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Aili

@aili249.bsky.social
266 followers 56 following 280 posts

Enimmäkseen keskustelemassa koronasta ja muista infektiotaudeista sekä niiden torjunnasta. Välillä sitä sun tätä muutakin.

PostsRepliesMedia
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David K Smith @professor-dave.bsky.social · 12/10/2026
As part of our #DecolonisingChemistry curriculum project work @chemistryatyork.bsky.social, we now highlight the work of Marie Maynard Daly, the first black woman to receive a chemistry PhD in the USA. Her work developed a mechanistic understanding of heart disease, transforming patient care.
Portrait of Marie Maynard Daly
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Kate from Kharkiv @kateinkharkiv.bsky.social · 09/10/2026
by destroying our infrastructure. This is just such a low and cruel betrayal that it's hard to wrap my head around...
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Kate from Kharkiv @kateinkharkiv.bsky.social · 09/10/2026
essentially becoming sponsors of the Russian invasion of Ukraine. Just a day after a horrific terrorist attack by Russia that killed so many, and just before the winter when the Russian government screams from all the rooftops that they are going to create a humanitarian catastrophe in Ukraine
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Kate from Kharkiv @kateinkharkiv.bsky.social · 09/10/2026
So let's get this straight: Russia just murdered over 65 people in Ukraine in less than 48 hours. Crushed a building on top of sleeping families to celebrate Putin's birthday. And today, the U.S. announces that they are lifting sanctions on Russian diesel and planning to buy some,
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Olena Halushka @halushka.bsky.social · 09/10/2026
Here are the faces of people whom russia murdered in their beds in Pryluky. Three babies, two older children. 17 adults. Is that what American taxpayers want to fund by procuring diesel from russia? Maybe Europe also stops remaining fuel purchases from the terrorist state? The world of hypocrisy.
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Denis - The COVID Info Guy @thecovidinfoguy.bsky.social · 06/10/2026
New paper: Long COVID exposes a huge blind spot in how governments define “security.” We respond quickly to sudden, visible crises, but seem to accept mass disability as normal, even while it puts growing pressure on healthcare, the workforce, the economy and society. Published: 28 September 2026
link.springer.com
The securitization of global slow-onset risks/threats: long COVID, a case study - Globalization and Health
This paper investigates why Long Covid, despite affecting millions globally and posing a serious threat to public health and economic stability, remains largely absent from contemporary security agend...
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Aili @aili249.bsky.social · 06/10/2026
Unohtivat googlata, että mitä laki sanoo projektilta vaadittavista luvista.
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Denis - The COVID Info Guy @thecovidinfoguy.bsky.social · 06/10/2026
Kids housebound or bedbound with Long COVID created superheroes inspired by their experiences with chronic illness and disability. Their heroes find strength in resting, asking for help and compassion. The characters now feature in a 72-page full-colour comic, Long Covid Superheroes. #LongCOVIDkids
thesicktimes.org
Kids with Long COVID co-created their own superhero comic book - The Sick Times
Long Covid Superheroes showcases the bravery of asking for help, resting, and being compassionate with yourself and others.
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Kelly @broadwaybabyto.bsky.social · 05/10/2026
I think we missed a huge opportunity to normalize masking as a public health tool. We eradicated an entire strain of the flu with Covid prevention measures. Masking shows respect for those around you. It shows solidarity with the disability community. It shows you value long term health.
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Kelly @broadwaybabyto.bsky.social · 02/10/2026
Disabled people tried to warn you. We were one of the first groups targeted by the Nazis. Fascists will always come for the “useless eaters”. They want to institutionalize us. Hide us away from the rest of society. Remove our supports so we either die or disappear. It’s eugenics.
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Yaroslava @strategywoman.bsky.social · 02/10/2026
russians cannot take this from me. Kyiv, near the Dnipro River. Today.
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Kaisa S @kaisasaurio.bsky.social · 02/10/2026
Long covidiin sairastuneilla on tämä sama ongelma. Järjestelmä ei tunnista työkyvyttömyyden oikeaa syytä. Uupumuksen osalta näyttäisi nyt olevan tahtotilaa tehdä asialle jotain. Kävin allekirjoittamassa. Käy sinäkin! www.kansalaisaloite.fi/fi/aloite/18...
Nykyinen lainsäädännön tila on johtanut käytäntöön, jossa työntekijän toimeentulon turvaamiseksi työuupumuksen sijaan terveydenhuollossa sairauspoissaolon syyksi kirjataan jokin muu diagnoosi, esimerkiksi masennus tai ahdistuneisuus. Tämä ei palvele työntekijää, työpaikkoja eikä päätöksentekoa. Sen sijaan vallitseva käytäntö vaikeuttaa työuupumuksen tunnistamista, ilmiön tilastollista seurantaa, siihen puuttumista ja ennalta ehkäisyä.
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Danielle Beckman @daniellebeckman.bsky.social · 28/09/2026
Recent photo at the NHS. Over 6 years into #COVID, and we still have “wash your hands” under “AIRBORNE PRECAUTIONS.” We are failing hard to communicate one of the most basic lessons of this pandemic: Airborne means spread through the AIR. Clean air is infection control. #Airborne #PublicHealth #NHS
Photo shows a sign at NHS that says: Airborne precaution
Please wash your hands before entering the training room. Thank you
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Kaisa S @kaisasaurio.bsky.social · 27/09/2026
WHO:n materiaaleja long covidiin liittyvistä myyteistä ja väärinkäsityksistä: www.who.int/europe/event...
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The Vertlartnic @thev.bsky.social · 27/09/2026
No, Of Course The Thing We Told You Was Harmless Didn’t Cause Your Health Problems
A smiling happy doctor
Headline:
No, Of Course The Thing We Told You Was Harmless Didn’t Cause Your Health Problems
Story by Lance Muffet and Graham Bove

Photo from Adobe
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Conor Browne @brownecfm.bsky.social · 27/09/2026
I am rarely affected by discourse on social media, but the current wave of posts asserting that Long Covid is psychosomatic has angered me. To be very clear: if you're asserting that LC isn't a physical disease, you're ignorant of science. End of.
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Aili @aili249.bsky.social · 24/09/2026
Näin juuri. Jännitys voi aiheuttaa vatsakipua, hikoilua tai päänsärkyä. On kuitenkin aivan eri asia väittää vakavia sairauksia vain vääränlaisista ajatuksista, hermostuneisuudesta tai muusta vastaavasta johtuviksi.
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Aili @aili249.bsky.social · 24/09/2026
Jo yksistään tämän pitäisi toimia varoittavana esimerkkinä, kun jostakin sairaudesta väitetään, että se on "korvien välissä", teeskentelyä tms. MS-tauti, Parkinsonin tauti, lukuisat autoimmuunisairaudet, vaihdevuodet jne. ovat fyysisistä syistä johtuvia, vaikka niitä on pidetty psykosomaattisina.
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Aili @aili249.bsky.social · 24/09/2026
On myös historiallisesti tunnettu tosiasia, että monet psyykkisiksi tai etenkin psykosomaattisiksi luokitellut sairaudet on myöhemmin todistettu fyysisiksi sairauksiksi, kun kuvantaminen, labrat ym. on kehittynyt. Ja etenkin naisten sairauksia on pyritty esittämään hysteriana tai muuna vastaavana.
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Kaisa S @kaisasaurio.bsky.social · 24/09/2026
Historialliset esimerkit osoittavat myös, että näissä tilanteissa juuri terveydenhuollossa olisi iso peiliin katsomisen paikka. Potilailla on oikeus tulla kuulluksi omaa hoitoaan koskien. Sekä yksilöinä, että myös yhteiskunnallisessa keskustelussa.
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Kaisa S @kaisasaurio.bsky.social · 24/09/2026
Potilaat voivat olla välillä omaa sairauttaan koskevista asioista väärässä ja suurimmalle osalle hyvin sopiva hoito on aina jollekin yksittäiselle ihmiselle huono. Hälytyskellojen pitäisi kuitenkin soida kun kaikki long covidin ja ME:n potilasjärjestöt ja vertaistukiryhmät koetaan vihollisina.
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Kaisa S @kaisasaurio.bsky.social · 24/09/2026
Sekin kertoo suomalaisista asenteista paljon, että tästä ei juuri suomeksi kirjoiteta. Tarvitaan ulkomainen toimittaja, että potilaiden näkökulma tulee yhtään kuulluksi.
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Kaisa S @kaisasaurio.bsky.social · 24/09/2026
"There’s a long, dark history here, rooted in centuries of dismissal of predominantly female illnesses as “hysterical”, and amplified in recent decades by government attempts to reduce the benefits bill and insurers’ attempts to reduce payouts." www.theguardian.com/commentisfre...
theguardian.com
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
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George Monbiot @georgemonbiot.bsky.social · 24/09/2026
Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...
theguardian.com
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
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Kaisa S @kaisasaurio.bsky.social · 24/09/2026
Torille? "Norway, Finland and the Netherlands, despite their progressive medical reputations, sound like a waking nightmare for ME/CFS patients."
theguardian.com
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
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Long Covid Kids @longcovidkids.bsky.social · 24/09/2026
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed. @georgemonbiot.bsky.social www.theguardian.com/commentisfre... #ME #LongCovid
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Yaroslava @strategywoman.bsky.social · 22/09/2026
Today, I wondered: How many days did WWI last? 1,568. And how long has the full-scale war in Ukraine been going on? 1,672 days.
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Ronja Büchner @buechnerronja.bsky.social · 21/09/2026
In this paper, we also describe the shift in the debate from “primary” to “secondary” psychologization and note that both are equally harmful because identical therapeutic consequences are derived from them. 👇
In light of these findings, the assumption that LC and ME/CFS are predominantly psychologically caused (e.g. -) is no longer tenable. The debate has therefore shifted: whereas the original question was whether LC and ME/CFS were essentially psychological illnesses or symptoms of psychological disorders, the post-infectious origin of the conditions is now largely acknowledged 1. Instead, the debate is now: to what extent psychological factors contribute to chronicity and persistence of LC and ME/CFS. Broadly speaking, there are two positions. On the one hand, there is the assumption that the course of LC and ME/CFS is substantially shaped by psychological factors, for example, by distorted illness perception, dysfunctional coping strategies, avoidance and deconditioning. This position can be found, for example, in many textbooks of psychosomatic medicine (e.g. 2) and is often linked to cognitive-behavioural models of illness. We refer to this position as "secondary psychologization," in contrast to the "primary psychologization" described above, which assumes a purely psychological causation. On the other hand, there is the assumption that both onset and course of LC and ME/CFS are determined primarily by biological processes (e.g. 10). According to this view, possible psychological symptoms are best regarded as secondary consequences or comorbidities of LC and ME/CFS.
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Prof Sheena Cruickshank @sheencr.bsky.social · 22/09/2026
Interesting data shows that the March meningitis outbreak was as a result of a recombinant strain of the bacteria that had picked up microbiome genes. May explain its virulence but also why spread less. Flags that this can happen though and quickly! Greater need for vigilance and preventative vax
bbc.co.uk
Scientists discover why Kent meningitis outbreak was so severe
The bacteria responsible picked up some new genetic material, say experts.
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Plague Poems @plaguepoems.bsky.social · 21/09/2026
According to a CDC report around 71.5% of adults in the US “experienced fatigue on multiple days over the past three months,” and while I know that people are tired of hearing about Covid, it’s worth noting that one of Covid’s lasting impacts is persistent fatigue.
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George Monbiot @georgemonbiot.bsky.social · 21/09/2026
While there are horror stories from many countries, the Netherlands and Sweden really stand out. They might be very "civilised" in some respects, but on ME/CFS they seem to be in the Dark Ages.
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George Monbiot @georgemonbiot.bsky.social · 21/09/2026
Thanks so much everyone for a massive response. I've now had as many emails as I can cope with, so no more please - thank you. They paint a really grim and heatbreaking picture. The neglect and abuse of patients goes on and on. I hope to try to do the issue justice. #ME/CFS
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Aili @aili249.bsky.social · 21/09/2026
I read about the destruction in the news in Finnish. It's really sad. yle.fi/a/74-2001057...
yle.fi
Ukrainan kirjapainot, kirjastot ja koulut uhan alla iskujen vuoksi
Ukrainan kirjapainot, kirjastot ja koulut uhan alla iskujen vuoksi
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George Monbiot @georgemonbiot.bsky.social · 21/09/2026
Intending to write another column about the treatment of #ME/CFS patients this week, pegged to new research findings on the biological basis. My question for sufferers: Are any of you still being offered inappropriate (psych/GET etc) "treatments"? Please email george at monbiot dot info. Thanks.
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Conor Browne @brownecfm.bsky.social · 19/09/2026
Articles like these are emblematic of the institutional amnesia surrounding Covid-19. A pathogen that emerged less than seven years ago, which can cause fatigue during the acute infection and as a common long-term effect, not even mentioned. Conspicuously absent. www.nbcnews.com/health/menta...
nbcnews.com
Why are Americans so tired? CDC report highlights who’s feeling it most
Fatigue is one of the most common concerns reported in primary care visits, yet not much attention is given to how often adults in the U.S. are coping with it.
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The Vertlartnic @thev.bsky.social · 19/09/2026
There’s Nothing Wrong With Anyone, And The Things That Aren’t Wrong Weren’t Caused By That, And Even If They Were, They’re Good For You, And Your Fault, And Inevitable, And Anyway It’s Time To Move On.
A serious man
Headline:
There’s Nothing Wrong With Anyone, And The Things That Aren’t Wrong Weren’t Caused By That, And Even If They Were, They’re Good For You, And Your Fault, And Inevitable, And Anyway It’s Time To Move On.
Story by Morris Again and Basil Arsenal

Photo from Adobe
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Dr. Jen Irwin @drjenirwin.bsky.social · 17/09/2026
Why is everyone sicker these days? ‘Relative to adults reporting no SARS-CoV-2 infections, those reporting two or more had significantly greater odds of being diagnosed with a new condition’ Gov of Canada, Sept 2026 www.canada.ca/en/public-he...
canada.ca
Associations between self-reported SARS-CoV-2 infections and the diagnosis of new health conditions - Canada.ca
Exploratory analyses examining associations between SARS-CoV-2 infections and newly diagnosed health conditions
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Kaisa S @kaisasaurio.bsky.social · 18/09/2026
"... physicians commonly attribute women’s symptoms to “over anxiousness” and make more diagnostic errors with female patients, even when positive test results are present." journals.plos.org/plosone/arti...
journals.plos.org
Measured treatment differences between sexes and genders: A scoping review
Background Sex and gender-based inequality is found throughout medicine. Although there has been significant research in gender disparities affecting healthcare professionals, there is a lack of resea...
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Outi Länsman @outilansman.bsky.social · 18/09/2026
"Liian tiukat kansalliset kriteerit voivat tutkijoiden mukaan johtaa siihen, että suuri osa jäljellä olevista vanhoista metsistä hakataan." "Tarkasteltavan metsäkuvion minimikooksi esitetään kansainvälisesti yleisesti käytettyä 0,5:tä hehtaaria." www.metsalehti.fi/uutiset/kans...
metsalehti.fi
Kansainvälinen tutkijaryhmä: Näin tunnistetaan Pohjois-Euroopan vanhat metsät - Metsälehti
Liian tiukat kansalliset kriteerit voivat tutkijoiden mukaan johtaa siihen, että suuri osa jäljellä olevista vanhoista metsistä hakataan.
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Kaisa S @kaisasaurio.bsky.social · 18/09/2026
Harva tuntuu ymmärtävän miten vaarallista tämä vammaisiin kohdistuva viha on. Vaikka olisit itse terve ja itsekäs voit sairastua koska tahansa. Ja vaikka et sairastuisi välinpitämättömyys ja viha ei koskaan rajaudu kivasti yhteen vähemmistöön, josta sinä et välitä.
inews.co.uk
I'm disabled and struggle to walk - I get so much hostility, I hide at home
Disabled people are reporting more discrimination from the public than in the 80s, thanks to growing anti-PIP rhetoric
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Juha Länsman @juhalansman.bsky.social · 18/09/2026
Nyt ollaan niin perustavanlaatuisten kysymysten äärellä, että toivoisin päättäjiltä löytyvän edes hiven ymmärrystä sille, että "kaikki, nyt, heti" ei ole se paras vaihtoehto. Se ei ole sitä luonnon, mutta ei myöskään talouden kannalta. yle.fi/a/74-20246615
yle.fi
Uusi tieto: Kaivosyhtiöt hakevat nyt lupaa etsiä malmia 15 luonnonsuojelualueelta Suomessa
Orpon hallitus ratkaisee pian Viiankiaavan Natura-alueelle aiotun kaivoksen kohtalon. Myönteinen päätös voisi avata kaivosten tien suojelualueille.
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betsy ladyzhets 😷 @betsyladyzhets.bsky.social · 15/09/2026
NEW: Novel drug bezisterim might help with fatigue, PEM, and neurological symptoms in Long COVID, according to preliminary results BioVie shared today. These are early findings that will need more review, but it's exciting to see a positive trial result for once! More @thesicktimes.org:
thesicktimes.org
Bezisterim may help with some Long COVID symptoms, drug’s developer reports in early trial results - The Sick Times
While the phase 2 clinical trial results, shared by BioVie in a webinar on Tuesday, have yet to be peer-reviewed, investigators say they can inform a confirmatory phase 3 trial.
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Ida @idakorhonen.bsky.social · 14/09/2026
Tässä muutama kuva kullankaivuualueilta Inarista vuodelta 2023. Nää on siis niin kutsutun maisemoinnin jälkeen eli millaiseksi alue jää kun kaivuu loppuu. Ja tää on tosiaan sallittua myös suojelualueilla.
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Jan Saijets @jansaijets.bsky.social · 14/09/2026
1/3 HS:n jutussa ihannoidaan toimintaa, jolla ei ole saamelaisten lupaa ja tällä tuhotaan saamelaisten elintilaa omalla alueellaan. HS:n jutussa sanotaan, että Leppästen kaivuualue sijaitsee sijaitsee talousmetsässä, mikä ei pidä paikkaansa. www.hs.fi/alueet/art-2...
hs.fi
HS Inarissa | Leppästen kullankaivajaperhe osui jättipottiin
Suurin kultahippu neljään vuoteen sai kullankaivajien yhteisön innostumaan. Kullan korkea hinta kiihdyttää Lapissa isoa ja pientä bisnestä.
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Anne Applebaum @anneapplebaum.wsocial.eu · 14/09/2026
Your regular reminder: If the Russians stop fighting, the war ends. If the Ukrainians stop fighting, their land will be occupied, their leaders will be killed, their history and language will be erased, their children will be kidnapped to serve Russia.
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Kaisa S @kaisasaurio.bsky.social · 11/09/2026
"Terveydenhuollossa ei myös osata huomioida sitä, miten autismikirjolla olevat ongelmista kertovat. Tapa kommunikoida on Hirvikosken mukaan yleensä verbaalinen, ei kehollinen. Kipua ei oteta todesta, jos kehonkieli ei ole kivuliaan oloista." yle.fi/a/74-20059048
yle.fi
Tutkija: Lääkärien ja hoitajien stereotyyppiset käsitykset autisteista voivat vaikuttaa siihen, ettei heitä oteta tosissaan
Autismikirjon ihmisten terveydellisiä ongelmia vähätellään, koska tieto on vähäistä ja monien oireiden ajatellaan johtuvan pelkästään autismista.
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Adam @abrokenbattery.bsky.social · 11/09/2026
Today marks 25 years since 9/11. 8 months after the attack, psychiatrist Simon Wessely argued that illness reported around Ground Zero was being wrongly attributed to environmental toxins, suggesting “World Trade Centre Syndrome” was driven by social and psychological factors.
Screenshot from the article
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Aili @aili249.bsky.social · 11/09/2026
Kaikki on niin paljon helpompi hoitaa, kun sanoo vian olevan potilaan korvien välissä. Samat "asiantuntijat" sitten vaikuttavat eri sairauksien ja altistusten parissa. Vaikka touhu on täyttä höpöä, niin saavat jatkaa. bsky.app/profile/abro...
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Kaisa S @kaisasaurio.bsky.social · 11/09/2026
HUS käyttää edelleen long covidin hoidossa samaa Gupta-menetelmää kuin Maria Nordin ja hehkuttaa lähes kaikkien paranevan. Alustavien tulosten perustella eroa kontrolliryhmään ei ole. Löytyy täältä kohdasta "Results of the AIR trial": cordis.europa.eu/project/id/1...
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