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Vulval Cancer UK

@vulvalcanceruk.bsky.social
39 followers 48 following 104 posts

Clare Baumhauer 💜 I'm just a Stage 3 #vulvalcancer & 2nd time survivor! 💜 raising awareness 💜#knowyourvulva #lichensclerosus

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Vulval Cancer UK @vulvalcanceruk.bsky.social · 11/05/2026
Advocating for women’s vulval health www.medtecheurope.org/medtech-view...
medtecheurope.org
Advocating for women’s vulval health - MedTech Europe
“My earliest memory was age five, when sitting was always itchy and uncomfortable. By the time I was around nine, going to the toilet felt like acid on my skin,” she remembers. “My mum took me to the ...
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 16/04/2026
www.cancerresearchuk.org/about-cancer...
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 05/03/2026
This week is Lymphoedema awareness
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 22/02/2026
Crash menopause www.maggies.org/about-us/dif...
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 22/02/2026
Vulval cancer types and symptoms
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 10/02/2026
Vulval cancer is a rare cancer in the UK with 1% of all cancers in women. Although more common in older women you can be any age so please check your vulva regularly and any concerns see your doctor and if needs be get a second opinion. Information www.cancerresearchuk.org/about-cancer...
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 09/02/2026
Lichen Sclerosus guide www.lichensclerosusguide.org.uk
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 05/02/2026
GRACEFUL study - Investigating attitudes to Gynaecological Rapid Access, Cancer Exclusion and Follow Up Location Please help by doing this survey forms.office.com/Pages/Respon...
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 04/02/2026
World Cancer Day
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 04/02/2026
World Cancer Day
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 04/02/2026
World Cancer Day Cancer turned my world upside down
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Cancer Research UK @cancerresearchuk.org · 04/02/2026
In the UK, nearly 1 in 2 people will get cancer in their lifetime. Today is World Cancer Day – a global day to raise awareness of cancer, and take action against it 🌍 Share this post to help us raise awareness. #WorldCancerDay #WCD2026
Blue graphic with black text which reads, "World Cancer Day, 4 February"
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 03/02/2026
World Cancer Day
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 02/02/2026
2 days to go
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 01/02/2026
It’s first of the month . Have you done your checks
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Reposted by Vulval Cancer UK
Vulval Cancer UK @vulvalcanceruk.bsky.social · 01/02/2026
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 01/02/2026
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 12/01/2026
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 29/10/2025
It’s that time of the year to get my pumpkins 🎃 out
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Picker @pickereurope.bsky.social · 07/10/2025
You’re an ideal candidate if you:  ✅ Are aged 16+  ✅ Live in the UK ✅ Are currently waiting for an #NHS appointment, procedure or treatment For more information, please read our online information sheet: bit.ly/NHSWaiting [2/2] #NHSWaitList #PatientExperience #OnlineSurvey #PickerInsights
bit.ly
Information sheet: share your experience of waiting for care
Picker is currently developing a survey to understand experiences of waiting for care. As part of the development process, we would like individuals to take part in an interview where we will go throu...
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Reposted by Vulval Cancer UK
Picker @pickereurope.bsky.social · 09/10/2025
Today, we’ve published ‘Learning from the Best – celebrating patient experience innovations to help deliver the 10 Year Plan’, which maps the #PEN25 Awards winners to the Plan’s key chapters, and provides scalable examples of progress. Read the publication: bit.ly/PEN10YearPlan [2/2]
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 05/10/2025
Raising awareness for 2 cancers and it’s covered 🙄 as adult content!
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 08/09/2025
Gynaecological Cancer Awareness Month 💜 #Vulvalcancer www.wellbeingofwomen.org.uk/health-infor...
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 05/10/2025
Raising awareness for 2 cancers and it’s covered 🙄 as adult content!
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 04/10/2025
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 01/10/2025
As it's now Breast Cancer Awareness Month I wanted to remind you when you check your breasts then check the rest. Know your normal and any changes get checked! If in doubt get checked out! Check your vulva to and be vulva aware.
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 01/10/2025
As it's now Breast Cancer Awareness Month I wanted to remind you when you check your breasts then check the rest. Know your normal and any changes get checked! If in doubt get checked out! Check your vulva to and be vulva aware.
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 08/09/2025
Gynaecological Cancer Awareness Month 💜 #Vulvalcancer www.wellbeingofwomen.org.uk/health-infor...
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 06/08/2025
Episode 4 of the Making Menopause Matter podcast is out now We talk Vulvas, Vaginas and Bladders, including, why using the right terminology is so important, the genitourinary symptoms of menopause, sexual health, cervical screening tests, Lichen Sclerosus, vulval cancer and more
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Reposted by Vulval Cancer UK
Vulval Cancer UK @vulvalcanceruk.bsky.social · 04/08/2025
For more information ~ www.lichensclerosusguide.org.uk
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 04/08/2025
For more information ~ www.lichensclerosusguide.org.uk
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Reposted by Vulval Cancer UK
Vulval Cancer UK @vulvalcanceruk.bsky.social · 01/08/2025
We're absolutely delighted to announce that the Lichen Sclerosus Guide (www.lichensclerosusguide.org.uk ) has been shortlisted for a Picker Experience Network National Award! These awards recognise excellence in improving patient experience instagram.com/p/DMxdZkMN3vP/… #PatientExperience #PEN25
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 01/08/2025
Feel it on the first! Have your done your monthly checks? Don’t forget to check your vulva ! www.lichensclerosusguide.org.uk/what-is-vulv...
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 01/08/2025
We're absolutely delighted to announce that the Lichen Sclerosus Guide (www.lichensclerosusguide.org.uk ) has been shortlisted for a Picker Experience Network National Award! These awards recognise excellence in improving patient experience instagram.com/p/DMxdZkMN3vP/… #PatientExperience #PEN25
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 16/07/2025
New podcast! #menopause podcasts.apple.com/gb/podcast/mak…
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 13/07/2025
vm.tiktok.com/ZNdadME9A/
vm.tiktok.com
TikTok - Make Your Day
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Jo Morrison @jomorrison.medsky.social · 11/07/2025
Dr Jo Moffatt presenting her preliminary findings of the GRACEFUL study #BGCS2025 @ovacome.bsky.social @eveappe.bsky.social @vulvalcanceruk.bsky.social @targetovarian.bsky.social @ovariancanceruk.bsky.social
Dr Jo Moffatt standing by her poster at a conference
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 10/07/2025
My daughter is doing a skydive for charity 🪂 www.goodhub.com/go/making-mi...
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 10/07/2025
My daughter is doing a skydive for charity 🪂 www.goodhub.com/go/making-mi...
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Reposted by Vulval Cancer UK
Dr Amanda Selk @dramandaselk.bsky.social · 06/07/2025
I’ve finally caved and started a work instagram. The goal is education about pregnancy/vulva/cervix and any obgyn topic I’m comfy with. Please follow/share widely as these things are ++work and only worth it if we can get the word out. account is @DrSelkDownThere www.instagram.com/drselkdownth...
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Dr Amanda Selk @dramandaselk.bsky.social · 09/07/2025
Myth: special preparation is required for obgyn appointments #health #women #gynecology #birth #pregnancy. Follow my new instagram @drselkdownthere
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 08/07/2025
Share your experience Survey 🔗 forms.office.com/pages/respon...
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 08/07/2025
Share your experience Survey 🔗 forms.office.com/pages/respon...
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 05/07/2025
Happy 77th birthday NHS 💙
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 24/06/2025
Just had my check up and CT and MRI results and pleased to say I’m in remission still 🎉🥳🎉🎉🥳🎉
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 24/06/2025
Great day yesterday at the #RCOG2025 World Congress promoting our LS guide at the BSSVD stand
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 04/06/2025
www.ladygardenfoundation.com/our-communit...
ladygardenfoundation.com
CLARE’S STORY — Lady Garden Foundation
After 38 years of persistent, unexplained vulval symptoms and countless misdiagnoses, the last thing Clare expected was a double diagnosis. But when a long-standing tear turned into an ulcer, Clare we...
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Reposted by Vulval Cancer UK
Vulval Cancer UK @vulvalcanceruk.bsky.social · 31/05/2025
National Cancer Survivors Day 2025 We stand together 💜
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 31/05/2025
National Cancer Survivors Day 2025 We stand together 💜
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Vulval Cancer UK @vulvalcanceruk.bsky.social · 08/05/2025
The Lichen Sclerosus guide lichensclerosusguide.org.uk Check out all the resources we have . Our resources page includes a poster , printable booklet , downloadable symptoms check list and treatment plan, plus 4 videos. 🔗 lichensclerosusguide.org.uk/resources/
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