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International Kidney Cancer Coalition @ikccorg.bsky.social · 3h

We would like to recognise and thank three outgoing members of the IKCC Board: Michael Jewett, Anne Wilson and Bryan Lewis, for their dedication and commitment to kidney cancer advocacy.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 16h

🧬 Genetics & Kidney Cancer Town Hall What does genetics mean for people living with kidney cancer and their families? Join KidneyCAN on 28 October to learn about inherited kidney cancer, genetic testing and emerging research.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 15/10/2026

🎉 Over 1,000 patients and carers have already contributed to the IKCC Global Patient Survey 2026–2027! A big thank you to everyone who has taken the time to share their experiences. 💙

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International Kidney Cancer Coalition @ikccorg.bsky.social · 15/10/2026

The success of the 2026 IKCC Global Kidney Cancer Summit would not have been possible without the support of our sponsors. We would like to extend our sincere thanks to Arcus, Exelixis and Pfizer for supporting this year's Summit in Prague.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 14/10/2026

🌐 Have you visited the new IKCC website? The new IKCC website is here, making it easier than ever to explore the information, resources and support available to the kidney cancer community. 🔗 Explore the website: ikcc.org

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International Kidney Cancer Coalition @ikccorg.bsky.social · 14/10/2026

Dr André Ilbawi, Cancer Lead at the World Health Organization (WHO) headquarters, delivered the keynote address at the 2026 IKCC Global Kidney Cancer Summit in Prague.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 13/10/2026

The 2026 IKCC Global Kidney Cancer Summit was honoured to welcome Adam Vojtěch, Minister of Health of the Czech Republic, who officially opened the Summit in Prague on 10 October.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 12/10/2026

🌍 Two days of connection, learning and collaboration! The 2026 IKCC Global Kidney Cancer Summit brought together more than 50 patient advocates, healthcare professionals and kidney cancer experts from around the world in Prague, Czech Republic, on 10–11 October.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 12/10/2026

🌍 Did you know that the Global Patient Survey on #kidneycancer is available in 18 languages, bringing together the experiences of people affected by kidney cancer from around the world? 💬 Add your voice today and help make a difference: buff.ly/Mkj0pxs

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International Kidney Cancer Coalition @ikccorg.bsky.social · 10/10/2026

💚 This World Mental Health Day, we recognise the emotional impact of kidney cancer on patients, carers and loved ones. Mental health matters at every stage of the journey. Seeking support is important, and no one should have to face these challenges alone. #WorldMentalHealthDay #KidneyCancer

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International Kidney Cancer Coalition @ikccorg.bsky.social · 09/10/2026

🌍 Why are we part of the Global Patient Survey on #kidneycancer? Because when local efforts are combined with a global approach, we can have the greatest impact on improving health equity and patient outcomes for people affected by kidney cancer: buff.ly/Mkj0pxs

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International Kidney Cancer Coalition @ikccorg.bsky.social · 07/10/2026

🌍 The 5th Global Patient Survey on Kidney Cancer This year marks an important milestone: 10 years of collecting data on the experiences of people living with kidney cancer. 💙 Your experience matters. Add your voice and take part in the survey today: buff.ly/7mCplWI #KidneyCancer #PatientVoice

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International Kidney Cancer Coalition @ikccorg.bsky.social · 06/10/2026

🌱 IKCC Grants 2026: Meet our Seed & Grow Grant recipient We’re pleased to recognise the Feliciana Mshanga Memorial Cancer Foundation (Tanzania) as a 2026 Seed & Grow Grant recipient.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 05/10/2026

📢 What should Europe do to tackle the burden of kidney cancer? Experts at the European Parliament have highlighted key priorities for kidney cancer policy across Europe: • Invest in research to address areas where patients’ needs may not align with commercial interests.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 02/10/2026

🔎 Why participate in the Global Patient Survey on #kidneycancer? The information gathered helps create education, support and advocacy programs that respond to the needs of people affected by kidney cancer. 🌍 Take part: buff.ly/7mCplWI

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International Kidney Cancer Coalition @ikccorg.bsky.social · 30/09/2026

🏛️ Tomorrow: Kidney cancer takes centre stage at the European Parliament On 1 October, IKCC, represented by Olivier Exertier, will join experts in Brussels to discuss kidney cancer prevention, the impact of EU investment, and where research and innovation can make the biggest difference.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 29/09/2026

🤝 Putting patients at the heart of cancer care At the #WorldCancerCongress in Hong Kong, IKCC organised a session exploring “Promoting Shared Decision Making in Cancer Care”, highlighting the importance of giving patients an active role in decisions about their care.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 24/09/2026

📢 Today, on World Cancer Research Day, the 5th IKCC Global Patient Survey on Kidney Cancer is now open! People who have been diagnosed with kidney cancer and carers are invited to share patient experiences and insights in the online survey:https://bit.ly/IKCC_Kidney_Cancer_Global_Survey

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International Kidney Cancer Coalition @ikccorg.bsky.social · 24/09/2026

On first day of the #WorldCancerCongress in Hong Kong, Michael Jewett Past Chair of IKCC board, made a presentation about « Gaps in Kidney Cancer Care in Low- and Middle Income vs. High Income Countries: IKCC Global Patient Survey Results ».

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International Kidney Cancer Coalition @ikccorg.bsky.social · 23/09/2026

Next week, on 1 October, Olivier Exertier will be at the #EuropeanParliament to officially launch the new EAU Kidney Cancer White Paper: Closing the Gap to Better Outcomes in Europe.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 22/09/2026

Our September newsletter is here! 🌍 Discover the latest from the global kidney cancer community, including the launch of the 5th Global Patient Survey, research updates, global collaborations and more. Read it here: buff.ly/8SEi5gE #KidneyCancer #IKCC

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International Kidney Cancer Coalition @ikccorg.bsky.social · 22/09/2026

🌍 The World Kidney Day 2027 campaign has launched! As a World Kidney Day partner, IKCC is pleased to support the campaign and its theme, “Kidneys, Heart and Metabolism: The Core of Your Health”, highlighting the close connection between kidney, cardiovascular and metabolic health.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 16/09/2026

We’re pleased to see Dr. Michael Jewett, IKCC Board Past Chair, presenting findings from the 2025 IKCC Global Patient Survey at the upcoming World Cancer Congress 2026 in Hong Kong. 📅 Thursday, 24 September 2026 🕐️ 12:20–13:20

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International Kidney Cancer Coalition @ikccorg.bsky.social · 15/09/2026

Almost half of all kidney cancers could be prevented if smoking were eliminated and healthy body weight maintained. IKCC, represented by Olivier Exertier, will be joining experts at the #EuropeanParliament, hosted by MEP Tilly Metz and MEP Romana Jerkovic.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 10/09/2026

We’re pleased to welcome Kidney Research UK to the IKCC global network.💙 Together, we’re strengthening collaboration and the global voice for people affected by kidney cancer. Explore our global kidney cancer community: ikcc.org/about-ikcc/o... #IKCC #KidneyResearchUK

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International Kidney Cancer Coalition @ikccorg.bsky.social · 09/09/2026

We’re pleased to see Olivier Exertier from IKCC joining the panel session “Promoting Shared Decision Making in Cancer Care” at the upcoming World Cancer Congress 2026 in Hong Kong. 📅 Friday, 25 September 2026 🕐 16:40–17:40

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International Kidney Cancer Coalition @ikccorg.bsky.social · 08/09/2026

Kidney cancer is the 5th (men) and 10th (women) most common cancer. Yet is falling through the cracks of Europe’s cancer response. We are taking the issue to the #EuropeanParliament, to ask: How should the EU tackle inequalities through prevention and treatment for kidney cancer?

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International Kidney Cancer Coalition @ikccorg.bsky.social · 07/09/2026

🔎 Understanding your kidney cancer diagnosis The 4th IKCC Global Patient Survey found encouraging improvements in patients’ knowledge and understanding. In 2024, fewer people reported that important aspects of their diagnosis were not explained in a way they could understand.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 04/09/2026

🏆 Congratulations to Omogbeminiyi Ojole (NG), one of the recipients of the 2026 IKCC Allied Healthcare Professional Scholarship Award!

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International Kidney Cancer Coalition @ikccorg.bsky.social · 02/09/2026

🏆 Congratulations to Dr Helena Garcia-Llana (SP), recipient of the 2026 IKCC Allied Healthcare Professional Scholarship Award! Dr Garcia-Llana is being recognised for her contribution to the empowerment of kidney cancer patients and the development of patient-centred initiatives.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 01/09/2026

We’re pleased to see Margie Hickey from IKCC moderating the panel session "Promoting Shared Decision Making in Cancer Care" at the upcoming #WorldCancerCongress 2026 in Hong Kong. 📅 Friday, 25 September 2026 🕓️ 16:40–17:40 We hope you can join us! #WCC2026

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International Kidney Cancer Coalition @ikccorg.bsky.social · 01/09/2026

The CANCERSurvey is live. Pan-European. 15 languages. Anonymous. Independent. If you have been through cancer in Europe - or cared for someone who has - your experience is what this study needs. wecanadvocate.eu/projects-and... #CANCERSurvey #PatientVoice

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International Kidney Cancer Coalition @ikccorg.bsky.social · 27/08/2026

IKCC at ESMO Congress 2026 🇪🇸 IKCC will be participating in the upcoming ESMO Congress 2026, a leading global oncology meeting bringing together clinicians, researchers, patient advocates, journalists and healthcare industry representatives from around the world.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 25/08/2026

📄 Poster: "Recovery under pressure" 🗓 Fri 25 Sept, 14:00–15:00 HKT 📍 Main Stage, Abstract Hub 🔹 Session: Abstract Oral 9 Worth an hour of your Congress. 👇 @GlobalCCN_org @UICC @ABCGlobalAll @GlobalCRC @theIBTA @knowyournodes @WorldBladderCan @OvCancerDay @worldpcc

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International Kidney Cancer Coalition @ikccorg.bsky.social · 25/08/2026

📣 Five years on from COVID-19, are cancer patient organisations really recovered? Our network @GlobalCCN_org asked 96 organisations in 45 countries. Their poster is presented at the @uicc World Cancer Congress:

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International Kidney Cancer Coalition @ikccorg.bsky.social · 24/08/2026

🎗️ One month to go. On World Cancer Research Day, 24 September 2026, the 5th IKCC Global Patient Survey on Kidney Cancer will launch. Every response helps us identify gaps and work towards better care for people affected by kidney cancer.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 12/08/2026

🌍 IKCC 2025 Global Patient Survey: Who took part? The 4th IKCC Global Patient Survey gathered responses from 2,677 people across 46 countries, 2,049 patients (77%) and 628 carers (23%).

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International Kidney Cancer Coalition @ikccorg.bsky.social · 10/08/2026

We’re pleased to welcome Kidney Cancer Australia into IKCC global network. 💙 Together, we’re strengthening collaboration and the global voice for people affected by kidney cancer. Explore the growing global kidney cancer community: ikcc.org/about-ikcc/o...

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International Kidney Cancer Coalition @ikccorg.bsky.social · 28/07/2026

Eric Jonasch, our Chair, attended #KCRS26 where he presented a poster on the IKCC Global Patient Survey. (1/3)

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International Kidney Cancer Coalition @ikccorg.bsky.social · 23/07/2026

Together with the Global Cancer Coalitions Network, we’re pleased to share the four guiding principles for better shared decision-making (SDM) between clinicians and patients: (1/3)

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International Kidney Cancer Coalition @ikccorg.bsky.social · 23/07/2026

The 5th IKCC Global Patient Survey on Kidney Cancer launches on World Cancer Research Day, 24 September 2026! 🎗️ This launch marks an incredible milestone — 10 years of listening to and learning from the kidney cancer patient community through the collection of patient experience data. (1/2)

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International Kidney Cancer Coalition @ikccorg.bsky.social · 17/07/2026

July’s edition of our newsletter is now available. It includes results from World Kidney Cancer Day, details for the Global Patient Survey on Kidney Cancer launch, a recap from #ASCO26, and more. mailchi.mp/ikcc/newslet... #KidneyCancer

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International Kidney Cancer Coalition @ikccorg.bsky.social · 10/07/2026

What does “optimal” SDM look like? 💡 Our network, the Global Cancer Coalitions Network (GCCN), sets out 3 core elements in its new infographic: clinical evidence and expertise, patient preferences and goals, and biological, psychological and social context, (1/2)

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International Kidney Cancer Coalition @ikccorg.bsky.social · 30/06/2026

Time, openness and health literacy are the biggest barriers to shared decision making, and biomarker testing adds complexity. 💡 Our network @GlobalCCN_org has mapped these challenges and the enablers that help in a new infographic. We see them every day. 👉 www.globalccn.org @glcc01.bsky.social

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International Kidney Cancer Coalition @ikccorg.bsky.social · 29/06/2026

Last week in Gdansk, Poland, IKCC played an active role at the WECAN Academy, with Eric Jonasch, Caleb Egwuenu and Olivier Exertier participating, and Claudia Ungarelli attending as a speaker. (1/3)

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International Kidney Cancer Coalition @ikccorg.bsky.social · 23/06/2026

📣 As a proud member of GCCN, we're sharing their new infographic on shared decision making in precision medicine and oncology biomarkers, developed with Ipsen at ESMO 2025. Patients deserve to be true partners in their care. 👉 www.globalccn.org @glcc01.bsky.social

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International Kidney Cancer Coalition @ikccorg.bsky.social · 22/06/2026

Thank you again to all that helped make #WorldKidneyCancerDay a success! As a reminder, the Emotional Wellbeing Global Symposium is available on YouTube with auto-translated subtitles: www.youtube.com/watch?v=LfO_... We're looking forward to the next #WKCD on 17 June 2027.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 19/06/2026

What an incredible global response to #WorldKidneyCancerDay 2026. None of it would be possible without the generous support of our industry sponsors. Thank you for your commitment to the global kidney cancer community. #WKCD

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International Kidney Cancer Coalition @ikccorg.bsky.social · 18/06/2026

We are overwhelmed by the support for the global kidney cancer community on #WorldKidneyCancerDay. (1/3)

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International Kidney Cancer Coalition @ikccorg.bsky.social · 18/06/2026

We are grateful to the sponsors and partners who share our commitment to raising awareness for kidney cancer and the emotional burden of living with the disease. Check out the video below featuring Reno and Rina – a kidney love story for #WorldKidneyCancerDay. (1/2)

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