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Lyme Disease Action @lymediseaseaction.org.uk · 15/09/2026

Good, succinct arguments for thinking widely. #ticks and their pathogens are changing as are #mosquitoes and theirs. The #OneHealth approach applied to urban planning. Everyone knows the benefits, some know the risks, awareness and coordination are needed to plan for the unknowns.

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Lyme Disease Action @lymediseaseaction.org.uk · 13/09/2026

Interesting day at a Devon village fair. Discussions with farmers, gardeners etc many knowing those who have had #Lyme disease. Children fascinated & repelled by #ticks! Leaflets and tick removers left our stand.

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Patient Information Forum @pifonline.bsky.social · 06/08/2026

2025 was a year of growth, influence and increasing impact for PIF. Amid rapid technological change and growing concern about misinformation, we continued to champion quality, trusted health information. We have put together our achievements in our Annual Review at pifonline.org.uk/resources/an...

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Lyme Disease Action @lymediseaseaction.org.uk · 14/07/2026

Thankyou @patientlibrary.bsky.social for all your past newsletters and analysis. V sorry "That's all"! It is to be regretted that no-one has provided funding for your work. #Patients are at the heart of the NHS, they matter and #patientexperience can be illuminating and lead to +ve change.

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Lyme Disease Action @lymediseaseaction.org.uk · 03/07/2026

Will you support us in producing #evidence based info? Easy to sign up to easyfundraising. Then shop with 8,000+ online retailers and brands which donate to us - no cost to you! Use the link below and easyfundraising will give us bonus donations. join.easyfundraising.org.uk/lyme-disease...

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You spend, brands donate to Lyme Disease Action.

Help us when you shop with 7,000+ brands. Join now.

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Lyme Disease Action @lymediseaseaction.org.uk · 02/07/2026

This is just "lab-confirmed acute"; does not include * those with the characteristic rash not needing a test * those late diagnosed by NHS lab test * a missed diagnosis - symptoms can be confusing. Summer 'flu? Check it out www.lymediseaseaction.org.uk

lymediseaseaction.org.uk

Lyme Disease Action — Lyme Disease Action: The longest established UK charity working on Lyme disease and tick-borne diseases. Accredited to the UK quality mark PIF Tick for trustworthy information.

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Lyme Disease Action @lymediseaseaction.org.uk · 02/07/2026

This is the reality of what a tick looks like to you. Would you spot it on your wrist? Best test, when feeling a small scab, is to use your fingers to see if it rocks back and forth. If yes, then get your tick remover!

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Lyme Disease Action @lymediseaseaction.org.uk · 02/07/2026

SW counties of England have the highest no. of confirmed #Lymedisease cases per population www.bbc.co.uk/news/article... If you live or go on holiday to the SW be aware! The ticks are a lot smaller than the BBC image suggests! @ukhsasouthwest.bsky.social

bbc.co.uk

South West highest risk for tick bites and Lyme disease - report

A 2025 report confirmed there were 281 laboratory-confirmed acute Lyme disease cases in the region.

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Lyme Disease Action @lymediseaseaction.org.uk · 29/06/2026

You do not want to contract #Lymedisease. Do you have a defence plan? www.lymediseaseaction.org.uk/what-we-are-...

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Lyme Disease Action @lymediseaseaction.org.uk · 29/06/2026

Cooler weather and the #ticks are out looking for a meal. You won't feel them attach and they'll stay until you remove them. See how they cling! www.lymediseaseaction.org.uk/wp-content/u...

lymediseaseaction.org.uk

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Lyme Disease Action @lymediseaseaction.org.uk · 19/06/2026

European #Tick-Borne Disease 2026- preliminary programme published. www.etbd.eu Anyone from @ukhsa.bsky.social or @hpruezi.bsky.social going? We need to find out about current research, and start collaborations, as #TBDs on the rise in the UK.

etbd.eu

ETBD

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Lyme Disease Action @lymediseaseaction.org.uk · 10/06/2026

Thankyou @adamjamesdance.bsky.social for questioning Dept of Health re cases of #Lymedisease in #Somerset. NB their answer (cases not up over the last 7 years) is misleading as that only applies to what is classified as lab confirmed acute cases. www.theyworkforyou.com/wrans/?id=20...

theyworkforyou.com

Lyme Disease

Department of Health and Social Care written question – answered at 9 June 2026

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Lyme Disease Action @lymediseaseaction.org.uk · 06/06/2026

2 trustees back from #NordTick2026, now have to write up a summary. Many interesting talks & posters. Always good to meet researchers, clinicians & patient orgs we only see at international conferences. Notable how #TBE & #Neoehrlichia are growing topics yet to be major problem in UK.

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Lyme Disease Action @lymediseaseaction.org.uk · 28/05/2026

Printed poster from brill @SciencePosters: easy to pack for #NordTick 2026 next week. Hope for good discussions to inform UK research which seems not to respond to need #ticks - yes; #Lyme -not apparent @hpruezi.bsky.social Can Europe help? @francelyme.bsky.social @tekenbeetziekten.bsky.social

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Lyme Disease Action @lymediseaseaction.org.uk · 21/05/2026

If you know you get #ticks attaching to you and you need some protection, why not try a repellent. Plant based, effective and easy to use. www.lymediseaseaction.org.uk/what-we-are-...

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Lyme Disease Action @lymediseaseaction.org.uk · 21/05/2026

New figures on #Lyme disease cases highlights the rise in "longstanding" Lyme. @UKHSA says may be previous disease, not active. But these people had test because of illness. Want #PIFTick accredited info on this? www.lymediseaseaction.org.uk/about-lyme/c... @theguardian.com

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Lyme Disease Action @lymediseaseaction.org.uk · 21/05/2026

Highest no of cases in the SW and SE, as in previous years. Awareness is needed as we move to peak tick activity. @forestresearchuk.bsky.social @royalforestrysoc.bsky.social @dartmoorac.bsky.social @newforestcommoner.bsky.social

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Lyme Disease Action @lymediseaseaction.org.uk · 09/05/2026

Treating patients as partners, to contribute a new important perspective, is much more effective than simply using patients to tick a box. But how to make the change?!

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Lyme Disease Action @lymediseaseaction.org.uk · 27/04/2026

As it's in the top 10, here's hoping it has raised awareness. A bit horrifying that only 42% English survey responders would have prescribed doxycycline at the right dose. But maybe when faced with a case now, they would consult @nicecomms.bsky.social. Have to hope!

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Lyme Disease Action @lymediseaseaction.org.uk · 19/04/2026

If you shop online, you can help us raise funds for #research into #Lyme disease using @easyfundraising.bsky.social - it costs you zero as the retailer donates on your behalf. Over 8,000 retailers will donate incl Booking.com, eBay, M&S and more. Visit: www.easyfundraising.org.uk/causes/lyme-...

easyfundraising.org.uk

You spend, brands donate to Lyme Disease Action.

Help us when you shop with 7,000+ brands. Join now.

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Reposted by Lyme Disease Action

Microbes.Info @microbesinfo.bsky.social · 02/04/2026

👍

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Lyme Disease Action @lymediseaseaction.org.uk · 30/03/2026

Easter holidays, get out and about and enjoy the Spring! But don't forget to check for #ticks after your #walking #camping trip! @theroyalparks.bsky.social @ramblersscotland.bsky.social If you want any posters for noticeboards, just ask us and we can send.

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Countryside Jobs Service @countrysidejobs.bsky.social · 23/03/2026

Whose health matters in the countryside? During #TickBitePreventionWeek we’re exploring ticks, tick-borne diseases and the links between human, animal and environmental health. @lymediseaseaction.org.uk explains the One Health approach: c-js.uk/3Otu3lM

an infographic showing people, plants, animals and landscape. Text reads: Whose Health Matters in the countryside.

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Lyme Disease Action @lymediseaseaction.org.uk · 20/02/2026

Just to remind you - #ticks are beginning to get more active. If you work or exercise in garden, woodland, even town park, it might be worth a refresher. How do you spot them? and then remove them? www.lymediseaseaction.org.uk

lymediseaseaction.org.uk

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Healthwatch Somerset @healthwatchsom.bsky.social · 09/02/2026

Pain Cafes are free to join across #Somerset to help you to have a better quality of life despite long-term pain. Find your nearest group: bit.ly/PainCafeSome... Mandy, our Engagement Officer, will be at Community Pain Hub on 10 Feb 1pm-3pm, Priorswood Community Centre, Taunton. #LiveWellWithPain

bit.ly

Pain Cafes in Somerset - Our Somerset

Learning to Live with Pain in Somerset Find support for learning to live well with pain. Pain Café are running now across Somerset. To join one, you must be registered with the relevant GP in the area...

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ticks7.bsky.social @ticks7.bsky.social · 07/02/2026

Thanks! We do not know much about the micro-ecology of vectors&reservoirs (Lyme). Using his-res vegetation does not work: researchers collected the tick at low res. for many years (eg. 1 km. res.). We need high-res records and data. Also, the lack of homogeneous data for hunting, conservation, etc.

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Lyme Disease Action @lymediseaseaction.org.uk · 07/02/2026

Fascinating and with surprising UK results, though we notice the careful word "tendency"! Thank you for the work and glad you enjoyed it. The other factors such as nature conservation may be more difficult to analyse as I guess data harder to come by.

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The Royal Parks @theroyalparks.bsky.social · 07/02/2026

You may have noticed that it has been a little bit wet recently ☔ This shouldn't stop you from getting out into the parks to connect with nature, especially as it is one of the best things we can do for our physical and emotional wellbeing 🙌 Find out more by reading on below 🔽

royalparks.org.uk

The best nature walks in London

A selection of the best nature walks in London for you to enjoy

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Lyme Disease Action @lymediseaseaction.org.uk · 26/01/2026

Approach your GP carefully if worrying about #Lyme disease. They know there is a lot of poor info on the internet, so stick to facts and have a look here first www.lymediseaseaction.org.uk/resources/se...

lymediseaseaction.org.uk

Self Help | Lyme Disease Action

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Lyme Disease Action @lymediseaseaction.org.uk · 26/01/2026

Gosh - all those familiar faces who helped us from May 2010 all the way through to publication in Jan 2013! Huge thanks to you all for keeping going and growing and strengthening the JLA to where you are now.

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Lyme Disease Action @lymediseaseaction.org.uk · 14/01/2026

Pain systems in the brain light up when people are rejected. Would this amplify pain of people with post treatment #Lyme disease? They are rejected, not investigated & not even considered to have a real problem. @liverpooluni.bsky.social seems to have abandoned the area. @benedictneuro.bsky.social

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Patient Safety Learning @patientsafetylearning.org · 08/01/2026

New blog on the hub this week - When lived experience is embedded at every stage of research. Link: www.pslhub.org/learn/patien... #patientsafety

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Lyme Disease Action @lymediseaseaction.org.uk · 08/01/2026

Worth noting that health organisations accredited to the @pifonline.bsky.social #PIFTick have proved that they have "obtained, recorded and referenced up to date, relevant and trustworthy evidence sources".

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Patient Information Forum @pifonline.bsky.social · 05/01/2026

🌟 @lymediseaseaction.org.uk is now PIF TICK re-certified. This means its health information continues to be: - Evidence-based - Up-to-date - Easy to use and understand Get PIF TICK certified: pifonline.org.uk/pif-tick/how... #HealthInformation #PIFTICK

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Lyme Disease Action @lymediseaseaction.org.uk · 25/12/2025

Happy Christmas to everyone out there and here's looking forward to some research insights on #Lyme disease in 2026. If you didn't know how a sheep #tick could disguise itself at Christmas, try this jigsaw. Best on tablet or PC. www.lymediseaseaction.org.uk/what-you-can...

lymediseaseaction.org.uk

Light Relief | Lyme Disease Action

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Lyme Disease Action @lymediseaseaction.org.uk · 10/12/2025

Don't know where we'd be without brilliant @pdfsam.org Just used it to split out #tick-borne disease specific parts of Chris Whitty's CMO annual report for circulation. Gets 38Mb into something more easily readable, esp on mobiles! www.gov.uk/government/p...

gov.uk

Chief Medical Officer’s annual report 2025: infections

Professor Chris Whitty’s annual report considers trends, successes and challenges in preventing and treating infectious diseases.

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Patient Information Forum @pifonline.bsky.social · 10/12/2025

🌟 @encephalitisint.bsky.social is now PIF TICK re-certified. This means its health information continues to be: - Evidence-based - Up-to-date - Easy to use and understand Get PIF TICK certified: pifonline.org.uk/pif-tick/how... #HealthInformation #PIFTICK

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Lyme Disease Action @lymediseaseaction.org.uk · 28/11/2025

A real challenge is the start of the journey. #Researchers are signposted by their university department interests. #Patients are signposted by their (sometimes desperate) needs for solutions. Often the paths never even cross. @jameslindalliance.bsky.social

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Patient Information Forum @pifonline.bsky.social · 27/11/2025

Social media can be a great way to find health information, but there are risks when using and sharing content. Our updated guide for the public gives tips on how to find trusted health information on social media. Download at piftick.org.uk/guide/how-to... #PIFTICK #HealthInformation

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Lyme Disease Action @lymediseaseaction.org.uk · 11/11/2025

Now we know when we have the best chance of collecting nymph #ticks for demo - at night, in November, when it's damp! Wonderful study - big thanks to the persisting researchers. @hannahvineer.bsky.social www.biorxiv.org/content/bior... Night hunting #cats need continued tick protection.

biorxiv.org

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Lyme Disease Action @lymediseaseaction.org.uk · 29/10/2025

BBC World Service asks 4 experts about #Lyme disease. www.bbc.co.uk/sounds/play/... First quick summary fails to say it was a mother, Polly Murray, who pushed for investigation of the arthritis outbreak in Connecticut. Why are patients always brushed aside? @patients-association.org.uk

bbc.co.uk

The Inquiry - Why are more people getting Lyme disease? - BBC Sounds

Lyme disease is becoming more common. But what’s driving that?

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Lyme Disease Action @lymediseaseaction.org.uk · 27/10/2025

AI can gather stories in the blink of an eye. But from where? Only from stories all ready digitally told. Potentially useful (many of them) but potentially misleading, so safeguards on context and date are vital.

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Patient Information Forum @pifonline.bsky.social · 10/10/2025

Topics from the use of health data for research to the medicines supply chain are explained in a new set of videos from @abpi.bsky.social. The series of short clips cover key topics central to the ABPI work and mission. Head to their YouTube page to see the full list here: lnkd.in/ecCH_hPN

A screengrab from YouTube showing four video thumbnails. Top left is a still from a video called Careers in the pharmaceutical industry with a man talking to the camera.Top right is a video called Why the pharmaceutical industry works with patients with a man with folded arms looking at the camera, not smiling.Bottom left is a video called Why NHS data is important for medical research with a woman talking to the camera, and bottom right is a video called The clinical trial process with the same woman facing the camera, not smiling.

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Lyme Disease Action @lymediseaseaction.org.uk · 14/10/2025

To bring people outdoors is undoubtedly good for their mental health. We do need to make people aware of #ticks and #Lyme disease in a way that does not put them off outdoor activity @newforestnpa.bsky.social @saragandy.bsky.social @bethpurse.bsky.social

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Patient Information Forum @pifonline.bsky.social · 06/10/2025

We are very happy to announce the new-look PIF TICK website is now live. The revamped PIF TICK website helps people find trusted health information and avoid dangerous misinformation. See the updated PIF TICK website here: piftick.org.uk Read the news story here: pifonline.org.uk/news/pif-tic...

Bright blue background. On the left reads: Health information you can trust with a woman holding the PIF TICK. On the right it reads: Search our certified PIF TICK creators by health topic on piftick.org.uk. Underneath are check boxes that read: Evidence-based. Up-to-date. Easy to use and understand.

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Lyme Disease Action @lymediseaseaction.org.uk · 02/10/2025

Paper for consideration by those looking at post treatment #Lyme disease. #Lyme arthritis solved, so what about other manifestations caused by interaction of #Borrelia with #immune system? Any #research interest out there thinking of #PPIE? (said more in hope than expectation). @nihr.bsky.social

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Lyme Disease Action @lymediseaseaction.org.uk · 01/10/2025

He also emphasised that uncertainties must be acknowledged, or trust is lost. You cannot reach people (to inform on misinformation) if they do not trust you.

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