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Lyme Disease Action @lymediseaseaction.org.uk · 13/09/2026

Interesting day at a Devon village fair. Discussions with farmers, gardeners etc many knowing those who have had #Lyme disease. Children fascinated & repelled by #ticks! Leaflets and tick removers left our stand.

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Lyme Disease Action @lymediseaseaction.org.uk · 02/07/2026

This is the reality of what a tick looks like to you. Would you spot it on your wrist? Best test, when feeling a small scab, is to use your fingers to see if it rocks back and forth. If yes, then get your tick remover!

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Lyme Disease Action @lymediseaseaction.org.uk · 29/06/2026

You do not want to contract #Lymedisease. Do you have a defence plan? www.lymediseaseaction.org.uk/what-we-are-...

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Lyme Disease Action @lymediseaseaction.org.uk · 10/06/2026

However, the group classified by UKHSA as "Lyme longstanding" has been rising. Some will not be current infection but the vast majority were late diagnosed and therefore have had a more difficult recovery. They may still be suffering. More discussion here www.lymediseaseaction.org.uk/latest-news/...

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Lyme Disease Action @lymediseaseaction.org.uk · 10/06/2026

People diagnosed without a blood test are not reported so we have no idea how many there are. If they had the typical rash, they don't need a blood test, so they should have had early treatment and (if treatment was correct) one hopes a quick recovery.

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Lyme Disease Action @lymediseaseaction.org.uk · 06/06/2026

2 trustees back from #NordTick2026, now have to write up a summary. Many interesting talks & posters. Always good to meet researchers, clinicians & patient orgs we only see at international conferences. Notable how #TBE & #Neoehrlichia are growing topics yet to be major problem in UK.

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Lyme Disease Action @lymediseaseaction.org.uk · 28/05/2026

Printed poster from brill @SciencePosters: easy to pack for #NordTick 2026 next week. Hope for good discussions to inform UK research which seems not to respond to need #ticks - yes; #Lyme -not apparent @hpruezi.bsky.social Can Europe help? @francelyme.bsky.social @tekenbeetziekten.bsky.social

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Lyme Disease Action @lymediseaseaction.org.uk · 21/05/2026

Very wise! It is those from towns who (this weekend) will be coming to Devon and sitting down in a nature spot in their shorts who need a tick remover handy! Most people have no idea how small these ticks can be, and how painlessly they attach.

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Lyme Disease Action @lymediseaseaction.org.uk · 21/05/2026

If you know you get #ticks attaching to you and you need some protection, why not try a repellent. Plant based, effective and easy to use. www.lymediseaseaction.org.uk/what-we-are-...

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Lyme Disease Action @lymediseaseaction.org.uk · 21/05/2026

New figures on #Lyme disease cases highlights the rise in "longstanding" Lyme. @UKHSA says may be previous disease, not active. But these people had test because of illness. Want #PIFTick accredited info on this? www.lymediseaseaction.org.uk/about-lyme/c... @theguardian.com

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Lyme Disease Action @lymediseaseaction.org.uk · 30/03/2026

Easter holidays, get out and about and enjoy the Spring! But don't forget to check for #ticks after your #walking #camping trip! @theroyalparks.bsky.social @ramblersscotland.bsky.social If you want any posters for noticeboards, just ask us and we can send.

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Lyme Disease Action @lymediseaseaction.org.uk · 20/08/2025

Need to find #ticks for tomorrow's #MelplashShow nr #Bridport. Land around is v dry but finally, one nymph! Need to show everyone how small a tick is so they can avoid #Lymedisease. Come and get some sane, #PIFTick (no pun!) accredited info. @georgemcgavin.bsky.social @milesking.bsky.social

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Lyme Disease Action @lymediseaseaction.org.uk · 05/07/2025

A bit damper out there and the ticks are on the move. They are part of our #wildlife, but you don't want one on you! We can offer a choice of tools - take your pick. @moorlandassoc.bsky.social @richmondramblers.bsky.social @themessyecologist.bsky.social www.lymediseaseaction.org.uk/what-we-are-...

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Lyme Disease Action @lymediseaseaction.org.uk · 05/06/2025

Has our view as a patient organisation dealing with tick-borne diseases changed? When we look out at who we try to converse with, is our view A or have we changed it to B? Find out what we said at the European conference here www.lymediseaseaction.org.uk/latest-news/...

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Lyme Disease Action @lymediseaseaction.org.uk · 02/06/2025

Outdoors in the New Forest, working or walking? You're invited to join @ukhsa.bsky.social study to look at possible exposure to Lyme disease and tick-borne encephalitis virus (TBE). @newforestcommoner.bsky.social @newforestnpa.bsky.social @forestresearchuk.bsky.social @royalforestrysoc.bsky.social

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Lyme Disease Action @lymediseaseaction.org.uk · 26/05/2025

Think you know what a #tick looks like? would you spot this if behind your knee? Awareness is key to avoid #Lymedisease. Check your skin with fingertips! @frptweets.bsky.social @royalforestrysoc.bsky.social

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Lyme Disease Action @lymediseaseaction.org.uk · 22/05/2025

Continuing symptoms after #Lyme disease - key research questions from USA. Growing problem in the UK, why so little interest? @lanceturtle.bsky.social @smhopkins.bsky.social @caminfectdis.bsky.social @lshtm.bsky.social

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Lyme Disease Action @lymediseaseaction.org.uk · 20/05/2025

Everyone needs trustworthy health information. The #PIFTICK accreditation scheme has now been going for 5 years - congrats to everyone at @pifonline.bsky.social who have kept it going. Health professionals should know where to signpost their patients to avoid misinformation @bmj.com

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Lyme Disease Action @lymediseaseaction.org.uk · 10/05/2025

Great notice board in Richmond Park @frptweets.bsky.social raising awareness of #ticks and #Lyme disease @theroyalparks.bsky.social. Anyone else need leaflets or images? Just contact us.

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Lyme Disease Action @lymediseaseaction.org.uk · 03/05/2025

Larval stage of tick so tiny it is easy to miss until it itches about 12 hours after attaching, like this one did this a.m. You need a magnifier or short sight. Or feel it wobble. Check before scratching and remove carefully!

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Lyme Disease Action @lymediseaseaction.org.uk · 01/05/2025

Out for a walk? Showers in a few places will bring the #ticks out looking for a meal. Awareness is key - check your skin after being out on the moors, woods, garden. Small scab rocking back and forth? Reach for the tick remover! @ramblersscotland.bsky.social @healthwatchsom.bsky.social

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Lyme Disease Action @lymediseaseaction.org.uk · 15/04/2025

Ticks evolved to stay firmly attached for the duration of their meal - several days! Invest in a proper #tickremover now as their season is getting underway. #tickawareness www.lymediseaseaction.org.uk/what-we-are-...

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Lyme Disease Action @lymediseaseaction.org.uk · 15/04/2025

First spot your tick. Would you notice it on your leg? It doesn't hurt or itch until it's been attached for about 12 hours. Remove it with a tick remover and send it to the tick surveillance team @ukhsa.bsky.social

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Lyme Disease Action @lymediseaseaction.org.uk · 09/04/2025

A free pack of awareness leaflets on its way to Richmond Park Visitor Centre @frptweets.bsky.social. Ticks starting to move! Would @theroyalparks.bsky.social like another batch? @pifonline.bsky.social #PIFTick accredited info that every park visitor needs.

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Lyme Disease Action @lymediseaseaction.org.uk · 17/01/2025

European conference on #tick-borne diseases - you can participate in person or online. We need collaboration of researchers with healthcare professionals to advance diagnosis and treatment. www.etbd.eu

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Lyme Disease Action @lymediseaseaction.org.uk · 13/01/2025

No sheep tick though! ChatGPT clearly couldn't find our Xmas card

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Lyme Disease Action @lymediseaseaction.org.uk · 25/12/2024

Apparently our brains work well when freewheeling, so set them free in the complex interaction of #ticks & hosts while solving this www.lymediseaseaction.org.uk/what-you-can... @liverpooluni.bsky.social @ticks7.bsky.social @btschirren.bsky.social @bethpurse.bsky.social @tekenbeetziekten.bsky.social

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