100 EPISODES!!! It is hard to believe that over 6 years ago, we started Raising Rare as an experiment. How would people react to following the life of a young family affected by an ultra-rare disease...

Almost 7 years ago, Sanath Kumar Ramesh found out his son had an ultra-rare mutation. GPX4 This began a journey that would force him to grow into a man he never imagined. Part of his journey was this...

How do you tell whether a zebra is male or female? The male doesn’t’ talk about their #raredisease. This can be hard on them. There have been very few places for them to gather to take care of thei...

"Trust is the invisible thread that holds the caregiving relationship together. Without it, even the most well-intentioned care can feel hollow or transactional. But with it, caregiving becomes a powe...

“This journey has changed our lives, has reshaped my identity. Plans change, dreams shift. I've had to learn to become more than just a mom.”  Mariah only started this journey earlier this year....

The bottom line is to help families “who have been searching for oftentimes years to find the answers,” said Melissa Kelly, clinical laboratory director at the lab.