iiinova — where your digital self keeps evolving

Kelly Meiners PT, PhD @kellymeiners.bsky.social · 25/03/2025

I’m a subject in the Recover Autonomic IVIG trial and was told months ago that funding cuts won’t impact this study. Today my nurse is no longer monitoring vital signs during my 6 hour infusion because of budget cuts. 🙄 #LongCOVID

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Reposted by Kelly Meiners PT, PhD

Chantzy @chantzy.bsky.social · 15/03/2025

Thank you @rollingstone.com for the front page coverage Make the invisible visible. Long Covid is REAL and a growing crisis

Rolling stone front page - caption: five years of pain, fatigue, and gaslighting: life with long covid

Pictured: activists in respirators protesting with signs in front of White House

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Kelly Meiners PT, PhD @kellymeiners.bsky.social · 15/03/2025

It’s been 1,233 days for me suffering from a bedridden to homebound existence. For many others it’s been 5 years. We need help. #LongCOVIDAwarenessDay #LongCOVIDAwarenessDay2025

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Kelly Meiners PT, PhD @kellymeiners.bsky.social · 12/02/2025

As a PT I’ve tried and failed over a 100 times to gently return to exercise from a severe state. If it was possible I’d be cured by now. I decline every single time I attempt to push myself. It’s not mindset or a “preference” issue but completely physiological.

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Kelly Meiners PT, PhD @kellymeiners.bsky.social · 12/02/2025

Unfortunately they didn’t give me much information besides that I have anteroseptal cardiac damage from a past MI. Based on previous tests they are guessing it happened 2023. I’ve been severe and disabled by LC since 10/21 and have daily chest pain.

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Kelly Meiners PT, PhD @kellymeiners.bsky.social · 12/02/2025

Not a bad idea. I believed mine was non cardiac as well, and assumed the shortness of breath etc, was all from POTS

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Kelly Meiners PT, PhD @kellymeiners.bsky.social · 11/02/2025

#LongCOVID #POTS #ME patients, please don’t ignore important symptoms. I’ve done a solid job of ignoring chest pain and recently found out I’ve had a heart attack and am in early stage heart failure.

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Kelly Meiners PT, PhD @kellymeiners.bsky.social · 02/02/2025

Happy Groundhog Day to fellow #pwLC, #pwME who feel like they are perpetually trapped on repeat. #LongCOVID

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Kelly Meiners PT, PhD @kellymeiners.bsky.social · 24/12/2024

Solidarity and peace to those suffering with #LongCOVID this holiday season. 😘 It’s my 4th year being homebound and unable to celebrate, and so far is the most difficult yet.

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Joe Eastman PhD @jlerollblues.bsky.social · 04/12/2024

Many of us at the @TheWHN worked many hours on this PSA and it has began getting a lot of attention. Thanks! whn.global/public-servi...

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Kelly Meiners PT, PhD @kellymeiners.bsky.social · 27/11/2024

Yep, I’m one of those that receive biweekly cognitive rehab sessions with a brain injury specialist.

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Danielle Beckman @daniellebeckman.bsky.social · 27/11/2024

A lot of people don't realize that many patients with #LongCovid are now often being treated in Brain Injury Clinics, together with patients recovering from traumatic brain injury after a concussion. It's been hard to keep up with the literature, but here is a new one published yesterday #NeuroCovid

Screenshot of an article published yesterday at Nature Medicine that reads: Cognitive deficits after COVID-19 associated with brain injury biomarkers and volume loss. Behind the paper: Research questions about the effect of COVID-19 on the brain were formulated early in the pandemic and focused on acute brain inflammation, infarction,
demyelination and psychiatric complications. However, it rapidly
became apparent that many patients were describing lasting cognitive
impairment. The research focus rapidly realigned to address to what extent these subjective complaints could be confirmed by objective measurement and whether neurobiological evidence existed on brain imaging and injury biomarkers.

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Mark Ungrin @mark-ungrin.bsky.social · 25/11/2024

Analysts at Swiss Re (one of the largest reinsurers in the life insurance industry, with huge financial incentives to get this right) estimated that current COVID policies will see excess deaths of ~3% in the US and ~2.5% in the UK for at least the next decade. www.swissre.com/press-releas...

swissre.com

Covid-19 may lead to longest period of peacetime excess mortality, says new Swiss Re report | Swiss Re

Covid-19 may lead to longest period of peacetime excess mortality, says new Swiss Re report

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Ziyad Al-Aly MD @zalaly.bsky.social · 19/10/2024

My first post has to be about #LongCOVID 🔹 400 million individuals affected worldwide 🔹 $1 trillion in annual economic costs 🔹 Countless lives & communities shattered The time for a comprehensive policy and research response is now! Details in our review here www.nature.com/articles/s41...

nature.com

Long COVID science, research and policy - Nature Medicine

This Review outlines the current state of scientific evidence on long COVID, discusses its impacts on patients, health systems, economies and global health metrics, and proposes a forward-looking rese...

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Kelly Meiners PT, PhD @kellymeiners.bsky.social · 21/11/2024

Done. I thought this was a joke when I first saw it.

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Kelly Meiners PT, PhD @kellymeiners.bsky.social · 21/11/2024

Minute two of exercise feels like mile 22 of a marathon when one “hits the wall”. It’s not deconditioning, feels like I skip aerobic metabolism phase. Then I spend weeks to months in bed recovering from 5 minutes of exertion.

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Kelly Meiners PT, PhD @kellymeiners.bsky.social · 21/11/2024

I was a firm believer in this (why I became a PT, ATC, CSCS- taught ex. science etc.) and personally exercised daily. Now I have #LongCOVID and I become significantly more sick every time I try to exercise. We need research to explain why.

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Binita Kane @binitakane.bsky.social · 21/11/2024

‘Working days lost to long Covid could be costing the economy billions of pounds every year as patients struggle to cope with symptoms and return to work, finds a new study led by UCL researchers.’ www.ucl.ac.uk/news/2024/no...

ucl.ac.uk

Long Covid could cost the economy billions every year

Working days lost to long Covid could be costing the economy billions of pounds every year as patients struggle to cope with symptoms and return to work, finds a new study led by UCL researchers.

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Kelly Meiners PT, PhD @kellymeiners.bsky.social · 21/11/2024

I’ve always been primarily neurological symptoms (seizures, migraines, coordination and speech issues, severe POTS) and am currently in an IVIG trial. Since starting the fatigue has been awful- totally immune system based.

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Reposted by Kelly Meiners PT, PhD

Putrino Lab @putrinolab.bsky.social · 20/11/2024

Feels like a good time for a thread about all things exercise for people living with infection (and exposure)-associated complex chronic illnesses (IACCs) such as #MECFS, #LongCOVID and chronic #Lyme /tick- and vector-borne illness. Let’s start with a trip down memory lane. 1/

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Kelly Meiners PT, PhD @kellymeiners.bsky.social · 18/11/2024

Happy to tell my story and contribute to this article. #longcovid #pots #mecfs

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Kelly Meiners PT, PhD @kellymeiners.bsky.social · 18/11/2024

Thank you! Taking some energy to figure it out but happy for the move 😊. #longcovid

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