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Cleo👠✨

@ozgib.bsky.social
171 followers 89 following 1.7K posts

Silliness ~ Movies ~ Music ~ Being supportive ~ Animals ~ Nature ~ Arts & crafts ~ INFJ 👉🏻NO unsolicited DMs👈🏻 ♿️ Myalgic encephalomyelitis, Fibro, hEDS, LongCovid, MCAS, POTS

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Reposted by Cleo👠✨
Chronic Illness Humor @chronicillness.bsky.social · 28/09/2026
"What's wrong with you?"

Well, there's a list, but I don't think it's complete yet.

@fitty_shades_of_craycray
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Reposted by Cleo👠✨
Eleanor Fielding @meownersclub.bsky.social · 29/09/2026
Make the NHS modules on #ME compulsory instead of voluntary c.org/TGcmGtvN98a
c.org
Sign the Petition
Make ME/CFS learning mandatory for NHS staff
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Cleo👠✨ @ozgib.bsky.social · 29/09/2026
Wordle 1,928 2/6 🟩🟩🟨⬛⬛ 🟩🟩🟩🟩🟩 Small achievements... 😊
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Cleo👠✨ @ozgib.bsky.social · 28/09/2026
PIP assessment report. It makes me feel physically sick how many "has no trouble with=0 points" that are in it. It's hugely suspicious that these reports are always just 1 point under the next tier of support. But I have a transcript of the actual interview, so I can challenge the decision/lies.
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Reposted by Cleo👠✨
Fi Bowler @fibowler.bsky.social · 28/09/2026
So far this morning Reg has: - dived headfirst off of a chest of drawers onto Margo Leadbetter - opened all of the kitchen cupboards - got the zoomies so intensely that he toboggan slid down the stairs He is currently sat in said chest of drawers plotting, I assume, my demise
Tuxedo cat peering round the side of a chest of drawers
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Cleo👠✨ @ozgib.bsky.social · 27/09/2026
Me too, Oz buddy. Me too. #FedUp
Black cat fast asleep with face buried in blanket.
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Reposted by Cleo👠✨
Alem Matthees @alemmatthees.bsky.social · 27/09/2026
"Have you tried yoga?" Yes I have, and it looked something like this amusing image I found on Reddit. www.reddit.com/r/cfs/commen... Jokes aside, there are many forms of yoga, and one thing I noticed about #MECFS is how it renders useless the benefits of yoga and even makes them harmful.
Images depicting a person attempting yoga then moving into the sleeping position under a blanket and taking a nap.
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Cleo👠✨ @ozgib.bsky.social · 26/09/2026
Ocular Migraines are just weird (aka "migraine with aura") Vision loss & sight related weirdness aside, the period after is just odd. I feel like I'm in the wrong timezone or in a glass bubble. Not "really here". 🥴 Still, it's nice to focus on something other than chronic pain & exhaustion. 🤷🏼‍♀️
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Cleo👠✨ @ozgib.bsky.social · 26/09/2026
The pigeon day spa is going well. Just need to train them to find money and leave it at my door.
Lawn with 16 sitting or standing pigeons, plus 5 more in large bird baths
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Cleo👠✨ @ozgib.bsky.social · 24/09/2026
I ❤️ George. Thank you for speaking up so publicly, giving those of us with ME an article worth sharing with the community. #MECFS #MyalgicEncephalomyelitis www.theguardian.com/commentisfre...
theguardian.com
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
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Reposted by Cleo👠✨
Nathalie Sheridan @nasheridan.bsky.social · 23/09/2026
Please help Chenai with her petition 🙏 #HaringeyCouncil #Disability c.org/svGQCFG6Zq
c.org
Sign the Petition
I’m 24, Medically Fit to Leave Hospital. So Why Has Haringey Council Left Me to Rot Here?
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Cleo👠✨ @ozgib.bsky.social · 23/09/2026
So, just to confirm: the assessing company (e.g Ingeus) that DWP use are the only ones who can send you audio recordings.
Text reads: Cleo, you asked for your health assessment recording. You can access it at https:// haas.dwp.bondap.com
You'll need your one-time passcode xxxx and your National Insurance number. This link is just for you, do not share it. It works for 7 days. From HAAS on behalf of DWP.
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Cleo👠✨ @ozgib.bsky.social · 22/09/2026
When PEM goes bad. Already being careful, not doing too much, but even doing basic functions is "too much" and I've ended up overdosing supplements & meds for the 2nd time in 5 days, and falling over & spraining my wrist, ankle & shoulder. I'm just so frustrated it makes me furious. #Venting
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Reposted by Cleo👠✨
Nathalie Sheridan @nasheridan.bsky.social · 21/09/2026
For my #Fibromyalgia #JointPain #Migraine friends - I've just downloaded the Baro Buddy app to track & monitor barometric pressure changes that affect health so much. Free & paid service available for Apple & Android
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Cleo👠✨ @ozgib.bsky.social · 21/09/2026
Why isn't this in the news? VAT off any bill is *something* so it's more than welcome off of energy bills!
Latest news: the government are cutting VAT off household electricity bills from October 1st. We'll pass the cut on to all customers that day, whatever tariff you're on.
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Cleo👠✨ @ozgib.bsky.social · 21/09/2026
Quote for my fellow #ChronicIllness spoonies 💞
"You are so brave and quiet I forget you are suffering."
- Ernest Hemingway
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Cleo👠✨ @ozgib.bsky.social · 20/09/2026
Wordle 1,919 3/6 🟩⬛🟩🟩🟩 🟩⬛🟩🟩🟩 🟩🟩🟩🟩🟩 You beat me by 1 @notsoskinnypete.bsky.social 😁
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Cleo👠✨ @ozgib.bsky.social · 19/09/2026
Big hugs to @nasheridan.bsky.social for my giftage! I've never tried Tony's chocolate before so tonight will be a tasty adventure into the unknown. Nat, you rock! 🥰💞
Image shows card with 1920's woman resting on chair and a big bar of tony's chocolate
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Cleo👠✨ @ozgib.bsky.social · 18/09/2026
PIP assessment lady just rang me to say they don't have an audio recording of the assessment for me but the DWP do, so I need to ring them direct for the copy. Good job I recorded my own.
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Cleo👠✨ @ozgib.bsky.social · 17/09/2026
T-60 minutes. Please send good vibes 😰
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Cleo👠✨ @ozgib.bsky.social · 16/09/2026
😭😭😭😭😭😭💔💔💔💔💔💔💔💔💔💔💔💔💔💔
Body found in search for missing three-year-old Noah Woods, who went missing
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Reposted by Cleo👠✨
Nathalie Sheridan @nasheridan.bsky.social · 16/09/2026
Petition to request a Review of Legal Rights to Wheelchair Spaces on Buses and Coaches - I'm not a wheelchair user but often see the regular battle on buses that they face just to be able to go about their daily lives petition.parliament.uk/petitions/77... www.instagram.com/p/DdWMlGwCAM...
instagram.com
Instagram
Create an account or log in to Instagram - Share what you're into with the people who get you.
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Cleo👠✨ @ozgib.bsky.social · 16/09/2026
My heart is hurting for every hour that little boy is not found. Kudos to everyone in the local community joining in the search. Please let him be ok 💔 www.bbc.co.uk/news/live/cw...
bbc.co.uk
Volunteers searching for Noah Woods, 3, told 'remember you are looking for frightened child'
Noah, who is partially deaf and non-verbal, had been with a relative when he went missing from a playground in Suffolk on Tuesday afternoon, say police.
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Cleo👠✨ @ozgib.bsky.social · 16/09/2026
It's a good job I'm getting PIP texts from the DWP considering I STILL haven't had my assessment notification letter through via the Royal Mail and the appointment is tomorrow at 10am. 🤯 Appalling lack of service. I wonder if my NHS appointment letter I've been waiting for will also arrive too late?
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Cleo👠✨ @ozgib.bsky.social · 15/09/2026
*sigh*
Ugly person cartoon with the text ackchyally
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Cleo👠✨ @ozgib.bsky.social · 14/09/2026
Reposting the evilly fun stuff 😆
I understand that people are buying RNLI Christmas cards in order to add money to all the donations which are flooding in.
Now it appears that some are planning to buy them and send them to Reform's free post address.
Really, if you did that, it would cost them an awful lot of money.
But people want to know if such an address exists.
It does.
Reform UK
Freepost RTLT-ZXHY-KSDC
83 Victoria Street
London SW1H OHW
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Reposted by Cleo👠✨
@BendyHEDS&Co @bendyhedsandco.bsky.social · 13/09/2026
#MTHFR Petition: End the mandatory fortification of white flour with folic acid immediately We call on the Government to stop the fortification of flour with synthetic folic acid. petition.parliament.uk/petitions/76...
petition.parliament.uk
Petition: End the mandatory fortification of white flour with folic acid immediately
We call on the Government to stop the fortification of flour with synthetic folic acid. Folic acid is a medicine not a food. We believe it is unethical to mass medicate the entire population without t...
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Reposted by Cleo👠✨
Paula Knight 🎨✒️♿ @paulaknight.bsky.social · 13/09/2026
A couple of weeks ago it was my 3000th day bedridden. I drew this to mark the occasion. It's a long time for both illness-haver and carer #MyalgicEncephalomyelitis #MEcfs #ChronicIllness #DisabledArtists
A three panel one page comic featuring a white woman in a profiling bed in grey blue watercolour and the words 3,000 days in bed with severe myalgic encephalomyelitis. Other colours are brick red and muted orange
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Cleo👠✨ @ozgib.bsky.social · 12/09/2026
Acidentally doubled dosed my painkillers earlier. Wasn't sure at first. Now I know... 🤪🫠🙄
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Reposted by Cleo👠✨
Doctor Beverly Crusher @spacedocmom.bsky.social · 11/09/2026
Calling chronically ill/disabled people "brave" or "inspiring" is not the compliment health-privileged people imagine it to be. It devalues their lives by implying only healthy/abled folks' lives are worth living. That's health supremacy. 🖤💙😷🥄
11/09/2026
Doctor Beverly Crusher
@SpaceDocMom
Incoming Transmission...

Calling chronically ill/disabled people "brave" or "inspiring" is not the compliment health-privileged people imagine it to be. It devalues their lives by implying only healthy/abled folks' lives are worth living. That's health supremacy. emojis: black heart, blue heart, masked, spoon
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Cleo👠✨ @ozgib.bsky.social · 09/09/2026
Oh hell no. Read the description (the penultimate paragraph). ☠️ www.onthemarket.com/details/1728...
onthemarket.com
West Harting, Petersfield, GU31 3 bed barn conversion - £450,000
Henry Adams - Petersfield present this 3 bedroom barn conversion in West Harting, Petersfield, GU31
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Cleo👠✨ @ozgib.bsky.social · 08/09/2026
What a shocker, not. Who is surprised? They are soooo damn crafty. Record all meetings in secret. It's the only option for us.
You requested a copy of the recording of your assessment.
Unfortunately, due to technical difficulties, your assessment did not record. We are therefore unable to send you a copy.
If you need to contact us, email our Customer Relations Team at lot4.customerrelations@haas.dwp.gov.uk.
Yours sincerely,
Health Assessment Advisory Service
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Cleo👠✨ @ozgib.bsky.social · 08/09/2026
All over increased fibro pain is today's symptom winner, and it's no coincidence that outside there is low pressure with rain. Hang in there, fibro folk with rain today. Tomorrow will be better, the weatherman said so. 🤞🏻 #Fibromyalgia #ChronicPain
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Cleo👠✨ @ozgib.bsky.social · 07/09/2026
Noisy seagulls calling to each other on the roof. So I go outside and play the sound of a hawk really loud to scare them off. Did it work? Did it bollocks. Now the seagulls are clearly laughing at me. 🙄
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Cleo👠✨ @ozgib.bsky.social · 07/09/2026
I know why they posted this, but it really does water down the word "disabled" to the clueless general public, who already do not understand the severity of symptoms from conditions many disabled people live with, and then we end up with articles like this:
If you wear glasses/contacts you're disabled. I think some, even other disabled ppl, forget about this be it's a disability that is largely heavily accommodated in much of the worldTelegraph article titled: How having a disability became cool.
Young women, nicknamed 'sickfluencers', are turning chronic illness into a lifestyle trend and entrenching a culture of economic inactivity
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Reposted by Cleo👠✨
RetroSteveUK @retrosteveuk.bsky.social · 07/09/2026
Heads-up for classic Lilt fans. This Pineapple & Grapefruit Crush is an obvious aim at recreating Lilt, and as far as I can remember the original taste, they've done a spot-on job of hitting the target, even with the no added sugar thing. Under a quid for a 2L bottle as well!
Empty bottle of Sainsbury's Pineapple & Grapefruit Crush. Tastes like Lilt.
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Cleo👠✨ @ozgib.bsky.social · 05/09/2026
Wowsers, why wouldn't you want a full size Titanic in the sky rather than stupid fireworks? Can you imagine the stories they could tell and the imaginations drone shapes could spark during celebrations instead of sodding, stupid fireworks? youtube.com/watch?v=BXkT...
youtube.com
TITANIC brought back to life in BELFAST
YouTube video by BBC Northern Ireland
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Cleo👠✨ @ozgib.bsky.social · 03/09/2026
Nooooooo.... it's a telephone call! 😔
Pip appointment text showing it's a telephone call
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Cleo👠✨ @ozgib.bsky.social · 31/08/2026
Beaches just popped up on iplayer, for those of you who like afternoon movies on a bank holiday 😊
bbc iplayer page showing the movie beaches ready to play
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Cleo👠✨ @ozgib.bsky.social · 30/08/2026
@bsky.app can you please fix this latest bug for iphone users where typing more than a screen of text means anything else we type is hidden behind the keyboard. The page will not move up/down. Currently having to use my notes app to type replies, cut & paste. Screenshot of typing space 👇🏻
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Cleo👠✨ @ozgib.bsky.social · 28/08/2026
A week on and I'm still feeling rough and ill after my assessment. PEM is a bastard! I may run out of tissues soon if my nose doesn't stop streaming 🤧
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Reposted by Cleo👠✨
Patients with Power @ptswithpower.com · 28/08/2026
Why is it that every time I have to describe something medical, people don't believe it till a doctor signs off on it. Imagine if they were like that about cars.. "I couldn't get my car started this morning" "Did a mechanic actually say it wouldn't start, or is it just you thinking that?" #NEISvoid
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Cleo👠✨ @ozgib.bsky.social · 24/08/2026
I wish I could sign this 1000x. Ffs. 🐾❤️‍🩹 petition.parliament.uk/petitions/77...
petition.parliament.uk
Petition: Make catapult attacks against animals a standalone criminal offence
Introduce legislation in England to make it a specific, standalone criminal offence to intentionally or recklessly use, discharge or attempt to discharge a catapult or slingshot at or towards any anim...
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Cleo👠✨ @ozgib.bsky.social · 24/08/2026
Dentist done ✅ I will never understand how stabbing my gums everywhere with a metal point is a check on their health. Just prod with a rounded tipped lolly stick. Preferably with the lolly still on.
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Cleo👠✨ @ozgib.bsky.social · 23/08/2026
This could be handy when friends send the "hi how are you?" messages out of the blue & you just cannot deal due to cog fog. Auto reply generator. Handy for those with #LongCovid #Fibromyalgia #pwME #MECFS #EDS #ChronicPain #ChronicIllness #BrainFog #Disability www.wikihow.com/Generator/Te...
wikihow.com
Text Response Generator: Reply Ideas for Any Message
Craft the perfect reply to any text messageWhether you're answering a flirty message, a confusing one, or just trying to keep the vibe going, this tool helps you create the ideal response. Choose the ...
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Cleo👠✨ @ozgib.bsky.social · 21/08/2026
😬🫨😬🫨😬🫨😬🫨
static.klipy.com
Nervous Nilly (30 Rock) Spills Water
Alt: Nervous Nilly from 30 Rock Spills Water as he tries to drink it from a bottle from shaking
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Cleo👠✨ @ozgib.bsky.social · 19/08/2026
No, please keep reminding me. 🫨🫨🫨🫨🫨 WHO FORGETS these life altering appointments ffs? I'm already shaking and feel sick with worry and stress. Nobody needs these triggers. Urghhhhhh.
D w p text reminding me again of the e s a assessment on friday
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Reposted by Cleo👠✨
Emma Tylor @emmatylor.bsky.social · 18/08/2026
Twilight Meadows #3 by Lucy Moore Acrylic Painting by Lucy Moore #art #painting #contemporaryart #fineart #flowers
The "Twilight Meadows #3" acrylic painting by Lucy Moore shows a meadow of colorful wildflowers against a vast blueish/purpley sky.
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Cleo👠✨ @ozgib.bsky.social · 17/08/2026
For my fellow disabled friends, please take note every time a TV show gives undeserved airtime to these utter twats threatening our disability payments & spiking our anxiety for our future;
Why do the BBC insist on giving us Reform's view on everything?
They make a lot of noise but at the end of the day they are a party of 8 MPs, not all of whom were elected as Reform MPs.
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Cleo👠✨ @ozgib.bsky.social · 15/08/2026
No wonder people chuck expired cooking oils down the drain (don't do this!) as there are zero places nearby for me to dispose of it. The only companies that take it will only collect from businesses. My only option is to slowly dispose of it, bit by bit, when I chuck out the corn cat litter. 🤦🏼‍♀️
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