Reposted by Cleo👠✨Eleanor Fielding @meownersclub.bsky.social · 29/09/2026Make the NHS modules on #ME compulsory instead of voluntary c.org/TGcmGtvN98ac.orgSign the PetitionMake ME/CFS learning mandatory for NHS staff 22515
Cleo👠✨ @ozgib.bsky.social · 28/09/2026PIP assessment report. It makes me feel physically sick how many "has no trouble with=0 points" that are in it. It's hugely suspicious that these reports are always just 1 point under the next tier of support. But I have a transcript of the actual interview, so I can challenge the decision/lies. 350
Reposted by Cleo👠✨Fi Bowler @fibowler.bsky.social · 28/09/2026So far this morning Reg has: - dived headfirst off of a chest of drawers onto Margo Leadbetter - opened all of the kitchen cupboards - got the zoomies so intensely that he toboggan slid down the stairs He is currently sat in said chest of drawers plotting, I assume, my demise 926312
Reposted by Cleo👠✨Alem Matthees @alemmatthees.bsky.social · 27/09/2026"Have you tried yoga?" Yes I have, and it looked something like this amusing image I found on Reddit. www.reddit.com/r/cfs/commen... Jokes aside, there are many forms of yoga, and one thing I noticed about #MECFS is how it renders useless the benefits of yoga and even makes them harmful. 7498
Cleo👠✨ @ozgib.bsky.social · 26/09/2026Ocular Migraines are just weird (aka "migraine with aura") Vision loss & sight related weirdness aside, the period after is just odd. I feel like I'm in the wrong timezone or in a glass bubble. Not "really here". 🥴 Still, it's nice to focus on something other than chronic pain & exhaustion. 🤷🏼♀️ 010
Cleo👠✨ @ozgib.bsky.social · 26/09/2026The pigeon day spa is going well. Just need to train them to find money and leave it at my door. 000
Cleo👠✨ @ozgib.bsky.social · 24/09/2026I ❤️ George. Thank you for speaking up so publicly, giving those of us with ME an article worth sharing with the community. #MECFS #MyalgicEncephalomyelitis www.theguardian.com/commentisfre...theguardian.comAbandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George MonbiotChanges in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot 043
Reposted by Cleo👠✨Nathalie Sheridan @nasheridan.bsky.social · 23/09/2026Please help Chenai with her petition 🙏 #HaringeyCouncil #Disability c.org/svGQCFG6Zqc.orgSign the PetitionI’m 24, Medically Fit to Leave Hospital. So Why Has Haringey Council Left Me to Rot Here? 111
Cleo👠✨ @ozgib.bsky.social · 23/09/2026So, just to confirm: the assessing company (e.g Ingeus) that DWP use are the only ones who can send you audio recordings. 010
Cleo👠✨ @ozgib.bsky.social · 22/09/2026When PEM goes bad. Already being careful, not doing too much, but even doing basic functions is "too much" and I've ended up overdosing supplements & meds for the 2nd time in 5 days, and falling over & spraining my wrist, ankle & shoulder. I'm just so frustrated it makes me furious. #Venting 210
Reposted by Cleo👠✨Nathalie Sheridan @nasheridan.bsky.social · 21/09/2026For my #Fibromyalgia #JointPain #Migraine friends - I've just downloaded the Baro Buddy app to track & monitor barometric pressure changes that affect health so much. Free & paid service available for Apple & Android 091
Cleo👠✨ @ozgib.bsky.social · 21/09/2026Why isn't this in the news? VAT off any bill is *something* so it's more than welcome off of energy bills! 111
Cleo👠✨ @ozgib.bsky.social · 20/09/2026Wordle 1,919 3/6 🟩⬛🟩🟩🟩 🟩⬛🟩🟩🟩 🟩🟩🟩🟩🟩 You beat me by 1 @notsoskinnypete.bsky.social 😁 112
Cleo👠✨ @ozgib.bsky.social · 19/09/2026Big hugs to @nasheridan.bsky.social for my giftage! I've never tried Tony's chocolate before so tonight will be a tasty adventure into the unknown. Nat, you rock! 🥰💞 240
Cleo👠✨ @ozgib.bsky.social · 18/09/2026PIP assessment lady just rang me to say they don't have an audio recording of the assessment for me but the DWP do, so I need to ring them direct for the copy. Good job I recorded my own. 210
Reposted by Cleo👠✨Nathalie Sheridan @nasheridan.bsky.social · 16/09/2026Petition to request a Review of Legal Rights to Wheelchair Spaces on Buses and Coaches - I'm not a wheelchair user but often see the regular battle on buses that they face just to be able to go about their daily lives petition.parliament.uk/petitions/77... www.instagram.com/p/DdWMlGwCAM...instagram.comInstagramCreate an account or log in to Instagram - Share what you're into with the people who get you. 053
Cleo👠✨ @ozgib.bsky.social · 16/09/2026My heart is hurting for every hour that little boy is not found. Kudos to everyone in the local community joining in the search. Please let him be ok 💔 www.bbc.co.uk/news/live/cw...bbc.co.ukVolunteers searching for Noah Woods, 3, told 'remember you are looking for frightened child'Noah, who is partially deaf and non-verbal, had been with a relative when he went missing from a playground in Suffolk on Tuesday afternoon, say police. 152
Cleo👠✨ @ozgib.bsky.social · 16/09/2026It's a good job I'm getting PIP texts from the DWP considering I STILL haven't had my assessment notification letter through via the Royal Mail and the appointment is tomorrow at 10am. 🤯 Appalling lack of service. I wonder if my NHS appointment letter I've been waiting for will also arrive too late? 230
Reposted by Cleo👠✨@BendyHEDS&Co @bendyhedsandco.bsky.social · 13/09/2026#MTHFR Petition: End the mandatory fortification of white flour with folic acid immediately We call on the Government to stop the fortification of flour with synthetic folic acid. petition.parliament.uk/petitions/76...petition.parliament.ukPetition: End the mandatory fortification of white flour with folic acid immediatelyWe call on the Government to stop the fortification of flour with synthetic folic acid. Folic acid is a medicine not a food. We believe it is unethical to mass medicate the entire population without t... 121
Reposted by Cleo👠✨Paula Knight 🎨✒️♿ @paulaknight.bsky.social · 13/09/2026A couple of weeks ago it was my 3000th day bedridden. I drew this to mark the occasion. It's a long time for both illness-haver and carer #MyalgicEncephalomyelitis #MEcfs #ChronicIllness #DisabledArtists 810136
Cleo👠✨ @ozgib.bsky.social · 12/09/2026Acidentally doubled dosed my painkillers earlier. Wasn't sure at first. Now I know... 🤪🫠🙄 011
Reposted by Cleo👠✨Doctor Beverly Crusher @spacedocmom.bsky.social · 11/09/2026Calling chronically ill/disabled people "brave" or "inspiring" is not the compliment health-privileged people imagine it to be. It devalues their lives by implying only healthy/abled folks' lives are worth living. That's health supremacy. 🖤💙😷🥄 074
Cleo👠✨ @ozgib.bsky.social · 09/09/2026Oh hell no. Read the description (the penultimate paragraph). ☠️ www.onthemarket.com/details/1728...onthemarket.comWest Harting, Petersfield, GU31 3 bed barn conversion - £450,000Henry Adams - Petersfield present this 3 bedroom barn conversion in West Harting, Petersfield, GU31 300
Cleo👠✨ @ozgib.bsky.social · 08/09/2026What a shocker, not. Who is surprised? They are soooo damn crafty. Record all meetings in secret. It's the only option for us. 230
Cleo👠✨ @ozgib.bsky.social · 08/09/2026All over increased fibro pain is today's symptom winner, and it's no coincidence that outside there is low pressure with rain. Hang in there, fibro folk with rain today. Tomorrow will be better, the weatherman said so. 🤞🏻 #Fibromyalgia #ChronicPain 230
Cleo👠✨ @ozgib.bsky.social · 07/09/2026Noisy seagulls calling to each other on the roof. So I go outside and play the sound of a hawk really loud to scare them off. Did it work? Did it bollocks. Now the seagulls are clearly laughing at me. 🙄 140
Cleo👠✨ @ozgib.bsky.social · 07/09/2026I know why they posted this, but it really does water down the word "disabled" to the clueless general public, who already do not understand the severity of symptoms from conditions many disabled people live with, and then we end up with articles like this: 151
Reposted by Cleo👠✨RetroSteveUK @retrosteveuk.bsky.social · 07/09/2026Heads-up for classic Lilt fans. This Pineapple & Grapefruit Crush is an obvious aim at recreating Lilt, and as far as I can remember the original taste, they've done a spot-on job of hitting the target, even with the no added sugar thing. Under a quid for a 2L bottle as well! 151
Cleo👠✨ @ozgib.bsky.social · 05/09/2026Wowsers, why wouldn't you want a full size Titanic in the sky rather than stupid fireworks? Can you imagine the stories they could tell and the imaginations drone shapes could spark during celebrations instead of sodding, stupid fireworks? youtube.com/watch?v=BXkT...youtube.comTITANIC brought back to life in BELFASTYouTube video by BBC Northern Ireland 010
Cleo👠✨ @ozgib.bsky.social · 31/08/2026Beaches just popped up on iplayer, for those of you who like afternoon movies on a bank holiday 😊 000
Cleo👠✨ @ozgib.bsky.social · 30/08/2026@bsky.app can you please fix this latest bug for iphone users where typing more than a screen of text means anything else we type is hidden behind the keyboard. The page will not move up/down. Currently having to use my notes app to type replies, cut & paste. Screenshot of typing space 👇🏻 030
Cleo👠✨ @ozgib.bsky.social · 28/08/2026A week on and I'm still feeling rough and ill after my assessment. PEM is a bastard! I may run out of tissues soon if my nose doesn't stop streaming 🤧 320
Reposted by Cleo👠✨Patients with Power @ptswithpower.com · 28/08/2026Why is it that every time I have to describe something medical, people don't believe it till a doctor signs off on it. Imagine if they were like that about cars.. "I couldn't get my car started this morning" "Did a mechanic actually say it wouldn't start, or is it just you thinking that?" #NEISvoid 310017
Cleo👠✨ @ozgib.bsky.social · 24/08/2026I wish I could sign this 1000x. Ffs. 🐾❤️🩹 petition.parliament.uk/petitions/77...petition.parliament.ukPetition: Make catapult attacks against animals a standalone criminal offenceIntroduce legislation in England to make it a specific, standalone criminal offence to intentionally or recklessly use, discharge or attempt to discharge a catapult or slingshot at or towards any anim... 110
Cleo👠✨ @ozgib.bsky.social · 24/08/2026Dentist done ✅ I will never understand how stabbing my gums everywhere with a metal point is a check on their health. Just prod with a rounded tipped lolly stick. Preferably with the lolly still on. 130
Cleo👠✨ @ozgib.bsky.social · 23/08/2026This could be handy when friends send the "hi how are you?" messages out of the blue & you just cannot deal due to cog fog. Auto reply generator. Handy for those with #LongCovid #Fibromyalgia #pwME #MECFS #EDS #ChronicPain #ChronicIllness #BrainFog #Disability www.wikihow.com/Generator/Te...wikihow.comText Response Generator: Reply Ideas for Any MessageCraft the perfect reply to any text messageWhether you're answering a flirty message, a confusing one, or just trying to keep the vibe going, this tool helps you create the ideal response. Choose the ... 010
Cleo👠✨ @ozgib.bsky.social · 21/08/2026😬🫨😬🫨😬🫨😬🫨static.klipy.comNervous Nilly (30 Rock) Spills WaterAlt: Nervous Nilly from 30 Rock Spills Water as he tries to drink it from a bottle from shaking 220
Cleo👠✨ @ozgib.bsky.social · 19/08/2026No, please keep reminding me. 🫨🫨🫨🫨🫨 WHO FORGETS these life altering appointments ffs? I'm already shaking and feel sick with worry and stress. Nobody needs these triggers. Urghhhhhh. 200
Reposted by Cleo👠✨Emma Tylor @emmatylor.bsky.social · 18/08/2026Twilight Meadows #3 by Lucy Moore Acrylic Painting by Lucy Moore #art #painting #contemporaryart #fineart #flowers 231645216
Cleo👠✨ @ozgib.bsky.social · 17/08/2026For my fellow disabled friends, please take note every time a TV show gives undeserved airtime to these utter twats threatening our disability payments & spiking our anxiety for our future; 010
Cleo👠✨ @ozgib.bsky.social · 15/08/2026No wonder people chuck expired cooking oils down the drain (don't do this!) as there are zero places nearby for me to dispose of it. The only companies that take it will only collect from businesses. My only option is to slowly dispose of it, bit by bit, when I chuck out the corn cat litter. 🤦🏼♀️ 100