A quiet revolution in care is helping patients with cardiac amyloidosis, a form of heart failure that long stumped doctors.

Tech testing panels (TTPs) can assess the #usability of patient-facing health technology and provide critical feedback; TTPs should draw upon diverse patient populations by language preference and with a range of technology usage and literacy to ensure that digital health interventions are equitably designed.

Participatory Medicine and AI for Health

The Society of Participatory Medicine hosts regular conferences throughout the year to help empower patients & healthcare professionals. March 20, 2025.

Participatory medicine focuses on the e-patient—equipped, enabled, empowered, and engaged. Physicians and healthcare teams bring clinical expertise across a range of diseases and conditions, while pat...

For many people, radiotherapy is something they know very little about until they, or someone close to them, need treatment.Clinical information plays an essential role in helping patients understand ...

YouTube video by North of Patient

YouTube video by Society for Participatory Medicine

For more than two decades, the government and healthcare organizations have been using surveys to gauge the effectiveness of patient/caregiver interactions between them and their healthcare providers....

The following is a guest article by Teddy Aaron, Founder and CEO at Soothe Note, and Brynn Forlizzi, Co-Founder and Head of Patient Experience at Soothe Note Many healthcare technologies focus on the apparent aspects of care. An appointment. An email notification. Lab results. A reminder. Follow-up notes. These aspects play a crucial role in

How AI transforms participatory medicine by giving patients new tools to understand medical research, manage personal health data, and act with greater agency.

A patient advocate and health leader shares how collaborating in partnership with her healthcare provider has led her to better health outcomes.

World Orphan Drug Congress USA is the globally leading event for advancing orphan drug development, market access, and rare disease patient care.

We are thrilled that Cait DesRoches, DrPH, MSc, has been appointed Principal Investigator for the Society for Participatory Medicine’s (SPM) signature initiative: the Collaborative Healthcare Action…

World Orphan Drug Congress USA is the globally leading event for advancing orphan drug development, market access, and rare disease patient care.

Background: The association between health literacy and health care costs, particularly for hospitalizations and emergency room services, has been previously observed. Health information…

Discover how OpenNotes is revolutionizing medical documentation by enhancing patient understanding, trust, and adherence, as discussed by healthcare experts on the Designing for Health podcast.

Experts worry that health officials' use of 'shared decision-making' in new vaccine guidance distorts the concept's meaning and disregards the importance of evidence.

Editor’s Note: Recent SPM articles have given a high-level overview of the responses to some questions that the Society for Participatory Medicine suggested for the Beryl Institute – IPSOS PX […]

Thirty-three years ago, as a new pediatrician, RWJ CEO Richard Besser had a conversation about vaccines with two parents-to-be. It still sticks with him.

What if the most powerful medicine wasn’t a pill, but a team grounded in compassion? Healthcare today is complex. No single clinician can meet every need of a patient navigating […]

Editor’s Note: Recent SPM articles have given a high-level overview of the responses to some questions that the Society for Participatory Medicine suggested for the Beryl Institute – IPSOS PX […]

Thirty-three years ago, as a new pediatrician, RWJ CEO Richard Besser had a conversation about vaccines with two parents-to-be. It still sticks with him.

What if the most powerful medicine wasn’t a pill, but a team grounded in compassion? Healthcare today is complex. No single clinician can meet every need of a patient navigating […]