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International Kidney Cancer Coalition @ikccorg.bsky.social · 17h

🏛️ Tomorrow: Kidney cancer takes centre stage at the European Parliament On 1 October, IKCC, represented by Olivier Exertier, will join experts in Brussels to discuss kidney cancer prevention, the impact of EU investment, and where research and innovation can make the biggest difference.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 29/09/2026

🤝 Putting patients at the heart of cancer care At the #WorldCancerCongress in Hong Kong, IKCC organised a session exploring “Promoting Shared Decision Making in Cancer Care”, highlighting the importance of giving patients an active role in decisions about their care.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 24/09/2026

📢 Today, on World Cancer Research Day, the 5th IKCC Global Patient Survey on Kidney Cancer is now open! People who have been diagnosed with kidney cancer and carers are invited to share patient experiences and insights in the online survey:https://bit.ly/IKCC_Kidney_Cancer_Global_Survey

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International Kidney Cancer Coalition @ikccorg.bsky.social · 24/09/2026

On first day of the #WorldCancerCongress in Hong Kong, Michael Jewett Past Chair of IKCC board, made a presentation about « Gaps in Kidney Cancer Care in Low- and Middle Income vs. High Income Countries: IKCC Global Patient Survey Results ».

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International Kidney Cancer Coalition @ikccorg.bsky.social · 23/09/2026

Next week, on 1 October, Olivier Exertier will be at the #EuropeanParliament to officially launch the new EAU Kidney Cancer White Paper: Closing the Gap to Better Outcomes in Europe.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 22/09/2026

Our September newsletter is here! 🌍 Discover the latest from the global kidney cancer community, including the launch of the 5th Global Patient Survey, research updates, global collaborations and more. Read it here: buff.ly/8SEi5gE #KidneyCancer #IKCC

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International Kidney Cancer Coalition @ikccorg.bsky.social · 22/09/2026

🌍 The World Kidney Day 2027 campaign has launched! As a World Kidney Day partner, IKCC is pleased to support the campaign and its theme, “Kidneys, Heart and Metabolism: The Core of Your Health”, highlighting the close connection between kidney, cardiovascular and metabolic health.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 16/09/2026

We’re pleased to see Dr. Michael Jewett, IKCC Board Past Chair, presenting findings from the 2025 IKCC Global Patient Survey at the upcoming World Cancer Congress 2026 in Hong Kong. 📅 Thursday, 24 September 2026 🕐️ 12:20–13:20

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International Kidney Cancer Coalition @ikccorg.bsky.social · 15/09/2026

Almost half of all kidney cancers could be prevented if smoking were eliminated and healthy body weight maintained. IKCC, represented by Olivier Exertier, will be joining experts at the #EuropeanParliament, hosted by MEP Tilly Metz and MEP Romana Jerkovic.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 10/09/2026

We’re pleased to welcome Kidney Research UK to the IKCC global network.💙 Together, we’re strengthening collaboration and the global voice for people affected by kidney cancer. Explore our global kidney cancer community: ikcc.org/about-ikcc/o... #IKCC #KidneyResearchUK

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International Kidney Cancer Coalition @ikccorg.bsky.social · 09/09/2026

We’re pleased to see Olivier Exertier from IKCC joining the panel session “Promoting Shared Decision Making in Cancer Care” at the upcoming World Cancer Congress 2026 in Hong Kong. 📅 Friday, 25 September 2026 🕐 16:40–17:40

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International Kidney Cancer Coalition @ikccorg.bsky.social · 08/09/2026

Kidney cancer is the 5th (men) and 10th (women) most common cancer. Yet is falling through the cracks of Europe’s cancer response. We are taking the issue to the #EuropeanParliament, to ask: How should the EU tackle inequalities through prevention and treatment for kidney cancer?

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International Kidney Cancer Coalition @ikccorg.bsky.social · 07/09/2026

🔎 Understanding your kidney cancer diagnosis The 4th IKCC Global Patient Survey found encouraging improvements in patients’ knowledge and understanding. In 2024, fewer people reported that important aspects of their diagnosis were not explained in a way they could understand.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 04/09/2026

🏆 Congratulations to Omogbeminiyi Ojole (NG), one of the recipients of the 2026 IKCC Allied Healthcare Professional Scholarship Award!

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International Kidney Cancer Coalition @ikccorg.bsky.social · 02/09/2026

🏆 Congratulations to Dr Helena Garcia-Llana (SP), recipient of the 2026 IKCC Allied Healthcare Professional Scholarship Award! Dr Garcia-Llana is being recognised for her contribution to the empowerment of kidney cancer patients and the development of patient-centred initiatives.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 01/09/2026

We’re pleased to see Margie Hickey from IKCC moderating the panel session "Promoting Shared Decision Making in Cancer Care" at the upcoming #WorldCancerCongress 2026 in Hong Kong. 📅 Friday, 25 September 2026 🕓️ 16:40–17:40 We hope you can join us! #WCC2026

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International Kidney Cancer Coalition @ikccorg.bsky.social · 01/09/2026

The CANCERSurvey is live. Pan-European. 15 languages. Anonymous. Independent. If you have been through cancer in Europe - or cared for someone who has - your experience is what this study needs. wecanadvocate.eu/projects-and... #CANCERSurvey #PatientVoice

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International Kidney Cancer Coalition @ikccorg.bsky.social · 27/08/2026

IKCC at ESMO Congress 2026 🇪🇸 IKCC will be participating in the upcoming ESMO Congress 2026, a leading global oncology meeting bringing together clinicians, researchers, patient advocates, journalists and healthcare industry representatives from around the world.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 25/08/2026

📣 Five years on from COVID-19, are cancer patient organisations really recovered? Our network @GlobalCCN_org asked 96 organisations in 45 countries. Their poster is presented at the @uicc World Cancer Congress:

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International Kidney Cancer Coalition @ikccorg.bsky.social · 24/08/2026

🎗️ One month to go. On World Cancer Research Day, 24 September 2026, the 5th IKCC Global Patient Survey on Kidney Cancer will launch. Every response helps us identify gaps and work towards better care for people affected by kidney cancer.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 12/08/2026

🌍 IKCC 2025 Global Patient Survey: Who took part? The 4th IKCC Global Patient Survey gathered responses from 2,677 people across 46 countries, 2,049 patients (77%) and 628 carers (23%).

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International Kidney Cancer Coalition @ikccorg.bsky.social · 11/08/2026

🎙️Living With & Beyond Cancer | S2, Ep2 Cancer survivor Charlotte speaks with Steve Pointon about her journey through diagnosis, treatment and recurrence, as well as advocacy, uncertainty and the importance of support. Listen to the latest episode: open.spotify.com/episode/40Rs...

open.spotify.com

S2 Ep2 - Diagnosed on the other side of the world - Charlotte Rutherford

Living with & Beyond Cancer · Episode

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International Kidney Cancer Coalition @ikccorg.bsky.social · 10/08/2026

We’re pleased to welcome Kidney Cancer Australia into IKCC global network. 💙 Together, we’re strengthening collaboration and the global voice for people affected by kidney cancer. Explore the growing global kidney cancer community: ikcc.org/about-ikcc/o...

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International Kidney Cancer Coalition @ikccorg.bsky.social · 28/07/2026

Eric Jonasch, our Chair, attended #KCRS26 where he presented a poster on the IKCC Global Patient Survey. (1/3)

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International Kidney Cancer Coalition @ikccorg.bsky.social · 23/07/2026

Together with the Global Cancer Coalitions Network, we’re pleased to share the four guiding principles for better shared decision-making (SDM) between clinicians and patients: (1/3)

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International Kidney Cancer Coalition @ikccorg.bsky.social · 23/07/2026

The 5th IKCC Global Patient Survey on Kidney Cancer launches on World Cancer Research Day, 24 September 2026! 🎗️ This launch marks an incredible milestone — 10 years of listening to and learning from the kidney cancer patient community through the collection of patient experience data. (1/2)

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Reposted by International Kidney Cancer Coalition

KidneyCAN @kidneycan.bsky.social · 22/07/2026

The #KCRS26 Poster Gallery is now LIVE! Explore research from investigators across the #KidneyCancer community and discover the innovative science being showcased at this year's Summit: kcrs.kidneycan.org/kcrs26-abstract-… #AcceleratingCures

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Reposted by International Kidney Cancer Coalition

KidneyCAN @kidneycan.bsky.social · 21/07/2026

The #KCRS26 Abstract Book is now available! Get an early look at the innovative research that will be presented during this year's Summit: kcrs.kidneycan.org/kcrs26-abstract-… Then join us virtually to hear these findings presented! kcrs.kidneycan.org #AcceleratingCures

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Reposted by International Kidney Cancer Coalition

KidneyCAN @kidneycan.bsky.social · 18/07/2026

🖐️ Just 5 DAYS until #KCRS26! In five days, experts from across the #KidneyCancer community will come together to share the latest research, exchange ideas, and help shape the future of kidney cancer care. Register today before the Summit begins: kcrs.kidneycan.org #AcceleratingCures

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International Kidney Cancer Coalition @ikccorg.bsky.social · 17/07/2026

July’s edition of our newsletter is now available. It includes results from World Kidney Cancer Day, details for the Global Patient Survey on Kidney Cancer launch, a recap from #ASCO26, and more. mailchi.mp/ikcc/newslet... #KidneyCancer

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Reposted by International Kidney Cancer Coalition

KidneyCAN @kidneycan.bsky.social · 16/07/2026

Wherever you're making a difference in #KidneyCancer research or care, #KCRS26 can come to you. Virtual attendance gives you access to two days of presentations and discussions featuring leading experts from around the world. Register today: kcrs.kidneycan.org #AcceleratingCures

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International Kidney Cancer Coalition @ikccorg.bsky.social · 14/07/2026

Dr Eric Jonasch spoke about the IKCC Global Patient Survey with the Video Journal of Oncology (VJOncology) at #ASCO26. He focused on the importance of emotional wellbeing, which was the theme of the most recent #WorldKidneyCancerDay. www.youtube.com/watch?v=DoNm... #KidneyCancer

youtube.com

Emotional health burden and unmet support needs in kidney cancer

YouTube video by VJOncology

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International Kidney Cancer Coalition @ikccorg.bsky.social · 10/07/2026

What does “optimal” SDM look like? 💡 Our network, the Global Cancer Coalitions Network (GCCN), sets out 3 core elements in its new infographic: clinical evidence and expertise, patient preferences and goals, and biological, psychological and social context, (1/2)

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KidneyCAN @kidneycan.bsky.social · 06/07/2026

Join us virtually for #KCRS26 on July 23-24 and hear directly from leading researchers, clinicians, and experts as they share the newest advances shaping the future of #KidneyCancer research. Register today! kcrs.kidneycan.org #AcceleratingCures

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Reposted by International Kidney Cancer Coalition

KidneyCAN @kidneycan.bsky.social · 30/06/2026

Are you an early-career researcher looking to engage with the #KidneyCancer research community? To help make participation more accessible, discounted registration for #KCRS26 is available for early-career researchers. Register today: bit.ly/KCRS26Registration #AcceleratingCures

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International Kidney Cancer Coalition @ikccorg.bsky.social · 30/06/2026

Time, openness and health literacy are the biggest barriers to shared decision making, and biomarker testing adds complexity. 💡 Our network @GlobalCCN_org has mapped these challenges and the enablers that help in a new infographic. We see them every day. 👉 www.globalccn.org @glcc01.bsky.social

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International Kidney Cancer Coalition @ikccorg.bsky.social · 29/06/2026

Last week in Gdansk, Poland, IKCC played an active role at the WECAN Academy, with Eric Jonasch, Caleb Egwuenu and Olivier Exertier participating, and Claudia Ungarelli attending as a speaker. (1/3)

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International Kidney Cancer Coalition @ikccorg.bsky.social · 23/06/2026

📣 As a proud member of GCCN, we're sharing their new infographic on shared decision making in precision medicine and oncology biomarkers, developed with Ipsen at ESMO 2025. Patients deserve to be true partners in their care. 👉 www.globalccn.org @glcc01.bsky.social

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International Kidney Cancer Coalition @ikccorg.bsky.social · 22/06/2026

Thank you again to all that helped make #WorldKidneyCancerDay a success! As a reminder, the Emotional Wellbeing Global Symposium is available on YouTube with auto-translated subtitles: www.youtube.com/watch?v=LfO_... We're looking forward to the next #WKCD on 17 June 2027.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 19/06/2026

What an incredible global response to #WorldKidneyCancerDay 2026. None of it would be possible without the generous support of our industry sponsors. Thank you for your commitment to the global kidney cancer community. #WKCD

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International Kidney Cancer Coalition @ikccorg.bsky.social · 18/06/2026

We are overwhelmed by the support for the global kidney cancer community on #WorldKidneyCancerDay. (1/3)

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Reposted by International Kidney Cancer Coalition

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 18/06/2026

We are delighted that @NHS Gloucestershire Urology raised awareness of #kidneycancer today as part of @ikccorg.bsky.social #wkcd26 They had a display in their outpatient department where they shared the emotional wellness questionnaire, along with advising how patients can access support.

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Deb Maskens @debmaskens.bsky.social · 18/06/2026

@care1project.bsky.social A great pragmatic trial that will improve the capturing of real world patient experience using ePROs, and advanced and more relevant #QoL measurements. #kidneycancer #wkcd

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Reposted by International Kidney Cancer Coalition

The Max Foundation @themaxfoundation.org · 18/06/2026

This year’s theme for Kidney Cancer Day from our partners at the @ikccorg.bsky.social reminds us that emotional well-being is an often-overlooked element of patient care. Because behind every diagnosis is a person resiliently navigating uncertainty.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 18/06/2026

We are grateful to the sponsors and partners who share our commitment to raising awareness for kidney cancer and the emotional burden of living with the disease. Check out the video below featuring Reno and Rina – a kidney love story for #WorldKidneyCancerDay. (1/2)

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International Kidney Cancer Coalition @ikccorg.bsky.social · 18/06/2026

#ResearchInitiativesHighlight: For World Kidney Cancer Day 2026, IKCC would like to draw attention to the DISCERN Project – Discovering the Causes of Three Poorly Understood Cancers in Europe. (1/4)

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International Kidney Cancer Coalition @ikccorg.bsky.social · 18/06/2026

#ResearchInitiativesHighlight: For World Kidney Cancer Day 2026, IKCC is proud to promote the COMFORT Project – COMputational Models FOR patienT stratification in urologic cancers – Creating robust and trustworthy multimodal AI for health care. (1/5)

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International Kidney Cancer Coalition @ikccorg.bsky.social · 18/06/2026

#ResearchInitiativesHighlight: For World Kidney Cancer Day 2026, IKCC wishes to highlight the CARE1 European project. This Pragmatic Clinical Trial is a European phase III multi-centre study of first-line treatment for metastatic kidney cancer. (1/4)

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International Kidney Cancer Coalition @ikccorg.bsky.social · 18/06/2026

On #WorldKidneyCancerDay, we are thinking about the 85% of kidney cancer patients who experience emotional challenges, according to the 2025 Global Patient Survey on Kidney Cancer. (1/3)

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