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@maxemilysm.bsky.social
597 followers 668 following 774 posts

she/her ⚡️unashamed maximalist 📚 MFA in poetry 🪻 gardener 😎 chronically ill/disabled 🧠 #ActuallyAutistic

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David Rangel @davdrangel.bsky.social · 30/04/2026
Jagged Little Pill is wall to wall bangers
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eg @maxemilysm.bsky.social · 06/05/2026
Friends, cancer sucks. If you have any #mutualaid to offer, please consider helping my friend Makenzi, who’s undergoing surgery and chemo for colon cancer while parenting 2 kids under 5. Insurance won’t cover the scan that confirmed the cancer’s return. She’s starting this nightmare in debt.
gofundme.com
Donate to Support Makenzi’s Fight Against Cancer, organized by Abi Grise Morgan
Text: Last week, my best friend, Makenzi Scalise, was diagnosed with stage… Abi Grise Morgan needs your support for Support Makenzi’s Fight Against Cancer
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eg @maxemilysm.bsky.social · 03/05/2026
slightly diminish a book As I Lay Malingering
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eg @maxemilysm.bsky.social · 24/04/2026
Took a big breather from this space but back at the nudge of my therapist because whoops I’m #ActuallyAutistic and this whole late-diagnosis business is uhhhhh lonely and not fun.
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Debra Guckenheimer, PhD @debraguckenheimer.com · 26/07/2025
Statement on the latest executive order www.ndrn.org/resource/nat...
ndrn.org
National Disability Groups Condemn Executive Order Taking Away Civil Liberties - NDRN
What unhoused people with disabilities need is not more policing or confinement, but permanent affordable housing, access to mental health services, and the support to live with dignity in their commu...
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eg @maxemilysm.bsky.social · 20/07/2025
No, you see I NEED my emotional support bottle of expired Tylenol
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Chanda Prescod-Weinstein 🌌 @chanda.blacksky.app · 18/07/2025
make art! if it's the end of the world, you might as well make art! if it's not the end of the world, then the future will be better because people made art right now!
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eg @maxemilysm.bsky.social · 17/07/2025
“We call this difference in adoption propensity the “lower literacy-higher receptivity” link.”
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eg @maxemilysm.bsky.social · 17/07/2025
The specific horror of one of your #MCAS safe foods going viral and being sold out everywhere #NEISvoid
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Jimmer Cork-Bottle @jimmerthatisall.bsky.social · 16/07/2025
It's a real dilemma for me when I'm confronted with a moral issue that wasn't examined by the writers of the original Star Trek.
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Amummy @amummy.bsky.social · 08/07/2025
FYI Bookshop.org has anti-prime free shipping rn!
anti-prime sale
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Black Aziz Anansi @blackazizanansi.blacksky.app · 06/07/2025
And then the people trying breathlessly explain why they dont mask or take protocols anymore all the while trying to tout community care and mutual aid as a personality.
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Black Aziz Anansi @blackazizanansi.blacksky.app · 06/07/2025
I knew we were cooked as a society when everyone just sorta decided they were sick of dealing with Covid and everyone just decided to pretend like it wasn't a thing anymore.
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eg @maxemilysm.bsky.social · 05/07/2025
I thought I had three different eczema outbreaks. Turns out it’s only two different eczema outbreaks, plus shingles! 🙃 Again! I first had it in summer 2020. Feels like my body loves to deal with stress by waking up my ole pal Varicella-Zoster. #NEISvoid
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eg @maxemilysm.bsky.social · 03/07/2025
Do I Dress for the Weather or Dress to Not Get Sexually Harassed: An Autobiography
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eg @maxemilysm.bsky.social · 01/07/2025
Sad to hear of the passing of #DisabilityJustice activist and visionary Patty Berne. #SinsInvalid reminds us: “As we grieve, please care for each other in the ways Patty taught us: Check in on a friend. Cook a meal. Support someone at the edge. Practice Disability Justice in real time.”
A bright illustration of Patty Berne,a Japanese-Haitian person with light brown skin, who smiles playfully with love and light shining from their brown eyes. They wear an off the shoulder opalescent blue dress and an amethyst pendant. Their brown hair is pulled back into their signature two buns. Behind Patty is a pink background with radiant red and yellow flowers. At the top of the image, iridescent capital letters spell out “PATTY LIVES THROUGH US.” On the bottom right corner is Sins Invalid’s logo, a black rectangular box with white letters that read “Sins Invalid.”
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aslynn is just a ghoul 👻 @aslynnromano.com · 01/07/2025
"Do your best" means "Do your best that doesn't compromise your mental, physical, or psychosocial health." Give it 100% of your expendable resources Not 100% of your blood sweat tears ok be safe out there
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eg @maxemilysm.bsky.social · 01/07/2025
Anyone in #NEISvoid with #Sjogrens have experience with cymbalta for neuropathic pain? Just got the rx (trying this in lieu of gabapentin because your girl can’t be an iota sleepier and still function) and nervous about throwing more meds on the fire, per usual. 😬
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eg @maxemilysm.bsky.social · 28/06/2025
WashU’s #longcovid clinic is closing in a few weeks. Rumors that it’s bc the main attending is leaving, but there aren’t any MDs listed on the Infectious Diseases webpage anymore (and the clinic was hosted within that department). The Big Erasing continues, I guess.
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Andrew Couts @couts.bsky.social · 12/06/2025
Update: We've removed the paywall for all ye who enter.
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cluesan al-gaib @clueless.bsky.social · 12/06/2025
yall the people in the streets need the folks at home too. they need people who know where they are, who will miss them, & who can bail them out. they need food, water, medical care. safe places to shelter. some of us aren’t built for physical resistance but that doesn’t mean you’re out of the fight
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J. Offir, PhD @joffirphd.bsky.social · 10/06/2025
In the wake of RFK firing all of the CDC's vaccine (ACIP) advisors, American Medical Association delegates have "passed an emergency resolution urging Kennedy to reverse this move," & "directed AMA leadership to send a letter to the Senate Health, ... 🧵1/3 www.medpagetoday.com/meetingcover...
medpagetoday.com
AMA Calls for Senate Investigation of RFK Jr.
'We do not want to be on the wrong side of history,' one delegate said
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Antifa AF @magicmarian.bsky.social · 07/06/2025
Didn’t expect this from Scientific American but here we are. (Article from 2020 but everything still relevant including COVID precautions)
scientificamerican.com
How to Protect Yourself during Protests
Demonstrators face tear gas, flash bangs, coronavirus and surveillance
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Jeremy Lindenfeld @jeremotographs.bsky.social · 07/06/2025
At the ICE raid and subsequent community resistance in Paramount, California this morning, this skater kid ate dozens of munitions from Border Patrol agents, walked away slowly and flipped them off.
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Solid Evidence @solidevidence.bsky.social · 06/06/2025
This is so cool. I’m pleased to share version 1 of our new dashboard for displaying data from our wastewater metagenomic project. This is a collaborative projected between MU, U. Wisc, and SecureBio; funded by Inkfish and Open Philanthropy. 1/ lungfish-science.github.io/wastewater-d...
lungfish-science.github.io
dashboard2 – 𓆞 lung.fish Data Explorer
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eg @maxemilysm.bsky.social · 04/06/2025
Hey where are we getting our national Covid data from these days, pals? I have local wastewater info I keep tabs on but if a gal wants to know wtf is happening elsewhere what does she do (other than lay down and die)? #NEISvoid
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Jonathan Howard @joho.bsky.social · 04/06/2025
I was turned away at my pharmacy today from getting a Covid vaccine. Even though I was willing to risk a sore shoulder Makary and Prasad felt I shouldn’t have that right. They made the decision for me. My medical freedom and bodily autonomy meant nothing to them.
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eg @maxemilysm.bsky.social · 03/06/2025
CORRECTION: new drop-off hours are 11am-4pm
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eg @maxemilysm.bsky.social · 03/06/2025
Urgent needs for #tornadorelief include food and hygiene items as well as baby food and supplies. Let’s make sure no one goes hungry! Drop off 10am-3pm @ 4343 W Florissant #ActionStLouis #ForTheCultureSTL #STL
A flyer by Action St. Louis and For the Culture STL which lists donation items needed. (Urgent needs are in red and I’ll indicate those here with an asterisk.)

THE PEOPLE'S RESPONSE

JUNE 3, 2025

FOOD
- CANS OF FRUIT AND VEGETABLES*
- CANS OF PROTEIN AND SOUPS*
- CRACKERS AND SNACKS*
- RAMEN/MAC AND CHEESE*
- PASTA*
- PEANUT BUTTER AND JELLY*
- ENSURE*

HYGIENE
- ADULT DIAPERS S/M/XL/2X*
- PANTY LINERS/PADS/TAMPONS*
- DEODORANT*
- CONDITIONER (WE HAVE SHAMPOO)
- TOOTHBRUSHES/TOOTHPASTE*

PET
- CAT FOOD*

BABY
- PEDIALYTE
- BABY FOOD/FORMULA
- DISTILLED WATER*
- NEWBORN DIAPERS*

HOUSEHOLD
- CLOROX WIPES/SPRAY
- CLEANING SUPPLIES
- BLEACH
- GAUZE/BANDAIDS*
- ANTIBIOTIC OINTMENT*

SUPPLIES
- TARPS*
- FLASHLIGHTS/SOLAR-POWERED
LIGHTS*
- IKEA/ALDI REUSABLE BAGS
- TENTS (FAMILY SIZE)*

URGENLY NEEDED ITEMS IN RED

ACTIONSTL.ORG/TORNADO TO GET HELP, VOLUNTEER, OR DONATE.
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eg @maxemilysm.bsky.social · 01/06/2025
Can we reschedule pride month the vibes are off
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Ian Carrillo @iansociologo.bsky.social · 31/05/2025
AI is incapable of solving env injustice and env racism because AI is causing env injustice and env racism.
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eg @maxemilysm.bsky.social · 29/05/2025
I called Josh Hawley’s office to yell about Medicaid cuts and denying trans people healthcare and actually got through to talk to a human, which means we are NOT HARASSING HIM ENOUGH. Do you have a couple mins/energy to call your senator today about H.R.1? www.senate.gov/senators/sen...
senate.gov
U.S. Senate: Contacting U.S. Senators
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eg @maxemilysm.bsky.social · 29/05/2025
Let’s not let waning media coverage deter our response to help neighbors with #tornadorelief needs! We can do it!! Let’s get these babies what they need, especially. Supplies listed on flyer attached (alt text included). Drop off 10am-3pm at 4343 W Florissant. #ActionSTL #ForTheCultureSTL
A flyer from Action St Louis and For the Culture STL which reads:

THE PEOPLE'S RESPONSE
MAY 29, 2025
VOLUNTEERS NEEDED 9:30AM-3:30PM | 4343 W FLORISSANT, 63115

FOOD
- CANNED FRUITS AND VEGETABLES
- CANNED MEALS
- PEANUT BUTTER AND JELLY
- RICE AND PASTA
- JUICE BOXES
- GATORADE
- GRANOLA BARS
- INDIVIDUALLY WRAPPED SNACKS

HYGIENE
- S/M/XL ADULT DIAPERS
- LIQUID BODY SOAP
- LOTION
- SHOWER CAPS
- DEODORANT
- BLACK HAIRCARE PRODUCTS

PET
- DOG FOOD & CAT FOOD

BABY
- SIZE 7 DIAPERS
- GOODNIGHT PULL UPS FOR OLDER KIDS
- BABY FOOD
- BABY WIPES
- DISTILLED WATER

HOUSEHOLD
- CLOROX WIPES/SPRAY
- BLACK YARD TRASH BAGS
- GAUZE
- BANDAIDS
- NEOSPORIN

SUPPLIES
- TARPS
- BROOMS/MOPS
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eg @maxemilysm.bsky.social · 28/05/2025
Volunteers are needed for #tornadorelief clean-up this week! 4343 W Florissant 9:30am—3:30pm My spouse has volunteered and reports it’s incredibly well-organized! Donations still needed as well, focusing on food right now. #ActionStLouis #ForTheCultureSTL
A flyer from Action STL and For the Culture STL which reads:

The People’s Response

MAY 28, 2025
VOLUNTEERS NEEDED
9:30AM-3:30PM
4343 W FLORISSANT, 63115

FOOD
- FRUIT CUPS
- CANNED MEALS
- PEANUT BUTTER AND JELLY
- RICE AND PASTA
- WATER
- GRANOLA BARS
- INDIVIDUALLY WRAPPED SNACKS

BABY
- DIAPER RASH OINTMENT
- BABY FORMULA

SUPPLIES
- BROOMS
- SCREWS/NAILS
- PAPER TOWELS
- TRASH BAGS
- TOILET PAPER

- ZIPLOC BAGS

- SMALL REUSABLE BAGS
- COVID MASKS

- REUSABLE BOXES/BINS
- PET FOOD

ACTIONSTL.ORG/TORNADO TO GET HELP, VOLUNTEER, OR DONATE.
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eg @maxemilysm.bsky.social · 27/05/2025
Recent tornados devastated the north side of St. Louis, an area largely populated by Black families and historically undersupported by the city. #ActionStLouis and #FortheCultureSTL have been on the ground since DAY ONE helping people stay clean and fed and safe, and clearing debris: actionstl.org
actionstl.org
Action St. Louis
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eg @maxemilysm.bsky.social · 27/05/2025
#Disabled pals, did you know you can get a National Parks Access Pass that gives you (and up to 3 other people in your vehicle!) free lifetime entrance? Just picked mine up today. I’m determined to drag this meat sack to as many gorgeous places as I can—rather than die like the gov’t wants me to. 😎
A ground view of the St. Louis Gateway Arch before a blue sky scattered with clouds and one tiny person at the bottom right of the photo behind a fence, showing the enormity of the monument.
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eg @maxemilysm.bsky.social · 27/05/2025
Food items are the most urgent needs for #tornadorelief today! - canned fruits and veg - canned meals - PB&J - rice and pasta - water - granola bars - individually wrapped snacks Drop off 10am-3pm at 4343 W Florissant. #ActionSTL #ForTheCultureSTL #thepeoplesresponse
A flyer from Action St. Louis and For the Culture STL which reads:

THE PEOPLE’S RESPONSE
MAY 27, 2025

BABY
- PULL UPS IN LARGER SIZES

FOOD
- CANNED FRUITS AND VEGETABLES
- CANNED MEALS
- PEANUT BUTTER AND JELLY
- RICE AND PASTA
- WATER
- GRANOLA BARS
- INDIVIDUALLY WRAPPED SNACKS

WE DO NOT NEED
- PAPER TOWELS
- TOILET PAPER
- SMALL REUSABLE BAGS
- REUSABLE BOXES/BINS
- TRASH BAGS
- ZIPLOC BAGS
- COVID MASKS
- PET FOOD

SUPPLIES
- BROOMS
- SCREWS/NAILS

VOLUNTEERS NEEDED 9:30AM-3:30PM
4343 W FLORISSANT, 63115

ACTIONSTL.ORG/TORNADO TO GET HELP, VOLUNTEER, OR DONATE.
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Maggie Astor @maggieastor.bsky.social · 27/05/2025
A huge step from HHS that is at odds with science showing significant risks for young children and pregnant women — and that directly contradicts *the FDA's own publication* from last week listing pregnancy as a high-risk condition that would qualify people for this fall's Covid vaccine
A tweet from HHS secretary Robert F. Kennedy Jr.:

Today, the COVID vaccine for healthy children and healthy pregnant women has been removed from @CDCgov recommended immunization schedule. Bottom line: it's common sense and it's good science. We are now one step closer to realizing @POTUS's promise to Make America Healthy Again.
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budd1011.bsky.social @budd1011.bsky.social · 27/05/2025
www.cbsnews.com/news/covid-v...
cbsnews.com
COVID variant NB.1.8.1 hits U.S. What to know about symptoms, new booster vaccine restrictions
As the Trump administration moves to limit COVID booster vaccines for some, here's what to know about the latest variant NB.1.8.1 and its symptoms.
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eg @maxemilysm.bsky.social · 26/05/2025
Reduced drop off and pick up hours today for emergency #tornadorelief supplies at the Y! 10am-12pm, per #ActionSTL and #thepeoplesresponse.
A flyer from Action STL and For the Culture STL which reads:

The People’s Response
MEMORIAL DAY HOURS
10 A.M. - 12 P.M.
TO GIVE OUR TEAM AND VOLUNTEERS A BREAK, ON MONDAY, MAY 26H, THE PEOPLE'S RESPONSE HUB WILL BE ON REDUCED HOURS.
WE WILL BE BACK TO OUR NORMAL HOURS OF
10 A.M. TO 3 P.M. ON TUESDAY!
NO VOLUNTEERS NEEDED | DONATIONS STILL ACCEPTED PICK UP LINE IS OPEN FROM 10AM-NOON.
ACTIONSTL.ORG/TORNADO TO GET HELP, VOLUNTEER, OR DONATE.
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eg @maxemilysm.bsky.social · 25/05/2025
Today’s urgent needs for #STL #tornadorelief: - CANNED FRUITS AND VEGETABLES - CANNED MEALS - PEANUT BUTTER AND JELLY - RICE AND PASTA - WATER - GRANOLA BARS - INDIVIDUALLY WRAPPED SNACKS - SIZE 7 DIAPERS - PULL UPS - BABY FOOD - DOG FOOD & CAT FOOD (1/2) #thepeoplesresonse
A flyer from Action STL and For the Culture STL which reads:

THE PEOPLE’S RESPONSE
May 25, 2025

FOOD
- CANNED FRUITS AND VEGETABLES
- CANNED MEALS
- PEANUT BUTTER AND JELLY
- RICE AND PASTA
- WATER
- GRANOLA BARS
- INDIVIDUALLY WRAPPED SNACKS

BABY
- SIZE 7 DIAPERS
- PULL UPS
- BABY FOOD

HOUSEHOLD
- CLOROX WIPES
- SINGLE USE ALCOHOL WIPES
- PAPER TOWELS

HYGIENE
- BLACK YARD TRASH BAGS
- L-XXL ADULT DIAPERS
- GAUZE
- PADS AND TAMPONS
- TOOTHBRUSHES & TOOTHPASTE
- LIQUID BODY SOAP

PET
- DOG FOOD & CAT FOOD

SUPPLIES
- RAIN PONCHOS/UMBRELLAS
- TARPS
- NITRILE GLOVES
- METAL RAKES/SHOVELS

4343 W FLORISSANT, 63115

ACTIONSTL.ORG/TORNADO TO GET HELP, VOLUNTEER, OR DONATE.
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PawsButton @pawsbutton.bsky.social · 25/05/2025
A screen grab of Star Trek: The Next Generation, with Data telling Geordi “you may experience the emptiness with me if you wish.”
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eg @maxemilysm.bsky.social · 24/05/2025
Today’s urgent needs for #STL #tornadorelief via #thepeoplesresponse: Shampoo and conditioner Liquid body soap Large reusable bags like the IKEA ones (we are basically out of these and need a lot more) Drop off 10am-3pm at 4343 W Florissant
Screencap of a Facebook post by Ohun Ashe, a Black activist. It reads:

Date: 5/24/25
Time: 10a-3p (Volunteers can come at 9:30a)
Location: O'Fallon YMCA - 4343 W Florissant, 63115

We do anticipate a high volume tomorrow so please be patient, we're moving as fast as we can

If you're an able body volunteer, please try street parking

Urgent needs:
Shampoo and conditioner
Liquid body soap
Large reusable bags like the IKEA ones (we are basically out of these and need a lot more)

Additional needs:
Nitrite gloves
Ace bandage wraps and gauze
Granola Bars
Jars of baby food
Ensure
Nutrient filled meals that are non perishable (canned soups, instant rice, etc)
Fruit cups
Crackers
Lawn bags
Tarps
Zip ties
Lip balm and Vaseline
Rain ponchos
Toothbrushes
We do not need:
Toothpaste
Bars of body soap
Deodorant
Cleaning supplies

Also, thank you. We love yal!!!!
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eg @maxemilysm.bsky.social · 23/05/2025
Urgent needs for today’s #tornadorelief with #ThePeoplesResponse: • RAKES • REGULAR AND PUSH BROOMS • NON-PERISHABLE FOODS (NOT SNACKS) • CANNED GOODS (POP TOP) • PEANUT BUTTER • JELLY • TUNA/CHICKEN • DEODORANT Drop off 10am-3pm at 4343 W Florissant #STL
A flyer reading:

THE PEOPLE'S RESPONSE
MAY 23, 2025
URGENT NEEDS
• RAKES
• PUSH BROOMS
• REGULAR BROOMS
• NON-PERISHABLE FOODS (NOT SNACKS)
• CANNED GOODS (POP TOP)
• PEANUT BUTTER
• JELLY
• TUNA/CHICKEN
• DEODORANT

WE DO NOT NEED
• MASKS
• SANITIZING WIPES
• WORK GLOVES

PLEASE ONLY DROP OFF DONATIONS BETWEEN THE HOURS OF 10 A.M.
AND 3 P.M. SO OUR TEAM HAS TIME TO TURN OVER FOR DINNER SERVICE.
4343 W FLORISSANT, 63115
ACTIONSTL.ORG/TORNADO TO GET HELP, VOLUNTEER, OR DONATE.
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eg @maxemilysm.bsky.social · 22/05/2025
I was told they especially need: - big tarps - flashlights (batteries included, or solar powered/crank/etc) I’ve seen other lists today saying they’re in urgent need of diapers and nonperishable food (pop-top cans only) as well. Drop off at 4343 W Florissant, 10am-3pm. #STL #tornadorelief
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