iiinova — where your digital self keeps evolving

Patients Association @patients-association.org.uk · 13/10/2026

Our new report sets out seven principles for independent patient voice, from protected independence and fair funding to clear powers and accountability. Read the report: www.patients-association.org.uk/blog/shaping...

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Patients Association @patients-association.org.uk · 12/10/2026

What makes social prescribing work for patients? Our research, commissioned by the National Academy for Social Prescribing found that patients valued the time, listening and individual support they received from Social Prescribing Link Workers.

More than three-quarters
of patients (76%) reported they felt like an equal partner in decisions about their care made with their link worker.

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Patients Association @patients-association.org.uk · 08/10/2026

⭐ Social prescribing can make a significant difference to people’s health and wellbeing.

It's just better than anything else as it is personal and not self serving. If the NHS put folk like my social prescriber in charge you'll have a NHS to be proud of.

Genuinely the best interaction within the NHS in my life. (My link worker) is fantastic and changed my experience completely around for the best

I recommend social prescribing to anyone I meet who is struggling, typically those who are sole unpaid carers for family members.

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Patients Association @patients-association.org.uk · 07/10/2026

Are you getting the bladder and bowel care that’s right for you? Join our free webinar to hear patients’ experiences of accessing products and services, explore the importance of shared decision-making and find out how new resources can help you understand your rights. Book now: buff.ly/moo26vq

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Patients Association @patients-association.org.uk · 06/10/2026

Yesterday our Head of Partnerships and Involvement @sarahtilsed.bsky.social shared at this session at the Conservative Party Conference about putting patient experience at the heart of delivering the National Cancer Plan

Sarah Tilsed speaking on a panel at the Conservative Party Conference

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Patients Association @patients-association.org.uk · 29/09/2026

Know your rights as a patient and understand what help you can get in our guide - now translated into Arabic, Bengali, Portuguese, Romanian and Urdu! Thank you to Novartis UK for funding the translation of this work.

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Patients Association @patients-association.org.uk · 28/09/2026

At this free webinar, you'll hear about patients' experiences of accessing bladder and bowel products and services, including some of the challenges people face in getting care that meets their individual needs. Sign up: buff.ly/BijgGjK

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Patients Association @patients-association.org.uk · 24/09/2026

👋 Our free membership brings you to the heart of our campaign for improvements in health and social care. Sign up today: buff.ly/2kFknqW

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Patients Association @patients-association.org.uk · 23/09/2026

Patient consent is much more than signing a form and saying yes. Join our free webinar, in partnership with Radar Healthcare, to explore what meaningful consent looks like in practice on 21 October, at 4pm Book now: buff.ly/z6CrLUv

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Patients Association @patients-association.org.uk · 14/09/2026

Our free webinar about NHS #ContinuingHealthcare is happening tomorrow, but don't worry there's still time to book your place! Sign up here: buff.ly/WelzLgx

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Patients Association @patients-association.org.uk · 12/09/2026

In her latest blog, Chief Executive @rachel-p.bsky.social reflects on the huge impact legacy donations have on our work by bringing us closer to the future we want to see; one where patients aren’t simply heard but genuinely help shape the care they receive. Read her blog: buff.ly/ILsKQd1

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Patients Association @patients-association.org.uk · 10/09/2026

There's a week to go until our free webinar on NHS Continuing Healthcare. Book your place and share with someone who you think might be interested in learning more about this service. Book now: buff.ly/HOys4Y4 This webinar is being delivered in partnership with Compass Continuing Healthcare.

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Patients Association @patients-association.org.uk · 07/09/2026

What would you want to leave behind for future patients? For Janet, it’s a future where patients are listened to, understood and involved in decisions about their care. After her husband’s prostate cancer was diagnosed late, she knows how important that can be 🩵 Read Janet’s story: buff.ly/UJELkAZ

“I've known the valuable work of the Association for many years and how important it is to make sure patient views get listened to and acted upon.”

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Patients Association @patients-association.org.uk · 02/09/2026

Remember A Charity Week kicks off in just one week’s time! One gift in a Will enables us to bring the patient voice to the heart of health and care policy decision-making. #RememberACharity

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Patients Association @patients-association.org.uk · 29/08/2026

Confused about NHS Continuing Healthcare? Join our online session with Compass CHC to find out about NHS Continuing Healthcare. We'll cover eligibility, the assessment process, how to prepare and common myths, and submit your questions to our panel. Book your place: buff.ly/HOys4Y4

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Patients Association @patients-association.org.uk · 27/08/2026

There’s just two weeks to go until #RememberACharity Week. A gift in your Will can give patients a voice for the future, find out more here: buff.ly/7Z5nY9r

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Patients Association @patients-association.org.uk · 27/08/2026

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Patients Association @patients-association.org.uk · 25/08/2026

Many people who could be eligible for NHS Continuing Healthcare don't apply because of misinformation, lack of awareness or concerns about the assessment process. Join our webinar with Compass CHC to find out what you need to know: buff.ly/HOys4Y4

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Patients Association @patients-association.org.uk · 23/07/2026

We're working with @pickereurope.bsky.social and Cora Health on updating Cora's communications framework. If you are living with an #MSK condition, or have used a community MSK service in the past 1-2 years, express your interest below buff.ly/AE8jJeR

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Patients Association @patients-association.org.uk · 14/07/2026

We welcome the recognition of patient experience as a core pillar of high quality care. Now we need to see the ambition for patients to have real power, not just voice, put into practice. Read our joint statement with @pickereurope.bsky.social on the new quality strategy: buff.ly/lXGRh5P

"We agree that delivering high quality care is a shared responsibility across the NHS and support the renewed focus on tackling structural inequalities and unwarranted variation within the health service. Strengthening how patient experience is measured and improved is essential – only by focusing on what matters most to patients, service users and their families and carers can care become truly person centred.

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Patients Association @patients-association.org.uk · 01/07/2026

Do you receive, or have you previously received, home enteral feeding and used homecare services? We're looking for patients and carers to share their experiences to help us understand what's working well, what could be improved, and what matters most. buff.ly/IjgJTjz

Expression of interest - Understanding home-enterally fed patients’ experience of homecare services

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Patients Association @patients-association.org.uk · 29/06/2026

Welcome to Patient Partnership Week 2026! At 3:45pm today we'll be kicking off our week of free webinars with a candid conversation with @drhnaqvi.bsky.social @nhs-rho.bsky.social that will explore the causes of health inequalities and the role of trust in improving outcomes #PPW2026

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Patients Association @patients-association.org.uk · 26/06/2026

Patient Partnership Week begins on Monday but there’s still time to register! Across seven free webinars, we’ll explore some of the biggest questions facing health and care today. Book now: buff.ly/R2pia4u #PPW2026

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Patients Association @patients-association.org.uk · 25/06/2026

Why do many patients still feel unheard, confused, or excluded when communicating with the NHS? Our webinar next week will explore whether NHS communication is truly designed with patients, or simply delivered to them. Book now: buff.ly/m89Eg9E

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Patients Association @patients-association.org.uk · 24/06/2026

What progress has been made on the 10 Year Health Plan’s commitment to give “power to the people” by amplifying patient voice, expanding patient choice and reprioritising people’s experiences of care? Join our free webinar with @pickereurope.bsky.social next week to discuss: buff.ly/OJHaL2V

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Patients Association @patients-association.org.uk · 23/06/2026

"I'm struggling to eat without it making me unwell… This is impacting my home life, work life and my mental health. Yet there is no rush." Find out how patients are impacted by delays to accessing care and more in Patient Experience Survey May 2026 report: buff.ly/YCFZyaB

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Patients Association @patients-association.org.uk · 20/06/2026

We're delighted to have Vivienne Parry OBE,  journalist and author, chairing our session on Why prioritising patient trust increases the value of using technology and data to improve research and care at #PPW2026 Book your free place: buff.ly/DN7qsSW

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Patients Association @patients-association.org.uk · 19/06/2026

Know your rights as a patient and understand what help you can get in our guide - now translated into Arabic, Bengali, Portuguese and more! www.patients-association.org.uk/patient-info...

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Patients Association @patients-association.org.uk · 19/06/2026

🤔 What does meaningful patient partnership actually look like in practice? Join us during #PatientPartnershipWeek2026 to explore the ideas shaping the future of care. Watch the video to find out more and register here: buff.ly/R2pia4u

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Patients Association @patients-association.org.uk · 17/06/2026

On Tuesday @sarahtilsed.bsky.social gave evidence to the committee that will scrutinise the NHS Modernisation Bill. Throughout the passage of this Bill, our question is: will these changes help patients receive better care and improve access, and how will we know if they do? buff.ly/FowFUxe

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Patients Association @patients-association.org.uk · 16/06/2026

From trust and health inequalities to patient choice, communication, data and AI, our #PPW2026 free webinars will tackle the issues shaping care now and in the future. Sign up: www.patients-association.org.uk/patient-part...

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Patients Association @patients-association.org.uk · 15/06/2026

We’re working with the National Academy for Social Prescribing (NASP) to learn about people’s experiences of social prescribing. Your feedback will help shape NASP’s strategy and support the delivery of the best, most appropriate social prescribing services for all Take the survey: buff.ly/wpPuL7w

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Patients Association @patients-association.org.uk · 11/06/2026

"When we did Data pact work, patients said they know there will be breaches. So if it happens, they need to be the first to be told. So it's just about transparency..." @rachel-p.bsky.social at #NHSConfedEXPO

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Patients Association @patients-association.org.uk · 11/06/2026

"If there is power to the patient, they need to have agency. Clinicians may be worried that patients will come into appts saying they have used AI to work out their health conditions...that's ok because it's their health! It's not saying clinicians are wrong" @rachel-p.bsky.social at #NHSConfedEXPO

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Patients Association @patients-association.org.uk · 11/06/2026

"The NHS faces a genuine productivity challenge, but patients are clear: efficiency gains cannot come at the cost of care quality or safety." This morning @rachel-p.bsky.social was on the panel for 'What does a post-productivity NHS look like?" at #NHSConfedEXPO

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Patients Association @patients-association.org.uk · 10/06/2026

Rachel is presenting at the NHS Excellence Awards this evening and speaking at these events tomorrow 👇

What does a pro-productivity NHS look like?
Thu 11 Jun · 08:30 – 09:30 · AI theatre
Panel member

AI in healthcare: Miracle cure or ethical hazard?
Thu 11 Jun · 10:00 – 10:40 · Exchange Auditorium
Panel member

For the 'data' good: balancing innovation, ethics and public value
Thu 11 Jun · 12:00 – 12:40 · Charter 3
Panel member

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Patients Association @patients-association.org.uk · 09/06/2026

Thank you to everyone joining our 'What does it really mean to wrap services around patients?' webinar this morning Our Chair Julie Thallon, along with Minal Bakhai, Rachel Quinn, Stella Vig and Mike Molete will be discussing what genuine person-centred care looks and feels like: buff.ly/hgfJd3F

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Patients Association @patients-association.org.uk · 09/06/2026

Our latest project set out to do something practical: to translate two patient information resources into six languages, and in doing so, to better understand the experiences of patients who speak English as an additional language in the UK.

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Patients Association @patients-association.org.uk · 28/05/2026

Too many patients move through a health and care system that is fragmented, complex and hard to navigate. What would it look like if we put the patient at the centre - not as a policy ambition, but as a lived reality? Join our free event: buff.ly/ENIVh94

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Patients Association @patients-association.org.uk · 27/05/2026

What drives health inequalities and what will it take to change them? @drhnaqvi.bsky.social will discuss the importance of building trust with communities to improve health outcomes in our first webinar of #PPW2026 on 29 June Book now: buff.ly/Jkjq3EV

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Patients Association @patients-association.org.uk · 25/05/2026

The 10 Year Health Plan and NHS Modernisation Bill both set out a clear ambition to put patient voice at the heart of NHS reform. Our Patient Experience Survey May 2026 report suggests there is still a long way to go in turning that ambition into everyday practice: buff.ly/kqh1StG

What matters to you? A question seldom asked
Seven in ten (69%) patients were never asked what matters to them during appointments
Just one fifth (17%) said their priorities were listened to and acted upon
Only two fifths (41%) felt like a genuine partner in their care

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Patients Association @patients-association.org.uk · 22/05/2026

Our helpline is now closed for the bank holiday weekend, and will reopen again on Tuesday 29th May at 9:30am. You can still view all our patient information on our website: buff.ly/EXCraHj

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Patients Association @patients-association.org.uk · 21/05/2026

Many patients in our survey described healthcare professionals as compassionate (57%) and competent (60%). At the same time, only 52% said they felt listened to and taken seriously in appointments. Our latest Patient Experience Survey: buff.ly/kqh1StG

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Patients Association @patients-association.org.uk · 19/05/2026

🗣️ "I find attending GP appointments extremely stressful as I am always dismissed and need to advocate every single time… This is so exhausting, especially when you are living with chronic conditions."

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Patients Association @patients-association.org.uk · 19/05/2026

🗣️ “Services are under such strain nobody has the capacity to go beyond a very basic service. You have to advocate for yourself."

Pressure on staff
Almost two thirds found healthcare professionals to be compassionate (60%) and competent (57%)
Just over half (52%) felt listened to and taken seriously in appointments
"I genuinely do not believe that the medical professionals don't care, it's that they are working to burn out."

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Patients Association @patients-association.org.uk · 19/05/2026

🗣️ “Sometimes hard to work out what test results mean. Is a high number a good thing? Do I need to change anything I am doing?”

Digital care
Seven in ten (72%) used the NHS App regularly or occasionally
Almost two thirds (63%) found it helpful
"After recently being in hospital it is disappointing to find none of my test results are available on the NHS app."

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Patients Association @patients-association.org.uk · 19/05/2026

🗣️ "Received an appointment letter 2 days after appointment; impossible to reach either the hospital switchboard or the department."

Lost in the system
Just over a third (37%) felt informed about their care
Half (52%) said their care was not well co-ordinated
“Lack of two-way communication. Emails from NHS are always 'no reply' so it's impossible to ask for further details or explanation."

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Patients Association @patients-association.org.uk · 19/05/2026

🗣️ "I'm struggling to eat without it making me unwell… This is impacting my home life, work life and my mental health. Yet there is no rush."

ACCESS: When care is delayed, lives are affected
Three quarters ( (74%) felt their overall quality of life had declined due to difficulty accessing NHS services

Two thirds (60%) experienced difficulties in their ability to work or carry out daily activities

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Patients Association @patients-association.org.uk · 19/05/2026

🗣️ “I have been trying to access basic care for 6 long agonising years and I am just hitting a brick wall… it is very traumatic”

ACCESS: Barriers to access faced by patients
More than half (57%) of respondents struggled to access both GP and hospital appointments

Two fifths (41%) were still waiting to access care; of those who self-identified as having disabilities, over half (52%) were still waiting to access care

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Patients Association @patients-association.org.uk · 11/05/2026

Our free webinar with NHS England on the NHS Online hospital launching in 2027 is happening today at 2pm. There's still time to register: buff.ly/jyG0kJT Hope to see you there!

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