iiinova — where your digital self keeps evolving

Reposted by Wade McCall

emily fraser 🌿🐌✨ @emilyesfraser.bsky.social · 26/09/2026

I’m only seeing people with ME or Long Covid sharing this. If you’re not affected, can you please read it & share? Ableist propaganda goes viral all the time, which encourages outlets to publish more of it. Can we please make the truth go viral instead?

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Reposted by Wade McCall

George Monbiot @georgemonbiot.bsky.social · 24/09/2026

Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...

theguardian.com

Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot

Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot

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Wade McCall @theodorebeef.bsky.social · 09/02/2026

I still cant believe a single covid infection has destroyed my life like this. I will always push for better awareness because i didnt know this was possible. But people seem willfully ignorant, even those in my life who see what happened to me. #LongCOVID #MECFS

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Wade McCall @theodorebeef.bsky.social · 06/02/2026

A personal project I've been working on since I've been stuck in bed. This image was generated with a ray tracer I've been writing.

Computer-generated test scene featuring several spheres with different surface materials, a tiled green floor, and a softly lit abstract background.

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Wade McCall @theodorebeef.bsky.social · 02/02/2026

In the past year, i have walked 118,000 steps. And i know about half of those were phantom steps my watch counted. Thats about the amount i would walk in 2 weeks before i got sick... still grateful to be able to get up occasionally. #MECFS #longcovid This is about 300 steps/day average.

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Wade McCall @theodorebeef.bsky.social · 02/01/2026

I miss my life. The holidays with #MEcfs were brutal... Here's to the new year bringing better understanding and hopefully treatments

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Wade McCall @theodorebeef.bsky.social · 26/11/2025

The term ‘health insurance’ in the US is a sick joke. I had a good job and good coverage when I got long covid. I became too sick to work and lost both my income and my insurance. Literally the exact scenario I thought I was insured against.

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Wade McCall @theodorebeef.bsky.social · 10/11/2025

I think, unfortunately, this is what keeps me coming back to Twitter. The rampant ignorance and science denial. Somehow it is addictive. This person questions how we can know the covid vaccine reduces disease severity. As if the scientific papers don't explain their methods in excruciating detail.

A Twitter thread discussing long COVID and vaccination. The first user, username Biology, says, “Stop calling a bedbound person lucky, you weirdo.” Another replies, “It could have been worse if he had had the injection.” Biology responds that vaccination lowers the risk of severe illness and long COVID, adding that no one can know for sure. The final reply mocks Biology, saying it’s impossible to know if someone would have been more or less sick and calls them a moron.

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Wade McCall @theodorebeef.bsky.social · 10/11/2025

I cannot stand Twitter but it seems like Im always sucked back there instead of here. Not sure why that is, I generally prefer the people and self feed moderation I can do on this app

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Wade McCall @theodorebeef.bsky.social · 06/11/2025

My one wild and precious life and Im losing it to #LongCovid Tell me, what is it you plan to do with your one wild and precious life? If health ever returns to me, i will spend mine thankful for every day, helping those still in need. So many of us still trapped. #pwME #MEcfs

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Wade McCall @theodorebeef.bsky.social · 03/11/2025

Its silly of me but i get jealous of other people in the #longCOVID and #MEcfs community who still have a loving partner. The crisis my illness created was too much for my relationship to handle, apparently. I still miss them all the time. I also miss the closeness and the warmth of loving someone.

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Wade McCall @theodorebeef.bsky.social · 03/11/2025

MFs trying to explain that the pandemic is "over" #longCOVID

Cartoon image of a man standing behind a podium, arm extended pointing forward, with a speech bubble that reads "If P is false, I will be sad.

I do not wish to be sad.

Therefore, P is true."

Below the image in a margin text reads "There. Now you can skip 99% of philisophical debates."

Image credit to SMBC

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Reposted by Wade McCall

Conor Browne @brownecfm.bsky.social · 28/10/2025

I try to be professional on this platform but there are times, like now, when it hits me hard on a visceral level that we are in the midst of a catastrophic global public health crisis and it seems, as a species, we've somehow decided that ignoring it is the best plan we've got.

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Wade McCall @theodorebeef.bsky.social · 25/10/2025

Im living a ghost of a life just waiting for improvement or an effective treatment to be discovered. I live the same day every day in bed, unable to even entertain myself how i wish. I desire independence. I desire health. Not sure how much longer i can do this #LongCovid #mecfs

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Wade McCall @theodorebeef.bsky.social · 27/03/2025

#longCovid #mecfs credit to thesaltpacket on reddit /instagram

Bell pepper in the fetal position surrounded by the following text: "Me watching all the long covid funding get pulled, committees canceled that have taken decades of activism to create, the ending of 45 studies that were close to being finished, big pharma declining the use of their drugs in mecfs trials, knowing there's nothing I could possibly do to help this & knowing i don't have the strength to advocate again"

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Reposted by Wade McCall

Kristin Houlihan, Writer @kristinwrites.bsky.social · 24/01/2025

Two months out from me being in my bed for THREE YEARS.

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Reposted by Wade McCall

C.H. Romatowski @romatowski.bsky.social · 18/01/2025

It’s wild this isn’t front page news. If NIH had a study where 1 in 22 people who’d had Covid then had a stroke, it’d be a five-alarm fire. But the average health-related quality of life for ME/CFS is worse than stroke—or literally any other condition it’s ever been compared to.

Chart of Health-Related Quality of Life

Mean of EQ-5D 3L scores

Population - 0.85

Then the following diseases range from 0.79 to 0.62 in descending order:

Prostate cancer
Sleep apnea
Breast cancer
Inguinal hernia
Heart AMI
Abdominal hernia
Diabetes I
Colon cancer
Heart angina
Heart IS
Diabetes II
Stroke
Lung cancer
Rheumatoid arthritis
Chronic renal failure
Sclerosis
Schizophrenia
COPD
Bleeding ulcer
Depression

ME/CFS is 0.47

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Wade McCall @theodorebeef.bsky.social · 13/01/2025

My doctor suggested i go for walks every day (Ive been bedbound for months now), whats the worst that could happen? If i get PEM its not like ill die. #pwME #longcovid #mecfs

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Reposted by Wade McCall

Riemerville @riemerville.bsky.social · 13/01/2025

The reality is even darker: top scientists have been shouting from the rooftops, publishing countless studies on the dangerous nature of Covid / Long Covid and yet, society turns its back, ignoring the warnings.

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Wade McCall @theodorebeef.bsky.social · 13/01/2025

Had an mri a couple of days ago. Had a serious reaction to the contrast (which i know is rare). Currently crashing from the effort of it all. Because I tried to get healthcare... #longcovid is so fair

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Reposted by Wade McCall

Clean Air Club @cleanairclub.bsky.social · 02/01/2025

Attention abled people: it's time to step up and support our loved ones and comrades who have Long Covid and ME/CFS!! There are over 400 million people living with Long Covid today, and many millions more living with ME/CFS. Pick one or two from this list and make it happen!

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Reposted by Wade McCall

Ror Preston @rorpreston.bsky.social · 28/12/2024

I think this chart really captures the extent to which we need to bend the curve upwards on IACC funding 📈 I call the gap between MS (an underfunded disease) and HIV/AIDS (a highly funded disease) the 'cone of attention' that ME/CFS, Long Covid etc need to push into. crunchme.org 🔗

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Reposted by Wade McCall

Dragonflies & Dreams (aka Nathalie) @dragonflydreams-za.bsky.social · 21/12/2024

Millions of men, women and children all over the world are desperate for a treatment or cure for a disease that has robbed them of their lives. Please support the work of the Open Medicine Foundation (www.omf.ngo) as they search for the cause and a cure. #MyalgicEncephalomyelitis #mecfs

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Wade McCall @theodorebeef.bsky.social · 12/12/2024

Finally, I feel like im pulling out of this months-long crash. Mixed feelings about that. Worried ive permanently ruined my baseline. But i can play video games again so im happy

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Reposted by Wade McCall

Danielle Beckman @daniellebeckman.bsky.social · 23/11/2024

“We’ll have herd immunity [to covid] by April 2021” — Marty Makary, Trump’s pick for FDA Commissioner

Cartoon showing what Herd Immunity, not yet achieved in November of 2024, would look like for COVID-19. A bunch of cows laying dead on the ground, while the only two survivors exchange a message: Yes! Herd immunity achieved!

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Reposted by Wade McCall

PZ @itsmepz.bsky.social · 23/11/2024

If the CDC did their job in the 80s and actually investigated the outbreaks of "CFS", maybe there would have been warnings of the potential consequences of post acute sequelae. And maybe we'd have treatments too... #GreatestMEdicalScandal #pwME youtu.be/AW0x9_Q8qbo?... #MEcfs #MyalgicE

youtu.be

CFS and the CDC's Failure to Respond: Primetime Live (1996)

YouTube video by Laurel B

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Wade McCall @theodorebeef.bsky.social · 20/11/2024

The experimental "show replies in a threaded view" option on this app is great, but i wish we could collapse a reply thread so i can see the next without tons of scrolling.

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Wade McCall @theodorebeef.bsky.social · 11/11/2024

I love that all the swifties are here. I really do. But i think you guys came in such large numbers that Im getting swiftie content now, and idk what to think about that

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Wade McCall @theodorebeef.bsky.social · 22/10/2024

I dont usually post on social media, but... I think I have long covid. I've been stuck in bed for 3 weeks now... Anyway, running out of things to do that dont take too much energy. Any ideas? #longcovid #mecfs

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