PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 02/10/2025Now streaming! Be sure to REGISTER for the LIVE WEBINAR on Oct 3! 010
PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 28/09/2025Our UCLA Health Brain Tumor Center Annual Conference will be Virtual this year, starting Oct 1st! FREE to watch and join the LIVE WEBINAR Oct 3rd #btsm #braintumor #GBM 010
Reposted by PhiOanh Leia NghiemPhuArghavan Salles, MD, PhD @arghavansallesmd.medsky.social · 01/09/2025If you’ve ever compared unvaccinated kids to vaccinated kids, you’ve seen the former are more likely to die. 281250428
Reposted by PhiOanh Leia NghiemPhuAtul Gawande @agawande.bsky.social · 01/09/20259 CDC Directors going back to 1977 speak out. What RFK Jr has done to our nation’s public health system "should alarm every American." It "is unlike anything we have ever seen at the agency, and unlike anything our country has ever experienced." www.nytimes.com/2025/09/01/o...nytimes.comOpinion | We Ran the C.D.C.: Kennedy Is Endangering Every American’s Health 321117995124
Reposted by PhiOanh Leia NghiemPhudlgarbern.bsky.social @dlgarbern.bsky.social · 15/08/2025"Trump's demand of $1 billion from UCLA would devastate one of the nation’s best public universities...From medical therapies that save lives to technologies that grow the economy and research that protects our national security, Americans across the country depend on the University of California"universityofcalifornia.eduStand Up for UCWe must stand together to protect our students, staff, faculty and our mission. 011
Reposted by PhiOanh Leia NghiemPhumady castigan✨ 🏳️⚧️ @mady.cat · 15/08/2025‼️Trump's demands of UCLA are far worse than you think. His demands could result in thousands of trans people outside UCLA losing care, risking lives. From Poppy Press on Instagram, an independent student-run outlet by UCLA students, reposted with permission 🧵 www.instagram.com/p/DNTwD5IvAAy/ 8584261
Reposted by PhiOanh Leia NghiemPhuBlake Emerson @blakeprof.bsky.social · 15/08/2025🚨 150 University of California law professors (and counting) have now signed this open letter to the UC Regents and other officials, explaining the flagrant illegality of the Trump Administration’s UCLA funding cut offs, and urging the UC to fight back. sites.google.com/view/uclawfa... 101025337
Reposted by PhiOanh Leia NghiemPhuUCLA Department of Medicine @domucla.bsky.social · 12/08/2025Research is central to our department's mission. This week, Dr. Abel spotlights studies ranging from reducing endocrine side effects in cancer immunotherapy to the impact of GLP-1RAs on dementia risk. Read the full newsletter here: uclahs.fyi/4mfULu0 051
PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 22/06/2025Excited to hear about future options for patients with NF2-Schwannomatosis from my colleague Dr. Jeremie Vitte. #NFConference #endNF #makeNFvisible 120
PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 24/04/2025Save the Date! Oct 3-4, 2025 #btsm #neurofibromatosis #schwannomatosis #EndNF  010
PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 09/04/2025@aanmember.bsky.social #NeuroOnc section members say thank you to our outgoing President Dr. Mohile and congrats to our incoming leaders Dr. Peters and Dr. Thomas at #AANAM. 020
PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 09/04/2025#NeuroOnc sessions on Last day of #AANAM 2025. It’s been a great meeting with so many brain heroes! Looking forward to Chicago next year @aanmember.bsky.social 020
PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 08/04/2025Day 4 for #NeuroOnc at #AANAM. Also come listen to me presenting the first oral abstract (on behalf of the author). 031
PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 07/04/2025Also catch On Demand if you couldn’t make it to this session which includes great #NeuroOnc imaging pearls at #AANAM. 021
PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 07/04/2025Additional events for #NeuroOnc #AANAM2025 #AANAM Networking session at Marriott Marquis Balboa Room 5:30pm and meet there after to head to opening party! 000
PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 06/04/2025@aanmember.bsky.social #NeuroOnc section Day 2 events. Also networking session at 5:30pm 000
PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 05/04/2025📣 Neuro-Onc Highlight for 4/5 Sat at #AANAM2025 12-2pm Neuro Complications of Checkpoint Inhibitor (SDCC 25B & Online) @aanmember.bsky.social #neuroonc #btsm 000
Reposted by PhiOanh Leia NghiemPhuPhysicians for a Healthy Democracy @physiciandemocracy.medsky.social · 30/03/2025www.msnbc.com/opinion/msnb...msnbc.comOpinion | The CDC's reported hire for a new vaccine study is a discredited misinformation agentRobert Kennedy Jr.'s Health and Human Services Department is attempting to revive the debunked autism-vaccine link. 1212149
Reposted by PhiOanh Leia NghiemPhuGeorge Takei @georgetakei.bsky.social · 30/03/2025This is horrifyingly correct. 10067971600
Reposted by PhiOanh Leia NghiemPhuLiz Borkowski @lizborkowski.bsky.social · 29/03/2025NIH has rescinded its scientific integrity policy. Hard to see this as anything other than clearing the way for shoddy research on things like vaccines. Regardless of the rationale, it's bad news for public health. grants.nih.gov/grants/guide...grants.nih.govNOT-OD-25-080: Rescission of the Final Scientific Integrity Policy of the National Institutes of HealthNIH Funding Opportunities and Notices in the NIH Guide for Grants and Contracts: Rescission of the Final Scientific Integrity Policy of the National Institutes of Health NOT-OD-25-080. OD 11936921467
Reposted by PhiOanh Leia NghiemPhuThanh Neville, MD, MSHS @thanh-neville.bsky.social · 30/03/2025This is just so embarrassing. The NIH rescinded a policy on SCIENTIFIC INTEGRITY to be more aligned with this administration's idiocy. #medsky #saveoursciencegrants.nih.govNOT-OD-25-080: Rescission of the Final Scientific Integrity Policy of the National Institutes of HealthNIH Funding Opportunities and Notices in the NIH Guide for Grants and Contracts: Rescission of the Final Scientific Integrity Policy of the National Institutes of Health NOT-OD-25-080. OD 810735
Reposted by PhiOanh Leia NghiemPhuHeather Randell @heatherrandell.bsky.social · 19/03/2025It took detaining a white Canadian woman for the public to get a glimpse into ICE detention. The stories she tells—of her dehumanizing experience & that of so many other women—are horrifying. This is America. Not new to this administration, just ramped up. www.theguardian.com/us-news/2025...theguardian.comI’m the Canadian who was detained by Ice for two weeks. It felt like I had been kidnappedI was stuck in a freezing cell without explanation despite eventually having lawyers and media attention. Yet, compared with others, I was lucky 317776
PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 19/03/2025Today is a sad day for #NF research. Facing budget cut, the CDMRP has cut funding to the NF program. I was proud to be a part in bringing a drug to approval for #NF1 but it couldn’t have been done without this support. It’s still the top “latest news” on the CDMRP website. 010
Reposted by PhiOanh Leia NghiemPhuDr. David Miller 🏳️🌈 @davidimiller.bsky.social · 18/03/2025If you have a federal grant, I *highly* recommend going to this Friday's webinar on responding to grant terminations. Lisa Brown, former general counsel at Dept of Ed, will present along with other lawyers. Friday, March 21, 2-3 pm. More info & register here: www.linkedin.com/pulse/regist... 6360324
Reposted by PhiOanh Leia NghiemPhuAnne Cronin @annecronin.bsky.social · 27/02/2025SCOOP > HHS fired lawyers who were defending and implementing the Medicare drug price cuts enabled in Biden's Inflation reduction Act. @rachelcohrs.bsky.social & John Tozzi www.bloomberg.com/news/article...bloomberg.comHHS Lays Off Lawyers Who Were Defending Medicare Drug Price CutsAt least three government lawyers working on defending a major Biden-era drug pricing law were laid off in mass cuts across the agency this month, according to a source familiar with the terminations. 3178113
PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 28/02/2025Thinking of my #braintumor and #nf #neurofibromatosis #schwannomatosis patients and caregivers on this #rarediseaseday. 040
Reposted by PhiOanh Leia NghiemPhuCarolyn Bertozzi @carolynbertozzi.bskyverified.social · 27/02/2025Very sad to see that #RareDiseaseDay event at FDA-NIH has been cancelled. Cuts that limit rare disease research and cures (1) leave patients behind, and (2) forfeit precious opportunity to learn more about common human diseases. udnf.org/udnf-stateme...udnf.orgStatement on Rare Disease Day, Research and Funding - UDNFUDNF Statement on Rare Disease Day 2025 Cancellation, Research Funding, and Policy Impacts on the Ultra-Rare and Undiagnosed Community 612962
Reposted by PhiOanh Leia NghiemPhuScience Friday @scifri.bsky.social · 21/02/2025In a small trial, nearly half of pancreatic cancer patients who received an mRNA vaccine had no signs of relapse after three years. Dr. Vinod Balachandran from @mskcancercenter.bsky.social joins us to discuss the results and what they could mean for cancer treatment.buff.lyA Vaccine For Pancreatic Cancer Continues To Show PromiseIn a small trial, nearly half of pancreatic cancer patients who received an mRNA vaccine for the disease had no relapse three years later. 686240325576
Reposted by PhiOanh Leia NghiemPhuRyan Marino, MD @ryanmarino.bsky.social · 22/02/2025If people were really just dying from chronic diseases then how come they weren’t dying from their chronic diseases until after March, 2020? 902029601
Reposted by PhiOanh Leia NghiemPhuTina Smith @smith.senate.gov · 23/02/2025I bet a lot of people have had an experience like this with a bad boss - there’s an email in your inbox on Saturday night saying, “Prove to me your worthiness by Monday or else.” I’m on the side of the workers, not the billionaire asshole bosses. 1316517805
Reposted by PhiOanh Leia NghiemPhuPhysicians for a Healthy Democracy @physiciandemocracy.medsky.social · 14/02/2025Resist. 2535965
Reposted by PhiOanh Leia NghiemPhuJace D. Flatt, PhD, MPH (They/He) @jaceflatt.bsky.social · 13/02/2025Our Department of Defense $1.4 million grant iwill no longer be funded due to Executive Order (EO) 14168: Defending Women from Gender Ideology Extremism and Restoring Biological Truth to the Federal Government. 666
Reposted by PhiOanh Leia NghiemPhuNF Bot @nfbot.bsky.social · 13/02/2025Join us February 25th to learn about current research on how best to treat pain for people with non-NF2 related schwannomatosis. www.nfmidwest.org/event/clinic... #endnf #schwannomatosisbsky.appJoin us February 25th to learn about current research on how best to treat pain for people with non-NF2 related schwannomatosis. www.nfmidwest.org/event/clinic... #endnf #schwannomatosisJoin us February 25th to learn about current research on how best to treat pain for people with non-NF2 related schwannomatosis. www.nfmidwest.org/event/clinic... #endnf #schwannomatosis 022
Reposted by PhiOanh Leia NghiemPhuNF Bot @nfbot.bsky.social · 13/02/2025FDA approves SpringWorks Therapeutics’ Gomekli to treat neurofibromatosis type 1 - PMLiVEnews.google.comFDA approves SpringWorks Therapeutics’ Gomekli to treat neurofibromatosis type 1 - PMLiVEFDA approves SpringWorks Therapeutics’ Gomekli to treat neurofibromatosis type 1 - PMLiVE 021
PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 23/11/2024@uclahealth.bsky.social team @neuroonc.bsky.social #SNO2024 041
PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 23/11/2024Honored to end the session with discussion on Ependymomas in NF2-SWN #nf2 #SNO2024 020
PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 23/11/2024#SNO2024 @aanmember.bsky.social NeuroOnc section get together 000
PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 18/11/2024Would I have to review something like this in the Neuroscience IRB? 🤔 000
PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 18/11/2024New Learning today: safe and ethical clinical research. 000
PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 28/10/2024NF Walk 2024 for CTF #endnf #Neurofibromatosis #Schwannomatosis 050
PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 16/10/2023Discovered Kaws bears! at the AGO in Toronto. 000
PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 16/10/2023November will be Palliative and Hospice Care Month. Join UCLAHealth Neuro-Oncology and Palliative Care for a free virtual session on palliative and end-of-life care for #braintumor patients. Nov 9, 2023 4-6pm PST/7-9pm EST REGISTRATION: uclahs.fyi/palliative-e... #GBM 000