iiinova — where your digital self keeps evolving

Lisa Segal @lisas25.bsky.social · 15/09/2025

The noise (and the “it’s gunfire” thoughts) is overwhelming. The noise is unbearable really.

Lisa Segal @lisas25.bsky.social · 15/09/2025

We have cars on roads near us set up with exhausts meant to sound like bullets firing. And it’s legal. I almost break every time. I understand. I’m so sorry. 😢

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Lisa Segal @lisas25.bsky.social · 15/09/2025

💙😢 thank you for your kind note. no I don’t know about the feed. Could you please tell me how to find it? TY. 🙏🏽

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Lisa Segal @lisas25.bsky.social · 11/09/2025

Who should take care of patients with severe ME? There’s nothing in the U.S. Currently reliant on a physically abusive (and emotionally abusive, but the domestic violence is so frightening) family member. With no options I can find, even with a home, good HI, savings.

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Lisa Segal @lisas25.bsky.social · 10/09/2025

People with severe ME and chronic pain from SFN & other conditions need carers who help. When a carer becomes abusive we are in trouble. When the carer becomes physically abusive we have hit the place where there is no place to go.

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Lisa Segal @lisas25.bsky.social · 18/07/2025

@unbreaking.org is doing essential work. Sign up for their newsletter, follow them here, and sign up for @lizneeley.bsky.social newsletter as well! Much needed and outstanding work and content.

unbreaking.org

Unbreaking

How the administration is breaking the government, and what that means for all of us.

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Reposted by Lisa Segal

Max Kozlov @maxkozlov.bsky.social · 15/07/2025

NEW: In an unprecedented move, the NIH will soon disinvite dozens of scientists about to take positions on advisory councils that make final decisions on grant funding. NIH staff were told to select others aligned with the Trump administration and told to expect placements by political appointees.

nature.com

Exclusive: NIH to dismiss dozens of grant reviewers to align with Trump priorities

The move would undo years of work, leaving advisory councils understaffed, and without the full expertise needed for reviews.

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Lisa Segal @lisas25.bsky.social · 22/05/2025

Thank you! ❤️ Much appreciated!

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Lisa Segal @lisas25.bsky.social · 21/05/2025

Introducing Spiced Latte, a/k/a Spice! He’s almost 6 months old. Runs and jumps like a rabbit. Major snuggle bug. He’s fine as long as he doesn’t lose sight of us. Celebrating his first full week home with us. ❤️

Spice, our white with black spots pitbull mix pup, on the couch with a soft toy.

Spice sitting very tall looking out the door.

Spice’s white head looking out from under a blanket.

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Lisa Segal @lisas25.bsky.social · 15/05/2025

Need help from people with Sjogren’s whether diagnosed or not. What kind of doctors are you seeing? What kind of help are they providing? If not diagnosed, would they still see you? Also, any doctors you would recommend in either New York City or Boston? Thank you!🙏🏼 #Sjogren’s

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Lisa Segal @lisas25.bsky.social · 02/05/2025

As illness becomes increasingly debilitating & SFN is the only diagnosis (while all the other symptoms you have listed are present to a severe degree) it seems as though the medical community will win this one. So unable to function, how possibly to find, & then travel to other specialists?

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Lisa Segal @lisas25.bsky.social · 08/04/2025

They plan for more than the Dire Wolf. Those opposed, quoted in this article, speak of, among other things, cruelty to the animals. And the profit motive.

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Reposted by Lisa Segal

Andrea Ritchie @dreanyc123.bsky.social · 08/04/2025

Lawyers be forewarned, be prepared, be like Makled. And remember the fact that someone is your client is also covered by atty client privilege (for as long as that lasts) www.freep.com/story/news/l...

freep.com

Lawyer for U-M protester detained at airport after spring break trip with family

Dearborn lawyer says feds tried to seize his cellphone at Detroit Metro Airport as he returned from spring break trip with his family.

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Lisa Segal @lisas25.bsky.social · 08/04/2025

Christmas was a beautiful boy. I’m so sorry. It’s so hard. The orangeys in Heaven have a new friend.

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Lisa Segal @lisas25.bsky.social · 07/04/2025

This is something that cannot be explained & it seems is not even believed by the people who are supposed to understand my disease. 😥

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Rio Tazewell @riotazewell.bsky.social · 04/04/2025

It's time for the biggest protest this country has seen in years: refuting Trump, Musk and their billionaire cronies. THIS SATURDAY there will be 1200+ rallies in all 50 states united by a simple message. HANDS OFF OUR FREEDOMS HANDS OFF OUR DEMOCRACY HANDS OFF OUR ECONOMY handsoff2025.com

handsoff2025.com

Hands Off!

Donald Trump and Elon Musk think this country belongs to them. They're taking everything they can get their hands on and daring the world to stop them. On Saturday, April 5th, we're taking to the stre...

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Lisa Segal @lisas25.bsky.social · 25/03/2025

💯 Also, see NYCLU letter to sign. I’ve posted it, & it’s on their website.

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Lisa Segal @lisas25.bsky.social · 06/03/2025

protectmypublicmedia.org Today, March 6 is Protect My Public Media Day – a national day of action to urge Congress to protect & sustain public media funding. With a critical government funding deadline on March 14, & increasing calls to defund public media, this is a pivotal moment to take action.

protectmypublicmedia.org

Protect My Public Media

Take a stand for the local stations and programs you love.

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Lisa Segal @lisas25.bsky.social · 04/03/2025

The problem w/ this is that people on SS (older), or on SSDI (disabled) in general don’t have the ability to march in the streets. There’s no complacency among those with disabilities or older folks, but they certainly can’t cause all hell to break loose on their own. Please don’t blame them.

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Reposted by Lisa Segal

Kara Jorgensen @authorkaraj.bsky.social · 22/01/2025

All NIH studies are on hold as are grants, research, etc. Please call your reps and senators to tell them you are concerned. Pressure is needed.

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Lisa Segal @lisas25.bsky.social · 16/11/2024

And this poem by Li Shang-Yin, the last words of The Dog Stars.

When Will I be home?

When will I be home? I don’t know.
In the mountains, in the rainy night,
The Autumn lake is flooded.
Someday we will be back together again.
We will sit in the candlelight by the West window.
And I will tell you how I remembered you
Tonight on the stormy mountain.

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Lisa Segal @lisas25.bsky.social · 16/11/2024

From the end of one of my favorite books, The Dog Stars, by Peter Heller: "I still dream Jasper is alive. Before this I cannot go.”

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Lisa Segal @lisas25.bsky.social · 16/11/2024

Our beloved dog, Baxter, died on 11/2. He was old, had cancer, & we had to have him euthanized. Grief overwhelming. Rescue always. He rescued us. Then the election. On that I am numb now. For Baxter the grief & missing is always, accompanied by kitty purrs who seem to know.

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Lisa Segal @lisas25.bsky.social · 16/11/2024

I must admit my daughter set this up for me both times but she said it was very easy. & then I could review all the folks (with the same name) whom I was following on X. (I’m tech challenged! 😩)

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Lisa Segal @lisas25.bsky.social · 16/11/2024

I have Medicare and due to my chronic illness/chronic pain/orthostatic intolerance and general lack of mobility, I use telehealth for almost all my medical appointments. I’m in NY. Without telehealth I won’t be able to get medical care.

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Lisa Segal @lisas25.bsky.social · 16/11/2024

So glad to see you here, Lizzy! There’s also a sky follower bridge tool to find all of the folks you followed on Twitter who are here. It’s an extension on chrome and works quite well. Sending love ❤️

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Lisa Segal @lisas25.bsky.social · 15/11/2024

Really!? Although I use our library quite frequently, I did not know this. Thank you!

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Lisa Segal @lisas25.bsky.social · 15/11/2024

Yes! Also, your local bookstore will almost certainly be happy to order a book for you if they don’t have it and they will mail it to you. You can also order directly from independent publishers. ❤️📚

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Lisa Segal @lisas25.bsky.social · 14/11/2024

Here it is -picture & all - if you want it. We’re so glad to have you and the orangeys (et al) here! The Spy Who Came Home www.newyorker.com/magazine/201...

newyorker.com

The Spy Who Came Home

Why an expert in counterterrorism became a beat cop.

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Lisa Segal @lisas25.bsky.social · 14/11/2024

They look soooo vicious! BTW, you can pin your New Yorker post, but I’ll bet you already know that. Priorities……

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Reposted by Lisa Segal

Patrick Skinner @pmskinner.bsky.social · 14/11/2024

Your new king has arrived. He doesn’t do the whole nominations and confirmations. He’s a tyrant but he’s our tyrant. Until he ends us all.

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Lisa Segal @lisas25.bsky.social · 12/11/2024

Please remember to support your independent bookstores and publishers. ❤️📚

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Lisa Segal @lisas25.bsky.social · 12/11/2024

Joseph Fasano has a new book of poetry - The Last Song of the World. In these troubled times it’s a necessary and beautiful collection of poems that are full of life. His poems speak to our souls, be they in trouble, yearning, or in need of love. @Joseph_Fasano_ @boaeditions