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Sarah Louise Curtiss

@sarahlcurtiss.bsky.social
152 followers 119 following 30 posts

Assistant Professor of Education at the University of Delaware doing community-based research with autistic youth and their families on topics like #sexed #socialskills #mealtimes #transition. Check out my work here: autismincontext.org

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Reposted by Sarah Louise Curtiss
19thnews @19thnews.org · 07/05/2025
Advocates for Youth says that it can’t serve marginalized young people and adhere to the president’s executive orders, restrictions and censorship on race and gender.
19thnews.org
Why this nonprofit made a $1.2 million decision to reject federal funding under Trump
Advocates for Youth says that it can’t serve marginalized young people and adhere to the president’s executive orders, restrictions and censorship on race and gender.
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Reposted by Sarah Louise Curtiss
jamelle @jamellebouie.net · 01/05/2025
this is legitimately evil
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Sarah Louise Curtiss @sarahlcurtiss.bsky.social · 24/04/2025
This is scary on so many levels it’s hard to know where to start. People might think something like this already exists—you hear about rates of autism increasing and think the government is keeping track. That’s not at all how it works. Autism is the test case for eroding our right to privacy.
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Sarah Louise Curtiss @sarahlcurtiss.bsky.social · 23/04/2025
This is the program that I teach in and this article makes me quite proud 😊 www.cehd.udel.edu/centering-re...
cehd.udel.edu
Centering Relationships in Teaching - College of Education & Human Development
As long as University of Delaware alum Sara Colmorgen, EHD14, 15M, can remember, she wanted to be a teacher. As Colmorgen recalls fondly, she was “that sister who made [her] brother play school, much ...
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Reposted by Sarah Louise Curtiss
Andrea Love, PhD | Biomedical Scientist @drandrealove.bsky.social · 21/04/2025
Breast cancer diagnoses rose by over 300% between 1973 and 1992. Was there a breast cancer epidemic?! NO. Mammograms were implemented for screening in 1976. PREVALENCE is a function of being able to correctly diagnose something. This is also about autism.
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Sarah Louise Curtiss @sarahlcurtiss.bsky.social · 18/04/2025
Do you know how hard it is to get these organizations on the same page?
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Sarah Louise Curtiss @sarahlcurtiss.bsky.social · 18/04/2025
If I had a dollar for every time someone falsely spread (and profited from) autism misinformation, I’d give it all to the services that Autistic people actually wanted and millions of people’s lives would be better instead of worse.
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Reposted by Sarah Louise Curtiss
Maartje De Meulder @mdemeulder.bsky.social · 02/04/2025
Our paper won a Best Paper Award at #chi2025 ! It challenges the idea that Deaf tech should only be assistive. It presents alternative narratives that center deaf lives and show why we need Deaf-centred design in tech. @robinxtech.bsky.social @katta.bsky.social programs.sigchi.org/chi/2025/pro...
programs.sigchi.org
Conference Programs
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Sarah Louise Curtiss @sarahlcurtiss.bsky.social · 31/03/2025
This is digital book burning connect.ala.org/acrl/discuss...
connect.ala.org
Upcoming changes to ERIC from an evidence synthesis perspective | Evidence Synthesis Methods Interest Group
Colleagues,If you use ERIC for evidence synthesis, there are some things you should know with the ongoing changes at Department of Education and specifically
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Sarah Louise Curtiss @sarahlcurtiss.bsky.social · 28/03/2025
“Reorganizing” means eliminating the Administration for Community Living (ACL). The ACL supports the deinstitutionalization of people with disabilities and the elderly. Institutions still exist in America and their (re)expansion is celebrated by the eugenicists who run this administration.
Excerpt from new HHS release with the following text highlighted, “Reorganization of the Administration for Community Living (ACL): Critical programs that support older adults and people with disabilities will be integrated into other HHS agencies”
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Sarah Louise Curtiss @sarahlcurtiss.bsky.social · 24/03/2025
Whenever this administration does anything egregiously stupid it’s to divert the narrative from something egregiously amoral. The more horrendous things they do, the more they’ll up the ante on the distractions—that’s not to say this isn’t dangerous in and of it’s self.
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Sarah Louise Curtiss @sarahlcurtiss.bsky.social · 21/03/2025
Excited to read this!
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Reposted by Sarah Louise Curtiss
Aaron Rupar @atrupar.com · 13/03/2025
Walz: "The idea that the secretary of education would not know what IDEA is -- individuals with disability in education act -- that's like your mechanic not knowing how to put air in your tire. And she's in charge of this nation's education progress. It is catastrophic."
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Sarah Louise Curtiss @sarahlcurtiss.bsky.social · 11/03/2025
My guess is these guys knew they were going to take some “big” hits at first but that’s the price you pay for an everlasting oligarchy. 🤷🏻‍♀️
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Sarah Louise Curtiss @sarahlcurtiss.bsky.social · 10/03/2025
This is not just a waste of taxpayer dollars. It takes money away from projects Autistic people care about—research that supports Autistic people to thrive and identifies/dismantles systemic barriers. Not to mention, at this stage of the game, I would not trust the people doing the research.
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Reposted by Sarah Louise Curtiss
Thinking Person's Guide to Autism @thinkingautism.com · 01/03/2025
"Opposing forced sterilization means reckoning with how disabled people are viewed as parents. After all, more than 40 states allow disability to be used as grounds for parental termination, and disabled parents are at a higher risk of being monitored by CPS." www.motherjones.com/politics/202...
motherjones.com
Forced sterilization of disabled people isn't a relic of the past
In most states, eugenics-era laws still let doctors sterilize disabled patients—even against their will.
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Reposted by Sarah Louise Curtiss
Katie Mack @astrokatie.com · 26/02/2025
The first measles death in the US in a decade -- the tragic, preventable death of a child whose parents chose not to protect them with vaccination -- should spark an immediate nation-wide campaign to ensure all children are protected against preventable diseases. Anything less is unconscionable.
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Reposted by Sarah Louise Curtiss
ex-Lethality Jane @lethalityjane.bsky.social · 15/02/2025
The measles outbreak in Texas is reminding me of the public letter Roald Dahl wrote about losing his daughter to measles in 1962, just before the vaccine was publicly available.
Excerpt from a public letter Roald Dahl wrote encouraging people to vaccinate their children.

Olivia, my eldest daughter, caught measles when she was seven years old. As the illness took its usual course I can remember reading to her often in bed and not feeling particularly alarmed about it. Then one morning, when she was well on the road to recovery, I was sitting on her bed showing her how to fashion little animals out of coloured pipe-cleaners, and when it came to her turn to make one herself, I noticed that her fingers and her mind were not working together and she couldn’t do anything.

“Are you feeling all right?” I asked her.

“I feel all sleepy,” she said.

In an hour, she was unconscious. In twelve hours she was dead.

The measles had turned into a terrible thing called measles encephalitis and there was nothing the doctors could do to save her. That was twenty-four years ago in 1962, but even now, if a child with measles happens to develop the same deadly reaction from measles as Olivia did, there would still be nothing the doctors could do to help her.

On the other hand, there is today something that parents can do to make sure that this sort of tragedy does not happen to a child of theirs. They can insist that their child is immunized against measles. I was unable to do that for Olivia in 1962 because in those days a reliable measles vaccine had not been discovered. Today a good and safe vaccine is available to every family and all you have to do is to ask your doctor to administer it.
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Reposted by Sarah Louise Curtiss
Alondra Nelson @alondra.bsky.social · 08/02/2025
Excellent 🧵 on this evening's NIH announcement of a dramatic reduction in indirect rates for research institutions, which amounts to a generational restructuring of the US research and development ecosystem. These cuts are effective immediately, not just for new grants but for existing ones.
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Reposted by Sarah Louise Curtiss
Marisa Kabas @marisakabas.bsky.social · 07/02/2025
New — The National Center for Missing & Exploited Children (NCMEC) was told this week by DOJ that they'd lose their funding if the org didn't remove any mentions of LGBTQIA+ issues from their public materials, I've learned. Staff were told they need to deadname trans kids in their reports to comply.
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Reposted by Sarah Louise Curtiss
Marisa Kabas @marisakabas.bsky.social · 05/02/2025
NEW — DOGE now has full access to HHS Payment Management System, I’ve learned. The system distributes almost $1 trillion per year in grants (largest in the govt) and supports all of NIH, CDC + many other public health initiatives. Musk guy Luke Farritor is actively delaying payments to recipients.
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Sarah Louise Curtiss @sarahlcurtiss.bsky.social · 01/02/2025
Also true for complying with the ADA.
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Sarah Louise Curtiss @sarahlcurtiss.bsky.social · 30/01/2025
And blaming people with intellectual disability because why not if you’re the worst.
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Reposted by Sarah Louise Curtiss
Cara Jackson @carajackson.bsky.social · 28/01/2025
"at this time our understanding is that for formula funding all districts received their FY24 funds on either July 1 or October 1 and it is with them and cannot be withheld."
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Sarah Louise Curtiss @sarahlcurtiss.bsky.social · 28/01/2025
SNAP and free/reduced lunch are funded through federal grants.
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Reposted by Sarah Louise Curtiss
Katie Mack @astrokatie.com · 28/01/2025
I think some people hear “grants” and think that without them, scientists and government workers just have less stuff to play with at work. But grants fund salaries for students, academics, researchers, and people who work in all areas of public service. “Pausing” grants means people don’t eat.
washingtonpost.com
White House pauses all federal grants, sparking confusion
The Trump administration has put a hold on all federal financial grants and loans, affecting tens of billions of dollars in payments.
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dr. caitlin m. green @caitlinmoriah.bsky.social · 28/01/2025
couple months ago, i & a few others were asked about the resurgence of the r-slur. i looked at some recent examples & saw that it is related to the wave of eugenics and race science that has coincided with our descent into fascism. not a trend I’d want to hop on! www.vox.com/culture/3764...
vox.com
The resurgence of the r-word
Disability advocates spent a decade campaigning against the slur. Now it’s coming back.
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Sarah Louise Curtiss @sarahlcurtiss.bsky.social · 22/12/2024
I was happy that Delaware Public Media spoke to me for this piece. www.delawarepublic.org/science-heal...
delawarepublic.org
For neurodiverse people, holidays can present difficult challenges
The holiday season can be a time for fun and family, but for neurodiverse people - such as those with autism spectrum disorder, ADHD, and mental health conditions - it can also present significant cha...
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Sarah Louise Curtiss @sarahlcurtiss.bsky.social · 17/12/2024
I hate to give advice but if I do, it’ll be neurodiversity affirming. Also, so lucky to have like minded colleagues. www.udel.edu/udaily/2024/...
udel.edu
Supporting neurodivergent loved ones | UDaily
Experts in the College of Education and Human Development share guidance for supporting neurodivergent family members during the holiday season
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Sarah Louise Curtiss @sarahlcurtiss.bsky.social · 03/12/2024
It’s Giving Tuesday and International Day of Persons with Disabilities. I’m very proud to work with the Access: Ability Scholars—a group of students dedicated to promoting physical and social access. Help us bring disability thought leaders to campus: givingday.udel.edu/giving-day/9...
givingday.udel.edu
#GivingTuesday 2024
This #GivingTuesday, join the Blue Hen community in supporting our students, faculty, staff & alumni projects.
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Sarah Louise Curtiss @sarahlcurtiss.bsky.social · 20/11/2024
I highly recommend this webinar for the Office of National Autism Coordination "Voices of Diversity: Conversations on Autism Across Cultures and Identities" iacc.hhs.gov/meetings/aut...
iacc.hhs.gov
ONAC Webinar Series: Voices of Diversity: Conversations on Autism Across Cultures + Identities: Understanding Autism in Indigenous Communities | IACC
The Interagency Autism Coordinating Committee (IACC) coordinates all efforts within the Department of Health and Human Services (HHS) concerning autism spectrum disorder (ASD).
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Sarah Louise Curtiss @sarahlcurtiss.bsky.social · 17/11/2024
New public alert 🚨 Really proud of this work with Dr. Melissa Stoffers available open access rdcu.be/d0gLX
Theorizing the Role of Sex Educators in the Resistance and Reification of Epistemically Injustices Related to the Sexual Expression of People with Intellectual Disability
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