iiinova — where your digital self keeps evolving

9-year-old Jacob, diagnosed with osteosarcoma in March, climbed Snowdon in under three hours just four and a half months after major limb-saving surgery. 🏔️ He’s raised over £5,000 for Sarcoma UK and Children with Cancer UK. 💙 Get involved: sarcoma.org.uk/get-involved

A group of eight Sarcoma UK supporters in hiking gear smile together at the start of a woodland trail.

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Sarcoma UK @sarcoma.org.uk · 20h

To mark the end of Desmoid Tumour Awareness Month, we’re pleased to share that Sarcoma UK are supporting the launch of a new online support group for people affected by desmoid tumours, starting on 21 October. Registration for the group will be opening soon.

Sarcoma UK graphic reading "Desmoid tumour awareness month. New online desmoid tumour support group launching this October." Below the text, a laptop screen shows a video call with around a dozen smiling people in a grid.

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Sarcoma UK @sarcoma.org.uk · 30/09/2026

Thank you to everyone who joined us for Rare but Real Manchester to walk, raise awareness and support people affected by sarcoma. 💙 Missed it? Join us at Gunnersbury Park, London, on Sunday 1 November for a 3km or 6km walk. Sign up: rarebutreal.org.uk/

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Sarcoma UK @sarcoma.org.uk · 29/09/2026

Sarcoma UK welcome the launch of the reformed National Cancer Board and the appointment of a dedicated clinical lead for rare cancers. Strong accountability will be vital in turning National Cancer Plan commitments into meaningful change for patients.

Two people walk side by side in a park, one with a supportive hand on the other's shoulder. Text reads: "A stronger voice for rare cancers."

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Sarcoma UK @sarcoma.org.uk · 29/09/2026

For #ChildhoodCancerAwarenessMonth, we’re highlighting Dr Carmela de Santo’s research into making immunotherapy more effective for childhood sarcomas. sarcoma.org.uk/research/tac...

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Sarcoma UK @sarcoma.org.uk · 28/09/2026

🏃 Ready to take on the #ManchesterMarathon in 2027? Join Team Sarcoma and run 26.2 miles through Manchester while raising vital funds for people affected by sarcoma. runforcharity.com/charity-regi...

Selfie of a runner in mirrored sunglasses and a blue and pink Sarcoma UK vest outside Manchester United's Old Trafford stadium, with crowds gathered behind on a sunny day. Manchester Marathon and adidas logos in the top right corner.

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Sarcoma UK @sarcoma.org.uk · 28/09/2026

Our Support Line team continues to visit hospitals across the UK to raise awareness of sarcoma and our support. 💙 Recently, Helen visited Royal Cornwall Hospital, speaking to patients, the public and healthcare professionals about sarcoma, its signs and symptoms and where to find support.

Two women smile beside a Sarcoma UK information stand in a hospital corridor, below a sign for Trelawny Outpatient Reception. One wears a Sarcoma UK T-shirt and the other a nurse's uniform. A pull-up banner shows Support Line contact details and a table holds sarcoma leaflets.

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Sarcoma UK @sarcoma.org.uk · 25/09/2026

Register your interest for our March 2027 Community Day 💙 Join us in London on Friday 12 March for a free day to connect with others affected by sarcoma, hear from specialists and take part in wellbeing activities. Find out more: sarcoma.org.uk/community-da

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Sarcoma UK @sarcoma.org.uk · 25/09/2026

A huge thank you to Kathleen and her family, who took part in the Edinburgh Kiltwalk in memory of her mum. 💙 Fourteen family members walked 4km–21km, raising over £7,000 for Sarcoma UK. Inspired to take on a challenge? Visit sarcoma.org.uk/get-involved

A group of Sarcoma UK supporters in matching blue charity T-shirts and lanyards smile in the sunshine, holding a Sarcoma UK banner. One holds a Scottish saltire flag. A grassy hillside rises behind them.

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Sarcoma UK @sarcoma.org.uk · 24/09/2026

🧬 Today @amrc-uk.bsky.social has published a new genomics spotlight report. It highlights how AMRC charities are advancing genomics and supporting its use to benefit patients - from research and infrastructure to policy, diagnosis and treatment. 🔗 bit.ly/4yPMvHb

AMRC graphic: Charities in action: Driving progress through genomics. AMRC charities invested £94 million in genomics-related grants in 2025, and 71% of surveyed charities fund genomics-related research.

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Sarcoma UK @sarcoma.org.uk · 24/09/2026

NICE has provisionally recommended nirogacestat for progressing desmoid tumours. If confirmed, it will become the first specifically approved treatment available to eligible NHS patients in England. Sarcoma UK and Desmoid Aid UK submitted evidence together. Read more: sarcoma.org.uk/news

Nirogacestat provisionally recommended by NICE. Text over a background of white tablets, with the Sarcoma UK and Desmoid Aid UK logos at the bottom.

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Sarcoma UK @sarcoma.org.uk · 24/09/2026

A huge thank you to Chris, who completed an Ironman 70.3 in support of Sarcoma UK, raising money and awareness in memory of his wife, Laura, who died from sarcoma in April 2023. After a slipped disc earlier this year, reaching the start line made the achievement even more special.

Chris Whellams, in a Sarcoma UK tri-suit, punches the air as he crosses the finish line at IRONMAN 70.3 Weymouth, with crowds cheering on both sides.

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Sarcoma UK @sarcoma.org.uk · 23/09/2026

Great research needs people, collaboration and opportunity. Our new strategy will fund innovative sarcoma research, strengthen networks and partnerships, support future research leaders, and ensure patients and families help shape our work. sarcoma.org.uk/research-str...

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Sarcoma UK @sarcoma.org.uk · 23/09/2026

The Support Line is closed tomorrow while the team attend a business planning day. If you need urgent support, contact your specialist team; Macmillan Cancer Support on 0808 808 0000 or by chat 8 am-8 pm, 7 days a week, or Samaritans on 116123 at any time. We'll be back on Friday from 10am.

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Sarcoma UK @sarcoma.org.uk · 21/09/2026

VAT on compassionate access medicines has been raised again in Parliament. Danny Beales MP highlighted Sarcoma UK cases where people with sarcoma have been unable to access medicines previously provided free of charge. The Government has paused VAT while it works on a permanent solution.

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Sarcoma UK @sarcoma.org.uk · 16/09/2026

There’s still time to vote in the Sarcoma UK 2026 Shining Star Awards. Who will you vote for? ⭐️Gaz Emmerson Fundraiser of the Year ⭐️Group Fund Champion(s) of the Year ⭐️Young Sarcoma Voice of the Year You decide. Vote for your star: sarcoma.org.uk/VOTE

‘Shining Star Awards. Who will be your star?’

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Sarcoma UK @sarcoma.org.uk · 16/09/2026

Our new Research Strategy, Living Longer, Living Better, sets our priorities for the next five years: 🔍Earlier, faster diagnosis 💊Better, kinder treatments 💙Improved quality of life, survivorship and late effects Shaped with people affected by sarcoma. sarcoma.org.uk/research-str...

Image of researcher in lab. “Research is the most powerful tool we have to improve things for sarcoma patients.”

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Sarcoma UK @sarcoma.org.uk · 15/09/2026

Want to stay up to date with Sarcoma UK? Sign up for our E-news to receive occasional updates on the things that matter, from new research and support resources to campaigns, events and stories from people affected by sarcoma. sarcoma.org.uk/e-news

Graphic reading “Want the latest from Sarcoma UK?” above a hand holding a smartphone displaying Sarcoma UK E-news, with updates on research, support resources and stories from the sarcoma community.

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Sarcoma UK @sarcoma.org.uk · 14/09/2026

Our Support Line is here for you. 💙 Whether you’ve been diagnosed with sarcoma, are supporting someone, or have questions, our team is here to help. ☎️ 0808 801 0401 📧 supportline@sarcoma.org.uk 💬 07534 177861 💻 Or leave your details via our new website widget: sarcoma.org.uk/supportline

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Sarcoma UK @sarcoma.org.uk · 11/09/2026

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Sarcoma UK @sarcoma.org.uk · 10/09/2026

Join the Glitter Ball Committee ✨ Meet a supportive community, share your ideas and help shape one of Sarcoma UK’s biggest events. We’re looking for three people. The committee meets online for around one hour a month. Contact Kerry by 15 September: kerry.reeves-kneip@sarcoma.org.uk

A group of women celebrate together on a dance floor, arms raised and smiling, with band members visible behind them. A gold glitter ring frames bold gold text: "Join the Glitter Ball Committee". The Glitter Ball and Sarcoma UK logos appear bottom right.

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Sarcoma UK @sarcoma.org.uk · 09/09/2026

The Sarcoma UK online bereavement support group is open to anyone over 18 who has lost someone to sarcoma and whose loved one received care in the UK. Meetings are held on Zoom, last 90 minutes, and focus on shared experiences and mutual support. Visit sarcoma.org.uk/bereavement-...

Graphic shows two hands reaching to hold one another. Text reads 'Interested in joining our bereavement support group? It's open to all affected by sarcoma loss.'

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Sarcoma UK @sarcoma.org.uk · 08/09/2026

We’ve launched Living Longer, Living Better: Sarcoma UK’s Research Strategy 2026–31. Our focus: earlier diagnosis, better and kinder treatments, improved quality of life, and a stronger sarcoma research community. sarcoma.org.uk/research-str...

Sarcoma UK graphic titled 'Living Longer, Living Better: Sarcoma UK's Research Strategy 2026-31' on a teal background with circular design. Below, a man in glasses speaks at a podium with a laptop, in front of a banner reading 'Making a difference for bone and soft tissue cancer'.

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Sarcoma UK @sarcoma.org.uk · 07/09/2026

Writing a will doesn’t have to be a big job. This Autumn, we’ve teamed up with Octopus Legacy to make it simple and free, with costs covered up to £150. Start your will online, by phone, at home or in-branch: sarcoma.org.uk/OctopusLegac... You can also choose to leave a gift to Sarcoma UK.

Teal graphic with "Change starts with a will" heading. Text reads: "A gift in your will can help fund vital research and provide information and support for people affected by sarcoma. Write or update your will for free today." Arrow points to Octopus Legacy and Sarcoma UK logos at bottom.

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Sarcoma UK @sarcoma.org.uk · 07/09/2026

🐝 Manchester, we’re coming back! Rare But Real returns to Heaton Park on Sunday 27 September. Bring your family, friends or four-legged companion and choose the route that suits you, from a relaxed, accessible walk to our 10km loop. rarebutreal.org.uk/

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Sarcoma UK @sarcoma.org.uk · 04/09/2026

You don’t have to be an event planner to join our Glitter Ball Committee. 💙✨ We’re looking for three people with ideas, enthusiasm and a fresh perspective to help make the event a success. Just one online meeting a month. Interested? Apply by 15 September: kerry.reeves-kneip@sarcoma.org.uk

Four smiling women in evening wear at an event, wearing teal Sarcoma UK sashes, one reading "Staff." Black background with gold glitter effect below. Text overlay: "Could you help shape the Glitter Ball?"

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Sarcoma UK @sarcoma.org.uk · 03/09/2026

Congratulations to Catherine, who walked from Wigan to the Clatterbridge Cancer Centre in Liverpool, raising nearly £3,000 for Sarcoma UK. 💙 It’s a journey she and her husband, Adam, have made many times during his sarcoma treatment, making this challenge especially meaningful.

Catherine, wearing a blue Sarcoma UK vest and backpack, hugs her husband outside the Main Reception entrance of The Clatterbridge Cancer Centre. She is smiling warmly.

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Sarcoma UK @sarcoma.org.uk · 03/09/2026

September is Gynaecological Cancer Awareness Month. Our Understanding gynaecological sarcoma booklet includes information on diagnosis and treatment, as well as Anna’s experience of gynaecological sarcoma. Download your free copy: shop.sarcoma.org.uk/product/unde...

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Sarcoma UK @sarcoma.org.uk · 02/09/2026

🎵 “The puzzle of who I am is still not complete.” The Puzzle by Abby Daniels is out now. Written after her osteosarcoma diagnosis, it reflects how Abby’s life changed. Abby died in July 2026, aged 26, and wanted the song released in aid of Sarcoma UK. 💙 Listen: youtube.com/watch

youtube.com

The Puzzle

Provided to YouTube by DistroKid The Puzzle · Abby Daniels · Abby Daniels · David Wilson · Jamie Aspden The Puzzle ℗ 13491855 Records DK Released on: 2026-08-18 Auto-generated by YouTube.

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Sarcoma UK @sarcoma.org.uk · 02/09/2026

Clare transformed an old Art Nouveau chair from her shed for Michael Pinsky: The Final Bid at MAC Birmingham. Restored and reupholstered by hand in orange Harris Tweed, every bid on The William Frances Art Nouveau Chair – FB47 will raise money for Sarcoma UK. 💙 macbirmingham.co.uk/

Restored wooden chair with bright orange upholstery against a teal wall, on a dark blue background with circular line graphics. Text overlay: "This chair is raising money for Sarcoma UK."

Split image on teal background. Top left: a broken, rusted chair frame outdoors near a shed. Bottom right: the same chair restored, with orange upholstery. Text overlay: "From a chair in a shed... To a restored Art Nouveau Chair.

Four photos showing chair restoration steps: the frame held together with clamps, the woven seat base rebuilt, the frame with coir seat padding added, and the finished chair with carved wooden back and orange upholstered seat.

Gallery interior with dozens of decorated chairs suspended by strings from ceiling rigging, visitors viewing the display. Text overlay: "Now, it's part of the 'Final Bid' art exhibition."

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Sarcoma UK @sarcoma.org.uk · 01/09/2026

September is Childhood Cancer Awareness Month 💙 If your child has been diagnosed with sarcoma, our parent hub offers clear information on sarcoma types and treatments, plus guidance on supporting your child. sarcoma.org.uk/my-child-has...

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Sarcoma UK @sarcoma.org.uk · 31/08/2026

A huge congratulations to Scott and Max for completing their Ironman challenges for Sarcoma UK! 🏊‍♂️🚴‍♂️🏃‍♂️ Inspired by Felicity, who was recently diagnosed with skull base chondrosarcoma, they’ve already raised over £4,000 to support people affected by sarcoma.

Two men, Scott and Max, stand smiling on stone steps in front of a tall stone monument, wearing blue Sarcoma UK T-shirts and holding Ironman finisher medals, with flags and trees in the background.

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Sarcoma UK @sarcoma.org.uk · 28/08/2026

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Sarcoma UK @sarcoma.org.uk · 28/08/2026

Help make our next Glitter Ball one to remember ✨ We’re looking for three people to join the Sarcoma UK Glitter Ball Committee. No event-planning experience needed, just enthusiasm and ideas. Email kerry.reeves-kneip@sarcoma.org.uk by 15 September

Guests at a formal gala dinner, one holding up a "Bid" paddle. Centred gold glitter circle on black reads "Join the Glitter Ball Committee." Glitter Ball and Sarcoma UK logos, bottom right.

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Sarcoma UK @sarcoma.org.uk · 28/08/2026

The Royal Marsden is hosting a study day on paediatric, teenager and young adult solid tumour care on 13 Oct The event is designed for medical, nursing and allied healthcare professionals who have an interest in care of TYA patients' solid tumours. royalmarsden.nhs.uk/ptyasolidt

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Sarcoma UK @sarcoma.org.uk · 27/08/2026

After Mark's sarcoma diagnosis, his friend Chris drove 150 miles to take him to hospital appointments. Now Mark is cancer-free, they’re cycling around 1,000 miles from Land’s End to John O’Groats in nine days for Sarcoma UK. 🚴‍♂️ Read more: sarcoma.org.uk/news

Chris and Mark, wearing cycling gear and helmets, smiling behind a black metal railing outside houses. Chris (left) in a white helmet and black jacket, Mark (right) in a grey helmet and green Rapha jacket, resting on the fence in the rain.

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Sarcoma UK @sarcoma.org.uk · 26/08/2026

Join us at North Middlesex Golf Club on 21 September for a day of friendly competition, community and fundraising, all while helping support people affected by sarcoma. 🏌️ Enter a team 🤝 Become a sponsor 💙 Donate a raffle or auction prize sarcoma.org.uk/golf

sarcoma.org.uk

Sarcoma UK Golf Day 2026

[...]Read More...

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Sarcoma UK @sarcoma.org.uk · 26/08/2026

After Georgie was told her uterine leiomyosarcoma was incurable, she and her wife Adel became determined to help others affected by sarcoma. Join them for #RareButReal Maidstone on 6 September at Mote Park. 💙 Visit rarebutreal.org.uk/ Supported by Deciphera Pharmaceuticals.

Rare But Real Sarcoma UK and Deciphera event graphic for Maidstone, Sunday 6 September. Below, a selfie of Adel and Georgie smiling outdoors, Adel with hair tied back, Georgie wearing a navy beanie, in front of a glass-fronted building.

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Sarcoma UK @sarcoma.org.uk · 25/08/2026

Have questions about benefits and financial support after a sarcoma diagnosis? Our new benefits FAQs explain what support may be available if you’re unable to work, having treatment or caring for someone with sarcoma. Find out more: sarcoma.org.uk/benefits-faq

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Sarcoma UK @sarcoma.org.uk · 24/08/2026

Thank you to the Randal Charitable Foundation for a £50,000 grant to strengthen our specialist Support Line. The donation, made through the Dave Thompson Fund, will help people affected by sarcoma access timely, trusted information and support. sarcoma.org.uk/news

Dark navy graphic with Sarcoma UK and Randal Charitable Foundation logos. Text reads: 'Thanks to the Randal Charitable Foundation. We're grateful for a £50,000 grant to strengthen our support services, through the Dave Thompson Fund.' Sepia-toned portrait of a smiling man.

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Sarcoma UK @sarcoma.org.uk · 21/08/2026

At this year’s Shining Star Awards, we’ll remember and honour loved ones we have lost over the past year. To include your loved one in our tribute video, email fundraising@sarcoma.org.uk with a high-quality photo and their name. The video will also be shared on social media. Deadline: 4 September

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Sarcoma UK @sarcoma.org.uk · 19/08/2026

Cheryl Baker is coming to Rare But Real Maidstone! 💙✨ Best known from Eurovision-winning Bucks Fizz, Cheryl will help kick off the day in style. So get ready to make your mind up and get walking! 📅 6 September 📍 Mote Park 🎟️ £5 individual | £20 team rarebutreal.org.uk/

Portrait of Cheryl Baker smiling in a white top, with text reading 'Special Guest: Cheryl Baker is joining Rare But Real Sarcoma UK Maidstone'

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Sarcoma UK @sarcoma.org.uk · 18/08/2026

A huge thank you to Stevie and everyone who joined a special #RareButReal Walk in memory of David 💙 70 people, and one dog, walked 5km through Bishop Auckland to celebrate his life and raise awareness of sarcoma. Inspired? Plan your own walk: rarebutreal.org.uk/

A large group wearing 'Rare But Real' t-shirts pose in front of a historic stone clock tower and archway, holding a long Sarcoma UK banner.

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Sarcoma UK @sarcoma.org.uk · 17/08/2026

A huge thank you to the London Sarcoma Service team for going the extra mile for Sarcoma Awareness Month 💙 33 colleagues from RNOH and UCLH clocked up a fantastic 1,106 miles through walking, running, cycling, swimming and more to raise awareness of sarcoma. Read more: sarcoma.org.uk/news

sarcoma.org.uk

NHS sarcoma cancer team clocks up 1,106 miles to raise awareness

NHS sarcoma team's 1,100-mile challenge helps to raise awareness of rare cancer.

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Sarcoma UK @sarcoma.org.uk · 14/08/2026

A huge thank you to Mia, who shaved her head in memory of her best friend, Aaliyah 💙 Aaliyah died from Ewing sarcoma aged 20. Mia donated her hair to help make wigs for young people with cancer, while also raising funds for Sarcoma UK and selling her artwork in Aaliyah’s memory.

Mia smiles while getting her hair shaved into a short style at a salon, as the hairdresser holds electric clippers.

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Sarcoma UK @sarcoma.org.uk · 13/08/2026

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Sarcoma UK @sarcoma.org.uk · 12/08/2026

We want to hear from people affected by desmoid tumours. Following feedback from the community, we’re exploring the launch of a virtual desmoid support group, and we want those it could support to help shape it. 👉 Complete the survey: sarcoma.org.uk/desmoid-supp...

Photo of a young woman in an orange hoodie in conversation with another person, with a blurred figure in the background. Text overlay reads 'Help shape a desmoid support group' next to a people icon, on a dark blue box with red underline.

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Sarcoma UK @sarcoma.org.uk · 11/08/2026

It’s National Afternoon Tea Week, the perfect excuse to share something sweet and make a difference. ☕🍰 Host your own Cuppa and Cake event for Sarcoma UK and bring friends, family, colleagues or your local community together to raise vital funds and awareness. Visit sarcoma.org.uk/cuppa

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Sarcoma UK @sarcoma.org.uk · 10/08/2026

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Sarcoma UK @sarcoma.org.uk · 06/08/2026

A huge thank you to nine-year-old Connie, who spent the last few weeks making bracelets and wristbands to sell at her school’s summer fayre, all in support of Sarcoma UK. 💙 Connie planned and ran the stall herself, raising funds in memory of her cousin Callum, who sadly died from sarcoma.

Two girls stand behind an outdoor table selling handmade beaded bracelets at a stall called 'Connie's Bracelets'. Colourful bracelets are laid out for sale, alongside hand-written signs advertising prices and stating proceeds go to Sarcoma UK.

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