iiinova — where your digital self keeps evolving

Reposted by Steven Shorrock

George Monbiot @georgemonbiot.bsky.social · 02/10/2026

@davetuller1.bsky.social, a great champion of patients, interviewed me about the massive, ongoing scandal of the neglect, abuse and mistreatment of people with ME/CFS www.youtube.com/watch?v=Maae...

youtube.com

Interview with George Monbiot about Guardian column on ME/CFS

YouTube video by David M Tuller

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Lucibee @lucibee.bsky.social · 24/09/2026

If folks need an impression of how dismal things are wrt treatment of ME and LC in the NHS, you just need to look at the services stocktake that was done in January 2025. There was "no data" for ME/CFS clinic referrals.

Annex 1 - Data Dashboard - Long Covid ME/CFS Stock take December 2024.

Highlighted box shows that there is NO DATA for total referrals to ME/CFS clinics for the period examined in the stocktake.

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George Monbiot @georgemonbiot.bsky.social · 24/09/2026

Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...

theguardian.com

Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot

Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot

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Steven Shorrock @stevenshorrock.bsky.social · 23/09/2026

Three weeks into remission from Long Covid ME/CFS (like almost all symptoms gone, inc PEM), and I get Covid again, after a 2 week cold. Still early days, no LC-ME symptoms; seems the whole system of symptoms and underlying biology shifts. Hoping remission continues after the acute infection.

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James Crowley @jamescrowley.org · 23/09/2026

The fatigue clinic run by University of NSW in Sydney continues to push GET-focused programs. Their website notes "some controversy surrounds the use of these treatments amongst the *public*" (emphasis mine). Talk about gaslighting. www.unsw.edu.au/precincts/rh...

unsw.edu.au

What is the UNSW Fatigue Clinic Program?

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Reposted by Steven Shorrock

Tessa Munt MP 🔶 @tessamunt.bsky.social · 15/08/2026

Congrats to James Frith MP, newly appointed as the Minister for Health Innovation, with responsibility for ME. I’ve written to him on ME emphasising that given the numbers, and the length and extent of suffering, ME represents a significant burden at personal level, to society and to our economy.

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Steven Shorrock @stevenshorrock.bsky.social · 12/08/2026

The Reality of Invisible Burden: Cailleach and Brân the Blessed This is the third of seven realities in this series on living with chronic conditions and dynamic disability, explored through language, concepts and images from Celtic folklore. humanisticsystems.com/2026/08/12/t...

The Cailleach, the ancient hag or old woman of Gaelic tradition, associated especially in Scottish folklore with winter, wild landscapes, deer, and the shaping of mountains and lochs.
Image: “Beira, Queen of Winter”, John Duncan, from Wonder Tales from Scottish Myth and Legend, Donald Alexander Mackenzie, 1917.

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Steven Shorrock @stevenshorrock.bsky.social · 11/08/2026

Free Long Covid / ME/CFS Trackers Simple daily Excel diaries to help identify long term patterns (activity, exertion, functional capacity, recovery, PEM) on phone/PC. ⌚Garmin - wp.me/a3KgVs-3WS ⌚Apple Watch - wp.me/a3KgVs-3WR 📱Generic - wp.me/a3KgVs-3WQ

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Steven Shorrock @stevenshorrock.bsky.social · 27/06/2026

Last 3 hours before the 66 mile, 24 hour run starts. £117 to go to reach our goal of £5000 for ME Research UK, a Scottish charity that funds high quality biomedical research into myalgic encephalomylitis 💙 www.justgiving.com/page/gary-sh...

justgiving.com

Gary Shorrock’s Bob Graham Round for ME/CFS: 66 Miles for Research and Hope

Help Steven Shorrock raise money to support ME Research UK

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Steven Shorrock @stevenshorrock.bsky.social · 26/06/2026

We’ve just passed £4600 for ME Research UK. My brother is running 66 miles in 24 hours, climbing 27,000 feet. If you can spare the price of a coffee, we and people with ME would appreciate the support for biomedical research. Thank you 💙 www.justgiving.com/page/gary-sh...

justgiving.com

Gary Shorrock’s Bob Graham Round for ME/CFS: 66 Miles for Research and Hope

Help Steven Shorrock raise money to support ME Research UK

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Reposted by Steven Shorrock

Steven Shorrock @stevenshorrock.bsky.social · 04/06/2026

The Reality of Calculating Exposure and Energy: Geasa and Tynged This is the second of seven realities in this series on living with chronic conditions and dynamic disability, explored through language, concepts and images from Celtic folklore. humanisticsystems.com/2026/06/03/t...

humanisticsystems.com

The Reality of Calculating Exposure and Energy: Geasa and Tynged

This is the second of seven realities in this series on living with chronic conditions and dynamic disability, explored through language, concepts and images from Celtic folklore.Many chr…

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Reposted by Steven Shorrock

Josh Gondelman @joshgondelman.bsky.social · 03/06/2026

My crankiest old man take is that referring to all art/entertainment/journalism/criticism/comedy/advertising as “content” helped pave the way for broad-ish acceptance of AI slop.

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Steven Shorrock @stevenshorrock.bsky.social · 04/06/2026

humanisticsystems.com

The Reality of Calculating Exposure and Energy: Geasa and Tynged

This is the second of seven realities in this series on living with chronic conditions and dynamic disability, explored through language, concepts and images from Celtic folklore.Many chr…

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Reposted by Steven Shorrock

Otto English @ottoenglish.bsky.social · 31/05/2026

About a decade ago I spent a merry 24 hours trying to work out what Farage’s cultural interests were. It was fascinating because it turned out he had none. Literally none. Someone who knows him very well later confirmed to me that he was completely uninterested in music "apart from military bands"

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Steven Shorrock @stevenshorrock.bsky.social · 31/05/2026

The reality of fluctuation and unpredictability: Aos Sí and Awen The 1st of 7 realities in a series on living with chronic conditions and dynamic disability, explored through Celtic folklore. humanisticsystems.com/2026/05/31/t... With a nod to @blindboyboatclub.bsky.social

humanisticsystems.com

The reality of fluctuation and unpredictability: Aos Sí and Awen

This is the first of seven realities in this series on living with chronic conditions and dynamic disability, explored through language, concepts and images from Celtic folklore. With chronic condi…

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Steven Shorrock @stevenshorrock.bsky.social · 27/04/2026

My brother is taking on one of Britain’s most demanding endurance challenges for @meresearchuk.bsky.social ME/CFS can leave people unable to work, study, socialise, or manage ordinary daily activities. ME Research UK commissions and funds high-quality biomedical research into ME/CFS. Thank you🙏🏻

Photo of a runner in the top right and a woman in bed in the dark in bottom left. With fundraising text.

My brother Gary Shorrock is taking on one of Britain’s most demanding endurance challenges for @MEResearchUK : the Bob Graham Round in the Lake District

To complete it, he must cover around 66 miles, summit 42 fells, and climb more than 8,200 metres (approximately 26,900 feet of ascent) all within 24 hours.

Gary has previously undertaken major endurance events and fundraising challenges, raising over £20,000 for an Alder Hey children’s hospital. This time, he is taking on the Bob Graham Round to raise money for a devastating yet underfunded condition.

ME/CFS (myalgic encephalomyelitis/ chronic fatigue syndrome) is a serious, disabling, life-altering illness. It can leave people unable to work, study, socialise, or manage ordinary daily activities. In severe and very severe cases, it confines people to their beds.

Research has shown that quality of life for people with ME/CFS can be among the worst reported for any medical condition.

Scientific research is increasingly identifying objective biological abnormalities in ME/CFS, including in blood, immune and metabolic function. Yet despite its severity, the illness has remained profoundly underfunded for decades.

The funds raised through this challenge will go to ME Research UK, a charity that commissions and funds high-quality biomedical research into the causes, consequences, and treatment of ME/CFS.

The work of @MEResearchUK reflects the urgent need for better scientific understanding of a disease that affects hundreds of thousands of people in the UK and leaves many housebound or bedbound, with their lives on hold.

Support for this fundraiser will help contribute to urgently needed research into a devastating and neglected illness.

Any donation would be greatly appreciated, and sharing the page would also make a big difference.

https://www.justgiving.com/page/gary-shorrock

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Reposted by Steven Shorrock

valebodi.bsky.social @valebodi.bsky.social · 24/05/2026

#ME/CFS is the neuro-immuno-metabolic illness that takes away your whole body’s ability to function and live. And the more you push through your energy envelope, the more it takes away and disables you. It is also still the most misunderstood, mischaracterized, neglected and underfunded disease.

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Reposted by Steven Shorrock

kittywhisperer.bsky.social @kittywhisperer.bsky.social · 23/05/2026

Seems ludicrous now a couple of years ago I’d not realised the reason why overdoing things on the day after I appeared to have gotten away with overdoing it the day before; wasn’t just doubling the impact of the delayed PEM but creating a situation of rolling PEM 🤦🏻‍♀️

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Nelson @nappell.bsky.social · 23/05/2026

“The fatigue of ME/CFS is so unlike the ordinary use of the term, that it feels like far too small a word.” Yes! Excellent post. I have mild #longcovid. I can work and live a paced life. Many others cannot. It is cruel. Quality of life plummets. Your life changes. You adapt. You have no choice.

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Steven Shorrock @stevenshorrock.bsky.social · 27/04/2026

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Steven Shorrock @stevenshorrock.bsky.social · 09/04/2026

A short film about living with chronic conditions and dynamic disability. About devastation and grief. About unpredictability and risk. About music and art and people and passion and hope. Thanks @wearejames.bsky.social for the music to end the day www.threads.com/@stevenshorr...

threads.com

Steven Shorrock (@stevenshorrock) on Threads

A short film about living with chronic conditions and dynamic disability. About devastation and grief. About unpredictability and risk. About music and art and people and passion and hope.

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Steven Shorrock @stevenshorrock.bsky.social · 06/04/2026

I've listed tickets for James at Glasgow OVO Hydro on 8 April (standing). The fair fan to fan marketplace seetickets.com/rd/event/james… via @seetickets #SeeFan2Fan

seetickets.com

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Steven Shorrock @stevenshorrock.bsky.social · 15/03/2026

“Rather than medicalising normal autistic experience, an autism diagnosis can provide an explanatory and legitimising framework for autistic people and for parents, teachers, and others”

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Reposted by Steven Shorrock

Steven Shorrock @stevenshorrock.bsky.social · 13/03/2026

Uta Frith is right to call for rigour in autism research and diagnosis. But some of her recent public claims about the spectrum, later diagnosis, and masking risk overlooking current evidence and autistic people's lived realities. My response: humanisticsystems.com/2026/03/13/r... #Autism

humanisticsystems.com

Reflections on the Autistic Spectrum: A Critical Response to Uta Frith’s Views

Professor Uta Frith’s recent TES interview has prompted intense debate about autism, diagnosis, and the meaning of the spectrum. This response considers some of her central claims in light of curre…

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Steven Shorrock @stevenshorrock.bsky.social · 13/03/2026

humanisticsystems.com

Reflections on the Autistic Spectrum: A Critical Response to Uta Frith’s Views

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Chanda Prescod-Weinstein 🌌 @chanda.blacksky.app · 07/03/2026

The catastrophic impact to local health where the air is poisoned, as well as to our global ecosystem as they literally set the planet on fire and fill the atmosphere with pollutants

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Steven Shorrock @stevenshorrock.bsky.social · 07/03/2026

My hunch is that non-autistic people do not spend months/years reading books about autism, following accounts of autistic people, paying for assessments, or feel the need for a formal process. And if you pass the test…you have a label that non-autistic people would not want.

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Steven Shorrock @stevenshorrock.bsky.social · 07/03/2026

The school system we have is designed to produce professors, not the vast majority of life paths that people go on to take and the skills they need. Little about the planned secondary school experience, in particular, prepares children for what they are about to encounter on leaving education.

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Steven Shorrock @stevenshorrock.bsky.social · 06/03/2026

Frith has joined Peterson and Mate on the end career hot take podium. #autism

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Steven Shorrock @stevenshorrock.bsky.social · 06/03/2026

So, they’re going after autistic people. Next it’ll be people with ME/CFS. Wait…they already did those.

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Adam @abrokenbattery.bsky.social · 04/03/2026

Dr @binitakane.bsky.social explains how a theory that #MECFS is caused by deconditioning and a fear of exercise permeated medicine and framed the illness as psychological. This led to the patients being neglected, gaslit, and some would say abused. Causing huge trauma for the community.

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Steven Shorrock @stevenshorrock.bsky.social · 18/11/2025

16y/o: I think it’s classist that my journalism course isn’t counted as a Scottish Higher, nor the course on creative thinking.

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Ergonomics @ergonomics1957.bsky.social · 07/07/2025

Putting EHF into practice: five (more) challenges www.tandfonline.com/doi/full/10....

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Steven Shorrock @stevenshorrock.bsky.social · 23/06/2025

Understanding culture and conversation in organisations with Prof Tom Reader and Prof Elizabeth Stokoe A EUROCONTROL ‘double bill’ webinar on Tuesday, 24 June 2025 - 13:30 to 15:30 (CEST; Brussels time) 🔗 Register here (free): lnkd.in/e2zc3jFt

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Steven Shorrock @stevenshorrock.bsky.social · 03/05/2025

A very strong start to 2025 on the British and Irish alternative music scene open.spotify.com/playlist/6DD...

open.spotify.com

British and Irish Alternative 2025

Playlist · Steven Shorrock · 89 items · 4 saves

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Steven Shorrock @stevenshorrock.bsky.social · 15/04/2025

Starbucks’s UK retail business paid no corporation tax last year “after paying £40m in royalty and licence fees to its parent company.” www.theguardian.com/business/202... Support local coffee shops

theguardian.com

Starbucks’s UK retail business paid no corporation tax last year

US-owned coffee chain dived to £35m loss after paying £40m in royalty and license fees to parent company

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Steven Shorrock @stevenshorrock.bsky.social · 14/04/2025

High levels of toxic chemicals found in paper receipts used by US retailers Holding the receipts for 10 seconds absorbs enough bisphenol S to break California’s safety rule “People can protect themselves by not taking a receipt or asking for an email receipt” 😳 apple.news/ACuZPYCF3Tn-...

apple.news

High levels of toxic chemicals found in paper receipts used by US retailers — The Guardian

Holding the receipts for 10 seconds absorbs enough bisphenol S to break California’s safety rule, research finds

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Steven Shorrock @stevenshorrock.bsky.social · 05/04/2025

Quaker Parents Were Ahead of Their Time - The Atlantic www.theatlantic.com/family/archi...

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Nicole Filippone, Autistic Advocate & Author @nicolefilippone.bsky.social · 05/04/2025

As an autistic (level 1) person... I feel like my autism is only about 10% observable (and due to YEARS of masking, you'd have to be looking VERY closely to see it) and 90% internal, which impacts every aspect of how I exist. And I feel like more people should know this.

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(((Tendar))) @tendar.bsky.social · 22/03/2025

There is virtually no better commercial you can run for the European defense industry than these two sentences uttered by Trump. No matter with whom I’m talking about this on this side of the pond, the common understanding is that this is going to severely damage the US industry.

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Orpheus Condescending @maryscottoconnor.com · 22/03/2025

I mean... holy shit.

From Rasmus Jarlow, Danish politician: "I don't know if there is a kill switch in the F35's or not. We obviously can not take your word for it.

As one of the decision makers behind Denmark's purchase of F35's, I regret it.

The USA can certainly disable the planes by simple stopping the supply of spare parts. They want to strengthen Russia and weaken Europa and are showing that they are willing to do tremendous damage to peaceful and loyal allies like Canada just because they insist on existing as a country.

I can easily imagine a situation where the USA will demand Greenland from Denmark and will threaten to deactivate our weapons and let Russia attack us when we refuse (which we will even in that situation).

Therefore, buying American weapons is a security risk that we can not run. We will make enormous investments in air defence, fighter jets, artillery and other weapons in the coming years, and we must avoid American weapons if at all possible.

I encourage our allies and friends to do the same."

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Steven Shorrock @stevenshorrock.bsky.social · 22/03/2025

German man with green card ‘violently interrogated’ by US border officials - The Guardian apple.news/AVVKtq6wTSt-... It was bad enough before. Not sure I’ll ever enter US again.

apple.news

German man with green card ‘violently interrogated’ by US border officials — The Guardian

Berlin checking if US immigration policy has changed after Fabian Schmidt becomes third German to be detained

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Paris Marx @parismarx.com · 18/03/2025

Columbia Journalism Review tested eight generative AI search tools and found their answers were wrong 60% of the time, and the paid ones actually fared worse than the free ones. Meanwhile, millions of people trust the way they present total bullshit with confident language.

arstechnica.com

AI search engines cite incorrect sources at an alarming 60% rate, study says

CJR study shows AI search services misinform users and ignore publisher exclusion requests.

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