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Devin Shuman (she/her)

@mitogc.bsky.social

770 followers 1.9K following 48 posts

Smithie 2014, mitochondrial disease, spoonie, rare disease, genetic counselor, 🏳️‍🌈 ♿️ opinions are my own

Posts Replies Media

Devin Shuman (she/her) @mitogc.bsky.social · 10/05/2025

Today I got to start taking an experimental drug that hopefully will treat my form of mito. Who knows if it'll work but my family & medical team have worked hard for this moment. I feel incredibly lucky to have the oppurtunity to at least try! I'll be posting more here: www.devinshuman.com/guk1

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Devin Shuman (she/her) @mitogc.bsky.social · 21/04/2025

Are you the flavor of chronically ill that bakes cookies for all of your doctors and delivers them to their offices on your day off as a thank you for taking care of your brother during his 1 month admission? #SpoonieStressBaker

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Devin Shuman (she/her) @mitogc.bsky.social · 02/03/2025

I am beyond thrilled to see this group grow out of the unofficial I created previous years by offering to send cards to those who didn't pass a cycle and then connecting them via email. Madison Burns, MS, CGC is amazing for doing this! *I am still here to send cards too

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Devin Shuman (she/her) @mitogc.bsky.social · 19/12/2024

May I introduce y'all to my new favorite stickers? #mitochondria #sciencestickers #pridochondria #genechat found at fresh crayon store on Etsy!

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Devin Shuman (she/her) @mitogc.bsky.social · 01/12/2024

People have received their cards so I no longer have to keep it a secret. Community is how we survive and maintain hope so when trump won again, I made some colorful cards to send to 50 friends and remind us we're not alone. And to validate ALL of the big feels.

Screenshot of word document with card design. On the left are watercolor rainbow flowers with the words "Fuck this fucking shit. There's no good card for this, but you're getting one anyways" in blue font. On the right are watercolored hearts in a rainbow gradient with a dark blue line above and below. Inside a white text box outlined in purple with purple text "We feel our grief. We find our rage. We hold on to compassion. We are not alone. We are stronger together."

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Devin Shuman (she/her) @mitogc.bsky.social · 23/08/2024

It's that time of the year again - GC boards. I didn't pass mine on my 1st try. If you didn't pass your boards, I see you, I validate all emotions, and I'd love to 1. send you a card and 2. connect you with others who didn't pass this cycle as well. DM your address/email

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Devin Shuman (she/her) @mitogc.bsky.social · 16/08/2024

Getting #CovidVaccine #10 while #YallMasking #SaltingTheVibes #CovidIsNotOver

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Devin Shuman (she/her) @mitogc.bsky.social · 01/06/2024

Happy pride all my genetics and rare disease friends! #GeneChat #LGBTGC

A picture of white woman with brown hair and a black T-shirt, with the word love in white and the o is a pride flag heart. She has aviator sunglasses on and is smiling with a rainbow dna sugar cookie in her mouth.

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Devin Shuman (she/her) @mitogc.bsky.social · 15/01/2024

Don't just "let" disabled people lead. Make leadership roles accessible and actively prioritize #disabled candidates.

Light orange background with orange text. Listen to disabled people. Let disabled people lead.

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Devin Shuman (she/her) @mitogc.bsky.social · 30/10/2023

In October, the #mitochondria is the haunted house of the cell. Let's call it, the #frightochondria

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