iiinova — where your digital self keeps evolving

SJ [SaliWho] @why-should-i.bsky.social · 23/03/2025

I’m ok I think, thanks. Really ill for a few days. Now I’m just thinking about everything ever. You ok?

SJ [SaliWho] @why-should-i.bsky.social · 23/03/2025

Yeah I’m ok thanks. Really appreciate you asking. You ok? I was scary ill for a few days but now I’m just thinking thinking thinking about stuff. Everything that’s ever happened. Haven’t even read any news for a week. What’s going on out there?

110

SJ [SaliWho] @why-should-i.bsky.social · 15/03/2025

Still getting compliments on my mask chains. I make layered chains a feature. Thick chain like the ⛓️ emoji, across nose bridge of a black mask. 1 - 3 chain necklaces, same style chain as mask. Hoody unzipped enough that you see chains. Sleeves rolled up, thick chains on my wrists. CHAINS. Yeahhh.

0100

Reposted by SJ [SaliWho]

Jonathan Howard @joho.bsky.social · 13/03/2025

Any difference?

Vinay Prasad encourages covid infections

1317

SJ [SaliWho] @why-should-i.bsky.social · 14/03/2025

Why’s the city so chaotic so early? I’ve only been out 3 mins. A lone man is screaming but not in a distressed way. Another’s telling strangers all the crimes he’s done. He’s listing them chronologically. I got as far as ‘nicking car stereos’ so there’s a while to go, assuming he still does crimes.

060

SJ [SaliWho] @why-should-i.bsky.social · 14/03/2025

@pot8um.bsky.social what’s that massive directory of covid research you link to on twitter a lot pls?

110

SJ [SaliWho] @why-should-i.bsky.social · 14/03/2025

He’s really funny. I follow him on Twitter. He does longer form skits on there.

010

SJ [SaliWho] @why-should-i.bsky.social · 14/03/2025

Weirdly reassuring when people in other countries speak about how the British government’s murdering disabled people while polite society nods approvingly from the sidelines. Disabled people in other countries with legal assisted suicide have said they feel the same. Thank you to the witnesses.

12510

SJ [SaliWho] @why-should-i.bsky.social · 14/03/2025

Thank you. I always pay people though. This is essentially copywriting and research so I know what I used to charge charities for it. You could give it away if you didn’t want it. I’ll see what my friend says anyway.

010

SJ [SaliWho] @why-should-i.bsky.social · 14/03/2025

Thank you. I appreciate it when people actually believe me. 💜

110

SJ [SaliWho] @why-should-i.bsky.social · 14/03/2025

seems like that’s all I ever get now. Brick wall of medical ableist misogyny.

000

SJ [SaliWho] @why-should-i.bsky.social · 14/03/2025

Thank you. 💜 I’ve resumed trying.

010

SJ [SaliWho] @why-should-i.bsky.social · 14/03/2025

Thank you. 💜 I’m trying to outsource admin. asked a friend if I can pay them to find me an epilepsy specialist and get my NHS records. if they decide they’re too ill, are you interested in that?

110

SJ [SaliWho] @why-should-i.bsky.social · 14/03/2025

Thank you. I really do appreciate that. Crying now because people are being unexpectedly nice. 🫂

110

SJ [SaliWho] @why-should-i.bsky.social · 14/03/2025

Thank you. That made me cry. 💕🫂

010

SJ [SaliWho] @why-should-i.bsky.social · 12/03/2025

A lot of people I followed, almost all disabled women, died over the last year because doctors didn’t care. Their last posts were about being gaslit and ignored to death. They knew the truth matters about what happened to them.

1100

SJ [SaliWho] @why-should-i.bsky.social · 12/03/2025

Something very bad will happen to me soon. Seizures in my sleep now too. People die in their sleep from these. It’s getting worse. GP didn’t call back on Monday. I couldn’t get through today. Still haven’t seen a neurologist for 8 years. No help is coming. I really want people to know I did try.

7175

SJ [SaliWho] @why-should-i.bsky.social · 12/03/2025

I don’t buy that Allison Gardner thing. She willingly signed it, saw the backlash and then wasn’t so sure about the optics for a minute.

100

Reposted by SJ [SaliWho]

Esther @elhopkins.bsky.social · 11/03/2025

Scapegoating disabled for poor IPC. bsky.app/profile/elho...

023

Reposted by SJ [SaliWho]

Rosemary @sophygurl.bsky.social · 12/03/2025

*looks nervously into the audience* Okay, I'm officially asking for help for my household. The full story is on the GoFundMe page if you want to read all about it. If you can donate, share the link, boost my posts, add a comment to the GFM page, anything at all to help? TY! gofund.me/abe18ba0

gofund.me

Donate to Help this chosen family make ends meet!, organized by Rosemary Amico

The short story: Three humans (and our two cats) have had a string of bad l… Rosemary Amico needs your support for Help this chosen family make ends meet!

21813

SJ [SaliWho] @why-should-i.bsky.social · 11/03/2025

Harriet Tubman was disabled from a traumatic brain injury she had as a child. She had epilepsy because a slave owner threw a weight at someone else and it hit her. She had hypersomnia too and surgery on her skull to treat very bad headaches.

081

SJ [SaliWho] @why-should-i.bsky.social · 10/03/2025

They euthanise disabled kids in the Netherlands and Belgium. The same network of eugenics lobbyists want it in Canada. It’s inevitable in the UK. Today, The Guardian had an article bemoaning that councils spend more money on disabled kids than on road maintenance. Lethal overdoses are so cheap.

2195

SJ [SaliWho] @why-should-i.bsky.social · 10/03/2025

I follow an account who only posts lefty political jokes, except for 2 panicked, recent tweets about having had a baby with a rare epilepsy that doctors don’t understand. She’s started posting against the assisted suicide bill. She realised what future doctors will suggest to her baby, didn’t she.

090

Reposted by SJ [SaliWho]

Liberty @libertyhq.bsky.social · 10/03/2025

Banning face coverings just gives the police even more powers to crack down on our ability to speak out Our fundamental right to protest MUST be protected Agree? Then JOIN US in calling on the Gov to SCRAP THIS PLAN 👇 action.libertyhumanrights.org.uk/page/167409/...

action.libertyhumanrights.org.uk

I protect the right to protest safely

Stop the Government from banning face coverings at protests!

0149

Reposted by SJ [SaliWho]

Liberty @libertyhq.bsky.social · 10/03/2025

Face coverings allow us to protest safely: Without risk of infection Without being spied on by police’s creepy facial recognition tech Without fear of endangering our family if protesting actions of other States

184

Reposted by SJ [SaliWho]

Liberty @libertyhq.bsky.social · 10/03/2025

BREAKING Face masks could be BANNED AT PROTESTS under Gov’s new Crime and Policing Bill It’s going through Parliament today Sound familiar? That’s because Rishi Sunak’s Gov tried to introduce it last year… 🧵 👇 (1/6)

Woman with fist in air at protest wearing face mask
Text: I HAVE THE RIGHT TO PROTEST

33933

SJ [SaliWho] @why-should-i.bsky.social · 10/03/2025

I’m too tired to get all my NHS test results and notes so as I can pay a doctor to care what happens to me. It’s specifically the admin that’s the barrier. Hopefully I wouldn’t be paying for more tests. I think I’ll always be too tired. It’s like DWP admin. Too much for me.

020

SJ [SaliWho] @why-should-i.bsky.social · 10/03/2025

I was having bad seizures on the phone so the GP said she’d call back to tell me what the hospital told her. Well, the surgery closed so I guess no one’s calling. Once you’re too ill or old to work, it instantly doesn’t matter to them what happens to you. I saw it when I was a carer for my nan too.

120

SJ [SaliWho] @why-should-i.bsky.social · 10/03/2025

GP’s writing to Neurology so at SOME point I’ll get ANOTHER hospital appointment. When? 2026? I don’t NEED one. They only saw me A MONTH ago and prescribed an anti-epileptic that made me want to die. I just need one that DOESN’T. This could be solved over the phone, now. Solved in a fucking text.

170

SJ [SaliWho] @why-should-i.bsky.social · 10/03/2025

A note by my sofa says “How do you feel?” to prompt me to take meds if my seizures are dangerous. Just now, I wrote it twice in magnetic Scrabble on my fridge too and on a chalk board by the sink. Maybe I’ll write it on EVERY surface. You can’t stop me. Second-guessing yourself isn’t illegal.

051

Reposted by SJ [SaliWho]

PacoOnPause @pacoonpause.bsky.social · 09/03/2025

the pandemic broke society and the vibes have been off ever since..

58625

Reposted by SJ [SaliWho]

Jenny Croft @jenniferlcroft.bsky.social · 09/03/2025

Becky Burke of Book Island (a picture book publisher in the UK founded by my fellow Tokarczuk translator Greet Pauwelijn) was "detained" by ICE at the Canadian border on 2/28. Her father asked that her story be shared in case someone can help her. He writes:

18549313530

Reposted by SJ [SaliWho]

Gwen Snyder is uncivil @gwensnyder.bsky.social · 10/03/2025

I used to think the problem was that most folks just sort of burned out, but now I'm on the opposite side of it (a parent of young kids) and almost losing my mind feeling like I really can't do public participation in local politics or organizing. Childcare is just so expensive.

714017

Reposted by SJ [SaliWho]

Gwen Snyder is uncivil @gwensnyder.bsky.social · 10/03/2025

This is so real. And frankly, there's a childcare-sized gap at work here. If your organizing or community doesn't find a way to accommodate childcare needs, you end up with some very young activists and some elder activists, but no one in between.

10534144

SJ [SaliWho] @why-should-i.bsky.social · 09/03/2025

If it’s legalised, the inevitably ever-expanding number of disabled people who are eligible for assisted suicide here will be able to access that quicker than state health care, state social care and benefits. That’s the intent.

062

SJ [SaliWho] @why-should-i.bsky.social · 09/03/2025

Tomorrow, in the morning when I feel worst, I have to call my GP’s surgery. Restart trying to get doctors to call doctors, to get different meds. Last time, GP, A&E, 111 and Neurology wouldn’t help. Referred me to each other. They can’t be bothered. Was in hospital a wk again because no one helped.

040

SJ [SaliWho] @why-should-i.bsky.social · 09/03/2025

Glad you’re ok anyway - and I mean ‘ok’ as in still being alive despite being in the UK. Just seemed like properly ages since I saw you here. I’ve been literally insane for 2 weeks, on account of Keppra, an anti-epileptic. I’ve just stopped taking it on account of not wanting it to kill me.

120

SJ [SaliWho] @why-should-i.bsky.social · 09/03/2025

That must’ve been so scary for you. Did he get away from all that?

000

SJ [SaliWho] @why-should-i.bsky.social · 09/03/2025

@politicaladrift.bsky.social seems like you haven’t been on here for ages! you shifted to another platform? 👀

110

SJ [SaliWho] @why-should-i.bsky.social · 09/03/2025

Harriet Tubman believed her seizures came from a higher power. I’m an atheist but I know how a religious person would interpret them like that. Dostoyevsky had ecstatic seizures. I get them for a tiny fraction of a second. Feels like access to god. Others feel like world-ending evil.

Brain ablaze on Twitter: Harriet Tubman was a true hero. She risked her life, making ~13 missions to free enslaved people via the underground Railroad. Despite living with #epilepsy, she showed incredible courage. Her strength is an inspiration.
#EpilepsyAwareness
#InternationalWomensDay

Harriet Tubman 1822 - 1913

051

SJ [SaliWho] @why-should-i.bsky.social · 09/03/2025

So many disabled kids on meds with awful physical or psych side-effects must think that’s how you’re meant to feel. That there are no options. Similar to the millions of kids getting long covid. They think they’re meant to feel like shit. Blamed for their symptoms. Never known any different.

010

SJ [SaliWho] @why-should-i.bsky.social · 08/03/2025

Must be so scary for babies and kids to take anti-epileptic drugs if they get bad side-effects. Most adults wouldn’t even care about terrible side-effects if the medication stopped the seizures. Not if it created less work for carers or professionals. You see that with a lot of kids on psych meds.

150

SJ [SaliWho] @why-should-i.bsky.social · 08/03/2025

Thanks. 💜 It’s so scary. Can’t imagine what it’d be like for a kid. Did you find something better? I don’t have kids and it wasn’t until the last couple of months that I started thinking about what it must be like for a kid or baby to take all these meds. Look at this side-effect profile for kids!

120

SJ [SaliWho] @why-should-i.bsky.social · 08/03/2025

People will ‘choose’ assisted suicide instead of this.

051

Reposted by SJ [SaliWho]

Tara Moriarty @moriartylab.bsky.social · 03/03/2025

Canadian COVID Forecast: Mar 1-14, 2025 SEVERE: QC VERY HIGH: CAN, AB, North, NS, ON HIGH: BC, MB, NB, NL, PEI, SK MODERATE: none About 1 in 52 people in Canada are CURRENTLY infected.

This image shows gauges with the Mar 1-14, 2025 COVID Forecast scores for Canada, the provinces, & territories. From left to right:

Canada: 12.1 - VERY HIGH
Alberta: 10.1 - VERY HIGH
British Columbia: 9.2 - HIGH
Manitoba: 9.8 - HIGH
New Brunswick: 9.8 - HIGH
Newfoundland and Labrador: 9.7 - HIGH
North: 11.0 - VERY HIGH
Nova Scotia: 11.1 - VERY HIGH
Ontario: 11.9 - VERY HIGH
Prince Edward Island: 9.8 - HIGH
Quebec: 16.4 - SEVERE
Saskatchewan: 9.6 - HIGH

A text box reads: "The COVID Forecast is calculated from 3 equally weighted categories: 1) Current infections and spread; 2) Healthcare system impact; 3) Mortality. Within each category there is one sub-category for trends over the most recent week (Trends) and one sub-category for current parameter values relative to a specified baseline (Current values). Trends and current values are weighted equally when determining the final score for a category. All Forecast input data and sources are available here (https://datastudio.google.com/embed/u/0/reporting/42b886cf-d661-488e-b7d8-5c5836b55ab6/page/p_2yqs028mwc). Past Forecast scores are available in the table below. Forecast scores are grouped into 4 ranges: MODERATE (1 to <5, white), HIGH (6 to <10, yellow), VERY HIGH (10 to <15, orange), SEVERE (>15 red)."

14327202

Reposted by SJ [SaliWho]

chiller @chiller.eurosky.social · 08/03/2025

But they only want to break women's jaws, hit them with machetes, and rape them, like their favourite HEEEWWWO. Will nobody think of the poor oppressed boys? 💔💔💔

132