Sign in

Miriam Johnson

@miriamjohnsonhyms.bsky.social
236 followers 260 following 17 posts

Professor of Palliative Medicine, Wolfson Palliative Care Research Centre, HYMS, University of Hull.

PostsRepliesMedia
Reposted by Miriam Johnson
The Lancet @thelancet.com · 20/12/2025
In the 2025 Lancet #WakleyPrize winning essay, @donnawakefield.bsky.social explores how personal experiences and understanding of the social determinants of health can transform patient care and foster a more inclusive healthcare system. Read now 👉 spkl.io/63329AcBBV
Quote from the 2025 Lancet Wakley Prize winning essay by Donna Wakefield. Quote reads: "Medicine must be practised with openness and without prejudice towards people's social circumstances. This outlook is essential to deliver holistic care."
02612
Reposted by Miriam Johnson
cw-researching.bsky.social @cw-researching.bsky.social · 17/12/2025
@wolfsonpallcare.bsky.social @miriamjohnsonhyms.bsky.social @robmitch92.bsky.social @drjanetownson.bsky.social
012
Reposted by Miriam Johnson
Nursing in Practice @nursinginpractice.bsky.social · 12/12/2025
District nurses ‘under immense pressure’ as end-of-life care gap widens #hospices #districtnursing #healthcare #NHS #socialcare #nursing #UKnurses
buff.ly
District nurses ‘under immense pressure’ as end-of-life care gap widens
Hospice funding constraints mean district nursing teams are increasingly caring for more patients who are at end of life
021
Reposted by Miriam Johnson
Nursing in Practice @nursinginpractice.bsky.social · 03/12/2025
Palliative care report warns of ‘decimated’ district nurse workforce #communitynursing #palliativecare #NHS #healthcare #districtnurse #nursing
buff.ly
Palliative care report warns of ‘decimated’ district nurse workforce
District nurses are the 'backbone' of community care for people nearing the end of life, but their workforce is 'decimated'
011
Reposted by Miriam Johnson
Donna Wakefield @donnawakefield.bsky.social · 03/12/2025
🏆Honoured to win the Dorothy Robson prize for #PalliativeMedicine at @hyms.ac.uk for an abstract -from my #PhD research on #Inequalities in access to #PalliativeCare in lung disease - thank you ☺️ 🫁 @wolfsonpallcare.bsky.social @jonathankoffman.bsky.social @flissmurtagh.bsky.social
1123
Reposted by Miriam Johnson
Dr Rachel Clarke @drrachelclarke.com · 28/11/2025
🧵/ Today a damning parliamentary report on the state of palliative care services in England was published. Services are patchy, underfunded & “ill-equipped” to address end-of-life needs. Bereavement support is “frequently inaccessible. The palliative care workforce is in a “critical” situation”.
510062
Reposted by Miriam Johnson
Prof Katherine Sleeman @katherinesleeman.bsky.social · 29/11/2025
The Health and Social Care Committee’s evaluation of palliative care in England was published yesterday. It’s hugely important, not least in the context of the assisted dying bill. It’s had almost no media coverage. committees.parliament.uk/publications...
01918
Reposted by Miriam Johnson
Dr Rachel Clarke @drrachelclarke.com · 28/11/2025
Without major investment, the govt’s 'commitment' to supporting people to palliative care is nothing but soft soap. Please don’t buy it. Write to your MP. Speak out. Demand better. Thank you @laylamoran.bsky.social & team for this hugely important work. www.independent.co.uk/news/uk/home...
independent.co.uk
Warning issued as palliative care in England is ‘failing to meet people’s needs’
A new report has highlighted that bereavement support for loved ones, while "valuable", is "frequently inaccessible".
13013
Reposted by Miriam Johnson
cw-researching.bsky.social @cw-researching.bsky.social · 27/11/2025
Just out. Findings from our SUPPORTED research into homecare at end-of-life, which highlights the importance - and challenges of - inter-professional working. @wolfsonpallcare.bsky.social #socialcare #palliativecare #homecare
011
Reposted by Miriam Johnson
Prof Christina Pagel @chrischirp.bsky.social · 26/11/2025
this is amazing news - the HPV vaccine promises to eliminate cervical cancer in countries where uptake is high.
16774212
Reposted by Miriam Johnson
Wolfson Palliative Care Research Centre @wolfsonpallcare.bsky.social · 26/11/2025
NEW RESEARCH (published in @palliativemedj.bsky.social) Researchers at explore barriers to effective collaboration with homecare workers in community #PalliativeCare, and how systems can improve integration. Read more below: tinyurl.com/5n6kn46a
tinyurl.com
Addressing barriers to interprofessional working with homecare workers in community palliative care: Insights from a multi-site qualitative case study - Zana Bayley, Cat Forward, Caroline White, Helen...
Background: Homecare workers (paid workers without professional qualifications who provide care for people within their own homes) are crucial providers of end-...
012
Reposted by Miriam Johnson
Trisha Elliott @trishaelliott.bsky.social · 15/11/2025
I think @scarlettmcnally.bsky.social is absolutely right in this piece from the @bmj.com last month. Some bits of healthcare can be simple and transactional, but a lot is much more nuanced, and there’s an important role for senior wise clinicians. Link: www.bmj.com/content/391/... #MedSky
BMJ article.

Excerpt here.

Every time there’s a new plan for the NHS, I worry that those creating the models don’t realise how messy and expansive healthcare is. The NHS 10 year plan hails the new “doctor in your pocket” to provide knowledge, in the form of the NHS App.1 But this drive for online accessibility misses the point that people still need a trusted clinician to interpret their concerns and support an action plan. Half the population have limited health literacy.2 A quarter of adults have multiple comorbidities,3 so single issue advice may be less relevant to them. Knowledge alone isn’t enough. Patients need to be walked through the practicalities of care as well as the information.

When designers of health services put barriers in place to limit interventions or investigations, these are often viewed by patients and surgeons as unfair rationing.4 In response, policy makers and service planners aim to democratise health information to inform decision making. But this relies on the assumption that patients’ behaviours and decisions are grounded in logic and evidence, which may be misguided. Clinicians can play a vital role in preventing unwarranted intervention but only when they have the time to individualise care. This helps the NHS remain cost effective, avoiding expensive and risky interventions.
31912
Reposted by Miriam Johnson
Wolfson Palliative Care Research Centre @wolfsonpallcare.bsky.social · 03/10/2025
Our researchers presented their work at a @universityofhull.bsky.social event held in the @houseoflords.parliament.uk highlighting the need for continued investment in palliative care research and improved access to services across the UK. @flissmurtagh.bsky.social @miriamjohnsonhyms.bsky.social
131
Reposted by Miriam Johnson
Wolfson Palliative Care Research Centre @wolfsonpallcare.bsky.social · 06/11/2025
We’re proud to be part of the UKRI I3 partnership with the University of Technology Sydney, strengthening global #PalliativeCare #research 🌍 Over 80 joint papers, £2.8M funding, 37 exchanges & 5 conferences, building capacity, collaboration & impact worldwide. Learn more here: tinyurl.com/5axstwbf
tinyurl.com
Building Critical Mass for Palliative Care Research | Wolfson Palliative Care Research Centre
The world population is ageing and, with the growth of multi-morbidities, UK deaths are expected to increase by 40% by 2040. New models of care and treatments are urgently needed to improve quality of life for the significantly increased number of people living with life-limiting illnesses. Yet research activity remains extremely limited and neglected, with a severe lack of critical mass of academics and research centres to build the palliative care evidence base. www.hyms.ac.uk/wolfson
032
Reposted by Miriam Johnson
The BMJ @bmj.com · 05/11/2025
"It makes us feel really vulnerable." With far right rallies being held across the UK, a group of medics decided it’s time to speak up. Omnya Ahmed joins our latest podcast to talk about the impact of racism in the NHS 🎧 open.spotify.com/episode/1zS9... 🎧 podcasts.apple.com/gb/podcast/d...
02114
Reposted by Miriam Johnson
Sunitha Daniel @sunithamd.bsky.social · 29/10/2025
Register to listen to @flissmurtagh.bsky.social talk about essential elements of care during the final year of life for adults with advanced illness. #AdvanceCarePlan #PalliativeCare @rcphysicians.bsky.social @apmeducation.bsky.social
001
Reposted by Miriam Johnson
National Audit Office @nao.org.uk · 29/10/2025
Government doesn't know how reliant it is on independent adult hospices for the provision of palliative and end-of-life care. With more people dying in England each year, the sustainability of independent hospices is of national importance. Read: www.nao.org.uk/reports/the-...
187
Reposted by Miriam Johnson
Sunitha Daniel @sunithamd.bsky.social · 27/10/2025
Congratulations Sonya!! @ysteachingnhs.bsky.social
011
Reposted by Miriam Johnson
Zoe Gardner @zoejardiniere.bsky.social · 27/10/2025
Asylum seekers, housed in hotels in Manchester, are reaching out in their own words to address the concerns of the local community. Please take a minute to read their letter, & share it with the people in your life who need to hear the truth about the people they are protesting.
4320511312
Reposted by Miriam Johnson
Wolfson Palliative Care Research Centre @wolfsonpallcare.bsky.social · 23/10/2025
@universityofhull.bsky.social @hyms.ac.uk @kingscollegelondon.bsky.social @sbajwah.bsky.social
001
Reposted by Miriam Johnson
Wolfson Palliative Care Research Centre @wolfsonpallcare.bsky.social · 21/10/2025
Our researchers are very proud to be part of the team who developed the Breathing Space Garden which will be at Chelsea 2026! @asthmaandlung.org.uk @katebinnie.bsky.social @projectgivingback.bsky.social @annhutchinson.bsky.social www.rhs.org.uk/shows-events...
rhs.org.uk
The Asthma and Lung UK Breathing Space Garden
033
Reposted by Miriam Johnson
eapcvzw.bsky.social @eapcvzw.bsky.social · 11/10/2025
More People. More Need. More Action. As ageing and chronic disease rise, palliative care is no longer optional. It’s a health system imperative. This #WorldPalliativeCareDay, EAPC calls for stronger integration into national and EU health strategies. #EAPC #WHPCD #PalliativeCare
011
Reposted by Miriam Johnson
Sunitha Daniel @sunithamd.bsky.social · 07/10/2025
#Ambition2021 and the 2025 commission on PC and #EOLC urge for more funding of #researchinpc only 0.26% of the total health research funding is allocated to #PalliativeCare #HealthResearch . urgent investment needed
001
Reposted by Miriam Johnson
Krutika Kuppalli, MD FIDSA @krutikakuppalli.bsky.social · 23/09/2025
Is #tylenol safe in pregnancy? Data 👇 A large Swedish study of 2.48M children found: 👶 No link btwn prenatal tylenol & autism, ADHD, or intellectual disability once sibling comparisons controlled for family/genetic factors. 👉 Tylenol is safe in pregnancy if needed. jamanetwork.com/journals/jam...
jamanetwork.com
Acetaminophen Use During Pregnancy and Children’s Risk of Autism, ADHD, and Intellectual Disability
This nationwide cohort study with sibling control analysis examines the association of acetaminophen use during pregnancy with children’s risk of autism, ADHD, and intellectual disability.
8271118
Reposted by Miriam Johnson
Dr Rachel Clarke @drrachelclarke.com · 23/09/2025
Please know that this is Trump scaremongering. There is no good scientific evidence linking paracetamol (Tylenol) to autism. A 2024 Swedish study of 2.4 million births found no relationship whatsoever between exposure to paracetamol in utero & subsequent autism. www.theguardian.com/us-news/2025...
theguardian.com
Trump attacks Tylenol as officials unveil highly contentious conclusions on autism
President says acetaminophen – also known as paracetamol - increases risk when taken by pregnant women, assertion contradicted by research
25660281
Reposted by Miriam Johnson
Wolfson Palliative Care Research Centre @wolfsonpallcare.bsky.social · 22/09/2025
Our large umbrella review of models, components and outcomes of palliative and end-of-life care provided to adults living at home is now out! This includes evidence from 66 systematic reviews! All you want to know about models of care! journals.sagepub.com/doi/full/10....
journals.sagepub.com
Models, components and outcomes of palliative and end-of-life care provided to adults living at home: A systematic umbrella review of reviews - Sophie Pask, Chukwuebuka Okwuosa, Ahmed Mohamed, Rebecca...
Background: There is growing demand for home-based palliative care because of patient preference, and increased number of deaths. Optimal models for community-b...
042
Reposted by Miriam Johnson
Hull York Medical School @hyms.ac.uk · 17/07/2025
📝The results of the National Student Survey for 2025 are in and it's time to celebrate!🎉We've improved significantly since 2024, across all 9 areas and above the sector benchmark. Read more about these fantastic results here: www.hyms.ac.uk/about/news/2...
011
Miriam Johnson @miriamjohnsonhyms.bsky.social · 26/06/2025
Anywhere in Nyhavn - my most favourite place to eat in the world
010
Reposted by Miriam Johnson
The BMJ @bmj.com · 26/06/2025
Introducing performance related pay for UK general practices initially improved quality of care, but did not seem to provide lasting improvements beyond that expected by previous trends, finds new study www.bmj.com/content/389/...
GP and patient
089
Miriam Johnson @miriamjohnsonhyms.bsky.social · 07/06/2025
Well done Catriona!!!
110
Reposted by Miriam Johnson
Kat Smith @profkatsmith.bsky.social · 04/06/2025
Open access (free) digital version of new book with @profbambra.bsky.social & @jlynch13.bsky.social exploring successful examples of reducing health inequalities now available: bristoluniversitypressdigital.com/monobook-oa/...
bristoluniversitypressdigital.com
0126
Reposted by Miriam Johnson
Jen Johnson @joyinthecorners.bsky.social · 04/06/2025
PGRs interested in ‘social transformation’ - come and join us and share your work at a free, friendly day conference in Newcastle on the 17th July! CfP open until this Friday. PGR presentations and then a showing/discussion of a wonderful film, ‘100 People’ with the filmmaker. Please share!
britsoc.co.uk
Reclaiming “The Sociological Imagination” to drive social transformation
031
Reposted by Miriam Johnson
Donna Wakefield @donnawakefield.bsky.social · 29/05/2025
Appreciate seeing a full room for my talk on #Inequities in #PalliativeCare in #Lung disease at #EAPC2025 #Finland 🇫🇮 Those of lower socioeconomic group are disadvantaged Very poor data on #Intersectionality - we can do better! #Respiratory #PhD #Research @wolfsonpallcare.bsky.social
062
Reposted by Miriam Johnson
pulmonaryrehab.bsky.social @pulmonaryrehab.bsky.social · 29/05/2025
Why would you talk about Hospice or Palliative Care in Pulmonary Rehab? Please take the time to listen and share with your local networks Thanks to Sharon Hudson #Palliative #pulmonaryrehab #pulmonaryrehabilitation #31DaysofPRIdeas 💡💡💡 youtube.com/watch?v=Ra0L...
youtube.com
Why would you talk about Hospice or Palliative Care in Pulmonary Rehab?
YouTube video by Sharon Hudson
021
Reposted by Miriam Johnson
Wolfson Palliative Care Research Centre @wolfsonpallcare.bsky.social · 30/05/2025
Prof of Implementation science Mark Pearson leads EAPCC workshop highlighting need for theoretically-underpinned translation of evidence into practice."Even the best evidence won't implement itself". See www.hyms.ac.uk/postgraduate...
053
Reposted by Miriam Johnson
Sunitha Daniel @sunithamd.bsky.social · 30/05/2025
Congratulations to Susanne de Wolf-Linder from @wolfsonpallcare.bsky.social one of the best 5 posters at @eapcvzw.bsky.social #EAPC2025 #IPOS-Dem is a valid and reliable outcome measure for assessing and monitoring palliative symptoms and concern for those with dementia @flissmurtagh.bsky.social
065
Reposted by Miriam Johnson
Donna Wakefield @donnawakefield.bsky.social · 30/05/2025
Smiles all around at the team @wolfsonpallcare.bsky.social @hyms.ac.uk stand at #EAPC2025 in #Helsinki 🇫🇮 We’re all friendly, come by & say hello ☺️ #PalliativeCare #Hpc #hapc #Research @jonathankoffman.bsky.social @flissmurtagh.bsky.social @sophiepask.bsky.social @miriamjohnsonhyms.bsky.social
0126
Reposted by Miriam Johnson
Donna Wakefield @donnawakefield.bsky.social · 29/05/2025
Happy to see so many people interested in #lung disease and #Inequalities - thanks for all the feedback and discussion #EAPC2025 🫁
0133
Reposted by Miriam Johnson
Sunitha Daniel @sunithamd.bsky.social · 29/05/2025
Come and visit the team @wolfsonpallcare.bsky.social at @eapcvzw.bsky.social #EAPC2025 and learn more about our work and courses offered MSc , PGcert and PGdiploma in #PalliativeCare #implementationscience @implementsci.bsky.social
034
Reposted by Miriam Johnson
Sunitha Daniel @sunithamd.bsky.social · 29/05/2025
Helene Elliott-Button from @wolfsonpallcare.bsky.social Authentic involvement of lived experience experts, diverse methods, inclusive multidisciplinary and multi-ethnic teams, constant vigilance on discrimination and ethics are key principles for equitable research. @eapcvzw.bsky.social #EAPC2025
021
Reposted by Miriam Johnson
BJGP Open @bjgpopen.bsky.social · 13/05/2025
COPD | This interview study with patients and carers highlights the importance of plain language (‘flare up’ rather than 'exacerbation') and the lasting effect on patient behaviour of a clinician's response to help-seeking for flare-ups ➡️ doi.org/10.3399/BJGP...
An artist’s impression of how it feels to have a COPD exacerbation developed from descriptions given by participants
147
Reposted by Miriam Johnson
Wolfson Palliative Care Research Centre @wolfsonpallcare.bsky.social · 22/04/2025
@flissmurtagh.bsky.social delivered the endowed #SamuelGeelecture 2025 @rcphysicians.bsky.social Less medicine and more care #palliativecare in NHS improving #qualityoflife in older age sometimes means less medicine, not more. player.rcp.ac.uk/ee/live/samu... @hyms.ac.uk @uniofhull.bsky.social
player.rcp.ac.uk
Samuel Gee lecture 2025: Less medicine and more care: the role of palliative care in the NHS | RCP Player
RCP Player offers healthcare professionals the latest medical updates through webinars, videos and podcasts. Explore our wide range of resources today.
0127
Miriam Johnson @miriamjohnsonhyms.bsky.social · 15/04/2025
Great team, great trial. Delirium management implementation strategy in a cRCT of hospices
010
Miriam Johnson @miriamjohnsonhyms.bsky.social · 08/04/2025
Great to have the opportunity to talk about one of my favourite topics….
020
Reposted by Miriam Johnson
Rick Bauer (he/him/él) @nvrflycoach.bsky.social · 07/04/2025
Access to opioids for palliative care in humanitarian settings: two case studies of Médecins Sans Frontières (MSF) experience in India and Bangladesh #hapc @pallchase.bsky.social bmcpalliatcare.biomedcentral.com/articles/10....
bmcpalliatcare.biomedcentral.com
Access to opioids for palliative care in humanitarian settings: two case studies of Médecins Sans Frontières (MSF) experience in India and Bangladesh - BMC Palliative Care
Background Alleviating suffering and preserving dignity are essential components of healthcare. Patients in need of palliative care often require opioid medication to relieve breathlessness and pain. ...
033
Reposted by Miriam Johnson
Prof Katherine Sleeman @katherinesleeman.bsky.social · 04/04/2025
New paper led by @joannamdavies.bsky.social explores the social determinants of where people die using linked UK Census and mortality data. By investigating moderators and mediators, we identify novel potential mechanisms to reduce inequalities. 👇👇👇
052
Reposted by Miriam Johnson
Diana Teggi @dianateggi.bsky.social · 03/04/2025
Reducing hospital deaths is a key #HealthPolicy goal - but it's not happening. Our study shows why: non-cancer patients & their carers lack support to die at home. #Dementia is a key barrier. Including cancer-free adults in #PalliativeCare referral pathways would change this doi.org/10.1080/0895...
3124
Reposted by Miriam Johnson
Wolfson Palliative Care Research Centre @wolfsonpallcare.bsky.social · 03/04/2025
Our #PACEstudy shows visiting #JeanBishopIntegratedCareCentre can improve the wellbeing of older people living with frailty. @uniofhull.bsky.social trial comparing the wellbeing and QOL of individuals who received care at Centre with group in the community without it. www.hyms.ac.uk/research/sto...
hyms.ac.uk
Integrated Care Centre boosts wellbeing of patients with frailty
Research has shown that the Jean Bishop Integrated Care Centre improves the wellbeing of older people living with frailty.
163
Miriam Johnson @miriamjohnsonhyms.bsky.social · 01/04/2025
Really practice changing paper Stop restriction fluids
010
Reposted by Miriam Johnson
Centre for Academic Primary Care (CAPC), Bristol @capcbristol.bsky.social · 26/03/2025
New guide to conducting personalised annual reviews for people with multiple long-term conditions published. The approach, developed by CAPC & @arc-west.bsky.social researchers, involves conducting a ‘whole-person’ review instead of individual disease-specific reviews. bit.ly/3FDiKTo #PrimaryCare
bit.ly
New guidance to help clinicians improve care for people with multiple long-term conditions
New guidance for primary care clinicians on how to conduct personalised annual reviews for patients with multiple long-term conditions has been developed by researchers from the Centre for Academic Pr...
32525