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Kirsty Schnickelfritz

@kschnickelfritz.bsky.social
296 followers 285 following 115 posts

Sometimes inappropriate. Knitting and chocolate addict. Political when the mood takes me. Sick and tired. ME, LongCovid, POTS, Lyme

PostsRepliesMedia
Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 28/11/2024
Telegraph article about hyper mobility and associated conditions.
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 28/11/2024
archive.ph/2024.11.28-1...
archive.ph
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Daniel Moore @talmandaniel.bsky.social · 28/11/2024
Honoured to have been included in this article by Jeremy Jeffs on his photography project. wellcomecollection.org/stories/livi... #MyalgicE
wellcomecollection.org
Living with ME
Nine people with ME reveal their unremitting struggles as they negotiate life with their illness, including their battles to be believed, diagnosed and supported.
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Naomi Harvey PhD @naomidharvey.bsky.social · 28/11/2024
Well, this has new meaning to me today, as I just got results showing positive immune activity towards 3 different membrane structures for Borrelia burgdorferi. I was bitten by an adult tick from a known hot spot aged 10. And I have been chronically ill with post viral #MEcfs since age 14.
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Paula Knight 🎨✒️♿ @paulaknight.bsky.social · 28/11/2024
Fantastic that this photography project by Jeremy Jeffs about ME is on display @wellcomecollection.bsky.social Hope lots of people see it. (Was meant to take part but wasn't well enough to have anyone here, and have been shielding also.) #pwME #MEcfs wellcomecollection.org/stories/livi...
wellcomecollection.org
Living with ME
Nine people with ME reveal their unremitting struggles as they negotiate life with their illness, including their battles to be believed, diagnosed and supported.
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 28/11/2024
Chuckled when I heard the news this morning. Trump is so put out that Biden has got the headlines with a ceasefire that he’s fabricated his own immigration deal with Mexico. Mexico haven’t got a clue what he’s on about. 😂😂😂
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 27/11/2024
I sent something using Royal Mail Tracked 48 on 22 November. It still hasn’t been delivered yet, it’s 27th today. wtf?
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ThereForME @thereforme.bsky.social · 26/11/2024
Make sure you’re following #ThereForME on our new social media accounts! You can find links here: linktr.ee/ThereForME #ComingSoon
On a bright orange background sits a dark blue Christmas tree, decorated with sparkling fairy lights, baubles and a star on the top. It sits on the ground, which also looks like a “programme loading” bar. Underneath are the words “Coming soon…”
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 25/11/2024
Premature tree-jaculation 
The art of erecting one’s festive decor in any month prior to December.
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 25/11/2024
This is great. They debunk PACE trials in it too.
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Dara O Briain @daraobriain.bsky.social · 25/11/2024
Hannah is here! @fryrsquared.bsky.social
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 24/11/2024
Going to regret this later but it’s been years since I had a Lidl donut.
Chocolate donut on a plate.
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 24/11/2024
My buddy is keeping a close eye on me today.
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 23/11/2024
Wordle 1,253 5/6 🟨⬛⬛⬛🟨 ⬛⬛⬛⬛⬛ ⬛🟨⬛⬛⬛ ⬛🟩🟩🟩🟩 🟩🟩🟩🟩🟩
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 23/11/2024
Nice
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 22/11/2024
@naomidharvey.bsky.social what was the Lyme test you just did? Was it Viramed virachip? Just been putting my results through chat gpt and the outcome was interesting.
Lyme test resultsChat gpt analysis of Lyme test results
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Gayle Nastasi @gaylenastasi.com · 11/05/2024
Even though pyoderma gangrenosum has currently taken over my world, Lyme hasn't let me forget that it's there. This article is about a groundbreaking discovery that reveals how Borrelia burgdorferi evades the immune system. www.lymedisease.org/dont-eat-me-... #lymedisease #chronicillness
lymedisease.org
"Don't eat me" protein--how Lyme survives the immune system
"We’ve unlocked a critical door to understanding how this bacteria, and possibly other pathogens, manage to trick the immune system to evade clearance."
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 22/11/2024
A pie chart analysing what I learn from group projects
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Jo @justjo.bsky.social · 22/11/2024
If you’re thinking of swapping energy suppliers, you could use this code and we’ll each get £50 credit! Win-win. 👍😊 Use this link to sign up to Octopus - share.octopus.energy/peach-boar-422
share.octopus.energy
Octopus Energy
Cheaper, greener energy from the UK's largest investor in solar generation.
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 21/11/2024
I got a free Cadbury’s milkshake in my Ocado order. It’s gorgeous. Was a struggle to keep half left for son. 😬
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 21/11/2024
www.nytimes.com/badges/games...
nytimes.com
Play The Mini Crossword
All the fun of the larger New York Times Crossword, but you can solve it in seconds.
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 20/11/2024
Guess what they don’t mention? www.telegraph.co.uk/health-fitne...
telegraph.co.uk
How to sleep when you have a cough
Experts reveal the most common types of cough and the remedies to fix them so you can get a restful night’s sleep
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 20/11/2024
@justjo.bsky.social
Prue Leith with a statement necklace that looks like a ball gag
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 20/11/2024
The state of this. Imagine the backlash a woman would get conducting herself this way. Alex Burghart apparently. Never heard of him.
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 20/11/2024
Double portions for being a good boy. #TonyPigeon
Tony the wood pigeon sitting on the roof of a frozen car, waiting for his breakfast.
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 20/11/2024
#courage #ME
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 19/11/2024
OH and I have been conversing by email (with screenshots) about what turkey to get for Christmas dinner. When he ordered one I replied gobble gobble. After that every email we have sent or forwarded to each other has been titled Gobble gobble. 😂
media.tenor.com
a man in a wig holds a turkey in his hands
Alt: a man in a wig holds a turkey in his hands
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 19/11/2024
It’s time to start Easter shopping apparently. From my FB feed 🤦‍♀️
Advert for Easter decorations
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 19/11/2024
I am staggered that 1000 days have passed since Russia invaded Ukraine. We all thought it would be over in days. We laughed when a comedian was elected as President. What a leader he has turned out to be. Inspired a nation to fight back against all the odds.
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 19/11/2024
It sounds like snow. I’ve yet to get up and peek. ❄️❄️❄️
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 18/11/2024
Get a load of this! A snow tracker! veryweather.co.uk/liveSnowTrac...
veryweather.co.uk
HD Live UK Snow Map 2024
A high definition Live UK Snow Map for Winter 2023/2024. Shows the location of snow live in the UK.
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 18/11/2024
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Lonnie R Marcum, PT BSHCA @lonniemarcumpt.bsky.social · 17/11/2024
Researchers at Tulane University have found certain combinations of antibiotics to be more effective in treating #LymeDisease than the standard prescribed course of single antibiotics. READ MORE: www.lymedisease.org/combo-abx-em...
lymedisease.org
Combinations of antibiotics can eradicate Lyme in mice
Researchers have found certain combinations of antibiotics to be more effective in treating Lyme than the standard prescribed course of single antibiotics.
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 17/11/2024
Oh god. Everyone back to X, quick.
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Cold War Steve @coldwarsteve.bsky.social · 17/11/2024
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James O’Brien @mrjamesob.bsky.social · 16/11/2024
www.adambienkov.co.uk/p/the-top-50...
adambienkov.co.uk
The Top 50 Most Followed UK Political Journalists and Commentators on Bluesky
The leading political commentators and journalists who are testing out the growing alternative to Elon Musk's toxic social media platform
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 17/11/2024
I can’t book a food shop delivery after 22 December. Nothing for the inbetween Christmas and new year period. Nor New Year. Assuming I have missed the boat now?
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 17/11/2024
Connections Puzzle #525 🟩🟩🟩🟩 🟨🟨🟨🟨 🟪🟪🟪🟪 🟦🟦🟦🟦
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 16/11/2024
Slim is looking mighty fine this morning. His new feathers are very sleek and shiny.
A blackbird sitting on a hand, looking into the camera.
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Nicky Proctor @nickyproctor.bsky.social · 15/11/2024
Along with another #pwME I have requested the MEAssociation adopt charity guidelines and cap trustee tenureship at 9 years maximum. Please read and share. AGM is on 9 Dec. docs.google.com/document/d/1...
docs.google.com
The ME Association AGM Motion - Dec 2024
The ME Association background to Motion: For fifty years The ME Association has been a consistent voice for the thousands of people affected by ME, working to advocate and inform. The organisation ha...
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 15/11/2024
I *think* my week-long PEM may be starting to tail off. Big relief. Brother has postponed his weekend stay bc of the forecast too so I may actually get over this before my parents visit 🤞
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 13/11/2024
Having another go on here. Keyboard v small so it’s going to take a while to adjust. Not very iPad friendly. Assuming I have to get to grips with some settings. Meh.
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 02/09/2024
Advice needed please. Daughter has newly pierced lobes, one was very crooked so has been removed after just six days and they suggest re-doing it in 2 weeks. Seems a bit fast for it to have healed up properly? Anyone know if I am being overly cautious? #earpiercing #piercing
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 27/08/2024
Fabulous piece about #ME on #BBCBreakfast this morning with #ThereForME and #DrBinitaKane. Around 7.10am on IPlayer.
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 24/08/2024
Knitting with lace weight mohair… does anything go? I can’t wear wool so was wondering what is ok to pair it with? #yarn #knitting
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 23/08/2024
Worth a look. I was diagnosed with POTS didn’t know I also had OI until very recently. Just stated fludrocortisone and it has helped.
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Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 22/08/2024
Had an ECG on Tuesday and blood tests today. Prior to that hadn’t left the house since 17 May! GP unable to arrange district nurse or for both to be done at the same time until end September. Hoping PEM manageable after this 🤞
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Shannon K. Supple @mazarine.bsky.social · 20/08/2024
Libraries are dynamic institutions. A library without staff is not a library, but a building with some static collections in it. Library workers make libraries! They do all of the work to manage & build resources, provide services to connect people to what they seek, maintain infrastructures! 📚📜
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