iiinova — where your digital self keeps evolving

Stephanie Ko @sinistralscribe.bsky.social · 09/09/2026

Heads up, Vancouverites - you can now register to vote by mail in the @cityofvancouver.bsky.social election! The signup deadline is Oct 5 at 12pm if you want the voting package mailed to you (as opposed to picking it up at the Election Office). Learn more & sign up: vancouver.ca/your-governm...

vancouver.ca

Apply to vote by mail

All eligible voters may request to vote by mail.

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Stephanie Ko @sinistralscribe.bsky.social · 21/08/2026

If you’ve ever benefited from the great work of @donatemask.bsky.social - or if you want to ensure access to N95s for folks in need - donations are DOUBLED right now. $10 becomes $20 (& ships enough masks to protect a household); $50 becomes $100 (shipping thousands of masks to protect a community)!

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Opera Mariposa @operamariposa.bsky.social · 12/08/2026

Heads up, chronically ill theatre artists & arts workers in Canada! A new research project is asking about challenges & experiences in the theatre sector - and what access measures would help make the industry more accessible. Learn more & take the survey by Aug 31: nightswimming.ca/research/col...

Gradient green and teal graphic with white text reading, Survey of Chronically Ill Theatre Artists in Canada. In the corners are logos for Pure Research and nightswimming.

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 08/08/2024

Today, Aug 8, is #SevereMEDay. Today we discuss severe-presenting #MECFS and remember people with severe ME. #MECFS is an infection-associated chronic illness, which means it is often, but not always, kicked off by an infection. ~Half of #LongCOVID cases at 6 mo meet the dx criteria for ME/CFS. 🧵

Two diagrams from the Mayo Clinic Proceedings article I co-authored. On the left, a diagram of a woman's body, including symptoms of fatigue, muscle aches, PEM, cognitive dysfunction, unrefreshing sleep, orthostatic intolerance, temp. dysregulation, urinary frequency, myalgia, sensory sensitivity/reactivity, swollen lymph nodes & other flu-like symptoms, shortness of breath, palpitations/chest pain, appetite changes and diarrhea/constipation. On the right, a wheel diagram of symptoms that may flare in post-exertional malaise, the pathology that occurs w/overexertion in which many symptoms flare and new symptoms may appear. It notes that PEM is not deconditioning, not being more tired than usual after activity, not second-day muscle soreness and symptoms are not necessarily relieved by sleep. It includes all the symptoms mentioned in the first diagram but has some sections on what it's like in the patient's own words.

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Opera Mariposa @operamariposa.bsky.social · 24/07/2026

Congrats to Mariposa Benefit + Awareness artist @liapas.bsky.social, who is starring in a new dance film featuring artists with #MECFS, #LongCovid, and other disabilities! Register for the free online premiere, coming July 29: www.eventbrite.com/e/unbound-gl...

eventbrite.com

Unbound: Global Premiere & Live Q&A

Join us online for the global premiere of Unbound followed by a live Q&A with the creators!

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Stephanie Ko @sinistralscribe.bsky.social · 20/05/2026

Funding opportunity ahoy for emerging BC-based BIPOC creatives from the disability+ community! Apply for one of five $1500 micro-grants to explore media art; no formal training or prior exhibition experience is needed. Learn more and apply by June 22, 2026: cinevolutionmedia.com/micro-grant/

cinevolutionmedia.com

Media Art Micro Grants – Cinevolution Media Arts Society

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Stephanie Ko @sinistralscribe.bsky.social · 13/05/2026

Today’s the International Awareness Day for #MECFS, #fibromyalgia, and other chronic neuro-immune diseases. After so many years, I’m not sure what else I can say to mark the occasion – so instead, I’m going to offer five things that allies can do to make a difference…

Stephanie sits in front of a white wall lit up with turquoise light, with green plant foliage out of focus behind her and blue hyacinths in front. She wears blue-rimmed glasses and an ocean blue top, and holds up a Go Blue For ME/CFS sign that reads, “I’m going blue for International ME/CFS Awareness Day because… the number of people with ME/CFS is growing day by day.” At the bottom of the sign is an illustrated blue ribbon surrounded by forget-me-not flowers, and the hashtags #GoBlueForMECFS and #GoBlueForACure.

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Opera Mariposa @operamariposa.bsky.social · 12/05/2026

Today is May 12th, the International Awareness Day for #MyalgicEncephalomyelitis (ME or #MECFS), #Fibromyalgia (FM), and other chronic neuro-immune diseases. 💙💜

A close-up, cropped photo of two white hands gently holding a blue and purple awareness ribbon from opposite ends. The person is wearing a cream-coloured sweater, and only their torso is visible. At the bottom of the image, two logos are placed: one for Opera Mariposa, which includes a red butterfly; and one for the ME | FM Society of BC, which includes a blue, purple, and teal butterfly.

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Opera Mariposa @operamariposa.bsky.social · 01/05/2026

It’s finally May! 🌷 Our 2026 Benefit + Awareness Month is now LIVE, honouring the International Awareness Month for #MyalgicEncephalomyelitis and #Fibromyalgia (ME & FM). Join us at Benefit.OperaMariposa.com in support of the #ChronicIllness community and @mefmsocietyofbc.bsky.social:

Graphic with a purple and blue butterfly resting on a purple flower, amidst a misty blue background and green field. Purple text reads, 'Opera Mariposa's Benefit + Awareness Month for the ME | FM Society of BC, May 1 - June 1, 2026.' A purple moon-shaped medallion features additional text: 'Triple your donation. Art, prizes, online tea party for ME/CFS, Long Covid, fibromyalgia. Donations tripled in support of the chronic illness community.' At the bottom of the graphic, a teal bar features the URL Benefit.OperaMariposa.com and icon images showing online access, English closed captioning, self-paced activities, with participation by donation and free. Tiny text adds, Support up to $3,000 will be triple-matched!

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Stephanie Ko @sinistralscribe.bsky.social · 23/04/2026

I just booked my family's spring COVID vaccinations by calling the BC vaccine line at 1-833-838-2323. It seems like anyone can call - I didn't have to prove high-risk health status or anything like that. Phones are staffed Mon-Fri, 8 am-6 pm; translators are available. #Covid19BC #GetVaccinated

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Stephanie Ko @sinistralscribe.bsky.social · 13/04/2026

Heads up: for a limited time, North Delta-based artist Enkay is offering FREE 3D-printed accessibility devices to folks in the Lower Mainland: docs.google.com/forms/d/e/1F... There’s everything from pencil & utensil holders, to blister pack & bottle openers, to a Braille slate & stylus, & much more!

docs.google.com

3-D Printed Accessibility Devices Request Form

Hello, These devices are available for free for a limited time via the generous funding of the Neil Squire Society. My name is Enkay, and I will be in contact with you via email or via Cole when devic...

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Stephanie Ko @sinistralscribe.bsky.social · 06/03/2026

Opera, sword-fighting, celebrating a queer history icon, and accessible digital & in-person attendance options: what more could you ask for? I already have my ticket to the digital premiere of OperaQ’s #LaMaupinFilm. Learn more & get your own pay-what-you-can tickets at www.operaqto.com/la-maupin

operaqto.com

La Maupin: A Musical Film | Experience Her Story — Get Your Tickets Now! — OperaQ

Discover the life and legacy of Julie d'Aubigny in this musical film. Explore her scandalous stories and historical context through a team of queer and non-binary artists. Ideal for opera and history ...

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Stephanie Ko @sinistralscribe.bsky.social · 03/03/2026

Do you have thoughts about safety in BC's arts & entertainment sector (motion picture, performing arts, live events)? Weigh in via Actsafe’s 15 min survey til March 8, 2026: www.surveymonkey.com/r/72DZFGL Many questions optional, anonymous (or leave an email to enter to win $100 gift cards).

surveymonkey.com

2026 Actsafe Arts & Entertainment Safety & Training Survey

Take this survey powered by surveymonkey.com. Create your own surveys for free.

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Stephanie Ko @sinistralscribe.bsky.social · 29/01/2026

Funding opportunity ahoy! Creative BC's Business Foundations program is offering up to $10k for music businesses run by systemically-excluded groups (including BIPOC, 2SLGBTQIA+, Deaf and Disability+ community members). The application deadline is March 25th at 4pm: creativebc.com/funding-prog...

creativebc.com

Business Foundations - Creative BC

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Stephanie Ko @sinistralscribe.bsky.social · 13/01/2026

Signal-boosting from Masks 4 East Van on Insta: FREE bulk N95 masks to YVR community members & groups - RecoverAidMD has 5 pallets of 3M 1860 (standard size) to donate - Expiry Sept 2025 & some other later expiries - Time sensitive! Will go to landfill if not claimed by Fri Jan 23 - Not for resale

Lime green graphic promoting free N95 masks to community members and groups, with a photo of a pallet of boxes as well as a product photo of a real blue 3M 1860 respirator in front of a small box of respirators. Text echoes the wording in the Bluesky post

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Stephanie Ko @sinistralscribe.bsky.social · 19/12/2025

Vancouver Coastal Health (@vchhealthcare.bsky.social) is establishing an accessibility committee, and the application deadline is tomorrow (Dec 19). It involves 4 virtual meetings a year for 2 years; honoraria are available under some circumstances. Learn more & apply: engage.vch.ca/do-you-want-...

engage.vch.ca

Do you want to help make VCH more accessible?

Overhead shot of six disabled people of color at a rooftop deck party. An Indigenous Two-Spirit person with a prosthetic leg smiles directly at the camera and gives a thumbs up while everyone else is ...

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Stephanie Ko @sinistralscribe.bsky.social · 13/12/2025

Did you know? At @donatemask.bsky.social: - $20 ships enough masks to protect a household - $100 ships thousands of masks for a mask bloc (mutual aid group) to distribute locally - with donation-matching til Dec 14, just $10 or $50 is enough to make it happen! donatemask.ca/fundraiser

donatemask.ca

Double your donation during Donate A Mask's Giving Tuesday fundraiser!

This Giving Tuesday, every donation will be matched—so your kindness goes twice as far. Help us send masks to people who need them!

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Stephanie Ko @sinistralscribe.bsky.social · 09/12/2025

[CW: Loss] My grandfather (“Gung Gung”), Gum Chu Cheong, passed away on Nov 28 at the age of 95. Many of you knew him through his tireless volunteer work w/ @operamariposa.bsky.social (& his church, his strata council, the Chinese Cultural Centre, Chinese Garden Society, Dragon Boat Association…)

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Opera Mariposa @operamariposa.bsky.social · 03/12/2025

Happy International #DisabilityDay! Today we're celebrating the wonderful disabled creatives we've been blessed to work with at Opera Mariposa - and encourage you to check out our roundup of resources about accessibility in the performing arts at operamariposa.com/resources/! #IDPD

operamariposa.com

Resources

Discover some of our top resources for accessibility in opera and the performing arts - plus the new archival home of 'Opera and Disability'.

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Stephanie Ko @sinistralscribe.bsky.social · 11/11/2025

Heads up, Vancouverites - the City’s proposed 2026 budget includes major cuts to arts, community services, sustainability & more. 👉 Send email re: climate - stand.earth/vanbudgetcuts 👉 Email template re: arts - bit.ly/GVPTAcitybud... 👉 Send comment to City Council - vancouver.ca/your-governm...

climatestand.earth

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Stephanie Ko @sinistralscribe.bsky.social · 21/09/2025

Help needed for "e", a local organizer I know. After developing #LongCovid, e also lost housing & possessions when an oil refinery covered them w/ toxic fumes. They've finally secured new housing, but need help w/ rent & medical costs while long-term supports are pending. chuffed.org/project/supp...

graphic of clouds and sky, with a pink box containing the text, Support disabled QTPOC rebuilding after medical & housing crisis. chuffed.org/project/supportfore

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Stephanie Ko @sinistralscribe.bsky.social · 30/08/2025

Excited to be lending a hand with the #CleanAirFestival again this year 🩵🪁 First up: a FREE webinar and Q&A on Sept 7, featuring certified air filter specialist Bryan Louis & sustainability-focussed architect Ian Robertson. Register & get access deets: www.tickettailor.com/events/clean...

Graphic for a webinar on a light purple, pink, and yellow background. Fluffy blue clouds features Clean Air Festival title design in white, pink, and blue. There is a cloud behind the text and the letter R is wearing a mask. Main text reads “Ask a Clean Air Nerd: a Webinar and Q&A” taking place at Sunday, September 7 from 4 to 5:30 pm Pacific / 7 to 8:30 pm Eastern on Zoom. Closed captioning provided. Featuring Bryan Louis (Dr.sc., CAFS) and Ian Robertson (M.Arch). Free to attend. There is a banner at the bottom that reads: Learn more and register today at cleanairfestival.ca

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Stephanie Ko @sinistralscribe.bsky.social · 12/08/2025

Thank you so much to every single person & org who took part - by supporting, sharing, contributing your artistic talents, and putting in all the hard work to make this happen! 💖

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Stephanie Ko @sinistralscribe.bsky.social · 15/07/2025

Heads up that BC’s free COVID rapid test program is being cut off. More info: www2.gov.bc.ca/gov/content/.... Many pharmacies still have stock, so if you need tests (esp if you don’t have means to purchase them), nab some ASAP! List of participating pharmacies: www.bcpharmacy.ca/pharmacy-ser...

bcpharmacy.ca

COVID-19 Rapid Test Kits in Pharmacies | BC Pharmacy Association

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Stephanie Ko @sinistralscribe.bsky.social · 24/06/2025

Last week to take the first national survey about disabled experiences in Canadian film & TV! If you’re disabled (or have worked with disabled talent) in the industry, OR if you want to work in the sector but can’t due to barriers, this 10 min survey is for you: www.dso-orphe.ca/survey/

ngopalnordicity.com

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Stephanie Ko @sinistralscribe.bsky.social · 12/06/2025

Did you know? BC gov is now accepting written ideas from the public on what to include in the 2026 #BCBudget. Whether your priorities include health, housing, climate justice, arts funding, disability supports or more, you can have your say til June 20 at 2pm: consultation-portal.leg.bc.ca

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Stephanie Ko @sinistralscribe.bsky.social · 27/05/2025

Thank you so much to @skycameron.bsky.social for sharing your story as a singer with #LongCovid - just in time for National AccessAbility Week as well! #NAAW2025

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Stephanie Ko @sinistralscribe.bsky.social · 22/05/2025

So excited to finally be able to announce this project, and to have the opportunity to work alongside some incredible artists, researchers, and subject matter experts across Canada!

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Stephanie Ko @sinistralscribe.bsky.social · 18/05/2025

Today's the #BlueSunday2025, the “tea party for ME”! The idea behind this annual community tradition is simple: ☕ Sip some tea 🤳 Snap some photos for socials 💙 Support an #MECFS charity if you can by donating what you’d have paid at a café! I'm joining in to celebrate, alongside #pwME worldwide.

Closeup of nine buttercream-frosted chocolate cupcakes by Maya's Cupcake Bouquets. They're decorated to look like elaborate flowers, including a variety of blue roses and dainty clusters of purple blossoms. The cupcakes sit on a porcelain rose-pattern plate, on a blue tablecloth with a faint butterfly pattern. In the background can be glimpsed croissants, another cupcake plate and a teacup, all out of focus.

A closeup of Stephanie, seen past a screen of out-of-focus blue-purple hyacinth flowers. She is a disabled Chinese-Canadian woman with long dark hair, blue-rimmed glasses and a sea blue top, holding a porcelain teacup with a pink and silver rose pattern, glancing off to the side with a smile on her face. The background behind her is out of focus, with gleams of of light and green foliage glinting through a window.

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Stephanie Ko @sinistralscribe.bsky.social · 12/05/2025

Today’s #MECFS Awareness Day, and I have lots of thoughts but not enough energy to express all of them. Instead, here are pics from just some of the Awareness initiatives I’m taking part in - plus eight reasons why, year after year, I raise awareness for ME & other complex chronic illnesses...

Stephanie, a disabled Chinese-Canadian woman, lies in bed in a room lit up blue for ME/CFS Awareness. Her black hair is spread around her face in waves and she has glasses, a blue top, and a serious expression. She is holding a sign with hand-written text reading, “ME/CFS is: something anyone can get” for Open Medicine Foundation’s #MECFSis campaign.

Stephanie is shown from the waist up seated in front of a white wall and window blinds. She is wearing blue-framed glasses, a black N95-style mask, and a red tank top with a white slogan that reads, "Still Sick, Still Fighting" from ME Action’s #MillionsMissing campaign. Her hair is a bit wild like she just got out of bed, and she stares directly at the viewer, lit up with red-tinted light.

Stephanie is seated in front of a white wall lit up with turquoise light, a tracery of green plant foliage visible out of focus behind her. She’s wearing blue-rimmed glasses and an ocean blue top with three quarter length sleeves, and is holding up a Go Blue for ME/CFS sign in one hand that reads, “I’m going blue for International ME/CFS Awareness Day because… we need more research, evidence-based care, and adequate supports NOW!” At the bottom of the sign is an illustrated blue ribbon surrounded by forget-me-not flowers, and the hashtags #GoBlueForMECFS and #GoBlueForACure.

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Stephanie Ko @sinistralscribe.bsky.social · 11/05/2025

Just a few moments that stuck out to me from today's #MillionsMissing rally in Vancouver: Dr. Susan Kuo from @protectbc.bsky.social, describing how the burden of disease & disability for #LongCovid has surpassed cancer & heart disease, without any commensurate investment in research or care. 1/8

The livestream of Millions Missing Vancouver 2025 plays on a large monitor, with a dim red-lit room behind it. On the screen, a speaker with long rainbow hair, a black respirator, red top, crochet sweater and blue jeans is holding a microphone and reads a speech. Around the speaker is a red millions missing banner, a sun shade, another speaker waiting, a sign saying We Are #MillionsMissing, and in the background, an awning with long garlands of red posters.

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Stephanie Ko @sinistralscribe.bsky.social · 09/05/2025

Update: I’m going to speaking at this event by proxy! One of the #MillionsMissing BC organizers will be reading my speech. Catch the event via livestream tomorrow (like I plan to), or mask up & head to Vancouver’s Jack Poole plaza, to show up in person for those of us who can’t. #MECFS #pwME

Stephanie, a disabled Chinese-Canadian woman with wavy dark hair, is shown from the waist up seated in front of a white wall and window blinds. She is wearing blue-framed glasses, a black N95-equivalent mask (respirator), and a red tank top with a white slogan that reads. “Still Sick, Still Fighting". She stares directly at the viewer, lit up with red-tinted light.

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Stephanie Ko @sinistralscribe.bsky.social · 06/05/2025

Heads up, health justice allies! On May 10, #MillionsMissing BC is calling for improved #MECFS healthcare in BC. Don a mask & join in-person at Jack Poole Plaza at 1 pm, or submit a message online. Details/access info: www.facebook.com/share/1AkW1E... RSVP/send message: forms.gle/uWWfUx34VNNX...

Strung along a row of trees are many red Millions Missing posters, highlighting stories of people with ME/CFS who could not show up in person

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Stephanie Ko @sinistralscribe.bsky.social · 01/05/2025

If you haven’t heard from me for awhile, this is one reason why! I’ve been working on @operamariposa.bsky.social’s #BAMonth2025 for several months, & it’s finally live. I hope you’ll join us to support vital advocacy, education, research & community resources for #MECFS, #LongCovid & #fibro.

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Harsha Walia @harshawalia.bsky.social · 27/04/2025

Much love for Filipinx comrades and community impacted by horrific violence during Lapu-Lapu Day celebrations. For ppl seeking support such as meal train or counseling, you can access resources thru Filipinx-led mutual aid network coming together. Share widely: docs.google.com/forms/d/e/1F...

docs.google.com

Filipino Emergency Response - Request Form

If you need support, please enter your contact information below. Please note, that this is not an immediate service and one of our members will try our best to reach out to you as soon as we can. I...

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Opera Mariposa @operamariposa.bsky.social · 26/04/2025

The Disability Screen Office (DSO) has launched the first national survey to capture experiences of the disability community in film & TV. Open through June 2025. Input helps develop a Best Practices Guide to Disability Engagement in the Canadian Film & Television Industry! www.dso-orphe.ca/survey/

dso-orphe.ca

Survey – Disability Screen Office – DSO

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Stephanie Ko @sinistralscribe.bsky.social · 18/02/2025

My friend Katie has an upcoming surgery (on her birthday, of all days!), and needs community support during her recovery. It would mean the world to me if you’d check out her surgery+birthday wish list or consider sharing: bit.ly/Katie-surger... 💜 #fibro #EDS #endo #MCAS #IIH #HighRiskCovid19

Peach and purple graphic with a photo of Katie, a white woman with curly brown hair, glasses, and a purple top. Header text reads, help Katie recover from surgery. Verified by sinistralscribe.bsky.social. Body text reads, Katie is a longtime arts volunteer, community advocate, caregiver, and cat parent who has become increasingly disabled & immunocompromised with fibromyalgia, EDS, endometriosis, MCAS, and intracranial hypertension. She’s getting a long-awaited surgery this March (on her birthday!), and needs community support during her recovery. Check out Katie’s surgery + birthday wish list today, and please share! bit.ly/Katie-surgery-birthday-list

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