iiinova — where your digital self keeps evolving

zoomuno.bsky.social @zoomuno.bsky.social · 21/09/2026

A great way to 'validate' GET is to rediagnose ME as FND - which they tried on me last year, 35 years into moderate-severe ME.

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zoomuno.bsky.social @zoomuno.bsky.social · 06/08/2026

Let's demand action on social care AND climate change. As a PA employer, I'd like to be saved from climate armageddon AND poverty, especially given how linked the two are...

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zoomuno.bsky.social @zoomuno.bsky.social · 06/08/2026

Infinitely grateful to you and whole team.

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zoomuno.bsky.social @zoomuno.bsky.social · 08/07/2026

PIP didn't discourage my daughter from work, but she went down to zero PIP points (from enhanced) *because* she'd tentatively started a very PT job. Too overwhelmed to fight it to tribunal, she's now going without; health in decline and not sure how much longer she'll be in work...

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👻madeline bOoOoOoOodent👻 @oldenoughtosay.com · 23/06/2026

Hey North Oxfordshire: there’s a tour company, Townhouse Executive Travel Ltd, based in Woodstock, who are offering to do grocery/prescription runs for the elderly/disabled during the heatwave, for free. I can’t vouch for them personally but a friend wanted me to pass it on and I do trust her

Townhouse Executive Travel
Limited
Offer to our Elderly and Disabled neighbours As we do every year in extreme weather, we are offering our services free of charge to collect your shopping, prescriptions etc Please don't leave the safety of your house if you don't need to and give us a call instead We will try and fit as many as we can in around our commitments Townhouse Executive Travel Limited Please either email or call and leave a message (can't accept texts) and we'll get you booked in Please everyone, keep an eye out for your neighbours, Stay Safe Nickie Rogan

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Led By Donkeys @ledbydonkeys.org · 24/01/2026

Board of Peace - Season 1

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zoomuno.bsky.social @zoomuno.bsky.social · 13/02/2026

1/10. And this was the 'expanded' trial! No diagnostic criteria given, other than all participants experience fatigue of 6+ months. No attention given other symptoms or diagnostics.

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zoomuno.bsky.social @zoomuno.bsky.social · 14/12/2025

I was wondering just the other day what will be recognised as the major milestones in progress on ME and thought how pivotal the PACE reanalysis was and continues to be. A thousand thanks.

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zoomuno.bsky.social @zoomuno.bsky.social · 13/11/2025

Damn. Thanks for letting me know. It's all horrific.

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zoomuno.bsky.social @zoomuno.bsky.social · 12/11/2025

Just seen a link to this running list of names (not sure who's authoring it): docs.google.com/document/u/1...

docs.google.com

#RightWingSexualPredators

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zoomuno.bsky.social @zoomuno.bsky.social · 06/10/2025

Adjusting his territory as ME gets harder and harder to psychologise?

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News Eye @newseye.bsky.social · 22/08/2025

NEW: “It is a famine. Everyone owns this.” UN emergency coordinator Tom Fletcher confirms a famine in Gaza. The whole world should be made to watch these two and half minutes. (🎥 BBC News)

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News Eye @newseye.bsky.social · 04/08/2025

This is amongst the most impactful two minutes of broadcasting I’ve ever seen. By Emma Murphy, International Editor, ITV News. #Gaza

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zoomuno.bsky.social @zoomuno.bsky.social · 30/06/2025

There are also quite a few of us still waiting to transfer to PIP from DLA. I'm guessing we'll also be assessed on the new tougher criteria, even if we've been on DLA/Attendance Allowance 'lifetime' awards for 35 years.

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Gaza Freedom Flotilla Coalition @freedomflotilla.bsky.social · 13/06/2025

Three members of the Madleen team—Pascal Maurieras, Yanis Mhamdi, and Marco van Rennes—are still illegally detained by Israel and may be held for another month. Arrested unlawfully in international waters and denied basic rights,

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zoomuno.bsky.social @zoomuno.bsky.social · 27/04/2025

'Tyrants always fall' is such a passive and complacent headline (with untold numbers suffering along the way). Tyrants fall because they are *felled*.

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D.L. Mayfield (they/them) @dlmayfield.bsky.social · 18/02/2025

Here’s my pep talk after studying authoritarianism: 1). They never truly expect a long-term resistance movement bc they think people are a collection of trauma triggers who are easily controlled thru terror 2). If they can’t terrorize you 24/7 in your mind, they have already lost the war

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Tuomas Pernu @tuomaspernu.bsky.social · 12/02/2025

A small thing we all can - and should - do: please go and sign (and share) the letter below. bsky.app/profile/tuom...

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Alt CDC (they/them) @altcdc.altgov.info · 01/02/2025

The entire archive of CDC datasets can be found here. HUGE shoutout to data archivists- this work is important 👏🙌🏻 archive.org/details/2025...

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Nirali @firewordsparkler.bsky.social · 31/01/2025

You can also easily save pages on the Internet Archive by going to the Wayback Machine and putting a URL in their "Save Page Now" function web.archive.org

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Deborah Blum @deborahb.bsky.social · 31/01/2025

From a journalist friend: Just spreading the word. The CDC is purging data, so people should archive their favorite CDC datasets today, namely ones around race/ethnic diversity, LGBTQ, and reproductive health. Also health data involving climate. The youth risk behavior survey has already gone down.

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zoomuno.bsky.social @zoomuno.bsky.social · 28/11/2024

I'm guessing we could and I wish you well, but that they only apply to terminally ill patients at this stage is a false assurance (and I truly wish that were not the case).

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zoomuno.bsky.social @zoomuno.bsky.social · 28/11/2024

Or be a disabled person who's charted assisted suicide legislation internationally over decades.

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zoomuno.bsky.social @zoomuno.bsky.social · 28/11/2024

Unfortunately, yes. Please check out Medical Assistance in Dying (MAiD) in Canada.

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Celeste Pewter @celestepewter.bsky.social · 30/10/2024

All, please don't doom. We have six days, and there are *more of us*. If you're feeling antsy, please consider signing up to volunteer: 1. go to go.kamalaharris.com or mobilize.us and sign up for a volunteer shift right now. 2. Please focus on both Harris + the Senate.

go.kamalaharris.com

When We Fight, We Win

Grassroots supporters power our campaign. Join us today and find a volunteer opportunity near you to help elect Kamala Harris and Tim Walz.

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zoomuno.bsky.social @zoomuno.bsky.social · 28/10/2024

Do you know how far you can walk and be sure of not getting PEM? If so, make sure you state this. If they insist on physical test, I'd suggest you walk that far *and no further*. When you get that far, tell them you need to sit down *now*; sit on the floor if you have to. Best wishes with it.

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George Monbiot @georgemonbiot.bsky.social · 18/10/2024

This story is one of the most disturbing I've ever covered. It's about how the views of a deeply weird ideological sect affected science, medicine and the media, with devastating impacts on patients. Please read and pass on. This horror has to stop. www.theguardian.com/commentisfre...

theguardian.com

Maeve Boothby O’Neill died because of a discredited view of ME. How was this allowed to happen? | George Monbiot

Chronic fatigue syndrome is as physiological as a broken leg. We must learn all we can from this tragic case, says Guardian columnist George Monbiot

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zoomuno.bsky.social @zoomuno.bsky.social · 01/10/2024

It took me from doing 4 stairs to 8 before having to stop (pain). Didn't obviously impact on other areas of life, so I stopped. But currently rethinking and hoping to try it again.

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zoomuno.bsky.social @zoomuno.bsky.social · 08/09/2024

So much that's great re heat pumps, but for those of us on ultra low incomes they may cost way more to run. I use gas boiler only when freezing versus 24/7 for HP. Had to revert to gas (w/real sadness). Still great fan of HPs - BUT we need to be honest about those for whom they aren't a solution.

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zoomuno.bsky.social @zoomuno.bsky.social · 07/09/2024

Is there supposed to be a black cat just below where the trunk forks?...

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Mary Branscombe @marypcbuk.bsky.social · 16/08/2024

New arrivals: alt text is a key part of bluesky culture. If you want reach and engagement beyond the other new arrivals who aren't used to alt text either, you need to make it a habit. There's even a setting in the client to remind you!

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zoomuno.bsky.social @zoomuno.bsky.social · 16/05/2024

Interesting results, but not convinced by lack of cognitive difference between ppl with ME/LC and controls. No measure made of whether need to work harder for same output, or impact of cognitive exertion. My experience is v much that I can 'fake it' cognitively, but never 'make it' because of PEM.

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zoomuno.bsky.social @zoomuno.bsky.social · 05/11/2023

This is beautiful. Decades in and I find it's the loss of self and meaning that carries on being the hardest of all. Thank you @mfairma.bsky.social for gifting us this wonderful writing.

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