problem" only there is a single track and the caption reads "You can stop the trolley at anytime, but then there will be survivors who might tell authorities you tied everyone up"

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Alyssa Erin @alyssaaerinn.bsky.social · 01/10/2026

I'm back. And it's still Free Palestine.

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Dr. Divya (🔔 logged out) @divyampersaud.com · 17/09/2025

How to support Crips for eSIMs for Gaza, which is STILL sending eSIMs and has seen a big increase in requests due to the criminal situation in the north: 🔗 bit.ly/eSimsRUs USD : bit.ly/venmo4esims GBP : www.paypal.com/donate/?host... cc: @pipagaopoetry.bsky.social @sfdirewolf.bsky.social

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Jane Shi | 皮爬高 echolalia echolalia is out now @pipagaopoetry.bsky.social · 12/09/2025

one of my contacts in G has been profusely thanking me for our diligent support because we've been keeping their eSim active since last summer. we are almost at 3 million CAD! anyway this is what i've been thinking about rather than charlie kirk. bit.ly/eSimsRUs

bit.ly

Crips for eSims for Gaza

Crips for eSims for Gaza is a collaboration between Jane Shi, Leah Lakshmi Piepzna-Samarasinha, and Alice Wong.

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 11/07/2025

The collab recommends exercise for people with #LongCOVID without PEM. However, this presumes the average physician knows what PEM is and can explain to a patient how it differs from fatigue. (Unlikely.) PEM & pacing, for the curious: www.meaction.net/resource/pac...

meaction.net

Pacing and Management Guides

Find #MEAction's original Pacing Guide and Pediatric Pacing and Management Guide for ME/CFS and Long COVID, with translations.

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 11/07/2025

I gave feedback on the McMaster/Cochrane Canada #LongCOVID guidelines (Canadian Guidelines for Post-COVID Condition (CAN-PCC)) and therefore thought this news was more of the same. Well, there's a bit more and also I have Thoughts about consensus & credentialism 🧪 thesicktimes.org/2025/07/08/e...

thesicktimes.org

Experts call new Canadian Long COVID guidelines “contradictory” and “deeply concerning” - The Sick Times

Guidelines recommend exercise and therapy as treatments, following attempted influence from Paul Garner.

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C.H. Romatowski @chromatowski.bsky.social · 17/07/2025

The UN defines solitary confinement as torture when it exceeds 22 hours a day for more than 15 days. Many people with severe ME are years or even decades into that level of isolation. It’s a humanitarian crisis.

Tweet from Brian Fog
@useless_priest

People with severe ME, a condition practically no one is really aware of, live in permanent solitary confinement and in physical and mental torture.

He’s quoting a post from
Feran @immathatkokujin • Jul 9

What's a fact that sounds fake but is 100% true?

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🇨🇦Joe Vipond🇨🇦 @jvipondmd.bsky.social · 06/07/2025

Think long COVID can't affect you or your family? It affected Jonathon Toews, an elite hockey player. This is why I continue to try and protect myself against infection www.youtube.com/watch?v=KGRi...

youtube.com

Jonathan Toews set for NHL comeback with Jets after long COVID

YouTube video by CBC News: The National

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Emily Johnson @emilyrj.bsky.social · 20/07/2025

I’ve lost so many people to #SevereME and #VerySevereME Will remember you, Bridget 💙🕯️ Please read this last piece from Bridget about how governments have failed MECFS and Long Covid patients Please take the fury we feel into your heart and use it to help us 2/2 open.substack.com/pub/bridgeto...

open.substack.com

Buried Alive by Government “Experts”

The Betrayal of the Worldwide Health Institutes’ Passivity in Erasing a Deadly Plight

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Emily Johnson @emilyrj.bsky.social · 20/07/2025

Very sad to report that longtime mutual journalist and author Bridget O’Shea of ME/CFS Evolving Awareness on Substack and a longtime Twitter mutual passed away July 16 after a heart attack following a years-long struggle suffering from #MECFS www.dignitymemorial.com/obituaries/c... 1/2

dignitymemorial.com

Bridget O'Shea Obituary - Chicago, IL

Celebrate the life of Bridget O'Shea, leave a kind word or memory and get funeral service information care of Drake & Son Funeral Home.

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Da(N95)iella [fka DaniAtomicus] @sharpflower.bsky.social · 27/06/2025

Special episode dropping soon: “But my therapist said”— 3 mental health professionals chat about the importance of being informed about COVID as a practitioner & how “COVID anxiety” is a tool used to dismiss legitimate concerns about a damaging virus www.publichealthisdead.com/episodes/spe...

publichealthisdead.com

SPECIAL: “But my therapist said…” COVID-Informed Therapists Chat — Public Health is Dead

Three mental health professionals speak on collective care and the importance of being informed about COVID as a practitioner.

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Alyssa Erin @alyssaaerinn.bsky.social · 26/06/2025

cookie art to feed your queer dreaming & resistance 🌈✊🏼❣️ Sam Nordquist Tahiry Broom Sumaya Dalmar Chevranna Abdi Marsha P. Johnson

Round butter cookie with royal icing decoration in colors of the Trans flag and BLM. Icing text: "Black Trans Lives Matter" in BLM font, yellow icing on black background. "Say their Names" black text on white background

Round butter cookie with royal icing decoration of the Pride flag with the Palestinian flag incorporated in the middle. Black text in Geneva font, "Free Palestine"

Cloud shaped butter cookie with royal icing decoration to look like a sheep. Body of sheep in Trans flag colors with a black sheep face icing transfer in the middle

Round butter cookie with royal icing decoration of white base background with Pride color rainbow horizontal thin stripes above and below black text, "Queer Enough"

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Alyssa Erin @alyssaaerinn.bsky.social · 16/05/2025

That sounds like a cool version of a heart?! Very underground art gallery-esque "Notice Shine's unique style: the Slimer lines juxtaposed against soft, seemingly accidental detail..."

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Alyssa Erin @alyssaaerinn.bsky.social · 13/05/2025

Thank you! I did! I had a reference photo, but yeah free hand 🤗

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Alyssa Erin @alyssaaerinn.bsky.social · 06/05/2025

"We do things because they're right not because they're easy" - PM Mark Carney He also said he'll make mistakes and commits to admitting & correcting them. Demand he keep his word! Canada must cease support of genocide, incl forced famine. Don't let up the pressure! #FreePalestine #CdnPoli

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Patient-Led Research Collaborative @patientled.bsky.social · 05/05/2025

PLRC member Beth Stelson spoke with @hsph.harvard.edu about her work and the HHS LC Office's closure: “#LongCovid is very much a real public health concern today, as it was at the very beginning. It affects hundreds of millions of people around the world.” hsph.harvard.edu/news/a-long-...

hsph.harvard.edu

A long COVID researcher continues to search for answers | Harvard T.H. Chan School of Public Health

Postdoctoral research fellow Beth Stelson, a long COVID researcher, and herself a patient, discusses her research and the ramifications of the closure of a federal office focused on long COVID researc...

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Negro Frolics @desmondcole.bsky.social · 05/05/2025

The U.S. government encouraged people to report on doctors in Canada who provide gender-affirming care to children—signalling a chilling new cross-border reach in its anti-trans agenda breachmedia.ca/trump-admin-...

breachmedia.ca

Trump admin anti-trans snitch site targeted Canadian doctors ⋆ The Breach

Canadian jurisdictions were included on a U.S. ‘whistleblower’ form targetting trans care providers—and then were quietly removed after media enquiries

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Walking Eagle News @theeagleist.bsky.social · 29/04/2025

We’re calling it: a white male will be the next Prime Minister of Canada

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