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PhiOanh Leia NghiemPhu

@leia-n-md.bsky.social
73 followers 75 following 24 posts

Neuro-Oncologist, Neurologist, NF/SWN-ologist, VC Academic Affairs, IRB Chair | UCLA Neurology/Neuro-Oncology

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PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 02/10/2025
Now streaming! Be sure to REGISTER for the LIVE WEBINAR on Oct 3!
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PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 28/09/2025
Our UCLA Health Brain Tumor Center Annual Conference will be Virtual this year, starting Oct 1st! FREE to watch and join the LIVE WEBINAR Oct 3rd #btsm #braintumor #GBM
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Reposted by PhiOanh Leia NghiemPhu
Arghavan Salles, MD, PhD @arghavansallesmd.medsky.social · 01/09/2025
If you’ve ever compared unvaccinated kids to vaccinated kids, you’ve seen the former are more likely to die.
Figures showing deaths from smallpox and polio and cases of measles before and after vaccines were introduced for each respective disease. All three figures show declining rates after vaccine introduction
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Reposted by PhiOanh Leia NghiemPhu
Atul Gawande @agawande.bsky.social · 01/09/2025
9 CDC Directors going back to 1977 speak out. What RFK Jr has done to our nation’s public health system "should alarm every American." It "is unlike anything we have ever seen at the agency, and unlike anything our country has ever experienced." www.nytimes.com/2025/09/01/o...
nytimes.com
Opinion | We Ran the C.D.C.: Kennedy Is Endangering Every American’s Health
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Reposted by PhiOanh Leia NghiemPhu
dlgarbern.bsky.social @dlgarbern.bsky.social · 15/08/2025
"Trump's demand of $1 billion from UCLA would devastate one of the nation’s best public universities...From medical therapies that save lives to technologies that grow the economy and research that protects our national security, Americans across the country depend on the University of California"
universityofcalifornia.edu
Stand Up for UC
We must stand together to protect our students, staff, faculty and our mission.
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Reposted by PhiOanh Leia NghiemPhu
mady castigan✨ 🏳️‍⚧️ @mady.cat · 15/08/2025
‼️Trump's demands of UCLA are far worse than you think. His demands could result in thousands of trans people outside UCLA losing care, risking lives. From Poppy Press on Instagram, an independent student-run outlet by UCLA students, reposted with permission 🧵 www.instagram.com/p/DNTwD5IvAAy/
Trump's demands O UCLA are far worse than you think.
A
His administration is demanding, among other thingS, ,more than $1 billion from UCLA, a catastrophic end to gender-affirming care at UCLA hospitals, banning of transgender women in women's dorms and women's sports, and an end to all race- and ethnicity-based scholarships.poppypress_. Following

...

In an unreleased proposed settlement reviewed by
CNN, the Trump administration demanded UCLA
pay LS billion to the federal government, and pay
p
another $172 million to those claiming to be
impacted by violations of the employment
discrimination section of the Civil Rights Act. This is
the largest demand for money_from any.
<university, with Brown and Columbia Universities
paying $50 million and $221 million respectively.
These are also the first major federal demands
of a public university. While UCLA is undoubtedly
going to attempt to negotiate this amount down, it's a
dangerous signal that the Trump administration
expects a massive payout and will continue to gut
higher education.

poppypress_. Following

While the numbers themselves are shocking, CNN
also reported different elements of the proposed
settlement that sound alarms. Some demands that
Trump has given to these other universities are
presented tenfold in the UCLA proposal, and the
effects would be catastrophic.

If agreed to, this proposal has terms that would
< dleny_the UCLA hospital and medical school
from providing_gender-affirming_care. Brown
University gave into a demand that it end gender-
affirming care to minors; this is a severe escalation,
especially considering UCLA's role in providing care
to the transgender community across the state and
UCLA hospital's leading expertise in gender-
affirming surgery. This provision would make it
extremely difficult for the transgender population on
campus to get the medical care they need.

Q

poppypress_. Following

While the numbers themselves are shocking, CNN
also reported different elements of the proposed
settlement that sound alarms. Some demands that
Trump has given to these other universities are
presented tenfold in the UCLA proposal, and the
effects would be catastrophic.

If agreed to, this proposal has terms that would
< dleny_the UCLA hospital and medical school
from providing_gender-affirming_care. Brown
University gave into a demand that it end gender-
affirming care to minors; this is a severe escalation,
especially considering UCLA's role in providing care
to the transgender community across the state and
UCLA hospital's leading expertise in gender-
affirming surgery. This provision would make it
extremely difficult for the transgender population on
campus to get the medical care they need.

Q
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Reposted by PhiOanh Leia NghiemPhu
Blake Emerson @blakeprof.bsky.social · 15/08/2025
🚨 150 University of California law professors (and counting) have now signed this open letter to the UC Regents and other officials, explaining the flagrant illegality of the Trump Administration’s UCLA funding cut offs, and urging the UC to fight back. sites.google.com/view/uclawfa...
Dear President Milliken, Regents, and Governor Newsom,
As faculty members of University of California law schools, we endorse Governor Newsom's commitment to resist the Trump Administration's unlawful actions taken against the University of California, Los Angeles. The Governor is on firm legal ground. The Trump Administration's termination and suspension of federal funds has violated Title VI of the Civil Rights Act of 1964 in numerous ways. Governor Newsom and the University of California Regents will protect the vital interests not only of Californians but of all Americans if they defend the University of California's rights.
The U.S. Department of Justice notified UCLA on July 29, 2025, that it had found that UCLA had "violated its obligations under the Equal Protection Clause of the Fourteenth Amendment and Title VI of the Civil Rights Act of 1964." Chancellor Frenk subsequently announced that
"the federal government claims antisemitism and bias as the reasons" for federal grant terminations. UCLA faces losses of at least $584 million, funding that has supported vital research on matters ranging from treatments for pancreatic cancer to advances in online security.
The Trump Administration has made no pretense of following the law. Title VI permits a federal agency to terminate funding only if it has found that the particular program receiving that funding has violated the law's non-discrimination provisions. Funding cannot disappear just because the agency's policy or political preferences differ from the institution's.
Moreover, the agency can act only after following specific procedural steps. Importantly, Title VI requires a formal administrative hearing—a proceeding much like a trial-before the agency can terminate funding. At the hearing, the agency would have the burden of proving the university's alleged violations of Title VI before an impartial decision-maker. If the agency prevails at the hearing, the university or other interested persons could appea…factually supported and consistent with civil rights laws. Without the steps Title VI requires, there is no protection against an administration alleging discrimination as a pretext to force compliance with its policy or partisan preferences. Title VI's procedures guarantee the constitutional due process requirement that no person can be deprived of liberty or property without fair notice and opportunity to be heard. They protect the university and its members' academic freedom, an endowment essential to scientific research, intellectual discovery, and open debate.
We are deeply committed to the core principle of non-discrimination codified in Title VI and in the Constitution's Equal Protection Clause. The principle that no person may suffer discrimination because of race, color, or national origin protects equality and ensures fairness in political as well as social life. Allegations of discrimination deserve serious and careful consideration and, where established, effective redress. But this enforcement effort must follow the law.
We urge Governor Newsom and the UC Regents to continue to stand up for the fundamental principles of the rule of law, due process, and equal protection. A defense of the University of California's rights in court will model respect for these bedrock principles of equality and fairness, and it will ensure that the government honors them. The Trump Administration's failure to abide by the law subverts these principles by denying the University of California a fair opportunity to contest the government's charges of unlawful discrimination before an impartial decisionmaker. It is precisely because we cherish the principles of the Civil Rights Act and the Constitution that we encourage Governor Newsom, the UC Regents, and the University of California to fight back.
Through its grantmaking powers, the federal government wields vast influence over social and economic life. If not held to account by the procedural protections enacted by Congres…
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UCLA Department of Medicine @domucla.bsky.social · 12/08/2025
Research is central to our department's mission. This week, Dr. Abel spotlights studies ranging from reducing endocrine side effects in cancer immunotherapy to the impact of GLP-1RAs on dementia risk. Read the full newsletter here: uclahs.fyi/4mfULu0
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PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 22/06/2025
Excited to hear about future options for patients with NF2-Schwannomatosis from my colleague Dr. Jeremie Vitte. #NFConference #endNF #makeNFvisible
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PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 24/04/2025
Save the Date! Oct 3-4, 2025 #btsm #neurofibromatosis #schwannomatosis #EndNF 
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PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 09/04/2025
@aanmember.bsky.social #NeuroOnc section members say thank you to our outgoing President Dr. Mohile and congrats to our incoming leaders Dr. Peters and Dr. Thomas at #AANAM.
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PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 09/04/2025
#NeuroOnc sessions on Last day of #AANAM 2025. It’s been a great meeting with so many brain heroes! Looking forward to Chicago next year @aanmember.bsky.social
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PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 08/04/2025
Day 4 for #NeuroOnc at #AANAM. Also come listen to me presenting the first oral abstract (on behalf of the author).
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PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 07/04/2025
Also catch On Demand if you couldn’t make it to this session which includes great #NeuroOnc imaging pearls at #AANAM.
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PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 07/04/2025
Day 3 #AANAM for #NeuroOnc
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PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 07/04/2025
Additional events for #NeuroOnc #AANAM2025 #AANAM Networking session at Marriott Marquis Balboa Room 5:30pm and meet there after to head to opening party!
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PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 06/04/2025
@aanmember.bsky.social #NeuroOnc section Day 2 events. Also networking session at 5:30pm
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PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 05/04/2025
📣 Neuro-Onc Highlight for 4/5 Sat at #AANAM2025 12-2pm Neuro Complications of Checkpoint Inhibitor (SDCC 25B & Online) @aanmember.bsky.social #neuroonc #btsm
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Physicians for a Healthy Democracy @physiciandemocracy.medsky.social · 30/03/2025
www.msnbc.com/opinion/msnb...
msnbc.com
Opinion | The CDC's reported hire for a new vaccine study is a discredited misinformation agent
Robert Kennedy Jr.'s Health and Human Services Department is attempting to revive the debunked autism-vaccine link.
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George Takei @georgetakei.bsky.social · 30/03/2025
This is horrifyingly correct.
The image is a screenshot of a post on X by a user named Mrs. Betty Bowers (@mrsbettybowers
.bsky.social). The post reads: "I learned this week that you can put our troops’ lives in danger, compromise our national security, and violate the Espionage Act. And the government will do nothing. But if you write an editorial for your school newspaper that Trump doesn’t like, you will be abducted on the street and disappear."
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Liz Borkowski @lizborkowski.bsky.social · 29/03/2025
NIH has rescinded its scientific integrity policy. Hard to see this as anything other than clearing the way for shoddy research on things like vaccines. Regardless of the rationale, it's bad news for public health. grants.nih.gov/grants/guide...
grants.nih.gov
NOT-OD-25-080: Rescission of the Final Scientific Integrity Policy of the National Institutes of Health
NIH Funding Opportunities and Notices in the NIH Guide for Grants and Contracts: Rescission of the Final Scientific Integrity Policy of the National Institutes of Health NOT-OD-25-080. OD
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Thanh Neville, MD, MSHS @thanh-neville.bsky.social · 30/03/2025
This is just so embarrassing. The NIH rescinded a policy on SCIENTIFIC INTEGRITY to be more aligned with this administration's idiocy. #medsky #saveourscience
grants.nih.gov
NOT-OD-25-080: Rescission of the Final Scientific Integrity Policy of the National Institutes of Health
NIH Funding Opportunities and Notices in the NIH Guide for Grants and Contracts: Rescission of the Final Scientific Integrity Policy of the National Institutes of Health NOT-OD-25-080. OD
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Heather Randell @heatherrandell.bsky.social · 19/03/2025
It took detaining a white Canadian woman for the public to get a glimpse into ICE detention. The stories she tells—of her dehumanizing experience & that of so many other women—are horrifying. This is America. Not new to this administration, just ramped up. www.theguardian.com/us-news/2025...
theguardian.com
I’m the Canadian who was detained by Ice for two weeks. It felt like I had been kidnapped
I was stuck in a freezing cell without explanation despite eventually having lawyers and media attention. Yet, compared with others, I was lucky
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PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 19/03/2025
Today is a sad day for #NF research. Facing budget cut, the CDMRP has cut funding to the NF program. I was proud to be a part in bringing a drug to approval for #NF1 but it couldn’t have been done without this support. It’s still the top “latest news” on the CDMRP website.
Screenshot of CDMRP website showing latest news
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Reposted by PhiOanh Leia NghiemPhu
Dr. David Miller 🏳️‍🌈 @davidimiller.bsky.social · 18/03/2025
If you have a federal grant, I *highly* recommend going to this Friday's webinar on responding to grant terminations. Lisa Brown, former general counsel at Dept of Ed, will present along with other lawyers. Friday, March 21, 2-3 pm. More info & register here: www.linkedin.com/pulse/regist...
March 21, 2-3 pm ET: What to do when your federal grant has been stopped or terminated
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Anne Cronin @annecronin.bsky.social · 27/02/2025
SCOOP > HHS fired lawyers who were defending and implementing the Medicare drug price cuts enabled in Biden's Inflation reduction Act. @rachelcohrs.bsky.social & John Tozzi www.bloomberg.com/news/article...
bloomberg.com
HHS Lays Off Lawyers Who Were Defending Medicare Drug Price Cuts
At least three government lawyers working on defending a major Biden-era drug pricing law were laid off in mass cuts across the agency this month, according to a source familiar with the terminations.
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PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 28/02/2025
Thinking of my #braintumor and #nf #neurofibromatosis #schwannomatosis patients and caregivers on this #rarediseaseday.
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Carolyn Bertozzi @carolynbertozzi.bskyverified.social · 27/02/2025
Very sad to see that #RareDiseaseDay event at FDA-NIH has been cancelled. Cuts that limit rare disease research and cures (1) leave patients behind, and (2) forfeit precious opportunity to learn more about common human diseases. udnf.org/udnf-stateme...
udnf.org
Statement on Rare Disease Day, Research and Funding - UDNF
UDNF Statement on Rare Disease Day 2025 Cancellation, Research Funding, and Policy Impacts on the Ultra-Rare and Undiagnosed Community
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Science Friday @scifri.bsky.social · 21/02/2025
In a small trial, nearly half of pancreatic cancer patients who received an mRNA vaccine had no signs of relapse after three years. Dr. Vinod Balachandran from @mskcancercenter.bsky.social joins us to discuss the results and what they could mean for cancer treatment.
buff.ly
A Vaccine For Pancreatic Cancer Continues To Show Promise
In a small trial, nearly half of pancreatic cancer patients who received an mRNA vaccine for the disease had no relapse three years later.
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Reposted by PhiOanh Leia NghiemPhu
Ryan Marino, MD @ryanmarino.bsky.social · 22/02/2025
If people were really just dying from chronic diseases then how come they weren’t dying from their chronic diseases until after March, 2020?
Graph of U.S. excess mortality since March 2018 showing significant change starting in March 2020
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Tina Smith @smith.senate.gov · 23/02/2025
I bet a lot of people have had an experience like this with a bad boss - there’s an email in your inbox on Saturday night saying, “Prove to me your worthiness by Monday or else.” I’m on the side of the workers, not the billionaire asshole bosses.
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Physicians for a Healthy Democracy @physiciandemocracy.medsky.social · 14/02/2025
Resist.
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Jace D. Flatt, PhD, MPH (They/He) @jaceflatt.bsky.social · 13/02/2025
Our Department of Defense $1.4 million grant iwill no longer be funded due to Executive Order (EO) 14168: Defending Women from Gender Ideology Extremism and Restoring Biological Truth to the Federal Government.
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NF Bot @nfbot.bsky.social · 13/02/2025
Join us February 25th to learn about current research on how best to treat pain for people with non-NF2 related schwannomatosis. www.nfmidwest.org/event/clinic... #endnf #schwannomatosis
bsky.app
Join us February 25th to learn about current research on how best to treat pain for people with non-NF2 related schwannomatosis. www.nfmidwest.org/event/clinic... #endnf #schwannomatosis
Join us February 25th to learn about current research on how best to treat pain for people with non-NF2 related schwannomatosis. www.nfmidwest.org/event/clinic... #endnf #schwannomatosis
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NF Bot @nfbot.bsky.social · 13/02/2025
FDA approves SpringWorks Therapeutics’ Gomekli to treat neurofibromatosis type 1 - PMLiVE
news.google.com
FDA approves SpringWorks Therapeutics’ Gomekli to treat neurofibromatosis type 1 - PMLiVE
FDA approves SpringWorks Therapeutics’ Gomekli to treat neurofibromatosis type 1 - PMLiVE
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PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 23/11/2024
@uclahealth.bsky.social team @neuroonc.bsky.social #SNO2024
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PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 23/11/2024
Honored to end the session with discussion on Ependymomas in NF2-SWN #nf2 #SNO2024
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PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 23/11/2024
#SNO2024 @aanmember.bsky.social NeuroOnc section get together
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PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 18/11/2024
Would I have to review something like this in the Neuroscience IRB? 🤔
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PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 18/11/2024
New Learning today: safe and ethical clinical research.
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PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 28/10/2024
NF Walk 2024 for CTF #endnf #Neurofibromatosis #Schwannomatosis
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PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 26/11/2023
UCLA Neuro-Onc team at #SNO2023
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PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 16/10/2023
Discovered Kaws bears! at the AGO in Toronto.
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PhiOanh Leia NghiemPhu @leia-n-md.bsky.social · 16/10/2023
November will be Palliative and Hospice Care Month. Join UCLAHealth Neuro-Oncology and Palliative Care for a free virtual session on palliative and end-of-life care for #braintumor patients. Nov 9, 2023 4-6pm PST/7-9pm EST REGISTRATION: uclahs.fyi/palliative-e... #GBM
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