Reposted by Julie LamJulie Lam @msjulieslam.bsky.social · 01/10/2026For the question, I wanted to add impacts on organs, immune system + tumor growth but held it back. My dad & his wife died within a couple of years due to Lung cancer after catching the same strain. I developed a nerve tumor after my first, a lung nodule after my second. My immune system is a mess. 031
Reposted by Julie LamMaskTogetherAmerica @togetherwemask.bsky.social · 01/10/2026At LC Defense IV, Dr. David Putrino @putrinolab.bsky.social at @coresinai.bsky.social explains why tracking secondary conditions like diabetes is vital to understanding the full #LongCOVID disease burden and creating effective interventions. 🔗 Watch the forum: masktogetheramerica.org/blog/lc-defe... 12212
Julie Lam @msjulieslam.bsky.social · 28/09/2026Hi, sharing a new source of my #LongCOVID tracker project with you! Please check it out! 050
Reposted by Julie LamMaskTogetherAmerica @togetherwemask.bsky.social · 25/09/2026A Global Policy Repository tracked 53 nations: only 8 have a gov't lead on #IndoorAir, just 7 have binding health standards, and only 25/253 policies address schools. Call your local reps and demand #CleanAir in schools! Fight for the kids! Watch: airclub.org/unga-2026 13510
Julie Lam @msjulieslam.bsky.social · 25/09/2026Healthy #IndoorAir in schools is a health & human right demanding action! We must address "canary in the coal mine" warnings from rising chronic illnesses caused by virus-laden air & pollution. Proud to represent my community at the global #CleanAir event at the UN today @togetherwemask.bsky.social 16118
Julie Lam @msjulieslam.bsky.social · 24/09/2026At the #ClimateWeek "Healthy Air in NYC Schools" event, I was moved by the projected impacts of implementing ASHRAE Standard 241, with ⬆️ ventilation & filtration + real-time AQ reporting. So happy to sit with H Newlevant, Venessa Sica Kasabach, Christina Auriana, and to meet Dr. Bronwyn King! 17011
Julie Lam @msjulieslam.bsky.social · 23/09/2026Hi Friends, Meet AZ. Thank you to all of you for supporting this documentary project to normalize prevention. We have a long way to go, but we will get there someday. Sending you all lots of love and hugs. 🫂 0258
Reposted by Julie LamDr. Lucky Tran @luckytran.com · 22/09/2026New pin unlocked 📌 Happy Climate and UNGA week y’all! 230421
Reposted by Julie LamMaskTogetherAmerica @togetherwemask.bsky.social · 21/09/2026At LC Defense IV, Laura Pensiero @laurapensiero.bsky.social (certified meditation and breathwork practitioner) shares how her life and motherhood are impacted by Long COVID. 🔗Watch the forum: masktogetheramerica.org/blog/lc-defe... 🛑COVID is surging. #MaskUp #CleanAir Stay up-to-date if you can. 1125
Reposted by Julie LamJudy Stone @drjudystone.bsky.social · 21/09/2026Last eve to submit comments on #Vaccines to Federal Register www.cidrap.umn.edu/childhood-va... New plan is nuts and will lead to very low vaccinations. CIDRAP and YLE give suggestions re answers: yourlocalepidemiologist.substack.com/p/two-days-l...cidrap.umn.eduCIDRAP Op-Ed: HHS is asking what to call vaccine recommendations. You have 4 days to weigh in. 0913
Julie Lam @msjulieslam.bsky.social · 18/09/2026This complete course on #LongCOVID Diagnosis by @drdavidkeegan.bsky.social is incredible. I will share this course with my PCP @mountsinainyc.bsky.social, maybe share with my @coresinai.bsky.social specialists as well. Thank you David Keegan. You're an amazing teacher—really an amazing human! 🌻 153
Reposted by Julie LamMaskTogetherAmerica @togetherwemask.bsky.social · 18/09/2026At LC Defense Series IV, family physician @drdavidkeegan.bsky.social shared his approach to assess patients w/ possible Long COVID, emphasizing that “Long-SARS” isn’t a novel condition and that a dedicated medical course could be created for this topic. Watch masktogetheramerica.org/blog/lc-defe... 1123
Reposted by Julie LamMaskTogetherAmerica @togetherwemask.bsky.social · 18/09/2026“I have been dealing with brain fog, chronic fatigue, and air hunger post-COVID. It has impacted my singing and bandleading significantly.”—Prasanna, singer and songwriter based in NYC, wishes doctors took Long COVID and COVID prevention more seriously. www.instagram.com/p/DdZ43uwRMk3/ #MaskUp 05717
Reposted by Julie LamMaskTogetherAmerica @togetherwemask.bsky.social · 16/09/2026At LC Defense IV, Dr. Elham Raker stressed that parents caring for children living with Long COVID have no place to go for help due to a lack of LC clinics, especially for children. 🔗Watch the forum: masktogetheramerica.org/blog/lc-defe... 🛑COVID cases are rising! Mask Up! 14317
Reposted by Julie LamMaskTogetherAmerica @togetherwemask.bsky.social · 15/09/2026“I mask every day, both indoors & outdoors, regardless of who is around.” —First-time filmmaker OMayra @omayraomz.bsky.social caught COVID and developed Long COVID despite being fully vaccinated. Read how OMayra now uses the layered approach to avoid reinfections: www.instagram.com/p/DdT5RAjxi7I/ 04617
Julie Lam @msjulieslam.bsky.social · 14/09/2026Are you wearing your mask? This round of COVID wave is super nasty! Don’t take chances ! togetherwemask.bsky.social 03210
Reposted by Julie LamMaskTogetherAmerica @togetherwemask.bsky.social · 14/09/2026“I wear a mask to protect myself from reinfection, and out of consideration for those around me. Long COVID has been the greatest suffering of my life…Being free of pain is the greatest happiness.”—Norio Honjo founded the Japanese Long COVID Team (JLT) Read story: www.instagram.com/p/DdPIRQaRbVX/ 08021
Julie Lam @msjulieslam.bsky.social · 12/09/2026I met Monique at the New York Comic Con. Can't wait to look for more volunteers to model for #MaskTogetherAmerica! 💗😷 0104
Reposted by Julie LamMaskTogetherAmerica @togetherwemask.bsky.social · 11/09/2026Watch Long COVID Defense Series IV, featuring: @robertderosa.bsky.social, Laura Pensiero, Dr. @michaelpelusomd.bsky.social, Dr. Elham Raker, @drdavidkeegan.bsky.social & Dr. @putrinolab.bsky.social, @coresinai.bsky.social, hosted by Team #MaskTogetherAmerica masktogetheramerica.org/blog/lc-defe... 12010
Julie Lam @msjulieslam.bsky.social · 03/09/2026We might be small but we are mighty! We will do our best to represent our community. Thank you all for supporting us for over 6 years! ❤️🔥 040
Julie Lam @msjulieslam.bsky.social · 31/08/2026I can't wait to attend this #LongCOVID conference. My LC specialist is going too. @coresinai.bsky.social 052
Julie Lam @msjulieslam.bsky.social · 27/08/2026🤟 @drjudystone.bsky.social @forbes.com leads the article with CDC “bluewashing”—downgrading colors/rankings in maps, highlighting our advisor @michael-hoerger.bsky.social’s PMC19.com COVID reporting and lifesaving tools in the Swiss Cheese Defense Model. Journalist 🏆 www.forbes.com/sites/judyst...forbes.comCovid-19 Cases Surge—Here’s What’s Different This Summer That Will HelpAs Covid again increases, these will help you weather or prevent infection: vaccines, masks, Paxlovid, metformin, azelastine, some antihistamines, and Ensitrelvir. 1159
Julie Lam @msjulieslam.bsky.social · 27/08/2026The hardest thing I constantly have to do is to ask health care providers to mask up. I don’t like to justify that I'm immune deficient which they can see on my medical records, including a note from my nephrologist. Healthcare is the highest risk for infection. They should know better. 💔😷 44214
Reposted by Julie LamMaskTogetherAmerica @togetherwemask.bsky.social · 26/08/2026Long COVID Defense Series IV (Sep 2, 3:40pm–6:40pmET | 6 Q&A(s) 3:45PM Robert DeRosa @robertderosa.bsky.social 4:20PM Laura Pensiero 4:55PM Dr. @michaelpelusomd.bsky.social 5:30PM Dr. Elham Raker 6:00PM Dr. @drdavidkeegan.bsky.social 📍NOTE: Dr. @putrinolab.bsky.social will record his session 🧵 11810
Julie Lam @msjulieslam.bsky.social · 25/08/2026We need to learn from our children! They are our HOPE and FUTURE! Let's do our best to protect them. 🤟😷 0101
Reposted by Julie LamMaskTogetherAmerica @togetherwemask.bsky.social · 16/08/2026Reactivation of Herpes Zoster, Anelloviridae & Epstein-Barr Virus: how hidden tissue reservoirs drive chronic inflammation, fatigue, and cardiorenal complications in #LongCOVID. Read our full breakdown (citations in comments):🧵👇 www.instagram.com/p/DcHI_NKRx5... www.facebook.com/share/p/19Wp... 12311
Reposted by Julie LamMaskTogetherAmerica @togetherwemask.bsky.social · 11/08/2026Avoid COVID. #LongCOVID impacts the whole body—including reproductive organs. To address rampant under-diagnosis and remove barriers to study and care, research diagnostic criteria must be inclusive. Read Annotation: Sexual Long COVID www.instagram.com/p/Db5pVAgR9F6/ www.facebook.com/share/p/1CCK... 22613
Reposted by Julie LamMaskTogetherAmerica @togetherwemask.bsky.social · 08/08/2026Sharing an interview of Ian Leinbaugh by @msjulieslam.bsky.social. A musician and educator, Ian’s advocacy spans from cleaning the air to protecting trans kids from airborne pathogens! www.instagram.com/p/DbwKpCepCkw/ @michael-hoerger.bsky.social @nancyinmke.bsky.social @drjudystone.bsky.social 04510
Reposted by Julie LamMaskTogetherAmerica @togetherwemask.bsky.social · 03/08/2026“We’ve never stopped requiring masks (though we’ve taken hits for that). We’re a small, owner-operated used and new bookstore in Western Massachusetts.”—Hillary Hoffman, owner, Federal Street Books, int by @msjulieslam.bsky.social 📚😷 www.instagram.com/p/DbjIn0gxLFp/ www.facebook.com/share/p/1HcU... 419334
Reposted by Julie LamMaskTogetherAmerica @togetherwemask.bsky.social · 31/07/2026“This book reminds me of how crucial it is to remember the cost of lives while fighting for our future.” @msjulieslam.bsky.social invites you to read her review of “The Day I Almost Didn’t Come Back” by Marc W. Redding. www.instagram.com/p/Dbdoh2URrzs/ www.facebook.com/share/p/1JoE...instagram.comMaskTogetherAmerica on Instagram: "Marc W. Redding wrote a memoir about his life, starting from the days before he was hooked onto a ventilator in 2020. He asked me (Julie Lam) to post the NOW ON SA...70 likes, 4 comments - masktogetheramerica on July 31, 2026: "Marc W. Redding wrote a memoir about his life, starting from the days before he was hooked onto a ventilator in 2020. He asked me (Julie... 1166
Reposted by Julie LamJulie Lam @msjulieslam.bsky.social · 31/07/2026Let’s honor the human cost of the pandemic while fighting for a safer future together. #MaskTogetherAmerica 031
Julie Lam @msjulieslam.bsky.social · 29/07/2026CDC needs to report on COVID variants. Different variants can shape distinct profiles of persistent illness, contributing to varying sub-types of Long COVID. We need our scientists to write to the CDC. @virusesimmunity.bsky.social @putrinolab.bsky.social @zalaly.bsky.social @erictopol.bsky.social 040
Reposted by Julie LamMaskTogetherAmerica @togetherwemask.bsky.social · 29/07/2026Latest CDC data shows COVID growing in 37 states. Test positivity & ER visits are up nationwide. 😷 Wear well-fitted, high-filtration masks (N95/KN95) 🌳 Gather outdoors 💨 Add HEPA filters, CR boxes Guide: MaskTogetherAmerica.org Source: www.cdc.gov/respiratory-... #MaskTogetherAmerica 13319
Julie Lam @msjulieslam.bsky.social · 28/07/2026At my 1st SPARK conference, I learned that my #IgAN med got FDA-approval. Tutakna is an immune modulator. Together with anti-virals, I found the (trial) med effective in reducing my #LongCOVID neuropathic pain and memory issues besides reviving my kidney function. 2143
Reposted by Julie LamMaskTogetherAmerica @togetherwemask.bsky.social · 28/07/2026In its early stages, IgAN rarely causes pain or visible symptoms. A person can live with the disease without knowing it. Because biopsies carry risks, U.S. clinicians rarely perform them for mild or borderline urine abnormalities, leaving early-stage patients uncounted. @drjudystone.bsky.social 151
Reposted by Julie LamMaskTogetherAmerica @togetherwemask.bsky.social · 28/07/2026Respiratory infection is a common trigger for #IgAN flares. As COVID & other viruses circulate year-round, patient orgs should promote a layered approach to protection—like ventilation & high-quality masking—to help prevent relapses & kidney damage. #MaskTogetherAmerica @michael-hoerger.bsky.social 093
Reposted by Julie LamMaskTogetherAmerica @togetherwemask.bsky.social · 28/07/2026Our @msjulieslam.bsky.social attended IgAN Foundation SPARK 2026 where #IgAN community connects, shares knowledge, and learns together. IgA nephropathy is a chronic autoimmune disease that a respiratory infection can trigger onset & relapse of kidney damage. 🧵 www.instagram.com/p/DbT4tAVkaW... 1359
Reposted by Julie LamJulie Lam @msjulieslam.bsky.social · 20/07/2026Please register and submit your questions. masktogetheramerica.org/blog/lc-defe...masktogetheramerica.orgLong COVID Defense Series IV — Mask Together AmericaJoin 5 Virtual Q&A Sessions MaskTogetherAmerica warmly invites you to register for the Long COVID Defense Series IV on September 2, 2026, from 3:40 PM to 6:40 PM ET. This virtual forum features five... 131
Reposted by Julie LamMaskTogetherAmerica @togetherwemask.bsky.social · 20/07/2026Join LC Defense Series IV, Sep 2, 3:40pm – 6:40pm ET | 5 Q&A(s): 3:45pm Robert DeRosa @robertderosa.bsky.social 4:20pm Laura Pensiero 4:55pm Dr. @michaelpelusomd.bsky.social 5:30pm Dr. @putrinolab.bsky.social 6:00pm Dr. @drdavidkeegan.bsky.social Register: masktogetheramerica.org/blog/lc-defe... 2176
Julie Lam @msjulieslam.bsky.social · 19/07/2026Thank you for supporting this documentary project! Please support our awareness campaign on Instagram and Facebook too! www.instagram.com/p/Da81ZNntjV... www.facebook.com/share/p/18ys...facebook.comFacebook 082
Reposted by Julie LamMaskTogetherAmerica @togetherwemask.bsky.social · 12/07/2026“There are many phenotypes of Long COVID... I am encouraged that people are still researching Long COVlD and I hope they will identify the biomarkers.”Odilon Couzin, MPH, interviewed by @msjulieslam.bsky.social at a mask-required event by Breathe Easy London. www.instagram.com/p/DatNqN8R6-...instagram.comMaskTogetherAmerica on Instagram: "“There are many phenotypes of Long COVlD and no one is sure of the mechanism behind what is causing Long COVlD. I am encouraged that people are still researching Lon...51 likes, 1 comments - masktogetheramerica on July 12, 2026: "“There are many phenotypes of Long COVlD and no one is sure of the mechanism behind what is causing Long COVlD. I am encouraged that peopl... 0309
Reposted by Julie LamMaskTogetherAmerica @togetherwemask.bsky.social · 10/07/2026After catching COVID in 2021, Josh developed #LongCOVID and Visual Snow Syndrome, a neurological disorder that turned his vision into a moving TV screen. Read how masking and lifestyle changes helped him reclaim his life, and the setback that followed. 👇 www.instagram.com/p/DaoLxRPR-R...instagram.comMaskTogetherAmerica on Instagram: "“My wife and I tried regular masks for a while and we just kept getting sick, so we moved to a mold remediation mask. People treat us like we are absolutely bonkers,...69 likes, 1 comments - masktogetheramerica on July 10, 2026: "“My wife and I tried regular masks for a while and we just kept getting sick, so we moved to a mold remediation mask. People treat us like... 0184
Julie Lam @msjulieslam.bsky.social · 10/07/2026I developed Shingles after my 2nd bout. Long COVID affects skin—the symptoms should not be dismissed. Let's fight for inclusive diagnostic criteria together! 011
Reposted by Julie LamMaskTogetherAmerica @togetherwemask.bsky.social · 10/07/2026Sharing an annotation on how Long COVID manifests as persistent rashes, hair loss, vascular lesions, papules, and burning or itching skin, and its associated conditions like diabetes, lupus, clotting disorders show their first symptoms on the skin. www.instagram.com/p/Dal1lPuR7fQ/ 12313
Julie Lam @msjulieslam.bsky.social · 09/07/2026I am a patient rep coauthor of the NIH RECOVER study highlighted in this article. The findings suggest that patients with rheumatic diseases have higher risk of viral persistence. www.rheumatologyadvisor.com/news/covid-1...rheumatologyadvisor.comUnderstanding SARS-CoV-2 Antigen Persistence in Systemic Autoimmune Rheumatic DiseasesPatients with systemic autoimmune rheumatic diseases may experience prolonged SARS-CoV-2 antigen persistence after COVID-19 infection. 0124
Reposted by Julie LamRheumatology Advisor @rheumatologyadv.bsky.social · 07/07/2026From @acr-journals.bsky.social Patients with systemic #autoimmune #RheumaticDiseases are more likely to exhibit prolonged #SARSCoV2 antigen positivity months after a #COVID19 infection compared with the general population. @mgbresearch.bsky.social @msjulieslam.bsky.social @jeffsparks.bsky.social rheumatologyadvisor.comUnderstanding SARS-CoV-2 Antigen Persistence in Systemic Autoimmune Rheumatic DiseasesPatients with systemic autoimmune rheumatic diseases may experience prolonged SARS-CoV-2 antigen persistence after COVID-19 infection. 1116
Julie Lam @msjulieslam.bsky.social · 09/07/2026I am at my ophthalmologist right now for my persistent Long Covid neuropathic eye pain. This pain is debilitating. When it flares, I also get dizzy and can’t breathe properly. www.cidrap.umn.edu/covid-19/per... 0336