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Long Covid Support Aotearoa

@lcsupportaotearoa.bsky.social
133 followers 52 following 122 posts

Bringing forward the lived experience of people with Long Covid in NZ to help and connect with the community

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Reposted by Long Covid Support Aotearoa
Hugh Dingwall @objectivereality.bsky.social · 08/09/2026
Another clip from my wife's Chronic Illness Political Panel that she did as part of her podcast through @mpr.nz, with support from @lcsupportaotearoa.bsky.social - this one's talking to Todd Stephenson.
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 06/09/2026
Overview of postviral syndromes including Long Covid and the research pathways happening www.nature.com/articles/d41...
nature.com
When do infections lead to long COVID? Scientists close in on triggers and treatments for post-viral syndromes
Hundreds of millions of people have long-term conditions as a result of an infection. Researchers are working out how to help them.
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Reposted by Long Covid Support Aotearoa
Hugh Dingwall @objectivereality.bsky.social · 27/08/2026
I've been cutting out clips from the Chronic Illness Political Panel that the missus did in association with @lcsupportaotearoa.bsky.social. Here's one where she asked Ingrid Leary about decoupling disabled people's welfare from their partners' income.
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 25/08/2026
Worse health after Covid? Join our support group. We have fortnightly social zooms for connection and a wealth of knowledge among our members.
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 25/08/2026
Great to see ANZMES with a new look and becoming a charitable trust www.facebook.com/share/p/1ErD...
facebook.com
Facebook
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Reposted by Long Covid Support Aotearoa
Ms Hooper @mshooper.bsky.social · 24/08/2026
Government’s attendance push driving "vicious cycle of illness" in schools #nzpol
nzeiteriuroa.org.nz
Government’s attendance push driving "vicious cycle of illness" in…
The government’s overzealous focus on school attendance is backfiring, with sick children returning to school too early and spreading viruses to…
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 25/08/2026
Hard hitting analysis from Emily Writes. Why haven't we learnt from Covid? www.emilywrites.co.nz/this-governm...
emilywrites.co.nz
This government is making you sick
So many of us are sick. And there's a reason for it.
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Reposted by Long Covid Support Aotearoa
Too Long Covid 💚 @toolongcovid.bsky.social · 21/08/2026
Covid-19 Can Reawaken Dormant Viruses in the Body, Which Might Worsen Symptoms of the Respiratory Illness, Study Suggests share.google/I5n4hSuFUUac...
Person in mask with virus spike protein flying in background. Title says Epstein Barr, herpes, long covid: Study discovers Covid-19 can reawaken dormant viruses in the body.
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Reposted by Long Covid Support Aotearoa
Aotearoa Covid Action @covidactionnz.bsky.social · 21/08/2026
MEDIA RELEASE from ACA and @lcsupportaotearoa.bsky.social covidaction.nz/en/record-br...
covidaction.nz
Record-breaking Sickness Requires Action
Aotearoa Covid Action works for a Covid-safe Aotearoa New Zealand
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 11/08/2026
And the chronic illness political panel video is now up on our YouTube channel #nzpol YouTube.com/@longcovidsupportaotearoa
youtube.com
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 11/08/2026
Here's the media release from Long Covid Support Aotearoa following our panel yesterday. longcovidsupport.co.nz/news/politic...
longcovidsupport.co.nz
Political panel highlights cross-party support for action on Long Covid – Long Covid Support Aotearoa
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Denis - The COVID Info Guy @thecovidinfoguy.bsky.social · 10/08/2026
New Zealand: "Long Covid sufferers call on politicians to do more to help those with the disease" "According to the latest New Zealand Health Survey, 4.3% of adults reported living with Long Covid - roughly 185,000 people." #LongCOVID
rnz.co.nz
Long Covid sufferers call on politicians to do more to help those with the disease
People with Long Covid are calling on politicians to collect better data on the disease, and enable those with it to access disability support services.
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Reposted by Long Covid Support Aotearoa
Mask Up Comments and Opinions @commentsandopi2.bsky.social · 10/08/2026
🫶
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 10/08/2026
"Behind every statistic is a person... Someone like me who still needs a rest after washing my hair, my children who missed years of education, and Renee who was a city councillor and is now housebound in a wheelchair." www.rnz.co.nz/news/politic...
rnz.co.nz
Long Covid sufferers call on politicians to do more to help those with the disease
People with Long Covid are calling on politicians to collect better data on the disease, and enable those with it to access disability support services.
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 10/08/2026
RNZ reported on our political panel in the 12pm bulletin 🔥
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 09/08/2026
Political panel on this morning! Watch at longcovidsupport.co.nz/live-stream
longcovidsupport.co.nz
Live Stream – Long Covid Support Aotearoa
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Reposted by Long Covid Support Aotearoa
jo @moerakijo.bsky.social · 08/08/2026
This is on tomorrow morning Monday 10th August @ 10am Join us at www.facebook.com/share/1BzjFT... Or longcovidsupport.co.nz/live-stream And later on our YouTube channel
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Reposted by Long Covid Support Aotearoa
Lin Nah @linnah.bsky.social · 07/08/2026
@lcsupportaotearoa.bsky.social @thesicktimes.org FYI bsky.app/profile/maxk...
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 07/08/2026
What policies do parties have to increase support, healthcare, and research for chronic conditions like MECFS and Long Covid? Do they understand the long term implications of pandemics and will they consider chronic illness as part of future pandemic responses? Notice who's missing? #nzpol
Confirmed Speakers from ACT,  Green, Opportunity,  Labour and NZ First
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 06/08/2026
Live feed tested ✅️ Politicians confirmed ✅️ Questions compiled ✅️ Join us on Monday 10th August at 10am www.longcovidsupport.co.nz/live-stream
Blue image with white letters saying Chronic illness political panel Hosted by LCSA and Sivk and Tired Aotearoa with support from Manawatu People's Radio. Questions gathered from the chronic illness community.
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Reposted by Long Covid Support Aotearoa
Steph Gunther MIA 😷💉🏳️‍⚧️🏳️‍🌈 @stephgunther.bsky.social · 04/08/2026
Please share!
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 01/08/2026
Watch us grill the politicians! We now have a YouTube channel: www.youtube.com/@LongCovidSu... #covidisnotover #covidsafe #longcovid
youtube.com
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 29/07/2026
Join us! Political panel with all your chronic illness questions put to politicians 💪💪 #longcovid #chronicillness www.facebook.com/share/19Bb1F...
Teal image with white font Monday 10 August streaming 10-11am.
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Tom Kindlon @tomkindlon.bsky.social · 26/07/2026
The Sick Times How to interpret clinical trial results for Long COVID thesicktimes.org/2026/07/21/h... Includes a section called "a crash course in statistics." Also links to this resource: Questions to ask when evaluating evidence from clinical trials. thesicktimes.org/2026/07/21/h...
thesicktimes.org
How to interpret clinical trial results for Long COVID - The Sick Times
With no proven treatments or cures, many people with Long COVID are turning to off-label medications, supplements, and medical devices to treat their symptoms. There are numerous options — and some of...
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Gregory Erickson @gofullforce.bsky.social · 26/07/2026
Kids are suffering because they don’t have the life experience or knowledge to explain what they are experiencing with #LongCOVID. It’s vital for parents and teachers to be aware of this issue and educated about the damage that is Long-COVID. #COVID19 thesicktimes.org/2026/07/24/t...
thesicktimes.org
The (sick) kids aren’t alright: Observations from a teacher with Long COVID - The Sick Times
We must help students by addressing Long COVID and advocating for clean air in schools.
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 26/07/2026
Chronic Illness Political Panel Monday 10th August
Blue image with white font in caps saying Chronic Illness Political Panel Blue image with white font saying Confirmed Speakers. Portrait images of Todd Stephenson MP Act, Huhana Lyndon MP Greens, Qiulae Wong, Leader Opportunity Blue image with white font saying Awaiting Confirmation from. Four coloured circles with question marks say Nationsl Labour, NZ First, Te Pati Maori
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 22/07/2026
We need your experiences with Dedicated Doctor referrals - ANZMES www.facebook.com/share/p/1Etr...
facebook.com
Facebook
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 22/07/2026
Updated link for questions: form.jotform.com/sickandtired...
form.jotform.com
Questions for Chronic Illness Political Panel
Please click the link to complete this form.
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 22/07/2026
What would you ask our politicians? We have exciting news! Sick and Tired Aotearoa and Long Covid Support Aotearoa are hosting a Chronic Illness Political Panel - 10am on Mon 10 August.
Image of a microphone against background of blurred lights with Long Covid Support Aotearoa teal logo and Sick and Tired Aotearoa MPR logo. Title says What would you ask a Member of Parliament about chronic illness?
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Reposted by Long Covid Support Aotearoa
Lin Nah @linnah.bsky.social · 20/07/2026
@lcsupportaotearoa.bsky.social @thesicktimes.org fyi
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 15/07/2026
Please share! This is a huge project and we are supported by libraries all over Aotearoa!
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 29/06/2026
We hear this from our people all the time. It's completely life-changing and awareness is very low. #longcovid
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 29/06/2026
Help us raise awareness! Decorate a pillowcase for the Long Covid Pillowcase Project.
A woman sleeping under blue blanket on white pillows
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Reposted by Long Covid Support Aotearoa
Too Long Covid 💚 @toolongcovid.bsky.social · 29/06/2026
Understaffing and lack of proper mitigations for airborne viruses 😞 Patients treated in corridors as Christchurch ED repeatedly hits ‘red level’ overload | The Press share.google/m8b4C3wpA5S7...
share.google
Patients treated in corridors as Christchurch ED repeatedly hits ‘red level’ overload
This is despite the annual winter flu surge still weeks away.
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Reposted by Long Covid Support Aotearoa
World Health Network @thewhn.bsky.social · 24/06/2026
In her latest Voices article, Becky Robertson explores the growing body of evidence showing that COVID-19 affects far more than the lungs. Drawing from both scientific findings and lived experience, she examines the neuropsychiatric and multi-system impacts that continue to affect (...)
Dark charcoal graphic with white and pink-to-yellow gradient text. World Health Network branding appears at the top. Full text: “whn.global. World Health Network. Science for a safer, healthier world. COVID-19 is not just a respiratory event. It is a profound neuropsychiatric and multi-systemic disruptor. Full article by Becky Ancira Robertson. whn.global/the-multi-systemic-reality-beyond-the-fine-line.”
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 19/06/2026
Researchers from Victoria University, Wellington have shown that food insecurity is a significant issue for people living with Long Covid and MECFS. Among 333 respondents, half (50%) had experienced food insecurity in the past 12 months. www.tandfonline.com/doi/full/10....
tandfonline.com
ME/CFS and/or Long Covid in Aotearoa New Zealand: results from a food insecurity survey
Various chronic health conditions are associated with household vulnerability to food insecurity. There is limited evidence regarding the prevalence of food insecurity or the experiences and challe...
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Reposted by Long Covid Support Aotearoa
FookyFBSandcat @funkypuffin56.bsky.social · 15/06/2026
Excellent 🧵 Simple clear description of Post Exertional Malaise #LongCovid #PEM
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 28/05/2026
Congratulations to Zoe Madden-Smith for winning the video journalist of the year award at the New Zealand media awards for her report on severe MECFS patients. Congratulations Zoe! And thank you for raising awareness of this debilitating condition. #mecfs #pwME
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 28/05/2026
The Budget is out, and there is no allocation for Long Covid, despite the National Health Survey revealing that 4.3% of New Zealanders have Long Covid. Read our media release below. www.scoop.co.nz/stories/GE26...
scoop.co.nz
Budget Overlooks Widespread Long Covid Illness
While Budget 2026 has $5.5 billion of new funding for frontline health services, the budget papers state this will only cover current health policy settings.
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 27/05/2026
We love to see online events!
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Reposted by Long Covid Support Aotearoa
Too Long Covid 💚 @toolongcovid.bsky.social · 15/05/2026
New #longcovid article citing the dismal state of business-as-usual care for people with LC in New Zealand 🇳🇿
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 15/05/2026
"Here’s the paradox: Long Covid is mainstream, yet invisible, with sufferers expected to self-manage" newsroom.co.nz/2026/05/14/t...
newsroom.co.nz
The Long Covid paradox: everywhere but nowhere
Comment from Victoria University: In 2022 NZ’s Long Covid response showed promise, but it’s hard to justify our business-as-usual approach now
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David Davies-Payne @d2p.bsky.social · 12/05/2026
This is very welcome news. It will extend the initial findings from DecodeME at the University of Edinburgh, led by Prof Chris Ponting @cgatist.bsky.social #MECFS #LongCovid
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Reposted by Long Covid Support Aotearoa
Tom Kindlon @tomkindlon.bsky.social · 12/05/2026
I actually deteriorated over time, through following exercise, like many others with #MyalgicEncephalomyelitis. Improving or even stabilising is not the only possible outcome following an infection Plenty of research shows a significant percentage of those with #LongCovid satisfy #MECFS criteria 1/
I got a virus and never got better
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Emerge Australia @emergeaustralia.bsky.social · 12/05/2026
Our #MECFS Awareness Symposium is starting now. The Symposium, “The Hidden Harm of “Trying Harder”, is being recorded and will be available on our website in the coming days.
Emerge Australia’s ME/CFS Awareness Week Symposium Panel featuring six speakers, each smiling in individual squares with their names: Laura Allen, Louise De Pino, Kate Herbert, Carolyn Merritt, Anne Wilson, and Camille Williams. Text above reads: 'International ME/CFS Awareness Day symposium around the theme: The Hidden Harm of “Trying Harder”.' The design has a blue gradient background with the Emerge Australia logo.
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 12/05/2026
"Dr Hana Ngata, a GP in regional Aotearoa, has seen a pattern emerging in her clinic since the COVID‑19 pandemic. Young people, kaumātua, parents, teachers – all describing the same strange mix of exhaustion, crashes after activity, dizziness, gut issues, and pain...
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 17/04/2026
There's a new PHCC briefing out today on #longcovid in New Zealand www.phcc.org.nz/briefing/lon...
phcc.org.nz
Long Covid has high prevalence and impact: Where is the Government response?
Long Covid's impacts on health, social, and economic justify a well-coordinated national response focused on prevention, people-centred care, and research.
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 09/04/2026
Huge. It doesn't have to be this way 😔
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 09/04/2026
It is not good enough that Long Covid sufferers have to form support groups to get any kind of help. It is not good enough that Covid is still circulating leading to more Long Covid and we are not using the tools available to us, particularly clean air measures. www.rnz.co.nz/national/pro...
rnz.co.nz
Should we be doing more for sufferers of Long Covid?
It might feel like the days of Covid are well behind most of us, but six years on from the initial outbreak, around 200 thousand New Zealanders are still dealing with it because they have Long Covid. So should more be done for those suffering the symptoms? We discuss that with Amanda Kvalsvig, Research Associate Professor of Public Health at the University of Otago. But first Jesse talks to Esther, a Wellington-based freelance journalist who can share what it's like to have Long Covid.
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Amanda Finley Digs All the Spooky Things @rubyslippahs.bsky.social · 09/04/2026
A reminder that long COVID isn't mild, & more you get COVID, the better your chances of having sequelae. "Acute COVID-19, regardless of Long COVID status, is linked to an increased risk of car crashes presumably due to neurologic changes caused by SARS-CoV-2." www.neurology.org/doi/10.1212/...
neurology.org
Driving Under the Cognitive Influence of COVID-19: Exploring the Impact of Acute SARS-CoV-2 Infection on Road Safety | Neurology
ObjectiveThis study evaluated the association between acute COVID-19 cases and the number of car crashes with varying COVID-19 vaccination rates, Long COVID rates, and COVID-19 mitigation strategies.B...
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