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mgwarrior.bsky.social

@mgwarrior.bsky.social
31 followers 20 following 55 posts

Mother. Daughter. Granddaughter. Wife. She/her. Myasthenia Gravis Warrior.

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Reposted by @mgwarrior.bsky.social
Chronic Illness Humor @chronicillness.bsky.social · 06/03/2026
@OMGImAutisticAF

“Why do you need a label?”
Bc there is comfort in knowing you are a normal zebra, not a strange horse. Bc you can’t find community w other zebras if you don’t know you belong. And bc it is impossible for a zebra to be happy or healthy spending its life feeling like a failed horse
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Myasthenia Gravis News @mgnews.bsky.social · 06/03/2026
Shine a light on autoimmune disease: bit.ly/4soEJk1 Autoimmune Awareness Month is a time to amplify understanding, support, and reliable information for the more than 50 million Americans living with autoimmune diseases. #AutoimmuneAwareness #MyastheniaGravisNews
March 2026 Autoimmune Awareness Month banner with colorful antibody shapes; making sense of living with autoimmune disease.
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Chronic Illness Humor @chronicillness.bsky.social · 06/03/2026
@dear_chronic_pain
WHEN YOU REALIZE...

    the waiting room time is longer than the actual appointment.

    the insurance company has more control over your treatment than your doctor does.

    the only time you feel normal is when you're around other sick people.

    your medication side effects are competing with your actual symptoms.

    you need a nap after taking a shower.

    your "good" day still includes pain and fatigue.

    finding a doctor who actually listens is harder than winning the lottery.

@dear_chronic_pain
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mgwarrior.bsky.social @mgwarrior.bsky.social · 27/07/2025
Happy #DisabilityPride Month! #ChicagoDisabilityPrideParade #AcceptanceNotJustAwareness
Woman with long blond hair wearing a white shirt sitting in a mobility scooter with a white sign in front that reads "Acceptance Not Just Awareness" and a disability pride flag in the center
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mgwarrior.bsky.social @mgwarrior.bsky.social · 15/07/2025
#DisabilityPrideMonth Sending you love 🤍
Disability Pride Month
Sending love to those:
Embracing their disability, searching for answers, navigating a late diagnosis, unmasking and reclaiming joy, challenging internalized ableism, feeling they're "not disabled enough," balancing pride with pain, existing in a world not built for you, advocating for accommodations.
@blueskylearningto
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mgwarrior.bsky.social @mgwarrior.bsky.social · 24/05/2025
Them: "Are you a early bird or a night owl?"
Me: "I'm more of a tired afternoon duck."
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Teela (Don't call me. Call your MoC 202-224-3121) @teela.bsky.social · 07/05/2025
In this climate, it is absolutely necessary to focus on mental health 2025 looms, and we'll need you to be emotionally and physically fit to be ready to fight for our democracy 🤗 Protest on!❤️
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✨ Soft Grit Spoonie ✨ @softgritspoonie.bsky.social · 06/05/2025
#MentalHealthAwareness
May is mental health awareness month depression is more than being sad, anxiety is more than worrying, OCD is more than being tidy, bipolar is more than mood swings, PTSD is more than just flashbacks, schizophrenia is more than seeing things, EDs are more than underweight, borderline is more than instability, addiction is not just "a choice"
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People Care @peoplecare.bsky.social · 31/03/2025
Myasthenia Gravis (MG) is a rare, chronic autoimmune disease that affects the connection between nerves and muscles, leading to weakness and fatigue. ⚡ Drooping eyelids ⚡ Difficulty swallowing or speaking ⚡ Muscle weakness that worsens with activity ⚡ Shortness of breath #NeuromuscularDisorders
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mgwarrior.bsky.social @mgwarrior.bsky.social · 30/04/2025
Accessible devices look different for every body. Some are recognizable medical equipment like canes, wheelchairs, etc. Others look like my camp chair. Lightweight and transportable, it allows me to rest whenever needed on the go. What do you use that isn't typical? #IAmMGStrong #DisabilityAwareness
A black fabric tripod stool with carrying atrap
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Kelly @broadwaybabyto.bsky.social · 24/04/2025
All disabled people are deserving of life, love & care. The narrative that “low functioning” people who don’t pay taxes, won’t serve in the military & can’t live independently are somehow expendable is deeply rooted in eugenics. A person’s worth isn’t tied to their health or economic contribution
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mgwarrior.bsky.social @mgwarrior.bsky.social · 17/04/2025
Not all disabilities are visible!
A symbol of a person using a wheelchair with Disabled written above and a symbol of a human body with Also Disabled written above it. Below in parentheses is Not all disabilities are visible
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The Daily Beans Podcast @dailybeanspod.com · 11/04/2025
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PoliticsGirl @politicsgirl.bsky.social · 10/04/2025
Feel like today is a good day to remind ourselves of how tyranny grows….. youtu.be/cXR5HLodsT8?...
youtu.be
20 Lessons on Tyranny: by Timothy Snyder / read by John Lithgow
YouTube video by PoliticsGirl
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mgwarrior.bsky.social @mgwarrior.bsky.social · 09/04/2025
So many reasons to love Star Trek, but where should I start?...
I high key love that Star Trek chose to respond to the idea that "in the future disability will be erased" with " in the future disability will be accommodated for without stigma." From left to right characters, Geordi LaForge, Detmer, Dr. Miranda Jones, and Melora Plaznar
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mgwarrior.bsky.social @mgwarrior.bsky.social · 06/04/2025
When your body feels like garbage, it's on fire, or "fill in the blank" your loved ones may think you're upset with them when in reality you're in pain, fatigued, mad at your body, or "fill in the blank." Be open about your experience. #LifeWithChronicIllness #MGWarrior
I'm sorry for the things I said when I was flaring. @MGWarrior
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mgwarrior.bsky.social @mgwarrior.bsky.social · 03/04/2025
Take care of your neighbors, friends.
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mgwarrior.bsky.social @mgwarrior.bsky.social · 30/03/2025
80% of us will experience disability within our lifetime. "It won't happen to me," is not a statistically valid response. Enabling ableism hurts everyone. You are not immune. #Resist these attacks on children and persons with disabilities. www.youtube.com/watch?v=9z48...
youtube.com
"Useless Eaters" rhetoric returns: Trump and Musk attack disabled children and adults first.
YouTube video by Parkrose Permaculture
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mgwarrior.bsky.social @mgwarrior.bsky.social · 28/03/2025
Because it is challenging living in a world built to exclude you. Because you're expected to do all the things without accessibility or accommodations. #StandUpForAccessibility
Orange background with bright colored flowers bordering and text that reads, Not every disabled person has to overcome adversity with grace. Disabled people are allowed to complain about how frustrating and hard it is.
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mgwarrior.bsky.social @mgwarrior.bsky.social · 27/03/2025
I don't want to live in a world where we care nothing for these things. Where we are uneducated and standing still. #StandUp #SocialInvestment
I literally want my tax dollars to support national parks, science, education, conservation, mental health, and helping marginalized people. In case that wasn't clear.
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Barack Obama @barackobama.bsky.social · 25/03/2025
Right now, there’s an important race happening that will shape the Wisconsin Supreme Court for the next 10 years. Judge Susan Crawford is ready to protect the fundamental rights and freedoms of all Wisconsinites. Make a plan to vote early today — don’t wait until April 1st: wisdems.org/vote
wisdems.org
Find Your Voting Locations | WISDEMS Voter Protection Team
This searchable map shows you early voting and dropbox info for hundreds of villages, towns, and cities across Wisconsin. Enter the address you're registered at and your options will pop up!
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mgwarrior.bsky.social @mgwarrior.bsky.social · 22/03/2025
How it's going today....
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Greta Harrison @gretagharrison.bsky.social · 22/03/2025
1/2 “Disability is articulated as a struggle, an unnecessary burden that one must overcome to the soundtrack of a string crescendo. But disabled lives are multi-faceted – brimming with personality, pride, ambition, love, empathy, and wit.” – Sinead Burke, writer, academic, activist and ...
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mgwarrior.bsky.social @mgwarrior.bsky.social · 14/03/2025
World Down Syndrome Day 2025 #NoDecisionWithoutUs youtu.be/xRIQ80rJKAc?...
youtu.be
NO DECISION WITHOUT US | World Down Syndrome Day 2025
YouTube video by CoorDown
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The Daily Beans Podcast @dailybeanspod.com · 13/03/2025
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mgwarrior.bsky.social @mgwarrior.bsky.social · 13/03/2025
March is #AutoimmineDiseaseAwarenessMonth
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mgwarrior.bsky.social @mgwarrior.bsky.social · 13/03/2025
Great news for pediatric Myasthenia Gravis patients! myasthenia.org/living-with-...
myasthenia.org
MG In the News | Myasthenia Gravis Foundation of America
We are your source for the latest, trusted information on myasthenia gravis. Sign up for our mailing list to receive information on research, clinical trial opportunities, and the latest news from the...
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Kelly @broadwaybabyto.bsky.social · 13/03/2025
“I have no idea how you do it! I could never live like you!” Yes. You could. You wouldn’t have a choice. When disability strikes, you have to adapt. You can’t just go to the doctor and demand new parts. You can’t “try harder” you’re way out of it. You learn to cope to survive.
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Kelly @broadwaybabyto.bsky.social · 10/03/2025
The richest man in the world wants to take away social security from those who need it most. This should enrage absolutely everyone. Social security is a pittance. Musk likely spends what people get for a month in an hour. Get loud. Call your representatives. Tell them hands off SSI.
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Kelly @broadwaybabyto.bsky.social · 08/03/2025
This International Women’s Day, remember that women are disproportionately impacted by many chronic illnesses. We’re more likely to be abandoned by our spouse/partner when we become disabled, and mistreated/gaslit by the medical profession Women’s rights & disability rights are uniquely intertwined
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mgwarrior.bsky.social @mgwarrior.bsky.social · 08/03/2025
Loudly, please!
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mgwarrior.bsky.social @mgwarrior.bsky.social · 08/03/2025
#Inclusion isn't just inviting someone to sit at your table. It's believing they belong there.
Inclusion isn't just inviting someone to sit at your table. It's believing they belong there.
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mgwarrior.bsky.social @mgwarrior.bsky.social · 08/03/2025
#Truth We are all on the on ramp to disability.
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Governor JB Pritzker @govpritzker.illinois.gov · 04/03/2025
Let me say this plainly: If Trump, Elon Musk and Republicans get their way, up to a million Illinoisans will lose health care coverage. It's time to make your voice heard — let them know if they take Medicaid away, you’ll take their job away.
chicagotribune.com
Gov. JB Pritzker: Up to a million Illinoisans will lose health care coverage with slashing of Medicaid
Republicans passed a budget that will mean stripping away health care from working families to finance tax cuts for a privileged few.
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ddm1998.bsky.social @ddm1998.bsky.social · 03/03/2025
ADAPT Texas RALLY FOR DISABILITY RIGHTS IN TEXAS TUESDAY 3/4/2025 @1:30 P.M. NORTH SIDE OF THE STATE CAPITOL Austin, TX, ADAPT Of TX, and a host of Disability Rights Advocates will gather to send a message to Atty General Ken Paxton: Don't Mess with 504.
Black and white image with Texas star and state of Texas with wheelchair symbol. Don’t mess with 504
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mgwarrior.bsky.social @mgwarrior.bsky.social · 04/03/2025
I'd laugh harder at this if I didn't know eradicated diseases are coming back. #ProtectOurHealth #ProtectOurRights
A cross stitch of an Oregon Trail oxen and wagon with "You listened to RFK" below
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mgwarrior.bsky.social @mgwarrior.bsky.social · 03/03/2025
It's important for everyone to understand the wheelchair. How it empowers people. How it brings us together. How it functions. You don't think you might need it someday, and you might be wrong. #Disability #WheelchairDay
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turkoise11.bsky.social @turkoise11.bsky.social · 03/03/2025
www.facebook.com/thelincolnpr...
facebook.com
538K views · 22K reactions | Bloodlines | It is up to us how this ends. | By The Lincoln Project | Facebook
It is up to us how this ends.
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mgwarrior.bsky.social @mgwarrior.bsky.social · 02/03/2025
Embrace #empathy. I wonder why.
A rainbow over the words, I wonder why. Three words that can make space in your heart for empathy. I wonder why they're reacting this way. I wonder why they're feeling this way. I wonder why I'm feeling this way. Sometimes a little curiosity is all we need to respond with kindness instead of anger.
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mgwarrior.bsky.social @mgwarrior.bsky.social · 01/03/2025
#RareDiseaseDay2025 Show Your Stripes #MyastheniaGravis
Show your stripes on rare disease day February 28, 2025 NORD. 3 zebras with different colored stripes. One has blue stripes, one has orange stripes, and one has purple stripes.
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mgwarrior.bsky.social @mgwarrior.bsky.social · 01/03/2025
My doctor entered the room and said, "I know what you have. Have you heard of Myasthenia Gravis?" And I responded, "Yes, I don't want that." All because I googled my symptoms, saw a very sad depiction of a woman with MG, and decided I can't have that, it's rare. #RareDiseaseDay 1/2
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mgwarrior.bsky.social @mgwarrior.bsky.social · 01/03/2025
#LifeWithDisability Individual worth should not be characterized by the "work" we can do. So many people in the disabled community work extra hard to show they are "worthy," many hiding or masking their disability and overworking themselves to remain "valuable." #TrueStory #IDoItToo
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Chronic Illness Humor @chronicillness.bsky.social · 28/02/2025
Happy Rare Disease Day #rarediseaseday #raredisease
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The Ehlers-Danlos Society @ehlers-danlos.com · 28/02/2025
TODAY is #RareDiseaseDay! 💙💚💜 Across the world, our #raredisease community is sharing our colors and demanding equity for the 300 million people living with a rare disease. But what’s the difference between equality and equity?
A digital illustration compares equality vs. equity using three individuals of different heights and abilities reaching for apples on a tree. On the left, labeled "Equality," all three individuals stand on identical platforms, but the shortest person and the person with a mobility aid still cannot reach the apples. On the right, labeled "Equity," each person is given a different number of platforms based on their individual needs, allowing all of them to reach the apples. The image is branded with The Ehlers-Danlos Society’s logo, reinforcing the message of fairness in healthcare access for people with rare diseases.
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mgwarrior.bsky.social @mgwarrior.bsky.social · 28/02/2025
#IAmRare and I can do anything! #MGStrong #MGWarrior #MyastheniaGravis #RareDiseaseDay
A female elf sits in a wheelchair with staff in hand and questing supplies at her sides.
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mgwarrior.bsky.social @mgwarrior.bsky.social · 28/02/2025
#IAmRare #RareDiseaseDay Learn More at rarediseaseday.org
I support rare disease day
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mgwarrior.bsky.social @mgwarrior.bsky.social · 27/02/2025
It's up to us, the American people, to draw the line in the sand and say, "Facts matter. Truth matters." Call your representatives, make sure they know you are paying attention to their inaction. #StandUp
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The Daily Beans Podcast @dailybeanspod.com · 27/02/2025
🚨New #Beans with @muellershewrote.bsky.social & @dgcomedy.bsky.social #MSWMedia Listen: the-daily-beans.simplecast.com/episodes/im-...
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