Sign in

Sage

@sagetoko.bsky.social
1.2K followers 762 following 1.9K posts

Applied Physics PhD working in industry. Chronically ill maker of things. Fiber arts, cooking, dogs. she/her. Exceedingly fond of heffalumps. 🐘❤️ #LongCovid #MECFS #EDS #POTS

PostsRepliesMedia
Sage @sagetoko.bsky.social · 1h
No, it’s only 2-3 big breaths for me. My main issue these days is remembering to blow it up OUTSIDE a venue, but most people are not as committed to continuous indoor masking as I am.
110
Sage @sagetoko.bsky.social · 2h
It is small enough that I had a “wait, is it even in here?” moment while scrounging around in the bottom of my purse looking for it. (It was in there, hiding under my Flomask.)
020
Sage @sagetoko.bsky.social · 2h
Here it is in my hand, next to the roll-up shopping bag I also keep in my purse, for a sense of scale when deflated and rolled up.
A black rolled up seat cushion with a KLYMIT label on the velcro band keeping it rolled up, next to a grey rolled up reusable shopping bag, in the palm of a person’s hand for scale.
210
Sage @sagetoko.bsky.social · 2h
yes!
110
Sage @sagetoko.bsky.social · 19h
I really like the Klymit seat cushion I have, it gets as compact in my purse as a lightweight roll-up shopping bag.
270
Sage @sagetoko.bsky.social · 19h
This is a power struggle and they are being jerks and also after MRI accident related deaths in the last few years the MRI teams are being HOUNDED on safety measures and never ever deviating even the tiniest bit on anything. We need to get rules on masks changed so our requests aren’t deviations.
020
Sage @sagetoko.bsky.social · 13/10/2026
Congratulations!!! 😸🐘❤️
000
Sage @sagetoko.bsky.social · 11/10/2026
😿😾🐙🐘❤️❤️❤️
110
Sage @sagetoko.bsky.social · 11/10/2026
A helpful analogy! I like the comparison a lot.
000
Sage @sagetoko.bsky.social · 10/10/2026
My parents think it’s silly I buy more toys for Mouse but he LOVES them! Shredding them, specifically, so then new ones are needed…
130
Reposted by Sage
Mike Bithell @mikebithell.bsky.social · 09/10/2026
It is absolutely preferable to not pick up the cigarette in the first place news.berkeley.edu/2026/10/09/u...
news.berkeley.edu
Using AI for just 10 minutes erodes your ability to persist at hard things - Berkeley News
A UC Berkeley researcher co-authored a study that raises profound questions about how we interact with artificial intelligence in education — and daily life.
282694971
Sage @sagetoko.bsky.social · 10/10/2026
Hi, if no one takes you up on this I have a friend who works at the Art Parts thrift store in Boulder and I’m sure they could help it find a good home!
100
Reposted by Sage
Ann LeBlanc @robotleblanc.bsky.social · 09/10/2026
friday is for kafkaposting
tumblr post poem by kleinergeist

I don't care if Monday's stressed
Tuesday, Wednesday, Kafkaesque
Thursday, feeling like a pest
It's Friday, I'm a bug
4771871700
Sage @sagetoko.bsky.social · 08/10/2026
But … this is so you can turn the shower on and let it get to temp without getting all wet with cold water? If it were under the shower head, behind the glass, you would have to get entirely in the shower to turn it on.
100
Sage @sagetoko.bsky.social · 08/10/2026
Yes, Ravelry for sure. You can check if a designer’s patterns have positive reviews, or lots of people complaining about errors. Many designers at a certain level will also have instagram profiles where they show off their patterns/objects made from them, if you want to check that way.
040
Reposted by Sage
s. e. smith @sesmith.lol · 06/10/2026
Bay comrades PLEASE vote for this. If it fails the consequences will be dire for transit and it will hollow out the entire Bay Area.
113482
Reposted by Sage
Jessica Ellis @baddestmamajama.bsky.social · 05/10/2026
There are millions and millions of people in the US with long covid, and it will continue to be that many or larger as the damage from repeat infections continues to rack up. While I appreciate the sentiment here, minimizing is minimizing and has to be called out. “Unlucky few” is absurd.
216760
Sage @sagetoko.bsky.social · 05/10/2026
Yes. When I had a constant migraine for 10 mo straight that traditional migraine meds helped with but never fully made end, it turned out the root cause was my (then) untreated dysautonomia. When we started treating the hypovolemic POTS, the constant migraine pain finally eased off. #MigraineChat
030
Sage @sagetoko.bsky.social · 02/10/2026
Aren’t there also demonstrated sleep apnea benefits, that exceed the benefit expected merely from the weight loss?
030
Reposted by Sage
Elana Levin @levin.bsky.social · 02/10/2026
The very empathetic and largely positive piece I’m reacting to only mentions Covid once and it’s in context of how some of the newly IDed disabled people boldly wear “Covid masks”. Totally a coincidence everyone’s got POTS &/or ME now. Unrelated to a virus that gives you POTS &/or ME running rampant
413919
Reposted by Sage
betsy ladyzhets 😷 @betsyladyzhets.bsky.social · 01/10/2026
Have you done The Sick Times' reader survey yet? We plan to use the results to inform future stories, updates to our website, and more! www.surveymonkey.com/r/SS6ZH8S
0139
Sage @sagetoko.bsky.social · 01/10/2026
It’s my day! Dante Shepherd says so!
010
Sage @sagetoko.bsky.social · 30/09/2026
😻🐘❤️❤️❤️ Clapping and wishing you some recovery time!
110
Sage @sagetoko.bsky.social · 30/09/2026
I think the amusing part to me is I know y’all from separate non-author contexts. Do you also know @marleyroseteter.bsky.social ?
210
Sage @sagetoko.bsky.social · 30/09/2026
Happy birthday, Effie! I hope it was a great day.
110
Sage @sagetoko.bsky.social · 30/09/2026
Wait Hilary you know Effie?
120
Sage @sagetoko.bsky.social · 30/09/2026
Not a movie, but I think the show Hilda has a similar vibe! (and three seasons of half-hour episodes!)
180
Reposted by Sage
Elana Levin @levin.bsky.social · 29/09/2026
Truly awful injustice. To everyone who thinks LC is just something "hysterical" rich women complain about um...
0139
Reposted by Sage
Dr Katie Twomey @k2mey.eurosky.social · 28/09/2026
This is quite cool. My university is the first organisation in the world to force Microsoft to allow us to turn off copilot summaries in Word 365, after a backlash against it from staff (including, very vocally, me). That cannot have been easy for our heroic IT people so hats very much off to them!
895443935
Reposted by Sage
Kevin M. Kruse @kevinmkruse.bsky.social · 20/09/2026
I'm deleting most fundraising texts these days, but if you sent me one saying you had identified these consultants and promised never to work with them, I would give you the max
191813313
Reposted by Sage
C.H. Romatowski @chromatowski.bsky.social · 18/09/2026
The CDC and partners “implemented air monitoring for pathogen surveillance in congregate areas at four U.S. international airports. From October 2023 to August 2024, SARS-CoV-2 was detected by PCR in 98.3% of air samples.” We desperately need indoor air cleaning measures. Til then: 😷
111359
Sage @sagetoko.bsky.social · 17/09/2026
Do skills include, like, functioning connective tissue and organs?
150
Sage @sagetoko.bsky.social · 17/09/2026
Gotta do Griffiths before you can get into Jackson!
130
Sage @sagetoko.bsky.social · 17/09/2026
Would there be a connection involved, or just a direct flight?
000
Sage @sagetoko.bsky.social · 16/09/2026
www.rthm.com/resources/bl... Lots of helpful stuff here, much (but not all) of which is relevant to non-Long Covid ME if that’s your specific issue.
rthm.com
Long COVID Treatment Guide
An evidence-supported guide covering treatments addressing multiple Long COVID symptoms & mechanisms — focused on prescription medication, with a limited set of supplements, OTC medications, procedure...
120
Reposted by Sage
Solve M.E. @solveme.bsky.social · 16/09/2026
1/ 🚨Take action by Friday! NIAID has proposed eliminating its Division of Clinical Research — the infrastructure behind its clinical trials — on a public comment window of just five days. #MECFS #LongCOVID
Solve M.E. action alert on a deep teal background. Headline: Take action by Friday. Text: NIAID has proposed eliminating its Division of Clinical Research, the infrastructure behind clinical trials, on a five-day comment window. Comment by Sept 18.
1129
Sage @sagetoko.bsky.social · 15/09/2026
And there’s enough of it still around in thrift stores or getting restored that we see it just often enough to rekindle that nostalgia and wanting quality things for ourselves. Art deco things are limited to museums, a few theaters, very few locations that have to be actively sought out.
020
Sage @sagetoko.bsky.social · 15/09/2026
I think it’s a mix of nostalgia and desire for quality? We remember interacting with furniture like this in grandparents’ houses or other locations, and we know it was real wood, sturdy, etc., all of which things are hard to impossible to get now.
130
Sage @sagetoko.bsky.social · 14/09/2026
This is especially wild to me because misoprostol is also prescribed for reasons other than abortion. You can’t tell who took it or why from the water supply! (Of course I am sure this logic doesn’t matter to them, and also I myself don’t think prescribing it for abortion is a problem.)
030
Sage @sagetoko.bsky.social · 14/09/2026
I’ve been thinking the same - trying not to worry, but sending my best wishes to @kateviolette.com 🐘❤️
020
Sage @sagetoko.bsky.social · 14/09/2026
I have a normally Tuesday appointment today so maybe my focus on all the ways today’s Monday is kind of Tuesday-ish is bleeding over to you? 🐙🐘❤️
110
Sage @sagetoko.bsky.social · 14/09/2026
🙀🐘❤️❤️❤️ wishing you as rapid a recovery as possible, and allll the spoons for assessment week.
120
Sage @sagetoko.bsky.social · 12/09/2026
The posts from the forum have been so helpful and informative! Thank you for doing it! 🐘❤️
110
Reposted by Sage
It's ME(Jaime) @exceedhergrasp1.bsky.social · 11/09/2026
Last day to apply: the Norris Lab in the US has a visiting scholars program superficially similar to mine. If you're interested in/have #EDS, you can apply for a three-day intensive to focus on becoming a patient-scientist. Very cool! 🧪 #MedSky www.thenorrislab.com/vsp
thenorrislab.com
Visiting Scholars Program | The Norris Lab
043
Sage @sagetoko.bsky.social · 11/09/2026
I love Newsflesh so much (it’s a comfort re-read series for me, not sure what that says about my brain). I also really appreciate that Seanan openly said in 2021 or 2022ish that there’s no way she could write it now, having seen how the world actually responded to a global pandemic.
120
Sage @sagetoko.bsky.social · 11/09/2026
🐘❤️❤️❤️❤️❤️
011
Sage @sagetoko.bsky.social · 09/09/2026
In the last few months I’ve felt like the 12 mini is struggling more with the OS/computing side of things, which is impacting the battery life for sure but also makes me wonder how much longer it will be functional. :///
000
Reposted by Sage
Benny Six Six Six-Cats @teeveeben.bsky.social · 09/09/2026
Anything wider or longer than an iPhone 12 mini with a case is too wide to comfortably fit in a pocket.
254
Sage @sagetoko.bsky.social · 09/09/2026
I am super, SUPER reluctantly coming around to maybe having to get the Air? Since at least it weighs the same as the mini. But I think the size will still exacerbate the wrist/hand injuries, so, not decided yet.
120
Sage @sagetoko.bsky.social · 09/09/2026
yuuuuup. All I want in a phone is a functional replacement for my 12 mini, Apple!!!
140