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Sarcoma sucks

@sarcomasucks.bsky.social
255 followers 498 following 39 posts

Interested in science and medicine. Loves nature, walking and the Scottish isles 🥰 2 times sarcoma survivor/thriver Supports #rhabdomyosarcoma and #leiomyosarcoma charities 🇬🇧 Pls visit new UK LMS charity for info: lmsruk.org

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Sarcoma sucks @sarcomasucks.bsky.social · 19/01/2026
Well done Gail for sharing your devastating story to raise funds and awareness for Leiomyosarcoma Research UK #leiomyosarcoma #lmsruk #sarcomaresearch www.mirror.co.uk/news/health/...
mirror.co.uk
'I thought it was just menopause - then doctors said I had months to live'
Brave mum Gail Redpath is undergoing palliative chemotherapy after doctors found a golf ball-sized growth in her womb - which was a very rare form of cancer
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RNIB @rnib.bsky.social · 12/09/2025
If you don't know what we're talking about, you need to book your next eye test.
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RNIB @rnib.bsky.social · 12/09/2025
Is it better with or without? 👓
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Gaza Freedom Flotilla Coalition @freedomflotilla.bsky.social · 26/07/2025
PRESSURE GOVERNMENTS! An Israeli Heron drone is actively circling the #Handala. We are currently at coordinates N 31.990316° E 32.802406°, 90 NM from Gaza and beyond the point where the #Madleen was illegally intercepted.
You can help safeguard the 'Handala' and its crew as they sail to Gaza - NOW. World governments have failed to uphold international law. They have failed Palestinians. They have let humanity down. Call them to account. We need people of the world to tag their foreign ministry accounts. Demand they offer protection and safe passage to their citizens aboard 'Handala' doing what Governments should be doing - delivering humanitarian aid and breaking Israel's illegal siege of Gaza.The British government has a responsibility to protect their citizen, Chloé Fiona Ludden, from Israeli or NATO interception of any kind while she sails to Gaza on board the ‘Handala’. 
The vessel carries unarmed civilians and humanitarian cargo, including baby formula and other life-saving aid for Palestinians in Gaza. It poses no threat and is operating in full accordance with international maritime, humanitarian, and human rights law. 
Email and Tag the British Foreign, Commonwealth & Development Office NOW: 
Email: fcdo.correspondence@fcdo.gov.uk
X: @FCDOGovUK and @DavidLammy
Instagram @foreignanddevelopmentoffice and @david.lammy
Facebook: Foreign, Commonwealth & Development OfficeThe French government has a responsibility to protect its citizens, Ange Sahuquet, Emma Fourreau, Gabrielle Cathala, and Justine Kempf from Israeli or NATO interception of any kind while they sail to Gaza on board the ‘Handala’. 
The vessel carries unarmed civilians and humanitarian cargo, including baby formula and other life-saving aid for Palestinians in Gaza. It poses no threat and is operating in full accordance with international maritime, humanitarian, and human rights law. 
Tag the French Ministry for Europe and Foreign Affairs NOW: 
X @FranceDiplo_EN and @francediplo 
FB @FranceDiplomacy The United States government has a responsibility to protect its citizens, Braedon Peluso, Christian Smalls, Frank Romano, Huwaida Arraf, Jacob Berger, Robert Suberi, and Waad Aal Musa from Israeli or NATO interception of any kind while they sail to Gaza on board the ‘Handala’. 
The vessel carries unarmed civilians and humanitarian cargo, including baby formula and other life-saving aid for Palestinians in Gaza. It poses no threat and is operating in full accordance with international maritime, humanitarian, and human rights law. 
Tag the U.S. Department of State NOW: 
X: @StateDept and @SecRubio 
FB: U.S. Department of State
Instagram: @statedept @secrubio
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Gaza Freedom Flotilla Coalition @freedomflotilla.bsky.social · 25/07/2025
Join the #Handala surveillance team - watch the live feed from the boat here: www.youtube.com/watch?v=M2lr...
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Sarcoma UK @sarcoma.org.uk · 08/07/2025
Scott Arthur MP brought the #RareCancersBill to Parliament after losing his father-in-law to a rare cancer. “Everyone knows someone impacted… it’s time we did something about it.” He stands with families across the UK facing these devastating diseases.
Text reads: "The #RareCancersBill will: Connect patients to research. A national registry will match rare cancer patients to clinical trials."Text reads: "The #RareCancersBill will: Enhance orphan drug incentives. Ensure life-saving treatments reach patients."Text reads: "The #RareCancersBill will: Champion rare cancer research:Appoint a named person in each nation to provide leadership and advice for the delivery of rare cancer research.
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Mehdi Hasan @mehdirhasan.bsky.social · 02/07/2025
BREAKING: Zeteo has released, globally, the film the BBC so controversially refused to air. "Gaza: Doctors Under Attack" is now available to watch in full at gazadoctors.film and zeteo.com. Here's the trailer:
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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · 23/06/2025
How can #ChildhoodCancer affect #fertility and what can be done to help? 🧬 Join our free webinar with Prof Rod Mitchell & Dr Mark Brougham to find out 👨‍⚕️ 🗓️ 9 July 2025 ⏰ 1:30 - 2:30 pm 🌍 Open to all Register now for free at bit.ly/3T3i7WM
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Sarcoma UK @sarcoma.org.uk · 11/06/2025
We’re calling on the UK Government and the devolved administrations in Scotland, Wales, and Northern Ireland to urgently review sarcoma services and act on our recommendations. 👉 sarcoma.org.uk/unique
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Sarcoma UK @sarcoma.org.uk · 11/06/2025
Our findings show that while many patients speak positively about the treatment they receive at specialist centres, too many face unacceptable delays in diagnosis, unequal access to specialist care, and a lack of research investment.
A woman with blonde hair in a grey jumper sits thoughtfully by a train window, looking outside. The image highlights healthcare accessibility challenges with text stating "Patients in rural areas and lower-income families face the greatest challenges" and "Specialist centres out of reach." The Sarcoma UK "Unique Among Cancers: Sarcoma Review Needed" campaign branding appears in the bottom right corner.A young woman in a white top lies on white bedding, gazing upward with a contemplative expression. The image addresses psychological support gaps with text stating "Many patients and families are left without the psychological help they need" and "Mental health support is lacking."A researcher in safety goggles and blue gloves carefully handles a pipette with purple liquid in a laboratory setting. The image emphasises research funding needs with text stating "Few new treatments are on the horizon. Investment is needed now" and "Sarcoma research funding lags behind."A teal background with medical imagery shows the campaign's call to action, stating "We're calling on the UK Government and the devolved administrations in Scotland, Wales and Northern Ireland to urgently review sarcoma services and implement the report's recommendations. Patients and families can't wait any longer."
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Sarcoma UK @sarcoma.org.uk · 11/06/2025
We’re proud to release Unique Among Cancers - Sarcoma UK’s most comprehensive review ever of sarcoma treatment and services across the UK, built on insights gathered directly from patients, families, and professionals.
Hands holding an open report titled "Unique Among Cancers" against a teal background with medical imagery. The text emphasises this is "Sarcoma UK's most comprehensive review yet" calling for "urgent changes needed for people affected by sarcoma." The campaign's distinctive branding is prominently displayed.A thoughtful man in a blue checked shirt rests his chin on his hands against a warm, indoor background. The image conveys the lengthy diagnostic journey with text stating "Many see multiple healthcare professionals before finally being referred" and "1 in 3 patients wait more than 6 months for a diagnosis."A young woman with long red hair wearing a patterned top looks directly at the camera with a serious expression. The image addresses diagnostic disparities with text explaining how "women, young people and those with rarer subtypes" face "misdiagnoses and delays" because "referral pathways often fail."A person wearing a polka-dot headscarf and grey cardigan lies in bed holding a mobile phone, representing a patient during treatment. The text emphasises the need for research investment, stating "Few new treatments available" and calling for better treatment options for patients.
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Sarcoma UK @sarcoma.org.uk · 10/06/2025
📣 We're hiring! Join Sarcoma UK as Involvement & Volunteer Coordinator. Ensure those affected by sarcoma are at the heart of our work. Lead our Involvement Programme, grow volunteering, and boost engagement. Apply now: sarcoma.org.uk/about-us/wor...
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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · 10/06/2025
#Trustees wanted! 🌟 We're looking for committed and dedicated volunteer trustees to join our governing board. Your time, skills and experience will help us create a brighter future for children and young people with cancer. #CYPCancer Interested? Apply now at bit.ly/3HyaGo2
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Zarah Sultana MP @zarahsultana.bsky.social · 09/06/2025
Every person aboard the Madleen is a hero. The genocidal Israeli state's attack on unarmed activists aboard a UK-flagged vessel delivering aid to Gaza is a flagrant breach of international law. The UK must sanction Israel, end all arms & surveillance, & expel its ambassador.
Madleen freedom flotilla crewPhoto of the crew holding their hands up after being intercepted and attacked by the genocidal Israeli navy — and kidnapped
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Richard Burgon MP @richardburgon.bsky.social · 08/06/2025
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Zarah Sultana MP @zarahsultana.bsky.social · 08/06/2025
Live tracker of the Madleen freedom flotilla: freedomflotilla.org/ffc-tracker/
Photo of the Madleen flotilla with text that says “ALL EYES ON DECK”
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Al Jazeera English @aljazeera.com · 08/06/2025
Hundreds of Israelis and Palestinians marched in silence outside the Israeli Defense Ministry, holding portraits of Palestinian children killed in Israel’s war on Gaza.
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rachelephant.bsky.social @rachelephant.bsky.social · 08/06/2025
More than ever, your help is needed. Spread the word - IT'S NOW! Track the flotilla: whereismadleen.com Watch the latest update: www.instagram.com/reel/DKotpFC... Follow updates: @gazafreedomflotilla #GazaFreedomFlotilla #FreePalestine #HumanitarianAid #Gaza
whereismadleen.com
Follow Madleen Journey to Gaza
An easy way to remember to track Madleen while they sail to break the Israeli illegal blockade of Gaza.
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rachelephant.bsky.social @rachelephant.bsky.social · 08/06/2025
🚨 URGENT: Gaza Freedom Flotilla Under Attack 🚨 The trackers are not emitting properly. Communications are being corrupted. An interception or attack may occur really soon. The Freedom Flotilla is bringing humanitarian aid to Gaza and needs our support NOW.
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Sky News @news.sky.com · 08/06/2025
'The only people I've ever seen in Gaza with weapons are the IDF,' says British surgeon
news.sky.com
'The only people I've ever seen in Gaza with weapons are the IDF,' says British surgeon
A British surgeon has told Sky News she has never treated or seen anyone in a Gaza hospital in military uniform - and the only people she has seen with weapons are the IDF.
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Atomos Ant @atomosant.bsky.social · 07/06/2025
@sayeedawarsi.bsky.social @jeremycorbyn.bsky.social Please see below. The Gaza Freedom Flotilla needs your voices
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Gaza Freedom Flotilla Coalition @freedomflotilla.bsky.social · 06/06/2025
Email: fcdo.correspondence@fcdo.gov.uk X: @FCDOGovUK IG @foreignanddevelopmentoffice Tel: 020 7008 5000 #SafePassage #UKResponsibility #BreakTheSiege #BreakIsraelsSiege #EndComplicity #Madleen #GazaGenocide #FreedomFlotilla
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Gaza Freedom Flotilla Coalition @freedomflotilla.bsky.social · 06/06/2025
🇬🇧 Under international law, the UK must: • Prevent genocide • Reject Israel’s illegal blockade of Gaza • Defend its flagged ship from unlawful attacks Support us by taking action! Contact the Foreign Office & your MP. Demand protection for ‘Madleen’ & accountability for any aggression. ..3/
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Gaza Freedom Flotilla Coalition @freedomflotilla.bsky.social · 06/06/2025
🚨 ACTION ALERT: The UK MUST protect ‘Madleen’ 🚨 The ‘Madleen’ is a UK-flagged civilian ship sailing to Gaza with life-saving aid as part of the #FreedomFlotilla. The UK has a legal duty to protect its vessel and the civilians aboard from Israeli interference. ..2/
Action Alert! UK Must protect Madleen!
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Zeteo @zeteo.com · 06/06/2025
“There's nothing I've seen here [Gaza] that is close to other conflicts zones.” UNICEF spokesperson James Elder speaks with @mehdirhasan.bsky.social on the normalization of war crimes in Gaza and facing accusations of antisemitism for stating the facts.
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Gaza Freedom Flotilla Coalition @freedomflotilla.bsky.social · 03/06/2025
Take one minute: go to bit.ly/IsraelOnNotice and send a letter to the Israeli government, UN officials, and diplomatic missions demanding that Israel abide by international law and refrain from attacking, sabotaging or otherwise interfering with the #Madleen and her mission.
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The Institute of Cancer Research @icr.ac.uk · 04/06/2025
NEW: Researchers at the ICR have uncovered a new way to potentially reduce the harmful scarring often caused by #Radiotherapy treatment. The study focused on a gene called CXCL12 – known to play a role in how tissues scar and heal.
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Gaza Freedom Flotilla Coalition @freedomflotilla.bsky.social · 03/06/2025
According to @thiagoavilabtasil on Instagram there is a drone over them as of 30 mins ago. Please tell everyone to demand a safe passage. Put Israel on notice bit.ly/IsraelOnNotice
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Mehdi Hasan @mehdirhasan.bsky.social · 02/06/2025
This guy has been a loud conservative voice railing against Hamas and terrorism, and defending the detention of Mahmoud Khalil, who has never said or done anything violent or terroristic. And yet here he is ‘joking’ about killing civilians:
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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 02/06/2025
#Trustees wanted! Like all charities, our governing board is made up of committed, dedicated volunteer Trustees who give their time, skills and experience to help ensure we achieve our mission - creating brighter futures for children and young people with cancer. #VolunteersWeek
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Zeteo @zeteo.com · 31/05/2025
“We are watching a systematic starvation of 2 million people. A live-streamed genocide & the world's silence is deadly. That is why we have to keep trying everything we can, even if the odds are against us.” Zeteo contributor Greta Thunberg shares moments from the Madleen.
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The Institute of Cancer Research @icr.ac.uk · 30/05/2025
NEW 🚨 The FDA has granted accelerated approval for the combination of avutometinib and defactinib, marking the first approved therapy for low-grade serous #OvarianCancer – a rare and historically hard-to-treat cancer.
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Sarcoma UK @sarcoma.org.uk · 28/05/2025
Diagnosing sarcoma quickly can change outcomes. That’s why we're working with @bcrt-uk.bsky.social to fund two new studies: one using GP data at @ucl.ac.uk & one exploring a blood test for osteosarcoma at @sheffielduni.bsky.social. #CancerResearch sarcoma.org.uk/news/sarcoma...
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Mehdi Hasan @mehdirhasan.bsky.social · 23/05/2025
"Apologists for Israel might want to reject the charge of genocide [and] suggest its hyperbole or even antisemitic, but the actual experts on genocide know a genocide when they see one - and they see one in Gaza." My receipts on all the experts who say Gaza *is* a genocide. zeteo.com/subscribe
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Mehdi Hasan @mehdirhasan.bsky.social · 22/05/2025
The ex US ambassador to Israel says there are not 2 million innocent civilians in Gaza and the line between civilians and terrorists in Gaza is ‘mostly invisible.’ How is this not openly genocidal rhetoric, and incitement to violence against an entire people?
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Sarcoma sucks @sarcomasucks.bsky.social · 22/05/2025
Well done Donald! #sarcoma #sarcomaawareness #leiomyosarcoma #sarcomafundraising
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Sarcoma sucks @sarcomasucks.bsky.social · 19/05/2025
Sponsorship for BSG Annual Conference in 2026 #sarcoma #sarcomauk #sarcomanurses
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Mehdi Hasan @mehdirhasan.bsky.social · 12/05/2025
"I think it should be controversial to NOT say anything" about Gaza I spoke to YouTube star and children's educator Ms. Rachel about her outspoken support for Palestinian kids in Gaza - and the bad-faith attacks on her in response. Full interview here: zeteo.com/p/exclusive-...
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Sarcoma UK @sarcoma.org.uk · 16/05/2025
We're happy to be here!
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Sarcoma UK @sarcoma.org.uk · 14/05/2025
Sarcoma UK’s 2025–26 Open Grant Round is open for applications. 🔬 All areas of sarcoma research welcome 💰 Up to £200k in funding 📅 Deadline: 4 Sept 2025, 12pm More info at sarcoma.orgsarcoma.org.uk/our-research/apply-for-resear...
sarcoma.org.uk
Open Grant Round 2025
Sarcoma UK supports a wide range of sarcoma research and are flexible in being able to offer funding for a variety of laboratory, clinical and studentship projects. We currently have these grants available.
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Sarcoma UK @sarcoma.org.uk · 14/05/2025
Walk to Make a Difference in Reading on 29 June 💙 Join the sarcoma community for a 5K or 10K walk and help change lives for those affected by sarcoma. Because it’s Rare but Real. 🔗 Sign up today to walk, be seen, and spark real change: rareburarebutreal.org.uk/...
Photo of two people walking, text reads 'Rare but Real'.
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James at Virtual Soccer | NWSL First @virtualsoccer.bsky.social · 01/05/2025
Cancer Sucks. youtu.be/cH0qoyoMbH0 Latest video about a soccer loving family dealing with the Mom having Stage 4 Leiomyosarcoma. Enjoy the little things. #MLS #KickCancer #NWSL #CanSky
youtu.be
Mental Therapy -Living with Cancer and Leiomyosarcoma - Episode 10
YouTube video by Perpetual Stew TV
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Paul Gathercole @paulgathercole.bsky.social · 22/04/2025
Fantastic opportunity for an experienced / senior Children’s or TYA cancer nurse - Trustee role with @younglivesvscancer.bsky.social
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OncLive @onclive.bsky.social · 21/04/2025
Orthopedic Oncology Experts Shape Global Consensus on Chondrosarcoma Management @rlrandallmd.bsky.social @ucdavishealth.bsky.social #chondrosarcoma www.onclive.com/view/orthope...
onclive.com
Orthopedic Oncology Experts Shape Global Consensus on Chondrosarcoma Management
R. Lor Randall, MD, FACS, discusses the importance of orthopedic oncology consensus meetings and the need for agreement about certain surgical practices.
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Al Jazeera English @aljazeera.com · 17/04/2025
Lifesaving services in Gaza are ‘on the brink of total collapse’ after Israel halted the entry of cargo, including humanitarian aid, into the territory on March 2, according to UN spokesperson Stéphane Dujarric. 🔴 LIVE updates: aje.io/25rlfb
aje.io
Gaza’s lifesaving services on ‘brink of collapse’ amid Israeli attacks
Stephane Dujarric, spokesperson for the UN chief, said “humanitarian supplies are nearing total depletion”.
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Matthew Hemming MD PhD @sarcomalab.bsky.social · 20/03/2025
The National Leiomyosarcoma Foundation is pleased to announce that it will be funding a two-year LMS research grant for 2026-2027. Please see the following link for information on applying, and we look forward to receiving your LMS-specific proposals! leiomyosarcoma.info/general-rese...
leiomyosarcoma.info
LMS Research Updates - Leiomyoarcoma.info
NLMSF-SPAEN Publication on evidence- based unmet needs in LMS research and treatment NATIONAL LEIOMYOSARCOMA FOUNDATION                             2026-2027 RESEARCH GRANT ANNOUNCEMENT NLMSF Empoweri...
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Sarcoma sucks @sarcomasucks.bsky.social · 07/03/2025
Please support this fundraising page for #Leiomyosarcoma Research UK. #rarecancer #sarcoma #uLMS #cansky #cancerresearch #thankscancer www.justgiving.com/page/kathari...
justgiving.com
The Afsar Family Page for Leiomyosarcoma Research UK
Help Kate Afsar raise money to support Leiomyosarcoma Research UK
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Sarcoma sucks @sarcomasucks.bsky.social · 13/04/2025
bsky.app/profile/sarc...
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Sarcoma sucks @sarcomasucks.bsky.social · 18/03/2025
Please take a look at the first dedicated #Leiomyosarcoma focused charity in the UK. Changing the outlook for current and future patients. #oncosky #cansky #sarcoma #rarecancer #cancerresearch lmsruk.org
lmsruk.org
Leiomyosarcoma Research UK Home
Supporting research and education to improve treatment options and outcomes for Leiomyosarcoma (LMS) patients. - Leiomyosarcoma Research UK Home
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