iiinova — where your digital self keeps evolving

Reposted by Devin Shuman (she/her)

andré, but scarier @andre-carlisle.bsky.social · 19/02/2026

ALYSA MF'N LIU GOLD MF'N MEDALIST

Reposted by Devin Shuman (she/her)

Molly Jong-Fast @mollyjongfast.bsky.social · 02/06/2025

After three months in Immigration and Customs Enforcement custody, a Filipino green-card holder who had been arrested at Seattle-Tacoma Airport has finally gone home.

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Devin Shuman (she/her) @mitogc.bsky.social · 10/05/2025

Today I got to start taking an experimental drug that hopefully will treat my form of mito. Who knows if it'll work but my family & medical team have worked hard for this moment. I feel incredibly lucky to have the oppurtunity to at least try! I'll be posting more here: www.devinshuman.com/guk1

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Devin Shuman (she/her) @mitogc.bsky.social · 21/04/2025

Are you the flavor of chronically ill that bakes cookies for all of your doctors and delivers them to their offices on your day off as a thank you for taking care of your brother during his 1 month admission? #SpoonieStressBaker

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Reposted by Devin Shuman (she/her)

gamera obscura october edition @ohrobin.bsky.social · 19/03/2025

My dear friend’s niece, who in October developed sepsis when a Georgia hospital refused her a D&C after a miscarriage, will be taken off life support tomorrow. I don’t know the names of the countless others who have suffered and will suffered because of anti-abortion laws. But her name was Haley.

A school photo of a gently smiling teenage girl. She has long brown hair and a black cardigan.

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Reposted by Devin Shuman (she/her)

Robert Reich @rbreich.bsky.social · 15/03/2025

The FBI is trying to criminalize Habitat for Humanity for receiving climate grants from the EPA. Yes, the nonprofit that builds houses for low-income people. This clearly demonstrates just how absurd and extreme the Trump regime has become. It's targeted harassment.

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Reposted by Devin Shuman (she/her)

Alt National Park Service @altnps.bsky.social · 03/03/2025

After we published a public audit on Saturday, Elon Musk’s DOGE deleted hundreds more claims from its mistake-plagued “wall of receipts,” wiping out an additional $4 billion in so-called savings that the group had claimed to secure for U.S. taxpayers.

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Devin Shuman (she/her) @mitogc.bsky.social · 02/03/2025

I am beyond thrilled to see this group grow out of the unofficial I created previous years by offering to send cards to those who didn't pass a cycle and then connecting them via email. Madison Burns, MS, CGC is amazing for doing this! *I am still here to send cards too

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Reposted by Devin Shuman (she/her)

Thinking Person's Guide to Autism @thinkingautism.com · 27/02/2025

Re: misleading claims that disabled people "love" sheltered workshops: Journalists found that "The seemingly widespread support among sheltered workshop employees & their families masked the failure of the state to provide them with meaningful employment options." www.propublica.org/article/what...

propublica.org

What the Disability Community Told Us About Sheltered Workshops

Reporter Madison Hopkins tells us how she learned the context behind what she was hearing from Missouri’s disabled workers and their families.

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Devin Shuman (she/her) @mitogc.bsky.social · 11/02/2025

I was today years old when I remembered that the founder of ABA therapy was also a founder of conversion therapy...which tracks... but YIKES en.m.wikipedia.org/wiki/Ole_Iva...

en.m.wikipedia.org

Ole Ivar Lovaas - Wikipedia

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Reposted by Devin Shuman (she/her)

Blake Montgomery @montgomery.bsky.social · 06/02/2025

Thousands of ICE press releases about decade-old enforcement actions topped search results, all updated with a timestamp from after Trump’s inauguration www.theguardian.com/us-news/2025...

theguardian.com

US immigration is gaming Google to create a mirage of mass deportations

Thousands of press releases about decade-old enforcement actions topped search results, all updated with a timestamp from after Trump’s inauguration

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Reposted by Devin Shuman (she/her)

Christie Aschwanden @cragcrest.bsky.social · 04/02/2025

"We will not retract published articles on request by an author on the basis that they contain so-called banned words" @bmj.com takes a stand: "Medical journal editors must resist CDC order and anti-gender ideology" www.bmj.com/content/388/...

bmj.com

Medical journal editors must resist CDC order and anti-gender ideology

The news that on 31 January 2025 the Trump administration instructed scientists employed by the US Centers for Disease Control and Prevention (CDC) to withdraw or retract articles from medical and sci...

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Reposted by Devin Shuman (she/her)

Dr. Lucky Tran @luckytran.com · 03/02/2025

Huge protest outside the USAID building today against Trump and Musk's illegal shutdown.

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Devin Shuman (she/her) @mitogc.bsky.social · 30/01/2025

Disability is not the cause of that crash. Go screw yourself white house. 🤬

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Reposted by Devin Shuman (she/her)

Justin Gill @justin-gill.bsky.social · 25/01/2025

Thank you @seattletimes-rss.bsky.social for publishing my Op-Ed today. RFK Jr.’s “confirmation would undermine public health and betray hardworking health care professionals and researchers who work relentlessly to keep our patients safe and healthy” www.seattletimes.com/opinion/a-nu...

seattletimes.com

I saw during COVID what RFK Jr.'s brand of skepticism could do | Op-Ed

During COVID, when health professionals needed support from the public with vaccinations, I saw firsthand how misinformation led to death and trauma.

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Reposted by Devin Shuman (she/her)

Kelly @broadwaybabyto.bsky.social · 22/01/2025

Teen Vogue coming through with excellent reporting on pressing issues: “When ICE agents stake out neighborhoods, it affects everyone — families living in fear, businesses struggling to retain workers, schools wondering why children are missing class, & communities watching their social fabric fray”

teenvogue.com

How to Keep Tabs on ICE Agents Who May Be Surveilling Your Neighborhood

Here’s a step-by-step guide.

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Reposted by Devin Shuman (she/her)

Aditi Ramaswami @aditiramaswami.bsky.social · 10/01/2025

This whole interview @maanvisingh.bsky.social did with @sfdirewolf.bsky.social is good, and this bit in particular stood out to me as such an essential perspective on belonging, community care, and disability justice www.theguardian.com/society/2025...

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Reposted by Devin Shuman (she/her)

Art Candee 🍿🥤 @artcandee.bsky.social · 08/01/2025

Governor Gavin Newsom at the Pacific Palisades Fire on President Biden: "It didn't take more than a text message...no politics, no hand-wringing, no kissing of the feet. President of the United States said 'yes, what else do you need? The emergency proclamation is being drafted as we speak.'" 👏

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Reposted by Devin Shuman (she/her)

Governor Tim Walz @governorwalz.mn.gov · 03/01/2025

As of January 1, Minnesotans won’t have co-pays higher than $25 per month for prescription drugs used to treat chronic diseases, and we’re putting a $50 per month cap on all related medical supplies. We’re putting the wellbeing of our people before the profits of big pharma.

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Reposted by Devin Shuman (she/her)

Kelly @broadwaybabyto.bsky.social · 21/12/2024

If you think you might have Covid - or you’re just feeling sick - stay home this holiday season. Don’t be the reason someone’s loved one ends up in the hospital (or worse). If you absolutely can’t stay home - wear a well fitted respirator. You could save a life.

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Devin Shuman (she/her) @mitogc.bsky.social · 19/12/2024

May I introduce y'all to my new favorite stickers? #mitochondria #sciencestickers #pridochondria #genechat found at fresh crayon store on Etsy!

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Reposted by Devin Shuman (she/her)

Mark Hamill @markhamillofficial.bsky.social · 12/12/2024

Posted this at the old place, but thought folks on @bsky.app might like to know I finally met my "mother".

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Devin Shuman (she/her) @mitogc.bsky.social · 03/12/2024

Reminder on #GivingTuesday to not use #Disabled people as your inspiration porn to obtain donations. Also please resist the urge to feed into the pity/tragedy model of disability to fundraise either. PSA: Not all Disabled people want cures. youtu.be/8K9Gg164Bsw?...

youtu.be

I'm not your inspiration, thank you very much | Stella Young

YouTube video by TED

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Devin Shuman (she/her) @mitogc.bsky.social · 01/12/2024

People have received their cards so I no longer have to keep it a secret. Community is how we survive and maintain hope so when trump won again, I made some colorful cards to send to 50 friends and remind us we're not alone. And to validate ALL of the big feels.

Screenshot of word document with card design. On the left are watercolor rainbow flowers with the words "Fuck this fucking shit. There's no good card for this, but you're getting one anyways" in blue font. On the right are watercolored hearts in a rainbow gradient with a dark blue line above and below. Inside a white text box outlined in purple with purple text "We feel our grief. We find our rage. We hold on to compassion. We are not alone. We are stronger together."

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Devin Shuman (she/her) @mitogc.bsky.social · 30/11/2024

I dreamed GCs did house calls to check on patients who no showed appointments. It was chaos. 0/5 stars recommend. #GeneChat Though now that I think about it, I would get to likely pets lots of dogs 🤔

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Devin Shuman (she/her) @mitogc.bsky.social · 29/11/2024

ANNUAL BLACK FRIDAY PSA Dont fall for direct to consumer testing sales (sequencing. com, nebula, dante).These tests are not medically accurate, cannot be used for medical care, are 99% false positives, misrepresented, or normal variations. Please don't waste your money. Your local genetic counselor

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Devin Shuman (she/her) @mitogc.bsky.social · 24/11/2024

I know I'm probably late to the party but sky follower bridge is magical! Also the data twitter gave you in rhe "download your data" is such useless trash

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Devin Shuman (she/her) @mitogc.bsky.social · 23/11/2024

Everyone needs to read this. Now more than ever as there is a war on basic health info and puberty info is labeled terrorism in project 2025 www.goodreads.com/book/show/37...

goodreads.com

Beyond Birds and Bees: Bringing Home a New Message to O…

A provocative inquiry into how we teach our children ab…

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Reposted by Devin Shuman (she/her)

Anna Holmes @annabookwriter.bsky.social · 23/11/2024

Alt text: embroidery. First picture shows “this is fine” in big red letters. Second photo shows that close up, each letter is made up of the small stitched word “fuck” repeatedly.

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Reposted by Devin Shuman (she/her)

Taniel @taniel.bsky.social · 19/11/2024

BIG NEWS: A Wyoming judge just struck down WY's abortion bans. And get this: The judge invoked a constitutional amendment codifying a right to make health care decisions... that was passed in 2012 by conservatives who thought it'd screw Obamacare! Just backfired. We explained this lawsuit here:

boltsmag.org

How Attacks Against Obamacare Turned Into Tools to Protect Abortion Access

Conservatives amended state constitutions to affirm broad rights for people to choose their health care. Now abortion rights proponents are taking them at their word.

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Devin Shuman (she/her) @mitogc.bsky.social · 16/11/2024

TLDR: the paper on my family's gene came out *cue GC nerd excitement 2009: diagnosed with mtDNA depletion syndrome by muscle biopsy. 2017: became a GC. 2024: thrilled to announce that my family's paper about our candidate gene was published! #Proband2 2025: repurposing a drug lnkd.in/dDfuxtW3

lnkd.in

This link will take you to a page that’s not on LinkedIn

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Devin Shuman (she/her) @mitogc.bsky.social · 16/11/2024

I’m happy to share this DEIJ Language Considerations Guide project I worked on is on the ACGC website now! A video walking through the different sections is in the making as well. Check out the language guide here: lnkd.in/gw4MCesr

lnkd.in

This link will take you to a page that’s not on LinkedIn

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Reposted by Devin Shuman (she/her)

Shoumita Dasgupta, PhD @profdasgupta.bsky.social · 21/02/2024

Hi, I'm a scientist, educator, equity advocate, and author. I'm working on final edits for my forthcoming 📖 "Where Biology Ends and Bias Begins: Lessons on Belonging from Our DNA" and can't wait to share it with you all! Info below & register for ordering notice here: forms.gle/ax9Tsja4JkSf...

QR code & brief description of Dr. Shoumita Dasgupta's forthcoming book, Where Biology Ends and Bias Begins: Lessons on Belonging from Our DNA.

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Devin Shuman (she/her) @mitogc.bsky.social · 23/08/2024

It's that time of the year again - GC boards. I didn't pass mine on my 1st try. If you didn't pass your boards, I see you, I validate all emotions, and I'd love to 1. send you a card and 2. connect you with others who didn't pass this cycle as well. DM your address/email

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Devin Shuman (she/her) @mitogc.bsky.social · 20/06/2024

Rare Disease Provider PSA: 1. Don't ever phrase a question to a patient like "you don't have xyz symptom, right?" or "well it can't be that, because you don't have XYZ symptom" (without asking first if they do or dont)

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Devin Shuman (she/her) @mitogc.bsky.social · 01/06/2024

Happy pride all my genetics and rare disease friends! #GeneChat #LGBTGC

A picture of white woman with brown hair and a black T-shirt, with the word love in white and the o is a pride flag heart. She has aviator sunglasses on and is smiling with a rainbow dna sugar cookie in her mouth.

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Devin Shuman (she/her) @mitogc.bsky.social · 15/01/2024

Don't just "let" disabled people lead. Make leadership roles accessible and actively prioritize #disabled candidates.

Light orange background with orange text. Listen to disabled people. Let disabled people lead.

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Devin Shuman (she/her) @mitogc.bsky.social · 22/12/2023

As people start to mask again (for those of you who stopped) let this be the reminder that surgical masks are barely better than cloth ones. Please get actual KN95 or N95s ❤️

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Devin Shuman (she/her) @mitogc.bsky.social · 07/12/2023

Enough is enough. I will NEVER understand why this country has chosen NRA propaganda over thousands of lives. #EndGunViolence and vote in basic, human decency gun safety laws. #VegasStrong support orgs fighting for these laws! Everytown, @momsdemand.bsky.social Sandy Hook Promise, Gun Safety Now

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Devin Shuman (she/her) @mitogc.bsky.social · 26/11/2023

There's something heart warming & soul soothing about spending a Sunday afternoon writing letters of recommendation. It is truly a wonderful state to put your brain in - one of singing the praises of others & wishing them success. Honored to play a role in their journeys ❤️

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Devin Shuman (she/her) @mitogc.bsky.social · 26/11/2023

Reminder from a fb post I saw: In the spirit of the holiday season, don't wrap handrails with holiday decorations - it prevents those who need them from using them. #AccessibilityMatters #DisabilityInclusion

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Devin Shuman (she/her) @mitogc.bsky.social · 30/10/2023

In October, the #mitochondria is the haunted house of the cell. Let's call it, the #frightochondria

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Devin Shuman (she/her) @mitogc.bsky.social · 28/09/2023

Ironically, my #MitochondrialDisease #awarenessweek blog is a wk late. #RareDiseaseTruth is that govs can destroy rare disease families lives w/ false medical abuse accusations & restricting access to treatment There are 3 stories happening right now blog.geneticsupportfoundation.org/index.php/20...

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Devin Shuman (she/her) @mitogc.bsky.social · 23/09/2023

15 years ago I learned what the mitochondria are 14 years ago I was diagnosed with mtDNA depletion syndrome 8 years ago we identified GUK1 as the AR cause 6 years ago I became a GC 5 years ago we made a GUK1 mouse model 1 year ago I started seeing mito patients & giving lectures on mito #MitoGC

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