iiinova — where your digital self keeps evolving

tamsin yeld into the void @68thmonkey.bsky.social · 09/10/2026

hey 🤗 good luck with talking to a doctor versed in MECFS - they do exist, you just gotta find them. Be kind & patient with your mind & body. With what you're going through, frustration & anger are the 1st to surface. learn to adapt & accept (Hard!) Don't push your brain/body. Check out MEAssoc (UK)

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Alisyn Gayle @alisyngayle.bsky.social · 08/10/2026

“Scientists found that five seemingly unrelated conditions, including long Covid, ME/CFS, and PTSD, may disrupt many of the same biological networks involved in immunity, metabolism, and cellular energy. The findings could help explain their shared symptoms... www.sciencedaily.com/releases/202...

sciencedaily.com

Scientists may have found a “unifying theory” of chronic fatigue

Scientists found that five seemingly unrelated conditions, including long Covid, ME/CFS, and PTSD, may disrupt many of the same biological networks involved in immunity, metabolism, and cellular energ...

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tamsin yeld into the void @68thmonkey.bsky.social · 22/04/2026

yeah, go slow. make sure you get the patches you can cut (I use Nicotinell). good luck!

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tamsin yeld into the void @68thmonkey.bsky.social · 14/04/2026

wow - that's not much to have got such a good result! After quite a bit of trial & and error, I'd build up to 7mg a day for a month and then a break of 2-3 weeks. Did this several times. only recently looked back at my body battery stats and realised NP had def risen the bar somewhat!

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tamsin yeld into the void @68thmonkey.bsky.social · 13/04/2026

GI Map stool test, 6 years after Microba test. All previous pathogens gone (yay!) but now I have an overgrowth of Morganella! 😭 Best news is zonulin markers ✅️, reflected in last few months of introducing FODMAP foods with no issue! Tonight 🥁 it's coconut milk in... Thai curry! wish me luck! #MECFS

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tamsin yeld into the void @68thmonkey.bsky.social · 13/04/2026

Got my DSP in Feb - such a blessing, after such a headf*@k doing the application. With the backpayment, I bought myself an e-bike. On days when I have the energy, I can wheel around our garden, and see bits of it I haven't seen in 8 years. Such freedom! Oh to have the wind in my hair again! #MECFS

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tamsin yeld into the void @68thmonkey.bsky.social · 13/04/2026

interesting! I've had success with them too (I think, in raising my baseline after I stopped). Did a month on, month off. Def will try them again. What's your dosage like?

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tamsin yeld into the void @68thmonkey.bsky.social · 03/03/2026

Sign sign sign, please, and share share share. If you, like me, are concerned about the direction our country will go if a Trump Tower is built in our country, then join me in objecting! petitions.getup.org.au/petitions/st...

petitions.getup.org.au

Stop Trump Tower on the Gold Coast!

If you, like me, are concerned about the direction our country will go if a Trump Tower is built in our country, then join me in objecting!

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Open Medicine Foundation (OMF) @openmedf.bsky.social · 17/02/2026

Dr. Christopher Armstrong and his team at OMF's Melbourne ME/CFS Collaboration have been awarded nearly $1 million through the Australian government’s Medical Research Future Fund (MRFF) for the project Energy inefficiency in #LongCOVID and #MECFS. 👉 Learn more: ow.ly/hj9F50Yh6TY

A professional portrait of Dr. Armstrong in an office setting, alongside text announcing nearly $1M awarded to the OMF Melbourne ME/CFS Collaboration.

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tamsin yeld into the void @68thmonkey.bsky.social · 17/02/2026

Great news about the funding. Is this separate from Kathy Huang and StudyME's PPP (Personalised post exertional Malaise predictor) study?

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tamsin yeld into the void @68thmonkey.bsky.social · 12/02/2026

Does he just get faster and faster so the kid flies off? How does she get off?!🤣

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Bateman Horne Center @batemanhornecenter.bsky.social · 28/01/2026

New research from Griffith University shows people with ME/CFS and Long COVID have altered brain connectivity during cognitively demanding tasks, offering insight into brain fog, memory challenges, and mental fatigue. 🔗 news.griffith.edu.au/2026/01/28/a...

news.griffith.edu.au

Altered brain connection found in people with ME/CFS and Long COVID - Griffith News

People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long COVID experience a disruption to their brain connectivity during a

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tamsin yeld into the void @68thmonkey.bsky.social · 31/01/2026

Jeez, good luck with that, that sounds rough going 🫶

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tamsin yeld into the void @68thmonkey.bsky.social · 31/01/2026

If you have an issue with Sulphur, are you maybe not getting enough Molybdenum along with B6? They help. You may know this already, just putting it out there 🌼

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Lyme Resource Centre @lymeresourcecentre.bsky.social · 09/11/2025

Tick-bite illnesses can be complex and debilitating. Are we any closer to understanding them? This article from Australia’s ABC News highlights the work of Dr Richard Schloeffel who has been researching a group of people with ongoing symptoms linked to tick bites. www.abc.net.au/news/health/...

abc.net.au

Scientists work to unravel mystery tick illness hitting Australians

Thousands of Australians report suffering debilitating chronic symptoms after getting a tick bite. But their illness — and the cause of it — is still not well understood.

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tamsin yeld into the void @68thmonkey.bsky.social · 27/12/2025

Is any one in the #MECFS community, maybe #LymeAustralia or #Lyme anywhere really, attempting the Josh Leisk Born Free protocol? It seems, even if my GP was onside, she'd need to drop all her other research just to start figuring it out. So, so, so complex.

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tamsin yeld into the void @68thmonkey.bsky.social · 27/12/2025

Buhner rocks! Except it can be a bit dense going, especially when the ole brain isn't at max. So glad you're finding some respite.

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Open Medicine Foundation (OMF) @openmedf.bsky.social · 08/12/2025

Dr. Chris Armstrong, the Director of OMF’s Melbourne ME/CFS Collaboration, and his team recently published a paper on their work looking at which genes were most impactful to metabolites in #MECFS and which were most impactful in controls. 👉Read more: ow.ly/ast150XG0rz.

Graphic announcing “New Publication—Exploring a genetic basis for the metabolic perturbations in ME/CFS using UK Biobank.” Includes a “Learn more” button and a photo of Chris Armstrong in a suit at a symposium.

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tamsin yeld into the void @68thmonkey.bsky.social · 04/12/2025

sad that you only have white polyester tee's to choose from - no way on earth I can wear polyester, I'm afraid. And white... won't be white for very long! look forward to next Christmas 🫠

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Open Medicine Foundation (OMF) @openmedf.bsky.social · 18/11/2025

In this interview, Dr. Jonas Bergquist and Dr. Alain Moreau talk about their main ideas behind #MECFS, including an immune system that is too active in the brain and spinal cord, inherited factors, and how genes are expressed. 👉 ow.ly/fUYM50XtwW1.

On the left is Dr. Moreau smiling and pointing to a colorful scientific poster filled with charts and text. On the right is Dr. Bergquist wearing a white lab coat and blue shirt. In the center overlaid text reads INTERVIEW.

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Open Medicine Foundation (OMF) @openmedf.bsky.social · 11/11/2025

As part of our Triple Giving November campaign, we’re pleased to share a video interview with Dr. Ron Davis and Dr. David Systrom. Together, they discuss how problems with oxygen supply and energy production may underlie #MECFS. 🎥 Learn more and watch the video: www.omf.ngo/ron-davis-an....

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tamsin yeld into the void @68thmonkey.bsky.social · 30/10/2025

When the Chief Medical Officer urges the narrative to move from "stigma to science" . Thank God for organisations like @emergeaustralia.bsky.social, and for the brave souls who risked weeks/months of PEM to be a voice for us all. #MECFS #PEM

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tamsin yeld into the void @68thmonkey.bsky.social · 30/10/2025

Thank you so much to all, thank you Emerge ❤️❤️❤️

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tamsin yeld into the void @68thmonkey.bsky.social · 17/09/2025

wrote that 5 years ago, 3 years after getting sick. still holds.

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tamsin yeld into the void @68thmonkey.bsky.social · 17/09/2025

... my life plays out in torturous slippery snapshots, catching at my limbs, as they flail around, attempting to cling on to what is solid, the me before, the me i cant forget. #MECFS

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tamsin yeld into the void @68thmonkey.bsky.social · 17/09/2025

here i am. here is my shell. my spirit comes in waves. today i am drowning, high tide, ripped along the undertow, abraded by shingle, tossed every which way, i know not which is up, down nor ahead.....

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tamsin yeld into the void @68thmonkey.bsky.social · 17/09/2025

unbelievable. @bsky.app - is there a way of getting these bots off the platform?

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tamsin yeld into the void @68thmonkey.bsky.social · 17/09/2025

I love the sound of this! where can I watch it?

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tamsin yeld into the void @68thmonkey.bsky.social · 02/09/2025

Great study. Confirms my choice to get on oestrogen, instead of just progesterone. Also 5HTP has been a winner for me in terms of 💤. Now just to get in a bit of inulin and F. prausnitzii for my poor ole guts. #MECFS #pwme #MHT

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tamsin yeld into the void @68thmonkey.bsky.social · 27/08/2025

Hi! 👋🏽 I'm here, just sporadically 🐢

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tamsin yeld into the void @68thmonkey.bsky.social · 27/08/2025

of course, thanks! really appreciate your input!

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tamsin yeld into the void @68thmonkey.bsky.social · 26/08/2025

Thanks for yr reply! I don't have benadryl, but I cd try famotidine? I'm thinking it may be a BP thing, as I take l-theanine, taurine, ashwagandha & garlic atm.. my blood pressure is prob in the minus figures ... I realise now! lol

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tamsin yeld into the void @68thmonkey.bsky.social · 26/08/2025

@rahaeli.bsky.social - you got any ideas on why the extended hot flush? is it a mast cell thing, or just menopause going haywire?

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tamsin yeld into the void @68thmonkey.bsky.social · 25/08/2025

so this clonidine thing is not really working for me. 1st few weeks 👍🏼 Garmin body battery showed daytime recharge (usu. unheard of), hot flushes less frequent, lasting far less, HR down. But now, sleepless nights with nightmares and a hot flush that lasts all fucking night long. #MCAS #MECFS

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tamsin yeld into the void @68thmonkey.bsky.social · 14/08/2025

yay! good luck at the clinic- hope you can remain stable enough to go!

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tamsin yeld into the void @68thmonkey.bsky.social · 14/08/2025

so glad that it's been so beneficial for you. I've had mecfs for coming up 8 yrs now, so I've pretty much learnt how to pace - the body battery feature has been invaluable in that learning. HR is now controlled by clonidine!

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tamsin yeld into the void @68thmonkey.bsky.social · 13/08/2025

Hey, have you come across clonidine? It's a new one for me, but works really well alongside ketotifen - both great for MCAS (if you weren't aware)

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tamsin yeld into the void @68thmonkey.bsky.social · 13/08/2025

ah, last time I checked, the armband wasn't available over here, down under. I think I'll just stick with my Garmin! I gave up recording symptoms, because... WAY too stressy and too much work. How's the armband working for you? Do you have anything to compare it with?

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tamsin yeld into the void @68thmonkey.bsky.social · 13/08/2025

I don't know if anyone with #MECFS has experienced this, using the #Visible app, but this morning my finger (on the torch) was about to explode with the amount of needle sensations I was feeling. I've already alternated fingers due to the tingling I get from it, but this was insane.

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tamsin yeld into the void @68thmonkey.bsky.social · 30/07/2025

when I first got sick (nearly 8 incredibly long years ago) my MMP9 readings were off the chart. Sadly, no GP really understands what they do and how to bring the reading down. Hopefully this will enlighten us all. #MECFS

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tamsin yeld into the void @68thmonkey.bsky.social · 30/07/2025

My barbershop wheelie stool is one of my greatest assets whilst in the throes of #MECFS. When you account for the fact that a pair of legs weighs a whopping 1/3 of your total body weight, it makes sense to stop hauling them around, and sit your arse down as much, and as often, as you can.

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tamsin yeld into the void @68thmonkey.bsky.social · 15/07/2025

Been thinking about peptides for my worsening gut issues, had heard of BPC-157 and came across this. Seems like it helps SO much more than gut issues. Anyone with #MECFS or #LeakyGut can corroborate?

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