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Long Covid Support Aotearoa

@lcsupportaotearoa.bsky.social
133 followers 52 following 122 posts

Bringing forward the lived experience of people with Long Covid in NZ to help and connect with the community

PostsRepliesMedia
Reposted by Long Covid Support Aotearoa
Hugh Dingwall @objectivereality.bsky.social · 08/09/2026
Another clip from my wife's Chronic Illness Political Panel that she did as part of her podcast through @mpr.nz, with support from @lcsupportaotearoa.bsky.social - this one's talking to Todd Stephenson.
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 06/09/2026
Overview of postviral syndromes including Long Covid and the research pathways happening www.nature.com/articles/d41...
nature.com
When do infections lead to long COVID? Scientists close in on triggers and treatments for post-viral syndromes
Hundreds of millions of people have long-term conditions as a result of an infection. Researchers are working out how to help them.
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Reposted by Long Covid Support Aotearoa
Hugh Dingwall @objectivereality.bsky.social · 27/08/2026
I've been cutting out clips from the Chronic Illness Political Panel that the missus did in association with @lcsupportaotearoa.bsky.social. Here's one where she asked Ingrid Leary about decoupling disabled people's welfare from their partners' income.
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 25/08/2026
Worse health after Covid? Join our support group. We have fortnightly social zooms for connection and a wealth of knowledge among our members.
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 25/08/2026
Great to see ANZMES with a new look and becoming a charitable trust www.facebook.com/share/p/1ErD...
facebook.com
Facebook
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Reposted by Long Covid Support Aotearoa
Ms Hooper @mshooper.bsky.social · 24/08/2026
Government’s attendance push driving "vicious cycle of illness" in schools #nzpol
nzeiteriuroa.org.nz
Government’s attendance push driving "vicious cycle of illness" in…
The government’s overzealous focus on school attendance is backfiring, with sick children returning to school too early and spreading viruses to…
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 25/08/2026
Hard hitting analysis from Emily Writes. Why haven't we learnt from Covid? www.emilywrites.co.nz/this-governm...
emilywrites.co.nz
This government is making you sick
So many of us are sick. And there's a reason for it.
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Reposted by Long Covid Support Aotearoa
Too Long Covid 💚 @toolongcovid.bsky.social · 21/08/2026
Covid-19 Can Reawaken Dormant Viruses in the Body, Which Might Worsen Symptoms of the Respiratory Illness, Study Suggests share.google/I5n4hSuFUUac...
Person in mask with virus spike protein flying in background. Title says Epstein Barr, herpes, long covid: Study discovers Covid-19 can reawaken dormant viruses in the body.
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Reposted by Long Covid Support Aotearoa
Aotearoa Covid Action @covidactionnz.bsky.social · 21/08/2026
MEDIA RELEASE from ACA and @lcsupportaotearoa.bsky.social covidaction.nz/en/record-br...
covidaction.nz
Record-breaking Sickness Requires Action
Aotearoa Covid Action works for a Covid-safe Aotearoa New Zealand
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 11/08/2026
And the chronic illness political panel video is now up on our YouTube channel #nzpol YouTube.com/@longcovidsupportaotearoa
youtube.com
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 11/08/2026
Our release aims to cover both Long Covid and ME - and also briefly refers to other related conditions. The RNZ story was written by a journalist who attended (RNZ health correspondent) which was great but we understand it is disappointing that ME wasn't mentioned in her piece.
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 11/08/2026
Here's the media release from Long Covid Support Aotearoa following our panel yesterday. longcovidsupport.co.nz/news/politic...
longcovidsupport.co.nz
Political panel highlights cross-party support for action on Long Covid – Long Covid Support Aotearoa
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 10/08/2026
Thanks for sharing @thecovidinfoguy.bsky.social
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Reposted by Long Covid Support Aotearoa
Denis - The COVID Info Guy @thecovidinfoguy.bsky.social · 10/08/2026
New Zealand: "Long Covid sufferers call on politicians to do more to help those with the disease" "According to the latest New Zealand Health Survey, 4.3% of adults reported living with Long Covid - roughly 185,000 people." #LongCOVID
rnz.co.nz
Long Covid sufferers call on politicians to do more to help those with the disease
People with Long Covid are calling on politicians to collect better data on the disease, and enable those with it to access disability support services.
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 10/08/2026
Agreed!
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Reposted by Long Covid Support Aotearoa
Mask Up Comments and Opinions @commentsandopi2.bsky.social · 10/08/2026
🫶
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 10/08/2026
We're going to follow up with some more information, in conjunction with the other orgs, and maybe do this again (once we've all rested A LOT).
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 10/08/2026
"Behind every statistic is a person... Someone like me who still needs a rest after washing my hair, my children who missed years of education, and Renee who was a city councillor and is now housebound in a wheelchair." www.rnz.co.nz/news/politic...
rnz.co.nz
Long Covid sufferers call on politicians to do more to help those with the disease
People with Long Covid are calling on politicians to collect better data on the disease, and enable those with it to access disability support services.
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 10/08/2026
RNZ reported on our political panel in the 12pm bulletin 🔥
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 09/08/2026
Political panel on this morning! Watch at longcovidsupport.co.nz/live-stream
longcovidsupport.co.nz
Live Stream – Long Covid Support Aotearoa
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 09/08/2026
Definitely! Prevention is the other side of the coin
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Reposted by Long Covid Support Aotearoa
jo @moerakijo.bsky.social · 08/08/2026
This is on tomorrow morning Monday 10th August @ 10am Join us at www.facebook.com/share/1BzjFT... Or longcovidsupport.co.nz/live-stream And later on our YouTube channel
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Reposted by Long Covid Support Aotearoa
Lin Nah @linnah.bsky.social · 07/08/2026
@lcsupportaotearoa.bsky.social @thesicktimes.org FYI bsky.app/profile/maxk...
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 07/08/2026
Yes, exactly. They've got two more days to reply 😅
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 07/08/2026
Monday 10th August @ 10am Join us at www.facebook.com/share/1BzjFT... Or longcovidsupport.co.nz/live-stream And later on our YouTube channel
facebook.com
Facebook
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 07/08/2026
What policies do parties have to increase support, healthcare, and research for chronic conditions like MECFS and Long Covid? Do they understand the long term implications of pandemics and will they consider chronic illness as part of future pandemic responses? Notice who's missing? #nzpol
Confirmed Speakers from ACT,  Green, Opportunity,  Labour and NZ First
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 06/08/2026
Hosted by Renee Dingwall Green Health Spokesperson - MP Hūhana Lyndon ACT Health Spokesperson - MP Todd Stephenson Labour Health Select Committee member - MP Ingrid Leary NZ First Education Spokesperson - MP Andy Foster Opportunity Party Leader - Qiulae Wong LCSA Chairperson - Larisa Hockey
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 06/08/2026
Live feed tested ✅️ Politicians confirmed ✅️ Questions compiled ✅️ Join us on Monday 10th August at 10am www.longcovidsupport.co.nz/live-stream
Blue image with white letters saying Chronic illness political panel Hosted by LCSA and Sivk and Tired Aotearoa with support from Manawatu People's Radio. Questions gathered from the chronic illness community.
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Reposted by Long Covid Support Aotearoa
Steph Gunther MIA 😷💉🏳️‍⚧️🏳️‍🌈 @stephgunther.bsky.social · 04/08/2026
Please share!
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 04/08/2026
Not sure.
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 04/08/2026
Confirmed guests: Ingrid Leary MP - Labour Todd Stephenson MP - ACT Huhana Lyndon MP - Green Qiulae Wong - Opportunity TBC: National, NZ First, Te Pati Maori Here is the FB event: www.facebook.com/share/18FmrB...
facebook.com
Facebook
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 03/08/2026
We now have Ingrid Leary joining us from Labour!
Image of politicians joining event
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 01/08/2026
Watch us grill the politicians! We now have a YouTube channel: www.youtube.com/@LongCovidSu... #covidisnotover #covidsafe #longcovid
youtube.com
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 29/07/2026
It will be on FB, streamed on our website and on YouTube afterwards.
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 29/07/2026
Confirmed guests: Todd Stephenson MP - ACT Huhana Lyndon MP - Green Qiulae Wong - Opportunity TBC: Labour, National, NZ First, Te Pati Maori #nzpol
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 29/07/2026
Join us! Political panel with all your chronic illness questions put to politicians 💪💪 #longcovid #chronicillness www.facebook.com/share/19Bb1F...
Teal image with white font Monday 10 August streaming 10-11am.
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Reposted by Long Covid Support Aotearoa
Tom Kindlon @tomkindlon.bsky.social · 26/07/2026
The Sick Times How to interpret clinical trial results for Long COVID thesicktimes.org/2026/07/21/h... Includes a section called "a crash course in statistics." Also links to this resource: Questions to ask when evaluating evidence from clinical trials. thesicktimes.org/2026/07/21/h...
thesicktimes.org
How to interpret clinical trial results for Long COVID - The Sick Times
With no proven treatments or cures, many people with Long COVID are turning to off-label medications, supplements, and medical devices to treat their symptoms. There are numerous options — and some of...
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Reposted by Long Covid Support Aotearoa
Gregory Erickson @gofullforce.bsky.social · 26/07/2026
Kids are suffering because they don’t have the life experience or knowledge to explain what they are experiencing with #LongCOVID. It’s vital for parents and teachers to be aware of this issue and educated about the damage that is Long-COVID. #COVID19 thesicktimes.org/2026/07/24/t...
thesicktimes.org
The (sick) kids aren’t alright: Observations from a teacher with Long COVID - The Sick Times
We must help students by addressing Long COVID and advocating for clean air in schools.
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 26/07/2026
Make sure you get your questions in and tune in to the political panel! #nzpol #mecfs #longcovid #disabled #kiwi
Blue image with white font saying Hosted by Long Covid Support Aotearoa and Sick and Tired Aotearoa with support from Manawatu People's Radio. Questions are gathered from the chronic illness community, including Long Covid Support Aotearoa, Complex Chronic Illness Support and the National Advisory on Myalgic Encephalomyelitis in Aotearoa New Zealand ANZMES
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 26/07/2026
Blue image with white font saying Monday 10 August in large letters. Streaming 10 - 11am.   Get links from longcovidsupport.co.nz or Facebook.com/longcovidsupportaotearoa . Podcast on Sick and Tired Aotearoa with support from Manawatu People's Radio: mpr.nz/show/sickandtiredaotearoa
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 26/07/2026
Chronic Illness Political Panel Monday 10th August
Blue image with white font in caps saying Chronic Illness Political Panel Blue image with white font saying Confirmed Speakers. Portrait images of Todd Stephenson MP Act, Huhana Lyndon MP Greens, Qiulae Wong, Leader Opportunity Blue image with white font saying Awaiting Confirmation from. Four coloured circles with question marks say Nationsl Labour, NZ First, Te Pati Maori
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 22/07/2026
We need your experiences with Dedicated Doctor referrals - ANZMES www.facebook.com/share/p/1Etr...
facebook.com
Facebook
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 22/07/2026
Updated link for questions: form.jotform.com/sickandtired...
form.jotform.com
Questions for Chronic Illness Political Panel
Please click the link to complete this form.
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 22/07/2026
Sorry about that! form.jotform.com/sickandtired...
form.jotform.com
Questions for Chronic Illness Political Panel
Please click the link to complete this form.
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 22/07/2026
#mecfs #longcovid #chronicillness #nzpol #kiwi
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 22/07/2026
Fill in this quick anonymous survey, and let us know your thoughts. form.jotform.com/.../chronic-... And don't forget to share with your chronically ill friends and whanau.
form.jotform.com
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 22/07/2026
What would you ask our politicians? We have exciting news! Sick and Tired Aotearoa and Long Covid Support Aotearoa are hosting a Chronic Illness Political Panel - 10am on Mon 10 August.
Image of a microphone against background of blurred lights with Long Covid Support Aotearoa teal logo and Sick and Tired Aotearoa MPR logo. Title says What would you ask a Member of Parliament about chronic illness?
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Reposted by Long Covid Support Aotearoa
Lin Nah @linnah.bsky.social · 20/07/2026
@lcsupportaotearoa.bsky.social @thesicktimes.org fyi
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 15/07/2026
Please share! This is a huge project and we are supported by libraries all over Aotearoa!
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Long Covid Support Aotearoa @lcsupportaotearoa.bsky.social · 29/06/2026
We hear this from our people all the time. It's completely life-changing and awareness is very low. #longcovid
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