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Parkinson's Australia @parkinsonsaus.bsky.social · 12/06/2026

Major advocacy updates in our latest newsletter: info.parkinsons.org.au/jun26-news

info.parkinsons.org.au

Parkinson's Australia @parkinsonsaus.bsky.social · 05/06/2026

Catch up on reading this weekend. Go to the articles archive on YOPX and learn more about everything Parkinson's youngonsetparkinsons.org.au/resources/

youngonsetparkinsons.org.au

Resources Archive - Young Onset Parkinson's Exchange

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Parkinson's Australia @parkinsonsaus.bsky.social · 02/06/2026

Did you miss the latest in Senate Estimates? Watch Sen. Pocock grill the APVMA & check out our new #BanParaquat Campaign Page at www.parkinsons.org.au/campaigns/ba... to join nearly 20,000 Aussies who signed the @change.org petition.

change.org

Sign the Petition

Ban the use of Paraquat in Australia

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Parkinson's Australia @parkinsonsaus.bsky.social · 29/05/2026

People living with Parkinson's are more than their diagnosis. They're partners, parents, gym-goers, travellers, and friends. This end of financial year, donate to help fight stigma! DONATE NOW: hubs.la/Q04jkgkl0

hubs.la

GiveNow - I am more than my Parkinsons EOFY Campaign 2026

This EOFY, Support Parkinson's Australia Parkinson's doesn't discriminate. It affects parents, grandparents, athletes, CEOs, neighbours, best friendsanyone. But it doesn't define them.

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Parkinson's Australia @parkinsonsaus.bsky.social · 18/05/2026

Did you miss the latest announcements? Parkinson's Australia National Conference is back in May 2027 with Gaia Forlani! See her doing the Parkinson's eXchange Podcast, check out the latest clinical trials and more in our May News. Don't forget to subscribe! info.parkinsons.org.au/newsletter-m...

info.parkinsons.org.au

Parkinson's Australia May News: PANC27 announcement, advocacy highlights and more...

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Parkinson's Australia @parkinsonsaus.bsky.social · 28/04/2026

WEBINAR: 30/4 at 12:30 pm ACST "Australian digital health tools can make managing Parkinson’s easier." Register today: hubs.la/Q04dvrfC0 For anyone: - People living with Parkinson’s - Family - Carers - Allied health professionals - GPs, Geriatricians, Nurses - Support workers - Care teams.

hubs.la

Form

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Parkinson's Australia @parkinsonsaus.bsky.social · 27/04/2026

Help Parkinson’s Australia qualify for a #grant Can we count on your #VOTE TODAY? We could receive a share in $500,000 worth of grants this year through MyGivingCircle. Boost our chances by voting below and sharing this link with your networks now. mygivingcircle.org/parkinsons-a...

mygivingcircle.org

Vote for Parkinson's Australia — it's free and helps them share $500,000 in grants

Takes 10 seconds. Share this and make it count.

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Parkinson's Australia @parkinsonsaus.bsky.social · 20/04/2026

We're back with a MONDAY WEEKLY RECAP... Our Parkinson's eXchange Podcast launched hubs.la/Q04cGcLz0 Article hubs.la/Q04cGhvj0 Video hubs.la/Q04cGbTt0 Infohub hubs.la/Q04cGp6G0 Clinical Trial hubs.la/Q04cGjzt0 Carer Wellbeing Survey hubs.la/Q04cGrLf0 #ParkinsonsAwarenessMonth #KnowParkinsons

hubs.la

The Parkinson’s eXchange Podcast | Parkinson’s Australia

Real conversations. Real community. The Parkinson’s eXchange Podcast brings together the voices of Australians living with Parkinson’s, along with care partners, to share ho...

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Parkinson's Australia @parkinsonsaus.bsky.social · 17/04/2026

Serina is launching a #clinicaltrial for PwP aged 40–80 who have daily OFF episodes not optimally controlled with their current medications. Participants will stay at a Phase 1 unit for 7 days and return for a follow-up visit on Day 14. More info: www.parkinsons.org.au/news/serina/

parkinsons.org.au

Advancing Parkinson’s Care Through Innovation - Parkinson's Australia

Serina Therapeutics is a clinical-stage biotechnology company based in Huntsville, Alabama, [...]

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Parkinson's Australia @parkinsonsaus.bsky.social · 30/03/2026

WEBINAR TODAY: Digital Health tools to help manage your medical information, by our digital champion David, who lives with Parkinson’s. Hope you can make it, and he can show you how it helps with managing your PD journey. sv0d8.share.hsforms.com/2X4b9_R1RRz-...

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Parkinson's Australia @parkinsonsaus.bsky.social · 24/03/2026

Join Parkinson’s Australia for our next virtual roundtable TOMORROW, the 26th at 1 pm AEDT. Hear about our current work & share your stories. sv0d8.share.hsforms.com/2kP5I0G4LRem... #ParkinsonsAustralia #YOPD #Parkinsonsdisease #Connect #VirtualRoundtable #banparaquat #endparkinsons

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Parkinson's Australia @parkinsonsaus.bsky.social · 24/03/2026

Join the fight. to#banparaquat in Australia today: www.change.org/p/ban-the-us...

change.org

Sign the Petition

Ban the use of Paraquat in Australia

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Parkinson's Australia @parkinsonsaus.bsky.social · 20/02/2026

We’re asking people living with Parkinson’s and their unpaid daily carers to take part in a short survey about their healthcare needs. www.surveymonkey.com/r/LQGYBDN It’s confidential, and hearing about your lived experiences is the single best way we can improve advocacy, awareness and education.

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Parkinson's Australia @parkinsonsaus.bsky.social · 16/02/2026

Good morning recap: CLINICAL TRIAL hubs.la/Q042n_520 VIDEO hubs.la/Q042n_rv0 INFOHUB hubs.la/Q042n-VR0 YOPX hubs.la/Q042nZLj0 KIM'S SWIMMING FUNDRAISER FOR PA IN HONOUR OF HER DAD hubs.la/Q042nZBN0

hubs.la

Advancing Parkinson’s Care Through Innovation - Parkinson's Australia

Serina Therapeutics is a clinical-stage biotechnology company based in Huntsville, Alabama, [...]

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Parkinson's Australia @parkinsonsaus.bsky.social · 16/02/2026

Have you discovered the Parkinson’s Australia YouTube channel yet? www.youtube.com/@ParkinsonsAus Watch or listen to Clinical trials in Australia overview, 2025 Conference talks, Constipation management, Bladder & PD and more...

youtube.com

Parkinson's Australia

Parkinson’s Australia is the national voice and advocate for people living with Parkinson’s, their families and carers, researchers, and health professionals. We are committed to connecting our commun...

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Parkinson's Australia @parkinsonsaus.bsky.social · 13/02/2026

So, what's the deal with the ubiquitous, tiny #microplastics floating in the air for us to breathe in, sitting on our food to eat, and bottled in our water to drink? What are the growing concerns for our overall health, and where does Parkinson's fit in? youngonsetparkinsons.org.au/resources/mi...

youngonsetparkinsons.org.au

101 | Microplastics & Parkinson's - Young Onset Parkinson's Exchange

While we cannot avoid plastics entirely, we can follow the "precautionary principle" and take simple, reasonable steps to reduce our exposure risks where possible. These healthier choices we make will...

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Parkinson's Australia @parkinsonsaus.bsky.social · 07/02/2026

Good morning recap... The National Parkinson's Survey, now open & 10 rural papers picked up the story: hubs.la/Q041bT0W0 Clinical Trials: hubs.la/Q041bTb_0 Festination: hubs.la/Q041bPP40 YouTube video Sleep & PD: hubs.la/Q041bS_10 Over 60 Australian landmarks will #SparkTheNight: hubs.la/Q041bSRL0

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Parkinson's Australia @parkinsonsaus.bsky.social · 02/02/2026

Our National Parkinson's Survey is now open through March 10, 2026. WE WANT TO HEAR FROM YOU! www.surveymonkey.com/r/LQGYBDN We need all voices across Australia to be represented in this confidential, deidentified survey about your healthcare challenges.

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Parkinson's Australia @parkinsonsaus.bsky.social · 27/01/2026

The most up-to-date info on Parkinson's that you can trust... reviewed by experts and peak bodies (e.g. ESSA, OTAus, SPAus, PCA, AASW) visit the INFO HUB to learn more about living well with Parkinson's at hubs.la/Q040rMSk0 @followers #parkinsonsawareness #symptoms #ParkinsonsEducation

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Parkinson's Australia @parkinsonsaus.bsky.social · 19/01/2026

We want to hear from YOU if you live in RRR Australia & are living with PD or are their caregivers (spouses, partners, family members & friends who offer daily support to a person living with PD). Take our quick National PD Survey to help shape better support for your community: hubs.la/Q03_3VWL0

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Parkinson's Australia @parkinsonsaus.bsky.social · 19/01/2026

"YOUR VOICE, YOUR NEEDS" PDEX SURVEY Your input will guide the Parkinson’s Disease Education Exchange (PDEX) project, which aims to build a health‑professional education program shaped directly by lived experience. www.surveymonkey.com/r/LQGYBDN

surveymonkey.com

Your Voice, Your Needs

Take this survey powered by surveymonkey.com. Create your own surveys for free.

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Parkinson's Australia @parkinsonsaus.bsky.social · 15/01/2026

LAST CHANCE TO PARTICIPATE! Inviting people living with Parkinson’s or Parkinson’s Plus conditions to take part in a national study using the Patient Activation Measure (PAM®). It takes just 2 to 3 minutes to help us support you in the best way possible. Register here: hubs.la/Q03Q9b0h0

hubs.la

Form

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Parkinson's Australia @parkinsonsaus.bsky.social · 08/01/2026

Wellbeing while living with Parkinson's made easy through our Live Well Booklet. Download, print or read our tips online here: parkinsons.org.au/i-have-parki...

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Parkinson's Australia @parkinsonsaus.bsky.social · 08/12/2025

Do you have PD or Atypical Parkinson's and keen to contribute to a stronger, more responsive Parkinson’s community? We’d love to hear from you. Just complete a short survey called the Patient Activation Measure (PAM®). It takes just 2-3 mins to complete. sv0d8.share.hsforms.com/2v4u1h3DwR0-...

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Parkinson's Australia @parkinsonsaus.bsky.social · 01/12/2025

Our clever corgi is here to tell you - go to the Education & Training Page and the Parkinson’s MOOC is back and always open! Whether you’re a health professional, carer, or simply curious about Parkinson's, check it out, start learning today & revisit anytime: www.parkinsons.org.au/downloads/ed...

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Reposted by Parkinson's Australia

Michael Okun @michaelokun.bsky.social · 27/11/2025

Do you know the 11 possible ways to prevent Parkinson’s before it starts? Louise Carpenter describes in an article she wrote in today's edition of the Telegraph about how rising exposure to man-made chemicals in our food, water and air may be driving what we call the Parkinson’s pandemic. #parkinson

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Parkinson's Australia @parkinsonsaus.bsky.social · 28/11/2025

Free Wills Black Friday $0 Deal til Dec 1 safewill.com/parkinsonsau...

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Parkinson's Australia @parkinsonsaus.bsky.social · 14/11/2025

Help improve support for unpaid carers: If you care for someone with a disability, a medical condition or illness, a mental health condition, or who is frail and aged & you’re not paid for it, please share your views. Survey closes 19 Nov, 11:59PM. nousgroupau.qualtrics.com/jfe/form/SV_...

nousgroupau.qualtrics.com

Qualtrics Survey | Qualtrics Experience Management

The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.

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Parkinson's Australia @parkinsonsaus.bsky.social · 11/11/2025

Our Australian #BanParaquat (PQ) campaign on Thurs, 13 Nov, 1 pm (ACDT). REGISTER NOW: hubs.la/Q03SkNjj0 Did you know that over 70 countries have already banned Paraquat, including China & the UK, which still export it but won’t allow its use at home. Yet the US and Australia continue to use it…

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Parkinson's Australia @parkinsonsaus.bsky.social · 06/11/2025

Do you know someone with Parkinson's disease? This is your opportunity to help advance medical research by participating in a clinical trial with @cmaxclinicaltrials. Eligible participants will be paid for their time and valuable contribution. Find out more: www.cmax.com.au/c14625-the-n...

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Parkinson's Australia @parkinsonsaus.bsky.social · 04/11/2025

Download the FREE YOPX app to get articles like these and notifications about what is happening in Australia (e.g. clinical trials, NDIS consultations, Surveys, webinars & more): youngonsetparkinsons.org.au/resources/

youngonsetparkinsons.org.au

Resources Archive - Young Onset Parkinson's Exchange

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Parkinson's Australia @parkinsonsaus.bsky.social · 31/10/2025

If you, or someone you know, is moving to Support at Home, please note that the new Aged Care Act comes into effect tomorrow 1/11/25. More info about service agreements and the transition to Support at Home www.health.gov.au/resources/co...

health.gov.au

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Parkinson's Australia @parkinsonsaus.bsky.social · 21/10/2025

NDIS is reviewing Smart Home Appliances & Exercise Physiology as funding items. If you live with Young Onset Parkinson’s and use these, speak up before 9 Nov! Your voice changed things before, let’s do it again here: consultations.health.gov.au/evidence-adv... #NDIS

consultations.health.gov.au

NDIS Evidence Advisory Committee Consultation September2025 - Australian Government Department of Health, Disability and Ageing - Citizen Space

The site lists consultations that are run by the Department of Health, Disability and Ageing. On this site you can find, share or take part in consultations.

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Parkinson's Australia @parkinsonsaus.bsky.social · 20/10/2025

Young #carers aged 12 to 25 who help care for a parent with Parkinson’s may be eligible for a $4,000 bursary to support their education. Apply by 7 Nov 2025 hubs.la/Q03PfQK_0

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Parkinson's Australia @parkinsonsaus.bsky.social · 18/09/2025

If you or someone you love is noticing changes that don’t feel quite right, don’t wait. Learn more about early signs, early intervention strategies and support options on our website. #Parkinsonsdiagnosis #YOPD #whatsyourstory Michael's story: www.smh.com.au/lifestyle/he...

smh.com.au

Michael knew something wasn’t right. His diagnosis knocked him for six

A life-changing illness threw his life into disarray and sent him into a mental health spiral. Finding a way to live with it has helped Michael recover the joy.

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Parkinson's Australia @parkinsonsaus.bsky.social · 01/09/2025

As an Accessible Product Design Alliance member, we’d love to hear about your experiences with HOME AND GARDEN CARE PRODUCTS. What makes them hard to open, use, or store? And what changes would make them easier? Please share your thoughts in this short survey: forms.gle/o91Hogto8Ep7...

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Parkinson's Australia @parkinsonsaus.bsky.social · 29/08/2025

Our April 2025 Parkinson's Australia National Conference (#PANC) Videos are out now in case you missed it, and mark your calendars for May 2027 for PANC 2027! info.parkinsons.org.au/panc-2025-vi...

info.parkinsons.org.au

PANC 2025 - Conference Videos out now!

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Parkinson's Australia @parkinsonsaus.bsky.social · 28/08/2025

Parkinson’s doesn’t follow a straight line; neither should your care. Dr Mischley unveiled eye-opening insights from thousands of users worldwide, but said we need more Australians in the mix. Watch the #PANC25 talk on YouTube @parkinsonsaus. Track your symptoms with the PRO-PD app hubs.la/Q03FLPbk0

hubs.la

Parkinson Symptom Tracking (PRO-PD App)

The PRO-PD turns vague, fluctuating symptoms into a numerical, trackable, shareable PD severity score. Use it to set goals & communicate with your physicians.

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Parkinson's Australia @parkinsonsaus.bsky.social · 03/08/2025

Did you hear the news? Parkinson's Australia had the honour of sharing the stories of those whose lives had been changed by participating in the VYALEV® trial, as well as those of family and friends who had also witnessed the changes in their loved ones. info.parkinsons.org.au/vyalev?hs_pr...

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Parkinson's Australia @parkinsonsaus.bsky.social · 31/07/2025

Empower your journey from diagnosis onward with our LIVE WELL WITH PARKINSON'S booklet. All ten topics are designed to help you craft a personalised care plan and keep enjoying the things you love. Download your copy now: www.parkinsons.org.au/wp-content/u... #LiveWell #ParkinsonsAustralia

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Parkinson's Australia @parkinsonsaus.bsky.social · 18/07/2025

Download or update your app today. Take a look & do the survey. App Store: apps.apple.com/us/app/young... Google Play: play.google.com/store/apps/d... Participate in our YOPX Users survey for a chance to win. Go to: sv0d8.share.hsforms.com/2Z3xjaA-bQIW... Be Quick! Survey closes August 8th.

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Parkinson's Australia @parkinsonsaus.bsky.social · 07/07/2025

Are you living with Parkinson’s (or Atypical PD), an unpaid carer for someone who is, or a family member? Your insights can help shape a stronger, more responsive future. The confidential and anonymous survey is open throughout July 2025. 👉 Complete it here: t.co/Xx2ONgSfUP t.co/bWxxEXmJZa

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Parkinson's Australia @parkinsonsaus.bsky.social · 04/07/2025

Download the newly updated Young Onset Parkinson's Exchange app (YOPX app) today from the Apple App Store or Google Play for tips and resources. - IOS: apps.apple.com/us/app/young... - Android: play.google.com/store/apps/d...

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Parkinson's Australia @parkinsonsaus.bsky.social · 03/07/2025

🧠 Join Prof. Richard Bittar, Mon 21 July @ 7:30pm for a free webinar on Deep Brain Stimulation & MR-Guided Focused Ultrasound for Parkinson’s & Essential Tremor. Live Q&A included! Register: forms.office.com/r/uLc3jWdttY #ParkinsonsAustralia #MRgFUS #DBS #MovementDisorders #Webinar

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Parkinson's Australia @parkinsonsaus.bsky.social · 30/06/2025

NEXT Virtual Roundtable WED 9/7 1PM - We’re here to listen to your lived experiences & show you how your voice shapes our advocacy and awareness-raising. Register hubs.la/Q03p9hQd0 #HealthyConversations

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