Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 28/11/2024Telegraph article about hyper mobility and associated conditions. 121
Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 28/11/2024archive.ph/2024.11.28-1...archive.ph 010
Reposted by Kirsty SchnickelfritzDaniel Moore @talmandaniel.bsky.social · 28/11/2024Honoured to have been included in this article by Jeremy Jeffs on his photography project. wellcomecollection.org/stories/livi... #MyalgicEwellcomecollection.orgLiving with MENine people with ME reveal their unremitting struggles as they negotiate life with their illness, including their battles to be believed, diagnosed and supported. 2284
Reposted by Kirsty SchnickelfritzNaomi Harvey PhD @naomidharvey.bsky.social · 28/11/2024Well, this has new meaning to me today, as I just got results showing positive immune activity towards 3 different membrane structures for Borrelia burgdorferi. I was bitten by an adult tick from a known hot spot aged 10. And I have been chronically ill with post viral #MEcfs since age 14. 66317
Reposted by Kirsty SchnickelfritzPaula Knight 🎨✒️♿ @paulaknight.bsky.social · 28/11/2024Fantastic that this photography project by Jeremy Jeffs about ME is on display @wellcomecollection.bsky.social Hope lots of people see it. (Was meant to take part but wasn't well enough to have anyone here, and have been shielding also.) #pwME #MEcfs wellcomecollection.org/stories/livi...wellcomecollection.orgLiving with MENine people with ME reveal their unremitting struggles as they negotiate life with their illness, including their battles to be believed, diagnosed and supported. 56322
Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 28/11/2024Chuckled when I heard the news this morning. Trump is so put out that Biden has got the headlines with a ceasefire that he’s fabricated his own immigration deal with Mexico. Mexico haven’t got a clue what he’s on about. 😂😂😂 020
Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 27/11/2024I sent something using Royal Mail Tracked 48 on 22 November. It still hasn’t been delivered yet, it’s 27th today. wtf? 210
Reposted by Kirsty SchnickelfritzThereForME @thereforme.bsky.social · 26/11/2024Make sure you’re following #ThereForME on our new social media accounts! You can find links here: linktr.ee/ThereForME #ComingSoon 44631
Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 25/11/2024This is great. They debunk PACE trials in it too. 060
Reposted by Kirsty SchnickelfritzDara O Briain @daraobriain.bsky.social · 25/11/2024Hannah is here! @fryrsquared.bsky.social 3750239
Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 24/11/2024Going to regret this later but it’s been years since I had a Lidl donut. 1130
Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 24/11/2024My buddy is keeping a close eye on me today. 070
Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 23/11/2024Wordle 1,253 5/6 🟨⬛⬛⬛🟨 ⬛⬛⬛⬛⬛ ⬛🟨⬛⬛⬛ ⬛🟩🟩🟩🟩 🟩🟩🟩🟩🟩 110
Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 22/11/2024@naomidharvey.bsky.social what was the Lyme test you just did? Was it Viramed virachip? Just been putting my results through chat gpt and the outcome was interesting. 110
Reposted by Kirsty SchnickelfritzGayle Nastasi @gaylenastasi.com · 11/05/2024Even though pyoderma gangrenosum has currently taken over my world, Lyme hasn't let me forget that it's there. This article is about a groundbreaking discovery that reveals how Borrelia burgdorferi evades the immune system. www.lymedisease.org/dont-eat-me-... #lymedisease #chronicillnesslymedisease.org"Don't eat me" protein--how Lyme survives the immune system"We’ve unlocked a critical door to understanding how this bacteria, and possibly other pathogens, manage to trick the immune system to evade clearance." 022
Reposted by Kirsty SchnickelfritzJo @justjo.bsky.social · 22/11/2024If you’re thinking of swapping energy suppliers, you could use this code and we’ll each get £50 credit! Win-win. 👍😊 Use this link to sign up to Octopus - share.octopus.energy/peach-boar-422share.octopus.energyOctopus EnergyCheaper, greener energy from the UK's largest investor in solar generation. 121
Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 21/11/2024I got a free Cadbury’s milkshake in my Ocado order. It’s gorgeous. Was a struggle to keep half left for son. 😬 140
Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 21/11/2024www.nytimes.com/badges/games...nytimes.comPlay The Mini CrosswordAll the fun of the larger New York Times Crossword, but you can solve it in seconds. 040
Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 20/11/2024Guess what they don’t mention? www.telegraph.co.uk/health-fitne...telegraph.co.ukHow to sleep when you have a coughExperts reveal the most common types of cough and the remedies to fix them so you can get a restful night’s sleep 100
Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 20/11/2024The state of this. Imagine the backlash a woman would get conducting herself this way. Alex Burghart apparently. Never heard of him. 010
Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 20/11/2024Double portions for being a good boy. #TonyPigeon 050
Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 19/11/2024OH and I have been conversing by email (with screenshots) about what turkey to get for Christmas dinner. When he ordered one I replied gobble gobble. After that every email we have sent or forwarded to each other has been titled Gobble gobble. 😂media.tenor.coma man in a wig holds a turkey in his handsAlt: a man in a wig holds a turkey in his hands 030
Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 19/11/2024It’s time to start Easter shopping apparently. From my FB feed 🤦♀️ 120
Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 19/11/2024I am staggered that 1000 days have passed since Russia invaded Ukraine. We all thought it would be over in days. We laughed when a comedian was elected as President. What a leader he has turned out to be. Inspired a nation to fight back against all the odds. 020
Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 19/11/2024It sounds like snow. I’ve yet to get up and peek. ❄️❄️❄️ 160
Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 18/11/2024Get a load of this! A snow tracker! veryweather.co.uk/liveSnowTrac...veryweather.co.ukHD Live UK Snow Map 2024A high definition Live UK Snow Map for Winter 2023/2024. Shows the location of snow live in the UK. 040
Reposted by Kirsty SchnickelfritzLonnie R Marcum, PT BSHCA @lonniemarcumpt.bsky.social · 17/11/2024Researchers at Tulane University have found certain combinations of antibiotics to be more effective in treating #LymeDisease than the standard prescribed course of single antibiotics. READ MORE: www.lymedisease.org/combo-abx-em...lymedisease.orgCombinations of antibiotics can eradicate Lyme in miceResearchers have found certain combinations of antibiotics to be more effective in treating Lyme than the standard prescribed course of single antibiotics. 0167
Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 17/11/2024Oh god. Everyone back to X, quick. 110
Reposted by Kirsty SchnickelfritzJames O’Brien @mrjamesob.bsky.social · 16/11/2024www.adambienkov.co.uk/p/the-top-50...adambienkov.co.ukThe Top 50 Most Followed UK Political Journalists and Commentators on BlueskyThe leading political commentators and journalists who are testing out the growing alternative to Elon Musk's toxic social media platform 831456254
Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 17/11/2024I can’t book a food shop delivery after 22 December. Nothing for the inbetween Christmas and new year period. Nor New Year. Assuming I have missed the boat now? 110
Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 17/11/2024Connections Puzzle #525 🟩🟩🟩🟩 🟨🟨🟨🟨 🟪🟪🟪🟪 🟦🟦🟦🟦 000
Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 16/11/2024Slim is looking mighty fine this morning. His new feathers are very sleek and shiny. 050
Reposted by Kirsty SchnickelfritzNicky Proctor @nickyproctor.bsky.social · 15/11/2024Along with another #pwME I have requested the MEAssociation adopt charity guidelines and cap trustee tenureship at 9 years maximum. Please read and share. AGM is on 9 Dec. docs.google.com/document/d/1...docs.google.comThe ME Association AGM Motion - Dec 2024The ME Association background to Motion: For fifty years The ME Association has been a consistent voice for the thousands of people affected by ME, working to advocate and inform. The organisation ha... 52913
Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 15/11/2024I *think* my week-long PEM may be starting to tail off. Big relief. Brother has postponed his weekend stay bc of the forecast too so I may actually get over this before my parents visit 🤞 3261
Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 13/11/2024Having another go on here. Keyboard v small so it’s going to take a while to adjust. Not very iPad friendly. Assuming I have to get to grips with some settings. Meh. 2110
Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 02/09/2024Advice needed please. Daughter has newly pierced lobes, one was very crooked so has been removed after just six days and they suggest re-doing it in 2 weeks. Seems a bit fast for it to have healed up properly? Anyone know if I am being overly cautious? #earpiercing #piercing 110
Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 27/08/2024Fabulous piece about #ME on #BBCBreakfast this morning with #ThereForME and #DrBinitaKane. Around 7.10am on IPlayer. 010
Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 24/08/2024Knitting with lace weight mohair… does anything go? I can’t wear wool so was wondering what is ok to pair it with? #yarn #knitting 000
Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 23/08/2024Worth a look. I was diagnosed with POTS didn’t know I also had OI until very recently. Just stated fludrocortisone and it has helped. 073
Kirsty Schnickelfritz @kschnickelfritz.bsky.social · 22/08/2024Had an ECG on Tuesday and blood tests today. Prior to that hadn’t left the house since 17 May! GP unable to arrange district nurse or for both to be done at the same time until end September. Hoping PEM manageable after this 🤞 040
Reposted by Kirsty SchnickelfritzShannon K. Supple @mazarine.bsky.social · 20/08/2024Libraries are dynamic institutions. A library without staff is not a library, but a building with some static collections in it. Library workers make libraries! They do all of the work to manage & build resources, provide services to connect people to what they seek, maintain infrastructures! 📚📜 015653